Single, sassy, saved and striving-here's my story

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pinkpower78
pinkpower78 Member Posts: 13

My name is pinkpower78 and I am 34 years old. I am an African American single mother of two children; 11 and 13 and I am the youngest child of 8. My journey started just a few months ago in August 2012, when I was diagnosed with Stage 2 Grade 3 Triple Negative Breast Cancer, also invasive ductal carcinoma? My world, as I knew it, was over! I initially discovered the small knot back in March 2012 but circumstances prolonged my capability to get to the doctor. I relocated from Raleigh, NC to Columbus, OH after living there for 7 years. I had previously lived in Columbus for 26 years. After a failed business deal gone bad and the fact that I lived with my parents and they had filed bankruptcy and were moving back to Indiana, I stepped out on faith and moved too. I, my kids and my kid’s father moved in with my sister, her husband and their 3 kids. After a month, in April 2012; we all became homeless! My sister apparently was not using the money that I and my kid’s father were giving her to pay the rent. We all went to the YWCA homeless shelter. Because I was in between jobs and had limited funds, I could not get healthcare; hence, I could not get to the doctor to see about this knot that was now twice the size. Because my sister was evicted while I was at work, all of my things; including myself and my kid’s social security cards and birth certificates; were set outside and lost!! Because of this reason, I could not go to social services to try and get help because I had no identification. The shelter helped me get the birth certificates and social security cards, which came a month later. Moving right along, myself, my kids and my kids dad got on our feet; and with the help of the YWCA were able to secure a low income apartment, we were thrilled! With us both working, things started to get better in April 2012. In July 2012 I finally got my Medicaid card in the mail and immediately scheduled an appointment with my family doctor. 2 days before my scheduled appointment, I ended up in the ER due to severe pain in my breast. I was immediately referred for a mammogram. On August 2, 2012; the day after my oldest child became a teenager, I got the disturbing news of my mammogram results. I have since then had emergency surgery for a port and have had 3 rounds of chemotherapy. My first round of chemo was September 19th 2012; 8 days before my 34th birthday. My kid's father left and abandoned us the day before chemo started; stating that he was not ready to deal with any cancer. After my second round of chemo on October 3rd 2012, by that weekend; around October 7th 2012 I removed my head scarf to discover that all; I mean ALL of my hair was in my scarf and not on my head! Even though the oncology nurses had warned me of such, I was still devastated! Because I was not able to work anymore due to the hectic chemo schedule and the sickness that lasted for days after, I was threatened with eviction. With no money and no help in sight, my 2 children and I were forced to move in with my parents. I was very thankful for that; seeing that I was just homeless months prior. The problem was they lived in Indiana and they had a small 2 bedroom apartment. So the guilt of having to move my children now for the 3rd time this year and being crammed into one room left me feeling hopeless! Today; November 2012, I am happy to say that I have food and shelter and support from my parents and I have began chemo treatments here in Indiana. The enormous mass has shrunk a bit and I am treading along on this journey. My oncologist was concerned that the tumor was not shrinking quickly enough and referred me to a breast surgeon. I met with her last week and she suggested a single radical mastectomy, it is scheduled for next week on Thanksgiving. I am soooo nervous and anxious because she said that one possibly two of my lymph nodes are swollen and that may indicate involvement. In addition to that, my hemoglobin is 7.9 and I may have to have a blood transfusion on Monday if it hasn’t gone up to at least 10. Has anyone out there had a blood transfusion or a mastectomy?  So sorry for writing a book but I am in such a panic for a number of reasons! I always bragged to people that I have never been in a physical fight in all my life but I tell ya I am in the fight of my life!!!! I have to survive to be here for my kids! I just need encouragement! I am praying for us all that a cure will be found!!!

#teamkickcancersbutt!!

Comments

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited April 2014

    PinkPower - We are all thinking of you on Thanksgiving Day, as you have your surgery.  Keep us posted.

    xoxo

  • marywh
    marywh Member Posts: 2,280
    edited November 2012

    You have absolutely come to the right place. There are many on these boards that have had a mastectomy. Its natural for you to be scared. Though I have to say that physically it was not as hard on me as I thought it would be. Losing my hair was much more traumatic for me. Of course being 54 my boobs were not the best anyway.

    i hope you find support here and Im so glad you have your parents to stay with and help you get through all your rough days.Hugs and prayers to you and your family over Thanksgiving.

  • pinkpower78
    pinkpower78 Member Posts: 13
    edited November 2012

    thanks all for your thoughts and prayers! I made it through surgery! I had to stay an extra day in the hospital because I was allergic to the pain medicine and was itching like crazy! I am still in shock and have not brought myself to look at the actual incision, I go to see my surgeon next tuesday to remove the drains. Just have to wait for the pathology report to come back to plan the course of action. 

  • Trina25
    Trina25 Member Posts: 99
    edited November 2012

    Your story is touching and I can relate to your struggle. I may not be able to answer your questions but I understand some of your difficulties. For starters not being financially stable and having access to proper treatment. I know this a huge factor amongst the African American community , I noticed my lump but it wasn't much that could be done with out insurance and I received a grant to see someone initially. But it stopped there I was told by ultrasound that my huge lump wasn't cancer but I still wanted it removed, I couldn't get funding for it and again being told it wasn't cancer I decided I would come back when I had insurance. I came back to schedule my removal and still was told it wasn't cancer even tho it doubled. If it wasn't of me basically not liking the look of my breast the cancer would have remained. I didn't receive the mammogram or needle biopsy that could have confirmed what my lump was,but I received all of that on the other breast when sometime very tiny showed up after the initial breast cancer diagnosis that was discovered once the lump was removed and studied. I am currently living with my mother and my six year old daughter and jus finished my 3rd chemo, I have 3 more as well as surgery again and radiation. I am happy that I am young (25) n other wise healthy but at this time I should be focusing on my future. Lol I am probably going completely off topic. But all in all you are not alone and I understand your struggles. This is hard but I truly see a new platform , a way of getting awareness out and my testimony as well as yours will help the next person again sorry if I didn't answer your question.

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