January 2012 chemo
Comments
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It's me!
6am Monday morning here in the hospital after my BMX with free TRAM on Friday. Past few days were really challenging with meds and nausea :-/ Seem to be on top of it now though.
Catheter came out yesterday and hoping at least 2 drains will come out today.
Surgery was 12+ hours I gather but all went well. I had a positive breast node last December and I had refused the ALND. Done chemo, herceptin, a few rads and Tamoxifen since then and BS saifd there was a small group of breast nodes he removed with the forst one looking a bit "solid". Pathology will hopefully show dead cancer cells - if it shows live cancer cells we will know that the txs so far have not completely worked. Should know pathology on Thursday.
Not panicked yet... Breasts look good :-)
Jenn -
Jenn, it's so good to hear that you are doing well. You sure have been through the whole lot of treatments -- and now finally this! Let us know what the pathology shows. You continue to be in my thoughts and prayers.
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To all you super ladies, Joyce, Denise, Jenn, Jane, and NcBeach gal who so graciously responded to my question regarding nausea meds for my friend, thank you so very much.
Before I was even able to give her the suggestions she landed in the hospital for 8 days, with diverticulosis that they attribute to the chemo. When she is well enough they may be looking at surgery.
Again thanks. You are certainly a rare group.
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Rosieo - hope your friend gets better soon :-/
Day 4 and 4 of my 6 drains are now out. 3 yesterday and 1 today. Only have the 2 abdominal ones left in and hopefully they will both be out by Friday when I go home.
Walking the hall today...
Jenn -
Wow, Jenn, you are doing great! I left the hospital with all six drains!
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So glad to hear this!! Why those drain removals make one feel so much better!
Glad you are walking the halls!!
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Paying for the walking... Just had to call for backup pain relief :-/
Jenn - closing eyes at 8pm after tramadol and oxyconton... -
BS has been in this evening.
While the enlarged node they took out during my surgery last week was reactive there was no cancer in it, or in any of my breast tissue from either breast :-)
So happy...
Jenn -
Yes great news Jenn
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YES! YES! YES!
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All that chemo and suffering sure does kill cancer...thank God!!!
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Anybody out there heard of avascular necrosis? I have been tentatively diagnosed with it in my knee -- and it can result from chemotherapy.
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Joyce - never heard of it! But just looked it up and read about it! What were your symptoms???
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WOW! Another weird thing they don't warn you about...
Hope they have caught it early Joyce and do they have any treatment suggestions?
Jenn -
I twisted my knee at the beginning of August and it just never got better. I can't bend it and it has been terribly swollen and painful even to the touch. I got a cortisone injection 8/20 after Xrays (the orthopedist said -- do you know you have arthritis in that knee? I said, who doesn't at 55? Anyway, it still didn't get better -- in fact, at times seemed to get worse. I had an MRI on Friday and the ortho came in to look at the tests and said that although he is not a radiologist, he sees a torn miniscus (probably the actual injury) and avascular necrosis (which, of course, I had never heard of before). I'll see him Wednesday after he gets the radiologist's report. In the meantime, he put me on a course of steroids and told me to use a cane.
I'll update you Wednesday. But, really, potentially caused by the chemo?????
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Hi everyone. For you that are not on Facebook I just want to vent a bit. My husband had a small cerebral hemmorage last Sunday morning. The docs. think it was from a Cavernous Malformation in a blood vessel. (You can google that if your interested). However the lesion also looks like a possible metastisis. So now we are in limbo for a month while he gets a whole bunch of tests to look for a primary cancer. Then a repeat MRI of the head to see if the lesion has grown. Hopefully it will turn out to be the CM which is in a good location for surgery if they decided it is necessary. He is home and the only effects from the hemmorage are paralyzed facial muscles on the left side of his face and slurred speech from that. He seems a bit better every day and his spirits are picking up. We are supposed to travel to LA for our grandsons Bar Mitzvah in late December but that trip is now on hold. Thanks for listening. With G-d's help we will get though this. 2012 is not going to be recorded as a banner year for our family.
Peggy
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I hear you, Peggy! I just found out that I will need a knee replacement. Enough already!
I'll keep you and your husband in my prayers.
Joyce
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Peggy - so sorry you have to go through this on top of everything else.
Joyce - oh my knee replacement so sorry!!
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Oh Joyce that stinks. Sorry you will have to go through that.
Peggy I am keeping your husband in prayer.
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Peggy - I am hoping it turns out to be the congenital problem...
Joyce - my cousin who is a year younger than me at 46yrs had a knee replacement 2 years ago. If you saw her now you would not even guess she had been through that :-) She is definitely not disabled because of it.
