In shock

Benny, sooo good to hear from u, had this vision of you in hospital !! The fear of it being everywhere is something we all have, just try and stay positive, Chemo is quite honestly nothing like you are imagining. I cried all the way there and begged my DH to take me home. Then thought of people in far worse situations than me and how brave they were being, stopped crying and calmed down. Glad you got a wig sorted, going for mine on Wednesday. Can tie a mean turban now and it will grow back after all. Bet you are on here after first chemo agreeing with me and all our BC sisters that first one the scariest, only because you don't know what to expect. I just want to get through them now. Then the rads and on with living.

Dakota will be thinking of you on the 8th. If I can bounce through the week at 64 years old I am sure you will be able to do all you want to do. Let the unimportant things wait or get someone else to do them.I had mine Tuesday and keep waiting for something to happen. Only SE is slight dizziness and this has been caused by my anti sickness pills !!I have carried on almost as usual but make sure I rest as much as possible in between having normal experiences. Sure you will make hockey tournament and enjoy it.

Traii, well done after first chemo, it really isn't as awful as we imagine is it ? Sometimes get through a whole day with no thought of BC. An almost three year old will not let you collapse in a heap even if you want to lol. My little GD's keep me on my toes they think I just have a sore arm, if only. I  find sherbet lemon sweets help with the yucky mouth also sucking ice pieces also brushing teeth and tongue with minty toothpaste

Momine, hope you are ok. sure you are right about maybe feeling really tired at the end of these so doing as much as can manage before. 

Lovely happy Sunday to you all. Edith

Had a biopsy on left breast and i was diagnosed with IDC. Total shock. For 2 weeks lost 10 pounds because i would not eat afraid i was feeding it. Could not sleep at all. Now i am just numb. Went to counseling and they said it was estrogen and progesterone positive and her2 negative. Its a 1.5 cm tumer in left breast about 2 oclock. I have fought with insurance company for MRI but they have changed it 3 times now. Next appointment will be November 6th i hope. Can anyone tell me what the Mri will tell them they dont already know. And what treatments will be needed? I have looked up so many things on internet and my mind is mush now. And i have waited a week and a half now for the MRI. Will that make a difference? Scared to death to move.

Momine, I do find it hard to let people help, but then think   if they were in my position I would be there trying to ease their load so I let them ! DH loves the shopping and is delighted to come home and show me his bargains. I clean when I am energetic and read or watch TV when I don't.Envy you your cleaning lady, how lovely that you kept her on. More important things in life than dusting ! seven days after 1st session and still feel really good. Bit of cleaning this morning, then a good sort out of some drawers then shower and very gentle hair wash, ha ha. know it won't fall out yet but when no one is looking give it a quick tug to make sure.

cbear, big hug to you, this is the worse time for you but I promise it does ease. Please eat, you are not feeding it. You need to be strong to fight, eat well and DO NOT go on the internet looking up anything, just ask on here or your care team. I surfed like a mad woman and had myself dead and buried. So many things that aren't true on there as well.I have IDC too and as my beautiful nurse said, it is the most common form of BC and therefore they know so much about it they will have you back to good health before you know it. Mine is not hormone related so I am having chemo and rads, don't be afraid you have found us and we are here for you. We all imagine it growing out of control but it is not happening. Traii is right. I think mine has maybe been there a year. 2cm removed with a lumpectomy, now chemo, rads, are my insurance policy for plenty more years BC free.My delay was a month by the way tumour still the same as when first found.

We are all on the same journey, we will hold your hand.

Dear Dakota, I will be thinking of you and sending out calming vibes. You will be fine, if I can do it so can you. Please let me know how it goes.Those lemon drops really help and if you find your mouth is dry when you get home suck on ice pieces they really help. Drink lots of fluid too, unfortunately, not alchohol lol.

Love your pix of your horse, he is absolutely beautiful!

Great pictures .. And great smile!

Hey Benny, great pics of Diamond and you!..how do you post the pics in your message like that?



Edithester I hope your feeling okay now that you are on your way with chemo, you have such a positive attitude I know you will manage through it!



I hope everyone has a SE free week and am sending positive vibes along!..to those that are starting this week you will do just fine.

Edithester : i'm off to the shop again tomorrow for some Sensadyne........anything to get rid of this fluffiness ! (I'll be buying more salt the way I'm going about gargling too) ha ha !

Today is my Day 6 too, not sure If I've missed your post somewhere but what chemo drugs are you having?

I'm on Taxotere and today I started having sore nails !!!

Tomorrow is Melbourne Cup Day 'the race that stops the nation' (apparently) so I'll be going out and putting my bets on in the morning....who knows....I've bet the odds of being 1 in 8 with BC maybe I'll win some money just for fun  I'm also having the family over for a BBQ tomorrow too can't wait, I love entertaining and chemo ain't gonna stop me at that  

Traii, hi there, on Epi-Cmf, epirubicin, cyclophosphamide,methotrexate and fluorouracil also known as 5FU. ! no wonder we expect SE's from all that lol. Think I have 4 of those and then 4 of something else but can't find paperwork ! Seven pages of SE's from this first one alone.Mine hormone neg so no hormone treatment for me.

Good luck with the tongue mine only lasted one day, what does salt water help with ? have seen it recommended a few times.Sore nails sounds awful, I know you shouldn't have a mainicure except with your own manicure set and only use nail clippers not scissors. I really can't work those, always use scissors so will just be extra careful.

