Fuzzy's Romp Room

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  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited November 2012

    OMG! That is AWESOME Essa. I can't wait to see it!!!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012

    LoveEssa....what's that "raspberry stuff"? I love raspberries....

    Deli....whew girl! That's a lot going on for sure! Do you keep check off lists? I've been trying to do that...for a few reasons (Dunes...you might like this too)...but, it helps me feel more in control, more motivated, and kinda glad when I can scratch stuff off...

    Everyday I think about getting stuff "scanned"...I haven't really had any tests since chemo. But then I think....they'd scan me if they thought something was up, right? Oh, and then there's the damn TE that forbids me to get the big tests. Oh I want that frigging thing out. Can I wait til spring? I'm I holding the world record for housing a TE??? And, as a bonus, my port will come out then too....yup. still got that sucker as well.

    Sassy in the hisouse??? What up girl?

    Had a wonderful visit with my mama Friday and yesterday. Decided I will attend my aunts appointment on the 27th. She lives in Southern Ill. Is that close you anyone? It'd be great to have lunch or something!!! I'm geographically retarded so I don't know what's where....and I love to drive so doing 7 hours in a day is easy-peasy (as long as I'm feeling good). I have that entire week open right now so....just let me know!

  • dogeyed
    dogeyed Member Posts: 884
    edited November 2012

    DUNE, awwwwww, I huggy, I lovey, I wuggy you, and I think you are so polite, willing, and pleasantly direct.  I am SO sad your friendlies have not been forthcoming, perhaps you are shy.  But I find you so sweet and interesting, gee whiz, if I lived in your land of ports, terrific police (there was a TV show), and so close to both D.C. and NYC, why, I would want to visit rather often for a hello and some sort of drink and IF I could ever get my house cleaned up (you think YOURS was a mess...ha, you should see mine...no, you shouldn't), why I would be a very good friend unless you hated me.  Hahaaha.  And there's a very good chance of that!  I always had problems at work, altho I did pretty good with my newspaper bunch. 

    Also, DUNE, I actually think seeing a psych bunch is a good idea!  Can't hurt anything.  They can help you get off the antidpressant, and they can give you perhaps a better tranq even (I love Valium).  I could probably do an advertisement for that drug.  "Having problems with your sex life, emotions are a total a wreck, going blind?  Then step right up, 15 cents a dance, we got Klonopin, Xanax, but the one that's guaranteed you REAL happiness (not fake happiness) is Valium.  If you'll call our 800 number, we'll mail you a free trial box of 1,000 and see how you do!!!"   Hohohoho.  But anyhow, if they say they want you on an antidepressant, please tell them that stuff is horrible and makes everything worse.  If they say maybe you could try another one.  Then tell them you aren't kidding about these antidepressants, that you've been trying to get off this one forever, and the thought of another is more than you can handle.  It's okay to say "no" in a very polite way, and since you are already polite, you'll be okay on that one.  And of course them talking to you might help some, they might have some tips.  And I LOVED you statement "functional minimalism."  That was good.  I love decor mags and fixing up my own house (but only when it's finally clean).

    MOSTLY MOM, that music box or whatever pretty item that might be, wow, I was fascinated by it, looking a the diff intstruments and trying to figure out what I was seeing. LOVED IT.

    DELILA BEAR, wow, you really know how to screw up an arm!  That's one of the better stories in this group.  There's been plenty falling all over the place.  My last post, I think I was overly worried about the connection with cancer, but it's just one of many reasons, and these doc people who know me well did not seem concerned.  Besides, I'm going to get an el-cheapo blk & white X-ray to be sure.  Also, I have peripheral neuropathy, so my feet are in extremely poor condition.  But then you go and have at it again and practically tear your boob off.  I'm proud of you having a cane.  I've been using one made by my husband, to get off the couch, and for the first couple really wobbly hours around the house, but after the post office crash... 

    Yes, ladies, I got a little melancholy in the last post.  So forgive me for thinking outloud.  But maybe it will help someone, I don't know.  I'm just glad I have this place to be nice to people and they be nice to me, we share SO much in common, and a lot of funny stuff to yuk about.  SMILES AND HUGS, GG 

  • ridergirl
    ridergirl Member Posts: 443
    edited November 2012

    Hey ladies have been lurking about but just dint have the energy to post. Seems like there really were no good days in this cycle and i really want to stop. Cant stand that o feel like crap ALL THE TIME. Sorry just need to get it out mom gets mad qhen i say it

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2012

    Fuzzy in the house, but passing a bladder stone. Ergghhh. I did make a URO appt. New doc for the list.

