The Hermit Club

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  • whaevah
    whaevah Member Posts: 354
    edited November 2012

    Oh and as for exercise, hate to say it but I lurk in the after treatment threads and have some fav blogs I read from BC peeps here, some say that they excercised all thru and after treatment...it makes no differernce to their energy levels. THAT is fatique and I for one believe it is real. Treatment affects everyone differently and bravo to those who can and hugs to those that can't. I hate cancer.

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  • kltb04
    kltb04 Member Posts: 1,051
    edited November 2012

    I can't keep up with y'all - I am just on here real quick and will catch up in a bit.  Just wanted to update I had another rads consult yesterday.  Second opinion, second "yes, you need to do rads." So rads it is.  Starting after Thanksgiving and hopefully finishing up right before Christmas.  It is going to totally screw up my reconstruction.  I had an appt with PS yesterday to let out 120 ccs on one side.  I really wish I would have just delayed reconstruction totally but what's done is done.

    Promise I'll catch up later.  We had an election night watch party with bro/sil last night and I was SO tired from getting up at 3 a.m. that I fell asleep before the results were even in!  (well, and there was the wine too) I woke up in a panic around 2 a.m. and checked my CNN app with great relief.

    More later.

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  • markat
    markat Member Posts: 909
    edited November 2012

    Yes fatigue is terrible. I used to think having a 15month old and newborn was fatigue- doesn't even compare!



    K- sorry to hear about the rads and reconstruction :( I'm glad they agreed though! So no second guessing.

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  • bgirl
    bgirl Member Posts: 538
    edited November 2012

    K - glad to hear you have a plan.  Hope kids are feeling better.

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  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    K I'm glad u did get a second opinion now u know for sure without questioning u'r decision.

    Markat it is a different type of fatigue, now sleepy so much as whole body stuuf goin on. With babies it like Oh I'm so tired I just want to sleep--with this it's like Oh can I make it to the other side of the room LOL

    Yes I had every single allergy and test there has been--maybe something new is around--I just ot it back a little while ago--I'm so exhausted from this this time--lasting to long even with meds.  I have a call in to the nurse to ask some questions. Oh well.

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  • whaevah
    whaevah Member Posts: 354
    edited November 2012

    harsh camillee..literally draining

    hope you get relief soon *hugs*

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  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    Thanks whaevah me too.

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  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    For more fun checkout: @[116034911867895:274:Shit Happens When You Are Naked]

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  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    Another day turning to fun---My Dr. called me and wants me in the ER now--so I probably won't be back til later so I'm fine. Just letting u know

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  • whaevah
    whaevah Member Posts: 354
    edited November 2012

    geezes camillegal...that Frown sucks...thanks for telling us, we would worry

    . ((((((((((((((((HUGS))))))))))))

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  • markat
    markat Member Posts: 909
    edited November 2012

    Oh Camille, sending you hugs and good thoughts.

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  • bgirl
    bgirl Member Posts: 538
    edited November 2012

    Cami - sending you healing thoughts and prayers. Hope they give you some help!  Will check in on you later!  Wishing we could toss that big D under the bus, but it might get messy! lol

    One of the ladies in that group I volunteered in this morning had that poop transplant... got c diff.... went in for repair to ankle and ended up with it and an iliostomy and colostomy ...  certainly was a crappy deal.

    No call from Dr. today but they are usually a no news is good news place ... but will probably call them anyway .  Going to neighbours for a little while tonight  A steady force this past year.  Wish everyone was as great as she is.

    Whaevah - seen you on Canadian thread, what part of country are you from?

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  • Omeggo
    Omeggo Member Posts: 275
    edited November 2012

    Cami, in my thoughts and prayers, too. 

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  • Skittle
    Skittle Member Posts: 400
    edited November 2012

    Camillegal--prayers and hugs.  And more prayers and hugs.  And re your picture--my black kitty is winning.  Eat it!  My next onc appt is the 21st, and he focuses in on weight gain...  so I tryyy to be good.  Am weak.

    bgirl--if I'm cracking up on bus duty and the kids all look at me like I've lost it, it'll be all your fault!  Won't be able to watch school bus traffic with a straight face for a while!  (thanks, I needed that.)  :-)  Hope your no news/good news continues.

    Wishing each of you strength.

