Starting Chemo October 2012

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  • 301724
    301724 Member Posts: 478
    edited November 2012

    I've had neulasta twice - started the Claritin the day of the shot and continued it for seven days both times. Absolutely no bone pain! Consider this a positive story that should encourage you!

  • hap_k
    hap_k Member Posts: 95
    edited November 2012

    Thank you! 301724 Yes, it is!

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited November 2012

    Toots, positive story for me. I do Neupogen every other day myself x 7 each cycle (this time only 5 as neutrophils good) and no S/E. 

  • anamerty
    anamerty Member Posts: 195
    edited November 2012

    to marian:yes shelly works there she always smiling and laughing talks a lot!!!

    to hap k:i too getting taxetore cytoxen but i get neupogen for wbc instead of neulast. after first chemo i was to have it day 3 for 7 days but after 2 days i couldnt take the pain anymore and was about to quit my mo changed them to every other day and it helped. i know that with yours you get it once in each chemo cycle but my mo perscribed me hydromorphone and i take one a half hr before injections it has pretty much cured the problem i have been taking oxycontin for years because of my very bad back and they did not even touch the pain but the hydromorphone have my mo said that the most likly reason for that much pain was because of my severe back problem and osteomilitis in my left knee and cyatica in the left side as she said any prior problem and that is the first place the pain goes. but for sure the taxetore and neulasta/neupogen also causes bone pain but really sed if you can get the hydromorphone and take them just before your shot.....Brenda

  • Caitgrace
    Caitgrace Member Posts: 48
    edited November 2012

    Day 4 after 2nd treatment. Delayed all SE's to the point I got excited. But last night as dinner hit the table they all hit, stomach cramps, diarrhea, nausea, cold sweats etc. ew. I got SO pale in like 2 min.



    I really think the nausea was due to the whoosh of everything but took some meds just in case. So far only the thrush hasn't made a full appearance yet. Aches being controlled by Naproxin.



    Drugs make me sleepy and now I worry for my tummy with every thing I eat. But all of this is tolerable and short lived so keeping good humor and trying to remember all my blessings in this early morning light. Buttered toast from my hunny here now, is one.

  • Toots
    Toots Member Posts: 104
    edited November 2012

    .....trying to feel I am doing something useful right now, have got back into my oil painting, do the chemo-drugs things enhance your artisitic nature - beginning to think so.......getting as much painting as I can done, got a lady from Cancer Research trying to organise an exhibition and auction for me to sell to raise funds...........so hopefully keeping my fingers and my mind occupied in a good cause!

    ......helps you ignore some of the SEs at the same time, not all off them but a start.......

    Hugs and blessings to all x

  • LouBar
    LouBar Member Posts: 84
    edited November 2012

    hap_k: i had my first neulasta last Thursday, also worried like you due to the stories, but listened to the advice re. Claritan, started day before then daily.  I also was taking Tylenol every 4 hours as well.  Apart from some achy shoulders / back it was just fine.  

    Ladies: for those of us supplemented with neulasta or neupogen is there any good research that if some cancer cells are still floating in our bodies (for my with 5/7 nodes I would think a very likely) that the neulasta / neupogen increases these cells as it does our WBC?  I had read somewhere that it can impact "tumour" growth and wonder if this applies to the cells generally?  I suspect this is one of those risk / benefit things that we need and the benefits of increasing WBC is most important...still, I hate the thought of having any lurking cancer and wish there was a more conclusive way to know that it "worked".  

  • LouBar
    LouBar Member Posts: 84
    edited November 2012

    Found good information on another thread - for those interested: http://community.breastcancer.org/forum/8/topic/702930 see response by AnnNYC March 2008

    I feel better....

  • Poke
    Poke Member Posts: 225
    edited November 2012

    Hang in there everyone! I have friends in again from out of town but I'm still here. 5 days post round two and feeling 1000x better on the Abraxane than taxotere. Still slight nausea here and there but no diarrhea (maybe the Emend offset it this time?). Still no neulasta! Woot! Labs tomorrow fingers crossed ... 

    Love to all! xoxo

  • sonson
    sonson Member Posts: 162
    edited November 2012

    Hope everyone has had a good weekend.  My mother and sister came in for a visit.  We got to go shopping and took my daughter with us so it was an all girl weekend!  Lots of fun!

    Great information LouBar...good to know also.

    Poke-So glad things are going better for you on this new chemo!  That's great news.

    I have my fourth treatment this coming Wednesday.  Not really looking forward to it, but it does get me that much closer to the end of all of this.  I hope everyone has a wonderful day with minimal SE's.  I did have no SE's, but who am I kidding...      Especially Caitgrace, I hope your day goes well.

