Fall 2012 Rads girls......come on in!

Options
1222325272830

Comments

  • Aruba
    Aruba Member Posts: 543
    edited November 2012

    Welcome loveofcritters!  Your RO should tell you (and mine showed me on films) exactly what areas were being targeted from the base rads to the boosts at the end.  As for the machines, since they playing with mere millimeters when adjusting each day, I had thoughts that I hope they were right too.  I am sure they have thorough tests to make sure he machines are doing their job on a daily basis.  Where are  you getting your treatments?  I am from Cleveland as well.  Hang in there, the going to treatments gets much like groundhog day..but the end does come...and keep up with lube the boob!

    Congrats to all those ending soon too!! Tazzy...it's coming fast!

  • virginiab
    virginiab Member Posts: 205
    edited November 2012

    Dear Loveofcritters--

    One of the things the radiation techs took care to tell me at my first session was that they always had a camera on me and that if I thought something was wrong, all I had to do was wave and they would be right back in the room. I'll bet that's true where you are, too.

  • frostbite_cindy
    frostbite_cindy Member Posts: 1
    edited November 2012

    New to this discussion board. Having lump surgery on nov. 29th asked to wait till end of month so radiation could be scheduled after xmas. Early stage cancer disappointed when told they plan to take 1-3 lymph nodes. Rad will be 16 days they say. Plan to live in rochester mayo 6 hrs. from home until done. what do I need to expect they aren't telling me. They say tenderness, sunburn skin, sliver of lung damage.

  • Alicethecat
    Alicethecat Member Posts: 535
    edited November 2012

    Hello

    In case this helps people waiting to have rads or having just finished, here is my experience.

    I felt breathless in the early evenings for a week after 12 treatments. Worried about having developed fibrosis of the lung.

    Asked a chemo nurse yesterday and she thought it was just my asthma because symptoms improved after using my inhalers.

    On day 8 after the final treatment (yesterday), the breathlessness stopped!

    Good luck everyone.

    Alice

  • loveofcritters
    loveofcritters Member Posts: 39
    edited November 2012

    Hi Aruba,

    I have been reading the posts all day (4) hours! I saw that your treatments are at the hospital I volunteer at with our therapy dogs! UH Downtown Seidman Cancer Center? I had my chemo and surgery there, but am having radiation closer to home across the street from Fairview Hospital. I wonder if you ever got a visit from us? We have pomeranians. Three of them!

    It feels so nice to have a neighbor on the board!!! ;-) These posts have helped me so much already. I have been having some of the SE others mentioned and thought I was just imagining that it was from the radiation: headaches and nausea. I also have a stiff neck and upper back on the opposite side of rads...go figure. Thank you and the others so much for the advice given freely to the others behind you that need a helping hand!

  • PaEaglesFan
    PaEaglesFan Member Posts: 277
    edited November 2012

    Frostbite... They are telling you pretty normal SE's from rads. Mine looks looks a really bad sunburn. The technicians will keep a close eye on your skin and will take really good care of you. My advice to you is to take each step one at a time and try not to worry too much about what's coming up next. :)

  • virginiab
    virginiab Member Posts: 205
    edited November 2012

    Frostbite cindy--

    Don't worry about the symptoms that are reported here as they reflect the full range of possibilities, but probably not the normal difstribution of symptoms. When folks have new or unusual or particularly troubling symptoms, there are likely to post to find out if anyone knows anything about them. Everyone who is floating along with merely mildly irritating symptoms like swelling or warmth, or a bit of skin irritation don't need to talk about it very much, as we knoow it is normal and not a big problem.

    It is probably most useful to assume your symptoms will be mild. And even if it turns out that you are the one with more troubling skin issues or other symptoms, your treatment team will be able to take good care of you.

    I think that those of us who had chemo are a little calmer going into radiation because we have already had some personal experience of the g00d monitoring and care we will receive. So keep breathing. You will get through this okay, whether or not there are some bumps in the road as you drive along.

    I suspect that your biggest issue us going to be keeping yourself amused while you are in Rochester....

  • Aruba
    Aruba Member Posts: 543
    edited November 2012

    loveofcritters--That is where I did my surgery and rads.  I did not see the dogs but would have loved it if I had.  That is so very kind of you to volunteer and bring some smiles to people.  Everyone seems to get a bit different side effects.  Tell your RO what you are experiencing as I am sure they are common to many.  I still have a sorel shoulder opposite side...but think I sleep with that opposite arm streched out since I am a side sleeper.  

    Hope everyone in treatment is relaxing with a few days off!

