Starting chemo November 2012
Comments
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Itmguy - so happy to hear you're feeling better!
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Second day after chemo and the food still stays inside.
I know it's early since this was the first chemo. Unfortutanetly I've been through this before and I know how it is.
I'm using Granisetron. Is Emend better? I do have a problem with constipation. (well, I just read the side effects of emend, and I prefer the constipation :-))
Really, the stupid problems we have to deal with on top of this illness.
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Eleni - stay well -- did you get Neulesta shot?
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Dakota,
Thanks so much. I have had medical problems for awhile (kidney issues) and have a child with aspergers. Along with being a wife of a militery man. I take everyday as they come. This is the only way I can get through oh yea and a big glass of wine at the very end of it.
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Thanks Junebug I hope ur day is going great
Eleni,
I am sorry u r having a rough time with the food staying with u.
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Ltmguy -
Wine is good!! -
Nope, no problem with the food. It does stay inside.
The nurse told me to drink salty bouillon. I choose to drink tea and eat chips :-)
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Nope, no Neuplasta. I hope I don't need it. I want to increase my white blood cells count naturally.
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Eleni - what are you doing naturally to increase the WBC?
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I have to check my bible (a book they gave me about what to eat during cancer treatment) and I'll get back to you. The previous time I did chemo I didn't need the Neuplasta. So I'm hoping I'll avoid it again.
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That would be great!!! I can't stop eating saltines. Must be the salt I need. Nothing else is appealing.
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Questions: 1. Girls are any of you taking vitamins or antioxidants (eating things like blueberries, green tea, spinach, etc) ? I am not sure what I should be doing. If I eat/drink them, won't they counteract the chemo? The doc made me stop taking calcium. I use to eat a lot healthier than I am this week - haven't had any fresh veggies or fruit except an apple (because of stomach issues ) I miss my salads, and green foods but I don't want to mess things up. I'm sick of this creamy smooth food I've been eating just because it goes down easy (mouth is still sore) Oh yes, and I had a few scoops of ice cream at 3:30 this morning!!!
2. If we are getting chemo, why do we need radiation?
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I'm so glad to see all these positive posts about energy coming back. I have officially "hit the wall" (day 5) and am feeling very discouraged. I can't imagine at this point that I'll have a "good" day.
I was up all night with a gastritis attack, diarrhea, heartburn, etc. I am completely wiped out and feel dehydrated despite all the water I am drinking.
I sure hope that all these positive stories are the case for me too and I'll get some good days soon.
Have a great day, everyone. -
Thankful, I'm with you. I'm on day 5 and besides day 2 have felt like living crap! I feel your pain. I can't remember when I took what and what I should take next. I've been vomitting, but I just got a new prescription for phenergan, so hopefully that will help. I seem to be keeping my cookies down a bit and I had a few pringles about an hour ago. I keep drinking water.
TCH girls, what's the feel good day for most of you? I'm so over this I could cry. All I want is to feel normal, go to work and be hungry again!!
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I'm so sorry Pbrain that you are having a bad day too :-(. Here's hoping we get some relief soon. I just had some saltines......that eased my burning a little.
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Girls if its ok to do herbal teas, Peppermint tea is excellent for nausea or burning stomach. Make it really warm, but not hot. Peppermint Tea & saltines work great together.
Did they give you anti-nausea meds before chemo? Compazine and zofran are 2 really good ones.
Blessings
Paula -
Hi Ladies,
I start chemo this Friday. I had a bone biopsy and port put in yesterday so I'm a little sore, glad to have a few days to recover before I start. I also have just 2 more days with my students I'm an elementary teacher. I am really going to miss seeing them for 4 months. This is a recuurence for me and I'm a little nervous but ready to do whatever I need to. I will have 4rounds of AC followed by 4 rounds of Taxol. I will also be having a Nuelesta injection after the AC chemo, can't believe the cost of that.
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Hi! I was diagnosed September 11th had bilateral mastectomies October 8th and first chemo November 5th. I have my next treatment November 19th and am already dreading it. I've decided that I'm having anticipatory anxiety just thinking about entering the cancer center! Glad I found this forum to learn and share with other's going through similar experiences!
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Tricia (and others) I went to a 2 hour nutrition session at our cancer agency last week. It was excellent and the dietician whose job is half research/half clincian was very clear about all those foods you mention - no worries about FOOD, but supplements are different. This seems to be the biggest thing women do not understand. Here we can call the pharmacy help line for anything not food but again FOOD is good, supplements not so good.
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Hi Ladies,
I saw my onc today and I mentioned things I've seen on these boards as ways of supplements etc.....mentioned I 've seen people say that they take b12, he mentioned if you eat 1 weetbix then thats enough to not have to take B12 vitamins.....he said that also taking a probiotic won't really do anything with chemo, its not bad for you its just that nothing reallty works in ways of supplements when having chemo so you better off just eating foods that are good for you just like mariane mentioned above.
For bone pain I was just told to take Ibrufen as an anti - inflammatory ...I was having panadol as I can't take Ibrufen for my liver lesions ... 2 days and my bone pain was gone.
Oh and I see some of you ladies are loving Saltines...well I just went and bought 2 packets today because I just can't get enough of them either!!!