  • Caitgrace
    Caitgrace Member Posts: 48
    edited November 2012

    Yay Poke! Super news! Thanks sonson. Been sleeping all morning, guess that's good. Going eat a bit and see how that goes...



    I hope everyone is remembering to breathe, laugh, and see the beauty in the fight and struggle!

  • Noranelly
    Noranelly Member Posts: 30
    edited November 2012

    Hi everyone hope u r all feeling ok, I decided not to go to work thanks again for your comments and support. Feeling on a more even keel now have decided not to work before Christmas to see how my second cycle goes. Had a new thing happen today have got toothache so have had to ring hospital to see what procedures I'm allowed at dentist. Now I can' t get an appointment at dentist until wed and am in pain having to take pain killers. What next? The dentist has to tell me the treatment necessary then we have to ring hospital too see if I can have it and if it is save and whether it will effect my next chemo. What a major situation for what would normally be so simple! Keep u posted. It's my birthday soon glad it before my hair has fallen out, hoping to go to my favourite Chinese restaurant on Saturday! Big hugs and support noranelly

  • Toots
    Toots Member Posts: 104
    edited November 2012

    Caitgrace - thank you for the comment 'I hope everyone is remembering to breathe, laugh, and see the beauty in the fight and struggle!' really gave me a boost at a low moment!

    Noranelly - sorry to hear about the toothache - that sounds that a major drama you can definitely do without hope it doesn't cause any more complications or too much pain..............enjoy your birthday and the chinese.......

    Big hugs to all x

  • GrammyL
    GrammyL Member Posts: 6
    edited November 2012

    I Am also new to this board and have been reading so much about every topic..So much info to take in! I am starting my chemo on Thursday and am as terrified as everyone else it seems. So many drugs to take in a few days..makes my head spin.. And I never take drugs except for advil. So worried about that..Mine will be AC 4 cycles every 2 weeks with shot the day after. Then T for 4 cycles every 2 weeks... Any advice for this treatment? So damned scared! It is nice though to be able to vent with other women going through the same thing..

  • Toots
    Toots Member Posts: 104
    edited November 2012

    GrammyL - so sorry you have find yourself on this site but it has been so helpful and supportive knowing that you are not facing things alone - that there are so many of us at similar stages and the help and advice some others that have found things you haven't discovered yet is fantastic.......

    Hugs, best of luck with the treatment, and hopes for not too many side-effects.............

  • MrsCich
    MrsCich Member Posts: 409
    edited November 2012

    Hi all! Today was day 3 past treatment number 3. I felt remarkably well though. My husband and I spent the day out Christmas shopping. Little worn feeling now but its tolerable.



    For the first time since my diagnosis in August, I slept without a sports bra on lastnight. It was so nice. 😊 I'm ready to get rid of these TE's and get my squishies which of course isn't until February at the earliest.



    I hope you all have a wonderful evening!

  • danlias
    danlias Member Posts: 28
    edited November 2012

    Hello,

    My mom started chemo in October and she'll have her third round next week.  After the first round she became severely dehydrated because of diarrhea, but after a week or so she started to feel normal again.  After the second round she didn't get as sick but doesn't want to eat, is very weak and her back is very painful.  Her eyes haven't stopped watering and she hasn't been able to feel normal like she did after the first one. 

    I've been trying to read as much as I can and piece all this together to help her.  Should she ask her doc about taking clairtin for the pain?  She does get the Neulasta shot the day after treatment.  Her chemo cocktail is taxotere and cytoxan.  Is there anything to help her eyes?  I will gladly appreciate any suggestions to deal with the side effects.

    Thanks, Jo

  • 301724
    301724 Member Posts: 478
    edited November 2012

    Hi Jo,

    Your mom is so fortunate to have you caring about her! I'm sorry to hear she's having such a hard time. Yes, she should ask her doctor about taking Claritin starting the day of her neulasta shot for 7 days. It could help her back pain quite a bit. Since Claritin is really an allergy drug, it's possible it could help her watering eyes, too.

  • Toots
    Toots Member Posts: 104
    edited November 2012

    Loubar - thank you so much for the information - appreciated................

    Hugs x

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited November 2012

    hap k - I have had the Neulasta shot the day after each chemo - they give it to me to bring home and inject it myself the next day.  I take Claritin and Aleve in the morning, shot in the afternoon, continue with the Claritin (generic is fine) for a week or so.  I think it helps.  I have had some pain, whether from the chemo or the Neulasta I couldn't say, it is aggravating but not disabling, and only lasts a few days.  Like having the flu, only without the fever and cough.  I have not missed a day of work.  Although today was pretty rough.  I wouldn't be afraid of the Neulasta & bone pain if I were you.... the other SEs are much worse, for me anyway.  And it really does its job, my blood counts were fine when I went in for the 2nd chemo.