    Dunes buck up girl--go do something you haven't done before.     Xanax is the most highly addicting of the Benzo group and the withdrawal ain't pretty. What antidepressant are you using and what's your discontinuation method? SSRI's and SSNRI's don't like to be messed with, if you are moving to fast, they will cause serotonin syndrome---huge problem. Only dc an antidepressant under direct supervision of preferrably a psych doc with a real plan. Great harm can occur if dc'd too fast.

    rider -hang in there babe

    Gail your waxing poetic today and yesterday.

    Dehliabear---whew that was one break job.

    Must have peed every 5 minutes for the last several hours

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    I'm having a crappy day... full of anger, no energy and crying. Maybe its because I just got off the phone with mommy who is in a "gotta be nice to everyone" person. I'm in a mood to rip someone apart. UGH!!!!!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2012

    Veggy, invest in a couple of safe beaters. Also, if you need to scream. Scream into a pillow. Otherwise you will lose your voice. No clue why it works, but it does.  Sorry sister this all sucks. L&H&P's sassy

    Passed the stone whew 5 hrs.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012

    GG:  Honey you can talk about anything and it's like BUTTA!!

    Sas:  Oh my.  Ouch.  Oh...wait, you probably already stopped reading to go pee...;)

    Veggy:  Those happy-go-lucky people are JUST LIKE the drunk fun people when you're the sober one.  Super annoying...

    I feel like I just cheated on everyone here...yup, I'm a slut.  Hee hee...a slut with one boob and one giant painful bruise...LOL Oh man, my sense of humor is not playing nice tonight.  Anywho, I became a member in the ALS community to try and help out my Aunt.  I got two responses (not any answers) and that was very special.  It's a tiny community - we'd be like the entire continent of North America and theirs would be more like New Jersey.  But, it is a beautiful place full of people that are commited to each other.  I'll admit, my heart breaks there...And for one minute, I was like, "I'm cheating on the RR!!"  LOL Who thinks like that??? 

    It became cold....windy....snow-flakey...windy....cold...crappy here today.  The kind of wind that takes your breath away.  Ugh.  Here it comes...I guess we're due...it's mid-November for crying out loud.  And, the snow is always so pretty.  However, SAS...I may have to move in for a few weeks come February...LOL GG, I bet you have the prettiest winters of all!!!  I'd like a few weeks at your place too.  Oh heck, you all know my dream...I'd be at everyone's house!!! 

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012

    Just for fun...I thought they were funny but I'm a little whacky tonight...'

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012

      WAHAHAHAHAAAA!

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012

    I just Googled "Sassy Quotes" ... oh yeah...get ready...

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012

     (may be a personal favorite...)

    So True...

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012

    Pick your name tag....

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012

    Ok...I'm hot flashing like crazy...just gotta go outside where the wind is whipping around...

  • MamaV
    MamaV Member Posts: 907
    edited November 2012

    So i've been out of town with my daughter at a dance convention for a few days - let me catch up ...

    sas - let me answer ---does your doc have any Hypothesis yet as to why your thyroid goes whacky(great medical term). Yes - 'hormonal changes create thyroid changes"

    Yes using you as a case study could lend a great deal of info to science. What's his take on the pituitary involvement?The chicken and the egg? Is the pituitary releasing too much / too little TSH when thyroid is whacko or does the thyroid release/ stop thyroxin on it's own.  Pit gland seems to be working correctly ...

    There seems to be so many that have had chemo that have had thyroid complaints. Is the thyroid gland , the only endocrine gland involved? yes

    Any family hx.? yes - all the women on my dad's side of the family

    Can you tell when it's starting to go wacko? Yes

    can you tell when it's returning to normal? yes

    Does it go hyperthyroid and hypothyroid(redundant from above Sorry).  quick history - started hyper when I was 12; misdiagnosed; took 15 drops of radioactive iodine in OJ every morning for 2 years; burned out my thyroid - it's  call euthyroid; went to a reproductive endocrinologist at 25 b/c DH and I wanted to start a family; monitored it carefully and got PG right away; then 29 weeks into PG, thyroid decides to start working and throw me into labor; excellent; held off until 36 weeks; post pardum, thyroid started working so is now hypo; seems like it keeps kicking up more and more - after 2nd baby; then after finished nursing; then perimenopause, then during chemo; now post menopause it's working a lot again.  WTF? 

