Perjeta/Herceptin/Taxotere

Please help



How many txs did you do before jut going to p/h????



I'm at wits end. I get RX 11/14. Which makes Thanksgiving day my worst big d days. Can't make drive to in laws , won't eat if I get there.

My son is off that whole week my husband week after.



If This is my last Thanksgiving I would like to enjoy it. I want to enjoy my husbands days off and sons and we want to go away overnight bc I was sick everyone this year.



I thought about refusing the taxotere. Especially reading how you feel better on just p/h. I've only done two txs so far.



I see my onc on Wed. She wasn't happy cutting dose but depends and spending 90% of time in bathroom is no QOL. Would love this break.



Do you think it's reasonable?



Thanks

Kelly

Lily lady so glad to celebrate. Doing my best happy dance.

Shaysmom I agree delaying for qol. May be only ph. I did my first ph only and thing are tasting better after only a few days yay

Thanks for this thread, lilylady! I've gotten three tx of the perjeta/herceptin/taxotere...it sounds like most people on here had a really tough time the first round. My first and second tx weren't too bad, just some occasional diarrhea days, but the 3rd tx (Oct 30) is kicking my butt!! The big D has made me miserable. Just got on lomotil yesterday, and am trying to figure out the right dosage to take. Took four pills today. Afraid of going the other direction and being constipated, as I've had that problem on other treatments...but it sounds like treating the diarrhea is more of a concern. I'm drinking lots of water and coconut water.



The eye twitch is driving me nuts!!!!! It's helpful to hear it's not just me.



@tishy34, I sure hope your c-diff is cleared up. That sounds utterly miserable!! Something else to be paranoid about, I guess.



Thank you all for the pointers and I wish you all success with this treatment!

Hi AIC.  Here's to hoping that your scans on the 19th are kick ass.  I've actually had the low grade fever thing twice at night when I've been extremely tired.  My onc told me that I was being sent a message to slow down.  Both times I was fine in the morning after a good night's sleep.  For those with the big D issues, I've recently gotten something new which seems to be helping a bit.  Its Hyoscyamine, which is used for irritable bowel.  It is intended to reduce the spasms which seem to be part of the issue for me.  I'm willing to try anything that helps.  Hang in there and we're waiting to hear good results from your scans. Have a great weekend!

AIC sleep is so important with this.  Many times I get the low grade fever feeling when I am overtired. I sometimes take Ativan and/or melatonin at night to relax me and it does help.  I don't really like to take Ambien. 

Thanks for asking regarding Sandy.  We were very fortunate.  We had three days of no power, but no damage.  Still no internet or phone at home, but that's nothing.  Many people were impacted much more.   So sad to hear the stories of some of my co-workers who's families have lost everything.  Hope your family in NJ are okay.

I am just on P and H, now. Feeling fabulous. I don't have the big D anymore . . . I keep track of what I eat and my symptoms. And, I've found on the days I have dairy, the more time I spend in the bathroom. Cut it out completely and haven't had another bout of it. Not sure if there is a corrolation for others, but it works for me. Now I just need to find other sources of calcium besides soy.

The hair grows back on herceptin and perjeta. I told my 10 year old daughter . . . 'Look, my hair is growing back.' She replied, 'Mommy, you have like 3 hairs.' Touche. I am told that it should cover my head by February. Looking forward to that.

Michelle you are right.  My big D problem is definitely managed by food.  For me the dairy is not as big an issue as sugar. Of course we all know that sugar is the worst for cancer, so it's probably best if I don't eat any. 

I was never on the on the tax, so I never did lose my hair with the P and H. 

Getting the results of my scan and treatment 7 on Thursday at 10. Prayers appreciated!

Prayers and healing energy Kingcour!  Prayers for all of us.

Great news, Lilylady! Glad your insurance company came through!

I am so so happy for you! Have been stalking the board for your results haha!!!!! I pray I have happy news as my first scan is on Monday. Celebrate!!! You have much to be thankful for!!!

Kingcour, Always good to hear great news, and I too agree with getting rid of "the mothership"  It would surely ease the mind. 

Lilylady, you've had a fight on your hands all the way around, glad to hear insurance finally came through. One less thing to worry about.