  • CelineFlower
    CelineFlower Member Posts: 875
    edited November 2012

    worst 24 hours yet...

    did round 3 of A/c on 7th of nov...

    headache is blowing my head up... nausea nausea nausea.... yet hunger pains go figure..

    bone pain...

    did i mntion headache?

    so weak... blah...

  • Toots
    Toots Member Posts: 104
    edited November 2012

    CelineFlower - do hope that improves dramatically and quickly for you.........craving for eating certain foods and nausea go hand in hand.........go figure...........its crazy

    ...........feeling better and more back to myself this morning following treatment last week........driving my hubby crazier than ever - had him scrambling eggs for me at 5am...........why I don't sleep for more than 3-4 hours a time............

    ........take care and keep your spirits up - hugs x

  • Poke
    Poke Member Posts: 225
    edited November 2012

    Ugh, Celine!! Feel better (hugs) :( 

  • schoolmom
    schoolmom Member Posts: 458
    edited November 2012

    Had my infusion last Monday so was hoping to be normal by today.  Have had diahrrea since Friday night.....darn that strawberry shake.  Taking pepto but going to call dr today.  No se except all this stomach stuff.  I go back to dr Thursday but dont want to wait.  Trying to suck on ice....that helps.  Take care all.

  • sonson
    sonson Member Posts: 162
    edited November 2012

    Yeah the Claritin only does so much for the bone pain.  I would hate to know how much worse it is without the Claritin.  They say if you wrap up in a heated blanket that it helps.  Or take a hot bath.  Heat is suppose to help with the bone pain.  The only thing that helps my headaches are migraine meds.  You may want to ask you MO for some of those.  They help a great deal.  Of course if you aren't getting enough fluids that will also cause you to have a headache so make sure you are drinking enough and then drink some more.

    Schoolmom-I've never thought pepto was very good for anything, but maybe that's just me.  Immodium is much better for diarrhea.  Then you should follow the BRAT diet as well...bananas, rice, applesauce, and toast.

    Jo-I get the tears also.  I think they call them taxotears...it's a side effect from the taxotere.  I don't know how to help with those.  If you figure out a way to help with that please let me know.  Mine are only a problem when I'm sleeping and then when I go out in the cold.  I wake up every morning with crusty stuff all over my eyes so I figure that's from the tears drying up over night.  And then when I walk outside and it's windy and cold they run down my face and that will continue once I'm inside for a while and then finally stop.  My eyes are really red in the morning also so I use regular Visine to get the red out of them and that seems to work.  Other than that I don't know how to stop it.

  • 301724
    301724 Member Posts: 478
    edited November 2012

    Headed for chemo #3 (of 4) tomorrow. Fingers crossed for minimal SE for me and for all!

  • LouBar
    LouBar Member Posts: 84
    edited November 2012

    Hi Jo; 

    So nice that you are looking after your mom.  Further to everyone's comments about the claritan for the neulasta, at the end of day it won't hurt her in any way so worth the shot.  But the back pain may also be if she is not eating, try Sonson's recommendation about BRAT, I swear by frozen yogurt smoothie popsicles for me on the first 3 days and I also have the low-cal gatorade/vitamin water -something to help hydrate? Just anything to get your mom to eat / drink.  

    Sorry Celine for feeling horrible.

    301724 - all the best :)

    Mrs Cich - funny about the bra - I only had a partial mastectomy but haven't worn a bra since surgery in August so I hear you how great it is being without one.  I think I'm getting "too" used to it and will be hard to go back to wearing one when I return to work.  In the meantime, so much more comfortable without...enjoy the freedom :)

  • schoolmom
    schoolmom Member Posts: 458
    edited November 2012

    called dr and they said to use immodium so off to the store.  going to pick up some popsicles and whatever else looks appetizing.  clamatto juice is drinkable I guess because of the strong flavor.  hope it doesnt mess with my stomach.  so far only dropped 3 pounds so i guess that is good.

  • Toots
    Toots Member Posts: 104
    edited November 2012

    Sonson - iritated eyes, got some 'Optrex' Soothing eye drops - relieves irratation caused by pollen, pet hair and dust mites, similar to the Claritin.........but found it works............ 

    .....anything that relieves has to help...........

    hugs to all x

  • CelineFlower
    CelineFlower Member Posts: 875
    edited November 2012

    well bit of good news thought id share...

    my eldest daughter has found out shes having a boy :)

    our second grandchild will be born march 9th... just as i finish chemo :)

    thanks for the well wishes... still weak and sick... hoping to feel better soon

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