Sept 2012 chemo

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  • twinsplus1
    twinsplus1 Member Posts: 43
    edited November 2012

    Oh, and if anyone would like to chat on FB my name is Chelle McClelland-Kakac.

    XOXO

  • bearcub
    bearcub Member Posts: 485
    edited November 2012

    Butterfly congrats on finishing your AC....woohoo!!..



    I was not so lucky, went in for bloodwork yesterday and my neutrifils were only 0.8, redid bloodwork today and it only went up to 0.9. I couldn't even get the reduced dose and am delayed until next Wednesday . I was so depressed and felt like my body is betraying me. Then of course my song came on the radio on the way home, the one by pink and the chorus " had a sh*t day"!...sheesh. I am feeling better tonight as I know some others at the clinic have it way worse than me. So I won't feel sorry for myself but keep moving forward, it's only another week.



    Forever I hope all is well with the good breast...fingers and feet crossed for you.



    Patricia you sound so much happier.



    Everyone have a SE free week...yes like Mariposa says we are WARRIORS!!

  • bearcub
    bearcub Member Posts: 485
    edited November 2012

    Cindi thanks for posting the links to the cancer trials.

  • butterfly14
    butterfly14 Member Posts: 253
    edited November 2012

    Bearcub - sorry about the delay with your last AC treatment. Mine kicked my butt, so hopefully with the extra week in between, you won't have the awful nausea that I got this last time. My husband was with me and he said he could see the color drain from my face while she was pushing the adriamycin.  Here's to an easier time with the taxol.

    Hope everyone has a great day with no side effects!!

  • Toastiecat
    Toastiecat Member Posts: 132
    edited November 2012

    I hear you guys on the weight gain...ugh. It's the definition of insult to injury, I think. Anyone else having brain fogginess/forgetfulness issues? I'm having a really hard time with that. Normally my memory is really sharp. A lot of times lately I've been feeling like I'm losing who I am.

    What are people doing for thanksgiving? It's only two weeks away, yikes. I am not up for it this year, but I don't know how to tell my mom. She's having a really hard time with my diagnosis, and traditions like this are really important to her. But the typical thanksgiving foods are increasingly unappetizing, and the smell of meat cooking really grosses me out. I'm not up for doing any cooking, and I usually do about half of it. I want to suggest we go out to a restaurant this year.

    Foreverchanged, thinking of you today and sending good thoughts. Hope everything is okay.

    Mariposa, I love your blog! Beautiful artwork.

    Welcome suzilla! (I like your nameSmile)

    Hope everyone is doing well.

  • jojo2373
    jojo2373 Member Posts: 662
    edited November 2012

    Bearcub - agree with Butterfly, you need to be strong to take the treatment, so try to look at the positive (know you want to get it over with).

    Toastie - My brain is definitely chemo fried.  I always considered myself a pretty sharp thinker, but now forget where I am walking to in the house.  

    Cindy - haven't said hi in awhile - thanks for all you post for us.  Hope your feeling well.

    Thanksgiving - ugh.

  • butterfly14
    butterfly14 Member Posts: 253
    edited November 2012

    Toastiecat - yes chemo brain is affecting me. Like Jojo said I forget where I am going in the house and where I put things at.  Hopefully this too will get better.

  • bearcub
    bearcub Member Posts: 485
    edited November 2012

    Butterfly and JoJo I feel much better today, only 6 more days. I can do this!



    Butterfly I hope you feel better soon, at least it's on to taxol for you. No more AC..



    Toastie like JoJo and Butterfly I also have chemo brain....



    I hope everyone is having a good week.



  • kidsandlabs
    kidsandlabs Member Posts: 138
    edited November 2012

    Chemo brain, drives me crazy. Especially at work, I have to write everything down or I would forget to do it.

  • Cindi74
    Cindi74 Member Posts: 363
    edited November 2012

    Bearcub,  that will put us on the same day.  We can mentally hold each other's hand.