    You are a conundrum! Yes sister!  I most certainly am!

    A few notes ...

    Veggy and rider - no nice way to put it; chemo sucks!  I pretty much cried constantly for the 7 months I had chemo - said so many times, "I just can't do this anymore".  Not gonna sugar coat it - you just have to do it.  You just have to fight!  You have no other choice! We won't let you quit!  You HAVE TO FIGHT!

    Everyone else - my thoughts and prayers are always with you, even if I can only jump on here once in a while.  We have a bond like no other.  We have faced a demon that no one understands and we all have to deal with people around us who are insensitive and selfish.  But, sisters, we have each other. 

    On that note, good night, God Bless, and love ...

    Vicky

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012
  • mostlymom
    mostlymom Member Posts: 466
    edited November 2012

    dogeyed - that's a photo of a drum set for you!  Laughing

  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited November 2012

    That is some drum set!

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited November 2012

    Gail, you are a TRIP, girl! I want some of that good stuff you wrote about. I did get things rolling today. I talked to my PCP. I have the names of some shrinks, so I need to call them. I went to an Al Anon meeting. My counselor had suggested that for my codependency issues. I don't know about the polite bit. I think I lost my politeness along with my boob. Now, how did those docs manage to extract politeness while extracting a tumor? Maybe it was because it was close to my heart. lol

    Oh, poor Fuzzy. My foob still bothers me sometimes. Well, OK, most all the time. But NOTHING like when the TE was in. Truly no comparison. Hang in there. It gets better.

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited November 2012

    Veggy, my heart goes out to you. I'm pretty sure I would be pissed off too. I'm pretty sure if mine comes back I will be a raving lunatic. Well, hell. I seem to be a raving lunatic even with apparent NED. LOL. The thought of going through all the crap again is really frightening. I hope you will find the strength in yourself to push through the treatment and do whatever you need to do to make the cancer understand it is not welcome and is not in charge of your body.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2012

    Mostlymom welcome

    Mama Your thyroid story is one for the books, the thing you need is the answer, articles always like answers. Such a deal. Your doc should publish you anyway in the Journal of Endocrinology, with the request for help from others. May be somebody in Timbucktu has an answer. Has pituitary studies been done each time the thyroid has gone whacko?

    Fuzzy--cute now I'm a cartoon, Does that mean I get to join the Muppets? Move over Miss Piggy!

    Passed the stone whew, longer duration than last one, different pain, and more trauma. Here's a sassy "don't take the act of peeing for granted" LOL. Well wrong still passing stuff. And the story continues erghh.

    GG--"Tylenol and codiene #4" I've already said codiene is so old , I'd have to research why it fell into disfavor. Mostly b/c of it's s.e.'s. Particularly, abdominal pain, addiction, and constipation. But what I'm concerned about now is the daily use of tylenol.

    I became Hypertensive in 2006-Feb. Suspicious of tylenol. Only routine drug at the time. Googled Tylenol and hypertension(HTN).The Journal of HYPERTENSION Aug. 2005. Had an metanalysis article that showed there was a connection between long term usuage of NSAIDS, tylenol and permanent HTN in woman. I was pissed. All the years I thought I was using a mild drug that would do no harm used once daily. Wrong.  A f/u study on men was published in the same journal in 2007. Same approach metanalysis(look back at old studies). Same results. Now tylenol or Nsaids do not pass my lips. Tylenol for fever only.  HTN can lead to stroke, chf, kidney and liver problems, peripherial vascular disease-PVD-, So, the Nsaids and Tylenol are not beign drugs.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2012

    Reminder Announcement for novena to OUR LADY of the MIRACULOUS MEDAL.  Start Date: Wed NOV 14th-end date- Thurs. Nov 22nd which is Thanksgiving.

