Charleston Bound, part 2

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  • Catie2013
    Catie2013 Member Posts: 1,023
    edited October 2012

    I was wondering which hospital the docs work out of in New York and hope any of the ladies going there are safe with Sandy's aftermath!

  • LindaG47
    LindaG47 Member Posts: 400
    edited October 2012

    gma- you will be in great hands with Dr. Klein and especially with Dr. Allen,  the Pioneer who started it all, assisting.  The PAP is a new procedure .  They will do an awesome job.  Allen has already performed  the PAP, his most recent addition to the DIEP world.  

    Panda -  Still need to give yourself credit for even asking that kind of question.  Klein's office is really on the ball.  How nice there is such resources available.   Although you can't have a friend or family member with you I must admit that in most cases you will be better off with the professional caretaker.  They just know how to take care of incisions, give shots, empty drains, etc.  Not that our loved ones can't do it, but the other option is just better and more confident in their duties, in my opinion.  Can you interview different caregivers by phone to see if your personalities fit or you like what they have to offer in the way of their expertise? I do hope your insurance will pick up the bulk!  I wish you much luck and I am happy that you are safe from the storms.

  • slh_tn
    slh_tn Member Posts: 61
    edited October 2012

    6 weeks to my SGAP surgery in Charleston and I'm starting to stress.    I've read the yellow book from Dr. Kline's office several times.   I know there is something that I'm forgetting as I prepare.  Since my first reconstruction was close to home it wasn't a problem if I forgot something.  

    Question for you all who have had surgery away from home....What is the one thing you wished you brought with you to Charleston, but didn't?   Or, what was the thing you brought with you that you couldn't have done without?  

    I appreciate you all!    

  • cascader
    cascader Member Posts: 599
    edited October 2012

    Slh , I stressed over what to bring and started packing weeks before my SGAP. I brought way too much!! All I needed In the hospital was facial cleanser towelettes, lip balm, iPhone, toothbrush and slippers, hair tie.The best thing I brought was an eye mask for those hourly checks all night long . I wore hospital gown and robe. After discharge I wore a lovely housecoat type thing that zipped up and had pockets for drains. I bought a couple cheap extra pillows at walmart for the bed to build my "nest". I am happy to answer any questions, had my uni sgap in June with stage 2 in dec.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited October 2012

    Slh Tn :

    I read somewhere that one of those backscratchers things would come in handy. I bought one and brought it with me to the hospital and to Hope Lodge while I was in Charleston, that was very handy to 'reach' stuff off the bed table in the hospital as well as get that itch every now and then. I had a pair of crocs that were easy to slip into for any time I needed to walk in the hospital. Wore their gowns always but needed something to wear on top as a robe when walking.



    I had bi lat SGap in April. Ask for the pillows in the hospital, they just throw them away after you if you don't.



    Hope all goes well for you! They are fantastic at all of the hospitals there. I went to East Cooper and the nurses were the best I've ever had.

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited October 2012

    slhtn~

    I'm 12 weeks out from bilateral SGAP with Dr. Kline in Charleston.  GMA is right that you don't need extra pillows because the hospital gave me 4 extra throw away pillows when I left.  They are nice to have for the drive home or to take to go out to a restaurant after surgery to sit on, at least I did.

    I always bring ear plugs, too, along with the eye mask.  Sometimes I slept right through the vitals checks.

    The hospital will give you two soft light surgery bras and two soft camisoles with pockets for drains.  You will not have any compression garments for SGAP, at least I didn't.  If you need more surgery bras they will give to you.  The nurses will help give you a shower and wash your hair after Day 2, but they tell you to leave on the surgery bra during shower, then after shower take it off, hang it up to dry, and then put on dry one.

    My Stage 1 bilateral SGAP was on August 1 so it was plenty hot in Charleston.  I lived in my swimsuit, sundresses, and flipflops before surgery.  After surgery I wore button up sundresses with flipflops.  It will be colder in December so will wear yoga pants or leggings and button up tops, or I will be wearing warmup suits with zipper jacket with just my black cami with drain pouches on underneath.  I guess I need to keep in mind flying home what security search will be like because they make you take off all jackets and coats.  I will have airport wheelchair assistance so not sure how they do that.

    For Stage I, I flew down and my husband came later and drove me home.  It was a 12 hour drive so we made a nice comfy bed in the back of my minivan.  We had to stop every hour, per Dr. K, for me to get out and walk to prevent blood clots, even though I was still giving myself injections of blood thinners.  The part about stopping every hour driving home was not in the yellow booklet.  He initially said every 30 minutes! then said hour ok, so we broke the 12 hour drive up into two days.

