The Hermit Club
Comments
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Turned blue quickly (mood) but dh dragged me to see Lincoln (expect Daniel Day Lewis to get an Oscar nomination) to try to snap me out of it... And, markat, thought of you. There was a Les Miserables preview--Anne H singing her heart out. I usually turn deep blue before onc appts. Shouldn't, but tired of the roller coaster and the ouches. I don't like myself when I get whiney.
Teka--be sure to look at overstock.com. Some of their prices/products are pretty decent.
Camille--I love this nest. Even though a relative newbie here, you all have made me feel uniquely welcome and accepted. I just recently browsed a couple of other threads, and there is gloom, doom and some unkind spirits lurking about. You can count on me to share this nest with you for the long haul...
bgirl--whatcha knittin? Another lifetime ago, I made a sweater (ooh, aahh. so impressed with myself) but now I'd be lucky to come up with a straight scarf...
markat--pain lessened at all? Prayers and hugs your way... (((( mk )))))
whaevah--yay, dh! Glad he's looking out for you. I need to exercise more. sigh.
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Camille, I promise I'm sticking around.
Teka, hope you found a nice bedspread. I desperately need a new one! There should be some good sales everywhere now. I second Overstock, Kohls, Jc Penney, or really anywhere!
Skittle- glad you got out to see the movie! I saw I funny picture on facebook about the movie, it said: Lincoln is doing well in the theaters...Historically this has not been true. LOL! Hope your blueness passes quickly. My pain is still there. It's either more constant now, or I'm just noticing it more. The pain killers aren't helping so I'm thinking a pinched nerve? Who knows. It's okay to be whiney! You get to sleep in tomorrow right? YAY!! Hopefully that Anne Hathaway had a wig on in the movie. We are fun, supportive group. Wonderful group women!
I ate way too much food today. Seriously. I should go jog around my cul de sac, but then the neighbors would think I'd finally lost my mind and probably call the ambulance.
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Oh skittle stop whining and do some real wine LOL
Oh skittle u'r not whiny to us--I've actually been blue sometimes too, and I'm usually not, So it is a roller coaster and I've always gotten sick on those things.
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Just having a quiet day. DH was on computer this afternoon, but he has gone out for the evening. So just me my cats and my knitting.
Trying to psyche myself up as I really need to do some major cleaning this week.
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This woman of little words, ruffled plenty of feathers on a former thread. She received many kind public and private posts, but was ready to get on with BC journey. I love to skim the "Active Topics" threads during the weekends.
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Yeah, I mostly lurk on a couple of other threads, only post ocassionally. There are definitely some opinionated people on this board. Mostly I just post if I think I can help someone. The other thread of 40 something women moved to facebook mostly to get away from BC thing. Talk about it a bit but mostly it is just about are lives like this thread.
Knitting hats and mitts at the moment. Some for our mitten tree at church - they give them to 3 inner-city schools near our church downtown. We also run a breakfast program at one of the schools. There is so much need it is sad sometimes.
Wishing everyone a good sleep and sweet dreams.
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bgirl--know what you mean. every year providing at least a few jackets and pairs of shoes for my students who come to school thread-bare... Can't accept a child freezing... more and more distance between haves/have-nots. Good for you--knit on!
camille--guess i'm stuck w/myself. Have never learned to like wine. Sometimes think a soft buzz would be nice now and then... but i'm an as-is. No artificial ingredients. :-) unless you count all the bc mess, which i guess i have to. I never even used to take an aspirin!
teka--couldn't help but laugh with your kitty picture right by "ruffled plenty of feathers"! Kitty pic looks so satisfied...
poor birdie.
ladies, sleep well.
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Jane that's so sweet for doing tht.
Oh Teka I like to see quibbles sometimes--I do post and go on a few threads but I really don't belong on them---cuz thee women are so knowledgeable and adamant about everythin and I don't know anything to add but silly stuff--When I first came to the boards I didn't have anything on the bottom of what my stage or anything --after a few posts I got a PM (honestly don't remember who) and they asked do I really have cancer, because they didn't want people on here to just yap away. So I had to find out just a little from my Dr. and she said to me I was the onky patient she ever had that didn't pay attention to anything she said and I emotionally detached myself entirely from having cancer and that's what saved my life---so she actually admired me for doing that. And I said no, I just didn't understand anything she said and to lazy to look anything up. I can't even add anything to alot of these posts-I don't have a clue. hahaha Right now O'm laughing. But Teka I find this one very comfortable cuz we talk about life and stuff and if we just need to talk or rant that's fine too.But I'm not writing a thesis on cancer so my knowledge is almost nil. LOL
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I can't imagine Teka ruffling feathers!