    The novena is constructed already on the Catholic Archives page link below. As in the past all are welcome. All that were in the last novena to St perigrine will be moved forward. If you don't want to included in this novena ,please, PM me and I will remove your name.

    The novena will also be added to the world wide Rosary thread.

    The novena will only be on the archives thread, as it was too confusing updating both threads as people requested additions.  Everyone will be notified by PM. If you know of someone that would like to be included , have them PM their intention

    New info:A specific intention has been added for those hurt by Sandy. But if you would like to name someone in particular ,please PM.

    New request: If anyone lives near the shrine in Philly,Penn. and would be willing to take the list that would be a blessing. PM

    community.breastcancer.org/top...

    Link to archives thread

    Link to Our Lady of the Miraculous Medal

    www.cammonline.org/index.php?/...

  • dogeyed
    dogeyed Member Posts: 884
    edited November 2012

    MOSTLY MOM, a drum set!  I noticed a number of drum type things, but the way my vision is, I see all sorts of things that aren't there.  No big deal, I'm used to it.  But if I'm going to go to the Friday drumming thing come late spring, I really ought to put together a more involved set than just bongos!

    MOMA VICKY, your thyroid makes me think about a connection to hormones.  You know how some women can stand up to the hormone-blockers?  Well, I coudn't, drive me insane.  That's how menopause was, my problem was I went really crazy.  So, I cannot take those blockers. I need all the estrogen I can get!  Plenty of women cannot take them.

    SASSY, about all I can respond to about the Tylenol Codeine #4, that stuff, along with some changes to my other meds, really made a HUGE difference in how much better I feel, despite your interesting journal reports of some problems with the drug. As for hypertension, the docs say brother and I ought to be dead becuz our BP is so low!  Ha!  Both of us like to run, he used to do marathons and ironman, altho I cannot too much anymore becuz my back has gotten so much worse amd the chemo-induced neuropathy in my hands and feet.  We gots to choose our poisons.  But thanks just the same.  If i needed a private nurse, you'd be it.  XOXO GG

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    first chemo infusion

    (11/7/12)

  • Adey
    Adey Member Posts: 3,610
    edited November 2012

    Flashback!

    Aw, hugs V.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012

    With a Blankie and a Pillow!!!  HEY!!!  I thought you were assigned to the window seat???  WTH????  LOL

    Well...I'll pick this one for you....

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2012

    GG--understood only too well about picking our poisons, they'll get us one way or other. The key with the tylenol and Nsaids is there is no telling who and when. So, as long as you know there is a possibility , that's better than not knowing. For myself , if I had known I wouldn't have taken that one pill a day. Just avoid any aclcohol use as the combo of Nsaids and Tylenol with alcohol really impacts the liver. L&H's

    Veggy(((((hugs)))))prayers for an uneventful course.Namaste sassy

  • FireKracker
    FireKracker Member Posts: 8,046
    edited November 2012

    ((((((((((((((((((Veggy)))))))))))))))

    Wish I could have seen you...

    Next when I'm feelin beta.

    Huggggggggg sista

    you can do this,you will do this,you beta do this cause you my sista will kick its butt.

    Huggggs

    Grannydukes

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited November 2012

    Awww Veggy. That sucks! But way to go on keeping a smile on your face. ((( Veggy )))

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited November 2012

    I tried to get a shrink appointment, but so far, I can't get one -- not on my side of town at least. I am waiting for a call back from a place that offers nurse practitioners. I can deal with that, as long as the place is better than that godawful place I have gone in the past. My PCP tried to refer me there, and I said, whoa, not happening. She also suggested Johns Hopkins, but I'm not sure what they have to offer. I'm not very enthusiastic about Hopkins. It's kind of icky. Let's hope the nurse practitioner thing works out. They have to give me something for my nerves. I'm so tense I had to take a heart pill tonight. I usually only take one in the morning, but my heart was skipping beats. The body tension was/is also causing my breasts to hurt -- both of them. So then when I feel the real boob, it feels like it has a lump in it. I'm pretty sure it is just the muscle tension and my imagination so I'm not going to worry about that for now. (Although I did panic for a moment or two -- "please god no please . . ." Y'all know how it goes.

    I think I'll go get the phone and bring it in my room so I can hear it if they call in the morning.

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