    My iPhone was all I needed, free wi-fi everywhere, laptop too heavy.  Oh, now I remember what I wish I had brought -- an extension cord for charging my iPhone!  The iPhone charger cord barely reached to the wall socket from my hospital bed where I kept my iPhone in bed with me so I could have as close as possible -- you have almost no range of movement with arms and I didn't want to keep asking people to hand me things. :)

    I will be going back for Stage 2 SGAP arriving December 7, but my surgery isn't until December 14.  Please feel free to PM me and I'll give you my number if you would like.

    Good luck with everything -- you have a super skilled and kind doctor and staff ready to take care of you.  Don't hesitate to email or call them-- insurance assistant, nurse, PA, or doc -- they want to hear your needs and help.  Dr. Kline has great doctor/patient relationship and always responds to your emails quickly.






  • cascader
    cascader Member Posts: 599
    edited October 2012

    Ok, so i got the free pillows from the hospital and STILL needed more. I had quite the nest! lol

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited October 2012

    And I'm going to be begging for pillows again flying home alone 3 days post op, after having both Stage 2 SGAP and lymph node transfers surgeries in one which will involve tweaking to my butt.  :)    Need at least two pillows and an oxycodone or two for the plane ride I'd say.

  • Raelan
    Raelan Member Posts: 200
    edited November 2012

    Had my phone consult with Dr. Kline on Tuesday and really like him.  He provided me with a wealth of information and was willing to take as much time as needed to answer all my questions.  He reviewed my photos and feels I'm a good candidate for an SGAP.  Wants me to wait for 6 months post-rads to give my skin time to heal.  

    Thanks to everyone who provided me with such good information about his practice.  I'm really glad I picked up the phone and made that initial call.  I feel so much better about the idea of traveling cross country for my surgery.  All completely doable with some careful planning.

    So, now, decisions, decisions.  

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited November 2012

    Raelan, So good to hear your positive news.  Good luck with all your consultations with other surgeons.  When are you starting rads?  Most docs want patients to wait at least six months, but I had a few say to wait a year or more.  I couldn't wait a year or more because of so much pain, and then my implant ended up extruding through radiation damage in breast anyway so it was time to find new surgeon and natural breast recon.  They wouldn't listen to me.  Dr. Kline listens.

  • Raelan
    Raelan Member Posts: 200
    edited November 2012

    Pinkheart - I've actually finished my radiation (done on 9/25), so at this point I'm in the healing phase.  I wasn't planning on starting reconstruction until after the first of the year anyways, and am certainly willing to wait for however long is necessary in order to have a good outcome.   

  • Better-Body-Babe
    Better-Body-Babe Member Posts: 77
    edited November 2012

    Raelan-- I'm so glad you talked with Dr. Kline.  Doesn't it feel like a little bit of weight has been lifted off of your shoulders because you have a few more answers? He is so genuine and caring.  I wish you the best!

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited November 2012

    I wonder if they will suggest hyperbaric, Raelan? I fought it tooth and nail until Dr Kline and Dr Baron suggested it in September. I had been told by the PS I interviewed prior to talking to Dr Kline that it would be good for me to do before I had recon surgery and by the wound care docs, both local. Just a thought. You will be in good excellent hands with Dr Kline. A very humble but gifted surgeon!



  • slh_tn
    slh_tn Member Posts: 61
    edited November 2012

    Cascader, PinkHeart, and gma10,

    Thanks for the advice on what to bring to Charleston.   It's nice to be able to ask questions and get answers from women who have been there.   

    Raelan- I have to agree with everyone else about Dr. Kline and his staff.   They have been supportive every step of the way.  Good luck with your reconstruction.  

  • Raelan
    Raelan Member Posts: 200
    edited November 2012

    I've read there's a photo gallery available to those of us who have been members of this board for awhile, but can't locate the instructions on how to access it.  Can anyone help?  I'd love to be able to view some SGAP procedure photos just to get a better sense for some of the different types of outcomes.  

    Another question, what's the normal length of time between stage 1 and stage 2?  

  • jacee
    jacee Member Posts: 1,384
    edited November 2012

    Raelan...there is a picture forum that is not a part of bc.org, but is administrated by one of the members here. Her name is nowheregirl . Send her a PM requesting access. She may not get back to you right away as she lives in Japan and works full time.



    The average time between Stage 1 and 2 is around 3 months...though some wait as long as a year.



    Joni

  • Raelan
    Raelan Member Posts: 200
    edited November 2012

    Thanks for the info on the picture forum jacee.  

    I'm hoping to get both stage 1 and stage 2 taken care of in one year simply to optimize my out of pocket expense.  Looking to possibly schedule stage 1 next June since the kids will be out of school then and it will be easier to make all the arrangements.  Just want to make sure I have enough time to work in stage 2 in the same year.

  • jacee
    jacee Member Posts: 1,384
    edited November 2012

    I did the same thing..stage 1 in Sep....Stage 2 in Dec, for insurance purposes. Then Stage 2B in the following Oct. tattoos the following July.

