? Some thing that was said about the 3 yr. mark

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  • TectonicShift
    TectonicShift Member Posts: 752
    edited May 2014

    You're right, AgentMo. But I hope you know that CTCs does not necessarily mean you will recur. And lack of CTCs does not necessarily mean you will not recur. I've researched this extensively. You do have a higher probability of recurring but that's all. Just a higher probability. Sending good karma eastward across the ocean.

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  • geewhiz
    geewhiz Member Posts: 1,439
    edited November 2012

    Well my onc ran all the tests. Ki67, mitotic division rate, fsh, blah, blah, blah. I am in the worst case scenario in all of them. I would prefer to be a little less informed. My idiot 20 ish year old rad onc even kept using the words "morbidity ratios". She told me that I really didnt even need to worry about the "cosmesis" outcome of my bmx, but I should be worrying about actual survival. I hired that bozo, but I also then promptly fired her.



    All of this makes every breath of air I take in a little sweeter. I focus my energy on being in the non-recurring part of those stats. I cant worry about the "what if's?". I decided three years ago that I had a single choice...get busy living, or get busy dying. I choose to live.

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  • TectonicShift
    TectonicShift Member Posts: 752
    edited May 2014

    Good on you, geewhiz. Me too! I choose to live while I can!

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  • Momine
    Momine Member Posts: 7,859
    edited November 2012

    Geewhiz, I feel the same way, I can get busy dying or get busy living.

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  • faithfulheart
    faithfulheart Member Posts: 544
    edited November 2012

    Hey sistah's,

    Well I just saw my Mo a couple days ago. The first words out of his mouth was WOW 3 years congrats!!!

    I said really?? I mean so many reacurre around this time........He said there is only hope as each year goes by, there is no rhyme or reason. One thing is for sure each year is a year to celebrate and it does bring down your risk for sure...I am sticking with his version of this 3 year mark and Praising God everyday for his mercy and grace to keep raising my kids and growing old with hubby!!!! Love you all...............live everyday, good, bad or ugly.....its a gift....

    xo

    Steph

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  • Karina121293
    Karina121293 Member Posts: 370
    edited November 2012

    Steph, so beautifully said!!! And very positive!! Thanks for posting and good health to you. I am sure if your kids were older you would still want to be there. Mine are 22 and 21, and  they have achieved a lot, but I still want to see their weddings, kids and more.. And grow old with the love of my life!!! We are not asking much, are we?? Stay well and God bless you!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Tectonic -- you can ask your doctor for which type cells you had - A or B luminal. Your doctor would be able to let you know. 

    Elizabeth -- how awful still the story of your friend after 7 yrs and all that she could possibly do she did.  I agree that is one of our biggest fears, that even though we do so much, it just isn't enough sometimes.  I wish the statistics they keep track of would also track BC details like the cell types, ERPR/Her2 status, and even 1st or 2nd cancer diagnosis'. 

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  • Kicks
    Kicks Member Posts: 4,131
    edited November 2012

    It's not being Stage III that I think about when I think about survival rate but the type I am - IBC.  It has a much worse rate than any of the other types so that's what matters to me.

    Also being ER+/PR- I have been told that I'll be on Femara/letrozole forever - not just 5 yrs.

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  • karen1956
    karen1956 Member Posts: 6,503
    edited November 2012

    My path report did not include luminal type or ki-67 status....but I am 6 1/2 years out from Dx....at this point in time, it doesn't matter to me...I've been off AI's for 2 1/2 years (endured them for 3 1/2 years)...and to me its 100%...its 100% that I'll stay NED or its 100% that I will recurr...in the mean time, I know that I've given it my all...bilat, chemo, rads, ooph and AI's....and I'm going to try to continue to live life the best I know how....

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  • ali68
    ali68 Member Posts: 1,383
    edited November 2012

    Hi, my ki-67 was 80% and with most of my cancer being in the lymph nodes I was very worried. Also being stage 3 grade 3 I thought my chances were slim.

    I've finished my treatment and have my mamo on dec 17th. I have three month check up with surgeon and onco.

    I got a "complete response" with the chemo first then surgery followed by rads.

    They told me chemo works well with my lovely cancer - how nice for me.



    I try not to think of it returning but the thought of going through all the shitty treatment again. I can understand why people say I've had enough and stop.



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  • vacationbound
    vacationbound Member Posts: 171
    edited November 2012

    On the contrary, I would want to know and I would also want my tumor genotyped so I know what type of chemo to throw at it that will work and not waste my time with chemos that will not only not work but make my organs fail before we find the chemo that will work! If I would have had the chance at knowing if I was either/or then I wouldn't be sitting here with my hands up in the air not doing a damn thing and just waiting to die!!! I will not be a guinea pig and I will not take chemo if it has not been proven to work in my favor!

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  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited November 2012

    I also was told by my onc that you count from dx date. This month begins my 2nd year past active treatment.

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