  • Junif
    Junif Member Posts: 100
    edited November 2012

    This thread has been pretty quiet lately!  I suspect it's because many of us are near done or completely done.  I finished on Friday and found that Sunday night was peaceful as I wasn't filled with the dread of starting on Monday.  For those of you just starting, I wish you the best.  You will find a great deal of solace here.  Collectively we are the only people who will read your justified rants and shake our heads 'YES!" and you will find that on days you are so down and frustrated, just reading one of your fellow sister's experience will give you some peace. This is the place for raw emotions.  This is the place where no one judges and everyone understands. Your fears, feelings and frustations are REAL, despite what some Drs., nurses and techs may tell you.  You will find some incredible advice on what to use and techniques to alleviate the discomfort on your road to becoming a crispy critter!  It is here that you will find kindred spirits.  As those of you just starting share your questions and frustrations will develop a core of friends here.  Ultimately there will always be those who have gone before you checking in to see if they can be of help.  Some of us are graduating to the Arimidex thread..another path, another set of fears and frustrations but ultimately another set of sisters helping us out.  Namaste.

  • patti3796
    patti3796 Member Posts: 79
    edited November 2012

    Ran out of Aleo......must say finding Aleo in Maine in November is an adventure...three pharmacies later...SUCCESS !!!Cool

    I did get some funny looked when I asked for it...hoping maybe they had some out back....just didn't want to explain it was because of radiation.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Yay... day off for me today (Remembrance Day yesterday).   Only 2 to go... I am so excited and must've been very excited on Friday as on my way out of rads I forgot to pick up these 2 appt. times.  Will call them first thing tomorrow morning.

    Hope you all had a good weekend with minimal SE's.

    Junif: great post for anyone just joining... you really summed it up Smile

  • Nanka
    Nanka Member Posts: 97
    edited November 2012

    Hi all! Anyone had their gown tucked into their underwear coming out of the change room when going for rads? I did! Full waiting room and me, at the watercooler, skivvies showing. Too funny!

  • Outdamnedspot
    Outdamnedspot Member Posts: 297
    edited November 2012

    I haven't started rads yet and will find out tomorrow when, but Nanka, that is one thing I will make sure I check!  

    I just started reading the threads here and thanks!  Great info and some laughs:)

    Jackie

  • loveofcritters
    loveofcritters Member Posts: 39
    edited November 2012

    Tazzy: Almost done! Almost finished with this, yay! Do you have a celebration in mind? I don't have any idea what I could do at the end of December, but I will have to think about that one.

    Nanka: No I never did that, but I could see it happening to me. You are laughing and that is good enough for me.

    Junif: I learned so much from you, thank you!

    Virginiab: You are right to caution us to be aware that the ones who haven't experienced extreme symptoms probably don't post as often as the ones that do because they are seeking help and comfort. I have to keep that in mind.

    Treatment 3 of 31 today. So far it feels like a sunburn but not red. Saw the doctor today, and just like my sisters posted before me, it was a big nothing for which I will have to pay $50 co-pay. It is necessary, I guess, to make sure that there isn't anything going on that they should be aware of. I like my short little Italian doctor to pieces... he is so down-to-earth. He reminds me of that male housekeeper for his female boss...what WAS the name of that show? can't remember!

  • Junif
    Junif Member Posts: 100
    edited November 2012

    loveofcritters--Who's the Boss??  Wasn't it Tony Danza??

  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    nanka:  that is a hilarious visual - oh! my... Lucky that these days things dont embarass us like they used to.. least they dont me Embarassed

    Day off nuking today - Tuesday & Wednesday last days.  I am going back to visit my family in Englan d when I am finished.   Wednesday DH & I will go out for a nice meal and bottle of wine.

    gentle hugs to all xxx

  • jkg
    jkg Member Posts: 11
    edited November 2012

    Tony Danza! Eh Oh - Oh Eh! Loved that show. :)



    Tazzy, from one Canadian sister to another... Congrats on almost being done. Celebrate - you deserve it.



  • guineamom
    guineamom Member Posts: 62
    edited November 2012

    3 more days then I'm done.  :)

  • xtina
    xtina Member Posts: 60
    edited November 2012

    Hi ladies!  I haven't posted in a while. I was thinking about you and wanted to check in and see how you were all doing, it's graduation time for so many!  Just catching up on all of the posts. Congratulations to all! I'm so glad that everyone seems to have held in there pretty well for the most part - I'm sending good vibes for skin healing out!

    Welcome to everyone just starting as well! 

    I hope that everyone has a great Thanksgiving. I don't know about everyone else, but at this point all I want to do is to spend time with the people that love me and those that I love.  Nothing more. I wish all of you happiness and love this Holiday season.

    Two weeks out here, boob is just tan now.  So one is tan, and one is pale - looks a little goofy but that's about it. No apparent changes in size or anything, it was swollen at first but its returned to its former size.  I know that "they" say that changes can occur for several months though. 