I wish I was a millionaire so I could help all the kids. It makes me so sad. -
Markat I think like that too but can do nothing. Not even volunteer anymore--but I think most people really feel like helping others cuz u can just feel kindness from people
And u'r right about Teka--I think she made it up hahaha-u'r so quiet Teka LOL
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Well, we wouldn't be millionaires for long then would we Camille? I guess that's how some people stay rich, lol.
I think most of the threads on this board are fine. It's hard to convey emotions through written words so the message gets lost sometimes. Some women don't understand why some have a hard time through chemo or after surgery because they never got sick or had pain. Those dismissive attitudes can be hurtful to someone that is in agony. The superwoman attitude is hard enough living up to when you aren't pumped full of drugs and cut on. -
Hello Hermit!
I had a fabulous day! My sister had a birthday party for mom. My great niece made the cake, all 4 years of her, a rainbow cake with sparkles, of course. Her little brother, not to be outdone, sat in a chair and licked the beaters. Mom wore her 'bling' a chunky necklace I sent her last year over top her PJ's. Her day her way.
My sis skyped me as I was laying in bed drinking my coffee thru a straw, and gently asked."think you will be up to seeing mom". Code for..want to put your face on? So after 5 attempts at eyebrows, angry brow, surprised brow and 2 near hits on the Tammy faye Baker look, I finally succeeded in a near natural look...geez, hard work to look unghostly.
Well, everyone said I looked good, and that is SO comforting to my mom, who cannot travel. And I cannot travel as I have shit to do, like radiate the breast, take some meds and grow hair on my head. I promised her I would see her in the spring. She is ill, something to look forward to.
Big week for me, new dishwasher, work
, RO appt tomorrow for tanning schedule and a cocktail party on Tuesday in my honor. I will be mainlining Taxol, for the last time thank frogs, as it really is terrible and I am sick of it. Speaking of cocktail, my wine last night was glorious. One whole glass that I savoured. About time.
Well now, rather long winded
hope all are well and will catch up soon...darn spellcheck doesn't work so blame it on chemobrain
oh and markat, our show was boring, the worst really. I miss kristen w and her little tiny hands skits. I can laugh just picturing her catching the bubbles.
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Whaevah... Happy Birthday to your mom. I'm sure the time you took to look more "normal" for her was appreciated, although I'm sure she would be happy to see you anyway. Tough when our parents are ill too. It doesn't sound like you will be much of a hermit this week.
Cami ... I like doing the knitting for the kids. Also some will go on a mission to kids who live in the the north. Some of the other work we do in the craft group on Wednesdays is to make teddies, blankets, etc. These go to an orphanage is South America and some to Africa. Just wrapping a new born baby to preserve warmth saves lives in some countries. Mostly I like it because I prefer to do "good deeds" quietly in the background. I have MC'd a charity fashion show for 300 people, so I can do it if I have to (my years of doing corporate training kicking in) but not really my style.
I also think the shared decision making is a bit of a farce. I want to be informed and understand, but really who has the medical degree? Knowledge of oncology and drugs, etc. I am an intelligent woman and smart enough to know when it is better to listen to people with more expertise.
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Whaevah, I almost spit my coffee out laughing! Tiny hands! I'm glad your mom had a good birthday! Yay for tomorrow! So exciting! Hope your appointment goes ok today!
Teka, I'm not sure what you did to upset anyone, but know that you are free to talk about anything you want here. I was bored and couldn't sleep last night and looked up some of your posts. Sounds like you are an amazing cook and cleaner! I would love some of your recipes! After chemo I was really into cooking, like making everything from scratch and reading chowhound and begging for All Clad cookware. After surgery I just never had the inspiration again. I'd love to get back there. -
But Jane, I received my medical degree from Dr.Google, lol. Who cares what some silly doctor thinks who went to school for over ten years thinks :-)
I just went with what the docs told me to do also. I once told my onc that I would probably eat shit if she told me to, lol! That was before we knew about the cure for Cdiff.