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  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    Hi guys I'm back--I didn't get stuck in the hospital but of course they can fine one readon why I have diarrhea --I have to call a gastrologis tom. and start testing again. I do have some stupid infection (that's why the pain) either bladder or urinary (I forgot) but he said it was pretty bad and they don't wsnt it going to a kidney cuz one of my kidnes weakened during chemo ad he gve me an anti- gave me one right sway so we didnt have to stop on the way home which was good---that's what my sister and I were laughin so hard about if I had the c-diff and she couldn't donate her sh*t, cuz hers isn't so good either hahaha--what a way to cure someone OMG to tell anyone u had that transplanted cracks me up. LOL--Thanks guys at least I had one answer the pain part hahaha  Damn I'm tired and crabby as u can tell. OK I wanted to let u know I'm home, fine and tired,

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  • Skittle
    Skittle Member Posts: 400
    edited November 2012

    Wishing you restful sleep, healing, and lessened pain.  You have every right to be tired and crabby.  Hermit crabby... 

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  • bgirl
    bgirl Member Posts: 538
    edited November 2012

    wishing you a good night's rest cami ... hope infection better and you get some answers.  More tests suck though.

    Skittle - just smile sweetly and think of who you really want to toss under it.

    I was so shocked that this 72 yr old straight laced lady from church admitted that she had a crap transplant ... still cracks me up.

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  • journey4life
    journey4life Member Posts: 517
    edited November 2012

    sleep well camille...tomorrow will be a better day!

    Are you guys really serious about the transplant thing? When I read the first post (I think from Camille), I thought it was too funny - and full of sh*t. But now...I'm not so sure.

    Draining afternoon at MO's office today. Too tired to talk about it now - will tomorrow.

    Thanks for making me smile...I needed it today! Night

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  • markat
    markat Member Posts: 909
    edited November 2012

    Camille hope you are sleeping and pain free!



    Journey- yep the transplant thing is true. Hope you're okay tonight after your appt.



    I just woke up and can't get back to sleep. I'll straighten out over the weekend.

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  • bgirl
    bgirl Member Posts: 538
    edited November 2012

    Morning Hermits - hope you are ok Camille.  Thinking of You

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  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    Morning lafies--I slept all night--Felt good--pain is still hangin around but I SLEPT

    And yes the crap shoot is real--hahaha I still laught at it--OMG if that's what I need ooooooo

    I'll catch up with u guys later--I still feel crappy LOL LOL LOL

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  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    Precious Cargo!

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  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    Photo

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  • Teka
    Teka Member Posts: 10,052
    edited January 2013

    I am not computer savvy, and need daughter when not running the roads to post pictures.   Cute!

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  • whaevah
    whaevah Member Posts: 354
    edited November 2012

    Camillegal, glad you are feeling better...OMG is that your puppy??? Adorable!!!

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  • markat
    markat Member Posts: 909
    edited November 2012

    Hey, hope all are feeling good.

    This herceptin kicked my butt. Obviously no where near as bad as chemo, but I'm super tired. Maybe the old heart is ready to be done with this year too!

    I'm officially hired pending the results of the tests for the job! Woohoo. That should be okay...I think!

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  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    On No that's not my doggie, just a randome picture for napping LOL

    Teka u've come the the right place I'm just starting to learn a little about a computer, I'm computer diasabled but I'm slowly learning since I'm home all day. LOL

    Markat right H isn't like chemo, but it's not always as easy as everyone thinks, just like rads sounds easy and it is and fast but knocks the hell out of u.

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  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    I had one job--just one job.

    you had one job just one job!

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  • Skittle
    Skittle Member Posts: 400
    edited November 2012

    markat--congrats on the hiring!  Hope all goes well!

    camille--love, love melting puppies... sooo relaxed.  Hugs to you, and hoping you feel better soon, soon.

    journey--thanks for asking...  I was wondering too.  Real?  wow.  Had no idea.  My sixth graders would be snickering all year (after the goggle eyes subsided.)  They love fecal puns, the more inappropriate the better.

    Teka--I have a running daughter, too!  I admire her passion for it and persistence.  (Ah to be 5'11" and so fit.)   :-)

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  • camillegal
    camillegal Member Posts: 16,882
    edited November 2012

    Skittle we're adults and we're laughing about it--Imagine if I need that--hahaha my grandson BTW I won't tell would be laughing his ass off too. Like me.

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