  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    Hi All-  This is my first post, but I have been "lurking" since summer - cyber shy?  I just wanted to congratulate those who are finishing up.  I was diagnosed a week before Tazzy and am just starting radiation- today is 4/33. You guys have all been an inspiration to me, especially since I live in a house full of men.  Good people, but zero empathy!Laughing Anyway, I hope all you graduates kick back and celebrate!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Welcome cowpower: as you have seen you will get as much support, love, comfort, laughs you need here.   You will soon be where I am Laughing

    guineamom: yay for being nearly done - isn't it a great feeling knowing it's soon over.

    gentle hugs to all xxxx

  • loveofcritters
    loveofcritters Member Posts: 39
    edited November 2012

    Cowpower welcome. It seems we are on the same schedule. Today is 4/31 for me, too. I wonder how they determine how many days? We will finish up about the same time...just in time to start the new year right.

    Jkg & Junif: Yes, that was his name Tony and that is my doctor's name too! hahaha I get a little flustered when I need to lift my blouse Innocent

  • PaEaglesFan
    PaEaglesFan Member Posts: 277
    edited November 2012

    Is anyone else finding rads more difficult to get thru than you thought it would be?  

    32/36 and I feel like my boob is ready to explode.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    PAEagles.... yes I am finding rads harder than I thought.  Everyone kept telling me it was a walk in the park compared to chemo... which it is.   But I really thought I'd not get fatigued or burnt like I have.  I have olive skin and really believed that as I'd never been sunburnt why would rads hurt me - ha ha !!  Oh! the arrogance.  After surgery I was doing so well with the mobility in my right side, now rads has limited the mobility - which I am told is quite normal.  I am just tired of it all really - been a year of appointments/scans/tests.   I am so happy to have only 2 left... wonder what I will do with all that spare time?

  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    love of critters-  You finish before Christmas?  That will be nice.  I have to go back on the 26th because my start was delayed. It seems I needed a "complicated" plan, lol.  You can pull me across the finish line. You are right-  here's to hoping for a smooth and healthy New Year for all of us!

  • Nanka
    Nanka Member Posts: 97
    edited November 2012

    I just felt that rads were a constant daily reminder of what is going on. At least with chemo, you get a break after each treatment. Still have a little discomfort 2 weeks after end of rads (the breast tissue is sensitive) but getting better every day.

    Michelle

  • PaEaglesFan
    PaEaglesFan Member Posts: 277
    edited November 2012

    Thanks for the update Nanka.  It's always great to hear from those that are further down the road than me.  Keeps me motivated!
    I am dealing with an area on the underboob that blistered and just refuses to stop weeping no matter what I do.  Thank goodness it is out of the boost area.  On Saturday I laid on the bed with the fan pointed right at it and 2 1/2 hours later I woke up from my "nap" and decided it was time for bed lol.  Chemo wasn't NEARLY this tiring.  Maybe I babied myself more while I was going thru that than I am now.  I remember thinking on day 2... "How hard can this be?  All I do is lay here for a few minutes!"
    And Tazzy, YES!  I had wonderful ROM after surgery.  Now I have a lot of tightening and sore muscles in the underarm.

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited November 2012

    Meeting with my RO today for the first time to figure this all out. Not really looking forward to it. Ready to be done with all of it!

  • Aruba
    Aruba Member Posts: 543
    edited November 2012

      Hi gang,

    TAZZY...that podium is ready for you and big hugs awaiting!!

    Xtina..so good to hear from you! 

    PAEagles- I too am 2 weeks out..the underboob has peeled and healed...the boost area if about done peeling..that comes last since it had the extra days of zaps.  Keep airing away..that helped me he most.  I still am loobin and that is helping out too. 

    So this phase is ending and I went to my MO today for only 2nd time.  She did a quick check and said I am good to go for exercise (IE no more excuses???).  I'll go visit my dad in Fla soon and swimming is ok for skin now too.  Also, Arimidex script has been written and she also tells me take a baby aspirin daily as it helps lessen recurrence..that was new to me.  I asked if flu shot was ok....she said yes and gave it to me right then.  So on to a new chapter of different side effects...or hopefully none.  For those still in rads..it does end and so does the SE!  Hang in there! 

  • patti3796
    patti3796 Member Posts: 79
    edited November 2012

    Good Evening....saw the MO today and will be joining many of you ladies on Arimedex.    I had done all my research about Tamoxifin vs Arimedex.    I had Arimedex last time and in our initial consult he talked of me using Tamoxifin this time.    So I was all set for a long discussion....he broke it down pretty simply and quickly....Arimedex can cause bone loss....Tamoxifin can cause blood clots.       Both drugs are effective.    I decided with a bone scan we can see what is happening with the bone loss....where a blood clot there is no warning.   He basically left the decision to me and I decided since I did Arimedex last time with minimal side effects would try it again.   Hopefully/Prayfully the second and last time on this hormonal.

    Thanks to those that have finished that have returned to keep us updated on their healing process.

    Patti

Categories