So awesome that you knit for the kids. I can't even sew a button on. -
ood Morning Peeps---
Teka so u have lots of recipes? But the big question is are they easy ones LOL.
Whaevah u've been busy and glad u got to celebrat with u'r Mom and I'm sure u looked great for her.
Much more diarrhea last night for me Ugh I really had a bad time. Did I read on this thread now their putting some type of worms in people with chronic D so the worms eat the bacteria--The 2 things that they are coming up with for D are so disusting.All I kniw is I'd better be all right for TG--I've missed Holidays because of this damn stuff.
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Oh Camille I'm so sorry. I don't remember reading anything about worms...yuck. I'm so sorry. I really hope you feel better before the holiday.
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Markat I don;t tell u guys for sympathy, I'm just so crabby and bodily tired and I feel like u guys know me enough that I can come here and rant. This has veen going on for 5 years now--U'd think I'd be as skinny as a rail, and I'm ovderweight. Last time I was in the hospital for this they really saw what I meant--I think originally it was thought I just had loose D--but when they saw litteral explosions of black water with no warning and they knew this was different and I can't make it to the bathroom. It takes everything out of me LOL and I'm like useless to do anything else. I'm sorry relly I'm just going thru a poor me today--I'm worried about my heart issued and honestly the limp on my rib does not concern me even thos it concerns the Onc. All that concerns me about canceris the SE. that's silly but I've had the same etting worse for 5 yrs now. So I'm on a rant today. EVERYONE be patient with me.
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You know by now that we will always listen and you can rant all day!! I wish they could fix it.
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Hahahh Markat todahy might be the day. LOL
But I will say I'm curious about Teka--I can't imagine u started any upheavel , I' LOLing about it still.
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I don't want Teka to think I'm a crazy stalker- I promise I'm not!! The only thing I could find that might have set off an alarm was that she may have posted on the stage IV forum once. But that was deleted and just through a quick search. Her other posts are so caring and helpful that I can't imagine that anything she would say would be hurtful!
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Oh Market that could be it--when anyone chimes in that isn't stage IV all hell breaks loos--that is why I don't really o on there.
Those women are so couaeous and so brave but it is depressing and if someone gave an opinion on that post and wasn't stage IV they' get blasted. So maybe Teka tread where she shouldn't, but I wanted to look too LOL cuz she's so sweet to us--but I really didn't know how. I uess we can ask? hahahaha
OK Teka u have peeked out interest what thread was it? LOL Markat and e are like curious George over here. This keeps us busy and our minds busy. hahaha
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Hopefully we haven't scared poor Teka off. Thank goodness I'll be going to work soon so I can quit playing amateur detective and obsessing over Christmas sales. God forbid I do something constructive like take a shower or hang up laundry, lol!
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Markat it's so much easier to do rhe things that interest us than do laundry. hahaha
Teka don't let us scare u off---we just have to much time on our hands,--Well I do.
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Me too. I've completely wasted the entire day. And tomorrow I get to go see my wicked BS.
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U'll be busy soon Markat u're whole life will be different and that'a good, u'r young and u should be in the thick of things, enjoying u'r self too.
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Ladies,
The thread was ------ drum roll ------ Calling all TNS. Met a bunch of fine ladies! I deleted all the posts.
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Well I woke up to one of my rare high energy days, so I decided to make the best of it. Cleaned my kitchen cupboards, threw out stuff that was questionable, put some good stuff aside. Things my kids eat, but I don't, cleaned my oven (ok bit of a cheat as it has self clean) but I think it counts, decluttered a lot of stuff from kitchen that accumulated over the summer when I was living at my parents (it seemed to become quite the dumping ground) and even gently poked at hubby to fix a piece of trim that has been sitting there for 2 years. lol
Personally I don't think anyone should have to share anything about their diagnosis or treatment that they don't want to on this site. Just because you can doesn't mean you have too. Mine I keep simple because there were huge ???s about path report, even when it was redone. So tumour size and thus staging are just a guess ... so what is the point?
Cami - hope you are feeling better this evening.
Markat - good luck with your apt. I actually like my BS ... she is a woman and only a couple of months older than I am.
Teka .... met a lot of good people on this site ... and a few crazies ... but then again maybe BC makes us all a little nuts.
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Seriously Teka...that was anticlimatic, lol! Just kidding
Glad you had a productive day Jane. Those are nice.
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