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited November 2012

    I had hoped to have Stage 2 bilat-SGAP 3 months after Stage 1 (that would have been this week), but I had deep tissue healing issues related to radiation damage that Dr. K wanted me to have another 8 weeks for more healing time and to go to HBOT-hyperbaric oxygen therapy for a month.

    It turns out that it's a very good thing I wasn't in Charleston this week, because over this past week, my tennis playing, thin active husband, complained of chest pains after mowing the grass last weekend, flunked a stress echocardiogram big time, had a cardiac angiogram indicating 7 major (80-100%) blockages in all 3 main arteries that couldn't be stented, and is now having open heart quadruple bypass surgery this week!   

    So now that I am recovered, I will be taking care of him, then about the time he is recovered (6 weeks), I will be returning from Charleston-Stage 2 (going alone), and it will be his turn to take care of me again! 

    DH hasn't even had surgery yet, but I've already looked into having his cardiac rehab appointments scheduled the exact same days and time as my ongoing physical therapy/lymphedema appointments because the centers are across the hall from each other at same hospital.  He won't be able to drive for at least 4 weeks.  We'll get details when we meet with cardiac surgeon on Monday morning.

    So things are kinda upside down at my house right now, and trying to keep my kids from worrying too much about mom and dad. 

  • jacee
    jacee Member Posts: 1,384
    edited November 2012

    Wow ..that is a lot of blockage!! Good thing he wasn't stubborn about going in to be checked. Sounds like if all goes as planned you will both be able to care for the other. Gosh, our lives are so unpredictable! So glad you were pleased with Dr K and were able to do the HBOT.

    Hopefully your children will take it all in stride. Mine, though adult now, seemed more resilient than I thought with all my surgeries .

    Best wishes,

    Joni

  • MartyJ
    MartyJ Member Posts: 1,859
    edited November 2012

    Pink, wow! So glad he got checked out and didn't discount it as heartburn. I can totally empathize as we have been having my DH checked with 4 different MRIs, echos, X-rays, etc. fortunately nothing major on the immediate horizon, but the cardio and Neuro have both said parts are a wait and watch thing. Aaarrrgh! I do think you are doing the right thing with the scheduling. Keep it simple. Hope will be well and we will be thinking of you!

  • LindaG47
    LindaG47 Member Posts: 400
    edited November 2012

    Marty-  only five more days.  Are you all set?  Wishing you the best.  Give Dr. M a hug for me until I can give her one in Chicago on the 26th.  

  • MartyJ
    MartyJ Member Posts: 1,859
    edited November 2012

    Linda, I think I am good to go. We left Biloxi today for Pensacola then back to NOLA Tuesday. Can't wait to see Dr. M on Thursday for pre-op. will definitely send your hug!

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited November 2012

    Good Luck Marty with surgery.  Wow I just saw your history so this natural breast recon is extra special for you.  Good for you to be able to go early and have a good time and relax before surgery!

  • cascader
    cascader Member Posts: 599
    edited November 2012

    Thinking of you and your family this week PinkHeart.

    Good luck Marty on Friday.

  • LindaG47
    LindaG47 Member Posts: 400
    edited November 2012

    Dear Marty,

    Two more days.  Enjoy your time in NOLA before your big day. Wishing you a successful and easy recovery.  I'll be thinking of you.  Take care> ((hugs))  Linda

  • Del11
    Del11 Member Posts: 944
    edited November 2012

    I scheduled tats with Vinnie for April 4 in Baltimore. I'm going to be there for a conference, and I really despise New Orleans, so I figured it was a good opportunity. It's a long time to wait but my finances could use the break anyway :)

  • MartyJ
    MartyJ Member Posts: 1,859
    edited November 2012

    Thanks all for your support. Long day today with pre op appointments, but I am ready to go. See you on the other side!

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited November 2012

    jeskachi~

    One of these years I hope to go to Vinnie and plan to go to Baltimore as well.  I wish I could tie it in with a work conference - so much nicer to put airfare on corporate plastic!

    Long wait, but may be better to let things settle before tattooing.  Why do you despise New Orleans?  Will you see Vinnie at his studio in Finksburg or at Johns Hopkins?

  • Del11
    Del11 Member Posts: 944
    edited November 2012

    I'm not sure where I'm seeing Vinnie, I assume at his studio. Guess I'll have to figure out how to get there later.  I scheduled it for the day before the conf instead of after, which probably wasn't the smartest thing. Kind of limits the wardrobe choices.

    I just don't like New Orleans, or any southern city, actually.  Except Charleston.  NOLA is hot, dirty, dangerous, the quarter is cramped, smelly, not my idea of fun.  I guess if I were a foodie I might like NOLA better but I'm not.  It just doesn't have anything to offer me.  The people are nice but maybe not the brightest bulbs on the tree.  The Center is great for what it is, it served a purpose for me, but I'm not dying to go back there again.

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