    I do Taxol for 12 weeks after this.  Saw oncologist today.  She insists I am doing great.  I learned that I will have a month off after Taxol before starting radiation.  Whee.  We are already planning a trip.  Maybe to grandkids and TN.

    I think that research shows that chemo brain is there, but it goes away.  There is also "old broad" or "old guy" brain.  My hubby and I have it.  Have you seen the pass on e-mail where the woman wanders from room to room in the house begining something but forgetting what she was going to do?  End of day she has done nothing,.   Well--as you age...

    Anyway, I read that when you go from one environment to another, your brain resets  (like refreshing your computer screen).  That is why on occasion I have gone down stairs to get something from the laundry room only  to get back upstairs with something else because I forgot what I went down for,  not once, but three times straight. 


    The suggestion from the study was to say OUT LOUD what it is you are trying to do.  "I am going downstairs for my turtlenecks."  That way, the information gets to your brain another way also, and you are more likely to remember it.  

    I find I am now doing that a lot,  and it works.  Of course, if there are other people around me, they  may think I am talking to myself a lot but OK

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited November 2012

    I hate chemo-brain.  The woman who is running the chemobrain study I am in is named Dr. Kessler.  Here is a link to a powepoint she did last year for the annual BC conference.  I think it is nice just because it validates what we are all experiencing. 

    http://staging2.bcconnections.org/wordpress/wp-content/uploads/2011/12/bcc-8th-annual-breast-cancer-conference-cognitive-effects-of-breast-cancer.pdf

    I wanted to share a funny drawing I just did for my blog, but couldn't get it to load here:-(   I made a "chema ballerina"   I will have to try again later.  The kids are fighting.  Uggh.





  • jojo2373
    jojo2373 Member Posts: 662
    edited November 2012

    Feeling anxious as I prepare my "cocktail" of steroids...

  • PatinMN
    PatinMN Member Posts: 920
    edited November 2012

    I just finished #8 of 12 weekly taxol + Herceptin today. I am blessed to continue to have few side effects. Still have normal taste buds, no chemo brain, no nausea or pain anywhere, no nail or mouth issues...just the usual sleep issues from the steroid and constipation. Pink or red/clots when I blow my nose, but no actual "bloody nose". Minor neuropathy in my feet, but I'm taking B6 and L-Glutamine to counteract. I hope all of you continuing on to weekly taxol will also be blessed with such mild effects!



    On the downside, I have gained about 7 or 8 pounds over the 8 weeks - I sure wasn't expecting that!



    I also learned this week that my Thanksgiving hostess of many years has early Alzheimer's disease. We all knew something was going wrong for her, over a period of years, but still the diagnosis in someone so young (65) is shocking. she has decided she can't host Thanksgiving this year, even with everyone bringing all the food, so another one of the group will host. sometimes change sucks!



    Jojo, good luck on your upcoming treatment. Mariposa (and others with a blog) can you put a link to your blog on your signature line here?

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited November 2012

    I am so bummed I can't get this picture to load:-(  I have tried six different ways.  I have uploaded pictures before without any trouble.  I wonder if there is an issue with the site- or if it is the dreaded chemo brain.

    Anyway, if you would like to check out my funny little chema ballerina... you can see her here:-)  Just scroll a little.

    http://breastcancerartandme.blogspot.com/2012/11/chema-ballerina.html


  • PatinMN
    PatinMN Member Posts: 920
    edited November 2012

    Love the Chema-ballerina, Mariposa!

  • Cherioo
    Cherioo Member Posts: 305
    edited November 2012

    Mariposa I love your blog and that picture cracked me up . You are right on target

  • bearcub
    bearcub Member Posts: 485
    edited November 2012

    Mariposa, I love your blog and pictures.



    Cindi I will mentally be holding your hand next Wednesday...lets hope we have no SE for the last round of AC.



