CT Scan showed liver and bone mets -- what comes next?

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Well, can't believe I'm really here.  I feel like I'd finally gotten my feet back under me and started to trust that between the surgery, chemo, rads, and Stage 1 diagnosis the odds were in my favor that I wouldn't be needing this thread (well, at least not THIS soon!).  But as we all know, cancer is a crapshoot, and someone has to be on the "bad side" of those favorable Stage I statistics, so here I am! 

Sorry for the angst....just needed to vent a little before I actually asked for some help from everyone here.  Just almost at the 4 year NED mark, but recently I started having some steadily worsening pain in my shoulder and in my right lower ribcage when I inhaled deeply or laughed.  It was pretty well controlled with massive doses of Advil, but I when I mentioned it at my regular med onc checkup last Weds., the NP said to let her know if it persisted or got worse.  Well, it did so...right before I had to hit the road for Parent's Weekend at my daughter's college, so I called and left a message to that effect at the onc's office.  While I was on the road, the nurse called to say my onc wanted me to go to the ER to rule out a blood clot from my Tamoxifen.

The ER did a CT scan -- no blood clot, but did show what the radiologist interpreted as likely liver and skeletal mets.   I called the on-call doc at my onc's office, who said to call the triage nurse and drop off the CT film on Monday.  Just got back from doing that, so back in the waiting pool.   So now, while I wait for the doc to call me, I am trying to get an idea of what would come next as far as possible tests/procedures, etc., and a general idea of the time frame involved to come up with a treatment plan.  Main reason for wanting to know all this is to figure out when we'll know enough to pinpoint a good time to tell the kiddos -- the daughter in college is a freshman and is struggling right now, so timing is kind of a key issue.  Ideally we could wait until she's finished with 1st semester and home for Winter break (Dec. 14), but for all I know I may be deep into some kind of treatment long before then.  Just have no idea what to expect, and that's really bothering me right now more than the actual recurrence.  Bizarre, I know, but I'm a planner by nature, and what kills me is not being able to make even a rudimentary plan about all this. 

So can any of you lovely ladies who have been down this road give me an idea as to what the possible next steps would be?  THanks so much!!!

Comments

  • Shevi
    Shevi Member Posts: 20
    edited November 2012

    Hi marymoir just wanted to let you know you're not alone at feeling frustrated by CT findings. I had mine 5days ago and PET CT showed a solitary liver met clear margins. I was 1.5yrs post chemo. So d oncos and surgeons decided to go ahead for a liver segment resection as its in a easy location. I just got back from meeting my surgeon he said 20% or less of my liver will be removed (not a big issue since humans can survive with 30% even). Oral chemo will follow. Im HER2+ so you're treatment might be different to mine. Im not very sure of how they deal with bone mets tho but radiotherapy might be on the list. 

    Timing should be perfect so I'd wait to hear from my onco before telling the kids. They might trial with radiotherapy or systemic chemo. Being a planner is awesome dont ever outgrow that habit. Im also new to this site and have found some valuable answers ive been seeking. Best of luck for your treatment and i hope my answer helped you to get some sort of an idea. 

  • marymoir
    marymoir Member Posts: 245
    edited November 2012

    Yep, thanks so much! Saw the onc this afternoon and we won't have a treatment plan until after some tests this week. Liver biopsy to make sure that the mets have the same hormonal stats as my original tumor and a PET/CT to see how widespread everything is. We meet with him again next week to map out a treatment plan. Guess a week isn't really too long to wait but dang, do I ever hate waiting!!

  • Shevi
    Shevi Member Posts: 20
    edited November 2012

    Marymoir you should also try posting this on stage 4 BC only forum, might get lot more answers as i got. Keep us updatedSmile

  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    So sorry this has happened. My mets (liver & chest nodes) were dx Oct 2 through a PET.



    I then had a liver biopsy. I'm triple negative, so I just started gemzar/ carbo.



    I hope they come up with just the right plan for you!

  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    So sorry this has happened. My mets (liver & chest nodes) were dx Oct 2 through a PET.



    I then had a liver biopsy. I'm triple negative, so I just started gemzar/ carbo.



    I hope they come up with just the right plan for you!

  • chrissyb
    chrissyb Member Posts: 16,818
    edited November 2012

    Mary if your stats are the same as the original and you are post menopausal you may be put on one of the AI's. these little pills are pretty powerful. Hope you get some answers soon.



    Love n hugs. Chrissy

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