Jenn -
Haha - went to the hairdresser yesterday and tried to turn from my dark brunette to a nice shimmering blonde. I came out 3 hours later with what my husband is kindly calling "honey" coloured hair. Seems that the chemo affected hair was more of a challenge than they thought... You can see the evidence on my Twitter feed @Jenntrix . It's good for a laugh :-)
Back to work tomorrow!
Jenn -
Jenn. Better shave it and start all over again. LOL
Peggy
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Getting used to it :-) They have assured me we will get to the right colour. I have special shampoo, conditioner and a once a week mousse to use. Then I go back in a few weeks and they take it to the next stage. My godson's girlfriend assures me this is not unusual when trying to go from brunette to blonde!
Jenn -
Jenn - you look great! I'm so afraid to do anything with my hair right now. It came back a little more grey and I have a serious case of chemo curl. The top is more curly than the sides. Everyone at work likes the new 'style'. I'm not so sure. I'm going to give it a few more months and then decide whether I'm brave enough to cut and color.
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I'm still pretty bald on the top -- and what's growing in is white. The sides are dark brown (almost black) and are coming in like peach fuzz. It's still not long enough to go without the wig at work.
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Mine came in very dark with lots of white sprinkled in. I dyed it as soon as there was enough hair to do so. Mine came back with these tight curls (I have always had straight ahir) and more on the top than the sides also. I am holding off triming it until it gets a little longer. I really don't like it and maybe it is more so that it is a constant reminder when I look in the mirror than it looks as bad as I think it does.
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Sorry I haven't been around here much. Needed a BCO break during Pinktober. Oy - did anyone else have a problem with the over-abundance of pink last month? So many friends had good intentions and were thoughtful and kind and sent me all sorts of pink stuff. I don't mind being defined by my boobs, but hate being defined by my cancer.
Anyway...
Peggy, I'm so sorry to hear about your husband, and sorry I haven't sent my thoughts sooner. Please let us know how he's doing - and how you are doing, too. You're both in my thoughts and prayers.
Love your hair, Jenn! Mine looks like a tortoise-shell - multi-colored and really quite lovely. I haven't gotten a haircut yet. And it's starting to curl in some spots, so I often look "messy". But I love it, and am happy to have it back! Refusing to EVER color it again, just because I don't want to have to deal with the upkeep (although, after all of this, I wouldn't think twice about shaving it all and starting all over again!)
I'm going to start seeing a counselor soon, I think. I'm having a struggle with getting back to normal (whatever that is) and not being Cancer Girl anymore. Everyone else has moved on, but I feel a little stuck. It's hard to explain. Saturday is my Cancerversary; my DH has some really sweet things planned so that we celebrate our lives and how they've changed for the positive in the last year. He's really been my rock.
Anyway...love to you all, and thinking about you always!!
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Nancy, the counsellor is probably a good idea... Really, I don't think you have to be pushing to be "normal" by now. Most of us who started at the same time are even still in various stages of treatment, as are you with your aromasin!
I have a brain CT in 2 hours. I have a bunch of little SEs that individually could be from Tamoxifen, but combined could be brain mets (headache, nausea, vision issues) so off I go - yet another reminder that things are not "normal" and I don't think they ever will be again :-/
Will let you all know how I go, but won't be getting the results immediately - maybe not until tomorrow.
Jenn -
Nancy - I can't believe a year has passed! My 'cancerversary' was Saturday. So much has happened since then! I've been seeing a counselor for a few months now also. It seems once the active tx was done after rads, I had time to start 'feeling' again. I know what you mean about everyone moving on. I don't want to be cancer girl anymore, but I don't know how to be normal either. Cancer was/is part of me, but I haven't figured out how much a part of me I want it to be. It feels really good to have this neutral person to talk/vent to who can help me put everything in perspective. As a bonus, she is helping me deal with my weight issue. I never realized how repressed I am!
Jenn - My thoughts and prayers are with you. I know every pain or cough has me worrying. I have an appointment with my MO this Friday. I have a few issues I want to discuss with her. Its hard not to worry about mets. I almost feel doomed - that it is really just a matter of time before the other shoe drops. This is where the counselor comes in handy. I can share these fears with her and leave my DH blissfully unaware of my continuous fear.
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My brain is full of brain - and nothing else! The nurse phoned me just before I left work this afternoon :-)
My veins are so shot in my useable arm though. The tech failed on the first stab to get the canula in for the contrast and left a large swollen bruise that is still hurting almost 12 hours later. I couldn't help but cry this morning - it hurt so bad when she was trying (digging) around for a useable vein. What on earth I am going to do when I'm in my 70's and have no veins left to use...
Jenn
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