  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited November 2012

    My ladies good evening!!!! ....well tomorrow herception ... But about Thanksgiving my ladies enjoy everything alone ... Not alone .... Just enjoy it.... Its been a hell of a ride for us not to enjoy!!!! Whoever wants to cook it's all fine with me cause I will have my big smile knowing that I made so far with or without SE...and I want to look at this next year and say to myself...hell yeahhh I was a strong last year!!!! I will take many pics. With my wigs or just bald... But one thing I guarantee you i will enjoy my Holidays to the fullest.. Have a great weekend I will be putting lights and tree up!!!!!!!!!)

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited November 2012

    Cindi, chemo brain twice in the past half hour! Thanks to Adagio on the October chemo thread, who posted that she got the OK for Neupogen payment, I remembered that I had completely forgotten about my 5th and last shot for this cycle. Done and then back to BCO and I was reading all your comments and somehow removed this thread from my faves so had to go back and find it!

    On the October thread I just posted this:

    I am doing OK and have not posted the past few days - just reading and feeling the ups and downs of BC. Almost 4 months now since dx and still a long road ahead just like so many here. It is what it is but not always easy to wrap my head around it in a postive mood. The weather so amazing today though and I actually went for two walks and to a yoga class.

    I have a question for all of you. I am having 4 dose dense A/C and then 4 dose dense Taxol. I see that so many of you are having Taxol weekly x 12. I am wondering why but maybe this is due to age or something else? I am 63. I will ask my MO on Tuesday before A/C #3 but thought it would be good to see what all of you think/know.

    Cindi, clearly it is not an age thing but maybe it is our protocol for the Taxol here in our province as I think what I see is that anyone getting Taxol here seems to get the 4 cycles not the weekly x 12. 

    But if anyone knows why please post.

    Patin, here is my blog: http://breastcancereh.blogspot.ca

    Mariposa, I got so frustrated trying to post a photo here but thankfully it was easy on blogspot! I still want to change my Avatar photo but that has frustrated me too. 

    bearcub, hope that the bloodwork is good for next week!

    jojo, too bad the cocktail isn't something more fun! I had my first feeling of fear about the Taxol which is still 2 cycles of A/C away. I think sometimes I read too much about others with S/E and worry then.

    SmileMarian

  • Cherioo
    Cherioo Member Posts: 305
    edited November 2012

    Patricia I was just thinking about taking all of my Christmas stuff out this weekend and putting it up. Last year I went crazy with the gifts for the kids and this year since I am not working and all these lovely bills that keep coming in I told the kids we are having a small Christmas . I am not cooking inlaws will and I will relax have a glass of wine or two and enjoy .



    Mariposa Taxol has not been bad at all for me . I knew I would get the pain in my bones but it is not bad . You will do fine

  • Joemommy
    Joemommy Member Posts: 31
    edited November 2012

    Mariposa,

    Chema-ballerina is perfect! I love your blog and drawings. Thank you for sharing.



    I've been experiencing chemo-brain alot. It is worrisome since I am still working full-time and I am making alot of mistakes. Also, I work on a computer all day and my eyesight seems much worse. :(



    Treatment 4 of 6 tomorrow. I hate this so much. Not looking forward to the next five + days.



    Menopause hit now. After the first two treatments I had the most heavy gross periods ever - now nothing. Well, nothing except the lovely hot flashes and night sweats. Ugh. And my nails just started changing. They have a white line across the middle.



    Up late due to the steroids... hope I can sleep tonight. Even my little boy couldn't go to sleep. Maybe he was enjoying my energy too much. :)



    Take care all!

  • jojo2373
    jojo2373 Member Posts: 662
    edited November 2012

    Mariposa - Chema-Ballerina should be our poster gal!  Great drawing.

    Marian - for HER2+ gals they get the Taxol weekly along with Herceptin most times.  I see you are HER2- like me so we have the option to do Taxol DD every 2 weeks instead.