Did you win on the race ? do hope so. BBQ sounds lovely and as you say chemo ain't stopping us having fun.

See one of your  operations was three days after mine and on the same side too. I am trying to be sooo careful not to do anything to right hand and arm i.e. cut,burn etc and have finally got into lifting with left arm. How are you coping with it all ?

Edi.

Hi Carla, I am sure hoping your biopsy results come back B9...you have found the perfect site for support. your mass is the same as mine was, 2 o'clock left breast. My surgeon said the same thing almost positive it was cancer...on the mammogram it was picture perfect. I was where you are last June. Now I am done surgery and have my last chemo on Wednesday. Keep up with the foods, you want to try and maintain your weight. You are in the hardest part right now, the testing....waiting for results. We are here for you 24/7. It may sound crazy but it does get easier.



Traii and Edithester it is so nice to chat with ladies from all over the world. I have a aunt and uncle and cousins living north of Sydney at Bonny Hills on the coast near Port MaQuarrie, NSW. I also have a grandfather from Oswestry, Shropshire in the UK.



Good luck with the fuzzy tongues, lol feels weird doesn't it. Mine only last for a few days. I have been on the AC.



Hope you all have a good week, I am feeling good, go for bloodwork tomorrow and last chemo on Wednesday!!!!

Dont you just hate when you type out a long email replying to all and you loose it...ahhhhhhhhhhh!,

Edi, hey there, I will be on CMF starting 3 cycles day after Christmas.....hope its a lot calmer than Taxotere!

Long list and scary list of Taxotere I tell you but I guess many others have been through it so I'm sure i can too!

They say Salt Water helps with the ulcers.....don't think so much with the fluffy tongue though...lol.

Nails are sore I haven't touched them manicure wise, though I have clear nailpolish on it, a good Sally Hansen one to make them stronger to 'hopefully' stop them from peeling and lifting!

I'm going to ice my mouth next treatment and also thinking of doing my toes and fingernails...I've seen on other  boards that they do this so I may give it a try ( if my ice gets there as 'ice' as I have just over an hour drive to the hospital )!!

I was scared, more cautious re post op .... cuts, burns, picking up my son who knew mummy had a 'sore' but just wanted to be cuddled but we still managed lots of cuddles on the couch.

The more I worried about things the worse I was.....I cut my finger while cutting up the veggies one night....it was ok, it healed well but I'm a ditz when it comes to that!  Now I've got numbness but not that it bothers me....its mainly under my arm pit so not all that noticeable..only when I go to touch it and i'm like oh..... I can't feel there!

Well I didn't win on the races, BBQ was good though Thank god I still have my taste buds !! Dessert was yummy...yes I did endulge, but we are women, we can endulge right...right ?? lol of course we can             There's still a chance to win tonight, we have a AUD100 mill lotto draw tonight......got my tickets on for that too.....hmmm I'm not a gambler.....I'm not , honestly....ha ha !!

Bearcub, it is nice having you ladies to chat to all over the world I'm in Melbourne, I've been to Sydney a few times (not as nice as Melbourne ) ha ha !

Carla, you are not alone hun...this is the worst part of it all, not knowing but once you have a plan in place then its all go from there....first things first.......meeting with your doctor to see if it is anything and if it is.....next course of action. You have come to the right place, I've learnt so many things from these ladies and everyone is so helpful

I too found my lump 3 weeks before my scheduled mammogram. An ultrasound was then followed straight away when I could tell by the look of the radiographer that it was cancer......everything seemed to fall into place from there and was just go go go.....!

Wish you all the best and keep us posted Carla

 Take care ladies and enjoy your day

Ahh well just put little one to bed....its 10:30pm here and we went to my parents house for a bit so he could stay up 'late' because he just loooves his grandparents.....(mind you thank god they only live 5 minutes drive away) !They have both been my rock through this

Yes CMF does sound much better so fingers crossed I get through 2 more Taxoteres before I start CMF.

Got my cousin over today and she put nice blonde foils throughout my wig which is looking exactly the same as my hair now......thank goodness.....the wigs now a days are soooo much better than my ugly synthetic wig I had back when I was 18 however it got me by then so I must be grateful for it ( and the new natural real hear wigs they have now)!!

Well I didn't win lotto either...lol just my luck!

I'm going to take a cooler bag with me I'm actually going to test it out next week and keep the ice out of the freezer for the hour so that I can see if it will still be ok and phone the hospital to see if they do have a freezer I can put ice in when i get there .... hopefully they say yes!

Whoo hoo, 7 days like me and not too bad SE's ( just bone pain today oh and how can we forget that fluffy tongue I can't say boredom with my son around, whats boredom...lol)

Enjoy your little venture out today Edi...... go get those magazines and have yourself a cuppa (and a bicky) and curl up on the couch....ahhhh......take care

Traii

Quick question for anyone.  When I originally went in to see my Surgeon he did say by the looks of things,  (this was before the biopsy) he didn't think I would need an MRI.  He was going off the Mammo and Ultra sound.  Any thoughts? Just trying to get prepared for what might come tomorrow.

You all are great!

Carla

Edith you sound like you are managing your chemo great, positive attitude can go a long way. Have a great time tomorrow with friends and tea with your darling GD....



Carla I never had an MRI either, just mammogram, US, biopsy, chest xray, surgery and a CT scan as the doctor thought she felt something around my liver. No MRI. CT came back all clear as did all my organs. Chest X-ray normal. Your doctor may suspect from the mamm and US that the mass is very small.