Hope you are all having a SE free day....:)
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Pbrain and Thankful - sending hugs and hope that you have a better day tomorrow!
Welcome sfrey - there is a lot of support on this thread. It's my favorite one.
From the sounds of it, I guess I better pick up some saltine crackers.
Not sure if I mentioned this or not but I joined a clinical trial sponsered by the National Cancer Institute. Its to see if TC x6 and Taxol x2 is more effective than the traditional AC x4 and Taxol x4. I will be monitored for the next 10 years. I got selected for the TC x6 group. I am actually relieved to not get the adriamycin. I'm hoping by my participation might help someone else in the future.
Picked up my prescriptions and am all set to start this journey on Friday. Have to admit I'm not looking forward to the Neulasta shot on Saturday morning.
Plus side -- Hubby and daughter are cooking Thanksgiving dinner so we don't have to go to my sister's house. Just don't want to deal with lots of people on the first week of chemo. A quiet meal surrounded by my DH and kids sounds perfect!
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Good on you txjunebug for participating in a trial.
I did years ago with the stem cell transplant
Good luck on Friday, first ones always the most nervey one but you'll be fine
The shot isnt bad...bone pain a little but just think in a couple of days it will be over...my pain came and went throughout the day.
Thanks giving dimner sounds nice especially if you dont have to cook lol
Take care -
Thx for being there. I finally am drinking but have such painful heartburn that im sleeping (ha) sitting up and now taking ulcer meds to coat my insides... Still wanna teach tomorrow nut oh my stomach... Rather hide if my (adult professional) students weren't so committed to their work. If this lets up in a day i will be so grateful!
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I hear you, hang in there, maybe ask for anxiety meds?
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What is the bail protein and where can i get Joseph's for eyebrows and lashes? Cant endure cold packs but this sounds doable.....
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Welcome teacher and sfrey-
Txjunebug-
I got my first nuelasta on Friday i took Claritin day before day of and day after. I stopped taking it and Sunday my calves were killing me. Not sure if it was dehydration or the shot but I started the Claritin again for a few more days.
Sick of pink love ur name!!'
Trail, pbrain, thankful, ltmguy , everyone else if I missed u, hope u r having a S/E free day!! Yay for saltines -
I got latisse but it wasn't covered by insurance what is this other stuff???
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marianelizabeth thanks so much for the nutrition/suppliments info. I will gladly get those healthy foods back in my diet and no suppliments for me.
Traii I'm putting Saltines on my list - thanks. Also found that Ginger Snaps (Spiced Wafers that are in stores this time of year) are also helpful - it's the ginger of course. Thanks for checking with your doc - wish we had Weetbix here but I never heard of them.
Junebug your Thanksgiving Dinner at home sounds perfect, especially since you'll just be starting to feel better. Good Luck on Friday and remember to drink,drink,drink lots of water it does help. - ...How does that trial work?
SFrey - Hi, welcome. This group is so great, glad your here with us. Your 2 days behind me in your treatment (my 2nd is Nov 17) and we are on the same meds - actually a lot of us are on those meds.
Dakota got some Clariatin - I will be sure to take it before my next Neulesta shot - my Doc approved it so I'm in
Sickofpink good luck teaching today- try those saltines or ginger snaps...
Teacher911 - Do you have to pay for Neulesta out of your pocket? Also find out if you can take the Claritin before the shot?
EVERYONE I was trying to write to everyone seperately but now I am confused (that's normal
) How are you doing with your weight - gain/loss? I would like to lose about 20 lbs but with the stuff I've been eating that's not going to happen! I lost a few pounds but thats because I had to "run" to the bathroom everytime I ate something. Now that I'm feeling better it coming back
Day 7 seemed to be the back to normal day for me - how about everyone else?
Have a good day everyone and remember FIGHT LIKE A GIRL!
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@txjunebug: I wanted to let you know I think I'm in the same trial; does it have a #49 in it? I get randomized tomorrow and will start 11/28.
Was really nervous about letting computer decide treatment but the onc said he was perfectly comfortable either way and the added advantage of having an extra team member help with side effects, appts., etc. is really comforting. I have to admit that I am hoping for TC also due to it being every 21 days instead of every 14 with AC/T. Although, quite honestly I have no idea if it makes a difference as to how it makes you feel.
Like you, I hope to help others in this small way. Good luck to all of you with your treatment and I hope to jump in once mine gets started.
Blessed Be, Nancy
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Tricia - My doctor suggested the trial since I was a stage 1 and premenopausal. Basically(as I understand it), I donated my tumor to the study and they will follow my progress thru chemo and radiation. After that all my check ups and some blood/tissue samples will be sent to them as well for the next 10 years. I will have semi annual follow ups for 10 years. 5 years longer than standard route. My data will be compared with others who had the traditional ACx4 and Taxol x4 to see who has the higher cure ratio. They believe the rates are as good or higher with TC as the ACT . The bonus of the TC is it eliminates the extremely rare but serious congestive heart damage and the rare cases of lukemia from the adriamycin(sp?). Another bonus - insurance is paying for me to participate.
I believe you and I are on the same chemo regimen.
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