    Joemommy - good luck today.  I am off to the BGC in a few hours myself.

  • Foreverchanged72612
    Foreverchanged72612 Member Posts: 223
    edited November 2012

    Hello, everyone! Doctor's verdict: cyst!!!!!! He was so nice about it. He squeezed my hand and said not to worry but also said that he took my concerns seriously. We went over my original MRI that said my right side looked fine but there was a recommendation for follow up MRI on right side in 6 months. So taking that into consideration plus the decision before me whether to do mx or bmx, he ordered an ultrasound on the right side.  I meet with a bs Nov 23 and we'll discuss options and the ultrasound will be useful for that discussion. Big, big, big relief. Thank you so much for the support.

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited November 2012

    Foreve :: I'm so happy about your results!!!!!!!!!! That is such a great new to start the holidays!!!!!!!! My Jojo I'll be holding your hand all the way!!!! We are almost there!!!....

    Cherioo I hear you bills keep on giving!!! So every year we get everyone's name and see who gets who.... But every year my in laws say they can't afford it!!!!! But some how .. They bring me my wine and my hubby beer WRAPPED.... And I end up giving them money ... Plus his sister and brother in law ... No Sir ... Not this year!!!!!!! I got it all under control... You're in or out!!! LOL....



    Talk about chemo brain..... I was cooking and turn on the stove and forgot the PLASTIC cutting board was burning while I was cooking ... And I was standing right there.....!!!!!! I yeah on my way to some where I forgot where I was or going to good thing I had my daughter with me she remind me where I was going!!!!..... To the Doctors!!!!! Opps!!!!!





    Time to hercepton and Christmaxxxx deco today!!!'

  • jojo2373
    jojo2373 Member Posts: 662
    edited November 2012

    Forever - Hugs!  Great news.  What direction are you leaning for surgery or none yet?  I have the same choice coming up soon too.

  • butterfly14
    butterfly14 Member Posts: 253
    edited November 2012

    Bearcub - thank you, I am feeling better, not great, but better than Tuesday. Still cannot stand the thought if drinking water, makes me want to gag.

    Jojo - good luck today.

    Forverechanged  - great news with it being a cyst. 

    On the taxol, I'm doing DD every two weeks, first round Nov 20.

    I hope everyone has a great day, with no SE's.

  • Timbek2
    Timbek2 Member Posts: 204
    edited November 2012

    I love the chemo ballerina. Great visual!!! Such talent! I'm Her- but getting weekly taxol. Mo says patients tolerate it well. I sure hope so because every week for three months freaks me out! I get infused in Thursdays and I don't want to be in bed every weekend until February! Still trying to get over se's from this round. My poor tummy says enough already! I'm calling because my bottom is in so much pain! I hope there's some magic cream they can give me! Couldn't sleep last night due to pain. Very uncomfortable. I'm a belly sleeper and since BMx have never been able to get comfortable. So glad to vent here! Love and appreciate you all so very much. Better days ahead for each one of us! God bless you all. Xoxoxo Becki

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited November 2012

    Hi girls what is the common steroid. Is that the decadron. I know I got that in pills, then I got emend and then one now can't for the life if me think of it.

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited November 2012

    Dexemethosone is the steroid I am on. Before this BC, I only used it trekking in the Himalaya for those with beginning of altitude sickness and only then very sparingly and carefully. Now I get huge whacking doses! 

    Jo, makes sense the dose dense maybe also as adagio on chemo Nov. said, for our more agressive cancers. Timbek, all interesting and will still ask my MO the rationale for me.

    Leonard Cohen concert Monday night and have never seen him so can't wait. Also so perfect that when we bought tickets we had no idea I would be doing chemo and just happens to be last day of cycle before chemo. How perfect is that?

    Marian

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited November 2012

    Marian-



    Thanks for the info and have a blast at ur concert!!!

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