just had mastectomy feeling sorry for myself

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Hi Ladies: I had a double mastectomy on Oct 11, 2012. I am fine with my decision to remove the healthy breast. In July 11 I had lumpectomy (2) No lymph involvement, followed by 4 chemo treatments then 30 days radiation. I finished all in March and went for my mammogram in July and she found what she described as stage 0 insitu. So once again am home recovering anxious to get the 4 drains out. I do not even like looking at myself. I know a lot of it is black and blue, stitches , drains. Extra skin is left so I can have reconstruction at a later date. She wants me to lose weight ( Need to any way) so she can use belly fat and I would get a tummy tuck in process. That makes motivated to lose the weight. My question is I know there are a lot of products out there in bras Cami's etc, but just curious how you make yourself feel pretty. I know some women whether breast cancer or not have such a flair for accessorizing . I am not one of them. When i go back to work I work in an elementary public school  with special needs children. I don't have to be very dressy but have to look professional. Also waiting for results so that is weighing on me. Love this website and all of you

Comments

  • J9W
    J9W Member Posts: 395
    edited October 2012

    Hi,  I don't have the flair for accessorizing so I may not be helpful there - except I did become a whiz at using scarfs draped all different ways. And loose sweaters. 

    I so remember feeling and looking like I got beat up!  At the time of my surgery I decided to take some good with the bad and got my eye lids done and my chin/neck done. WOW. When I first saw myself in the mirror I couldn't believe I paid to do that to myself! It's a few years later and I'm so glad I did all that. The scars are gone, the droopy lids are gone, the extra chins are gone so in the long run, it was worth it. Keep a smile on your fact, it will be better before you know it. Hugs.

  • Momine
    Momine Member Posts: 7,859
    edited October 2012

    Hi Karen, welcome! The drains are HORRIBLE! Like you, I could not look at the mess at first, and actually my surgeon told me not to bother and to wait until I was healed a bit. I think that was pretty good advice.

    You will feel better when the drains are out and then things will improve steadily, although it seems really slow at first.

    I have been wearing those fiber fill foobs, small ones, in a cami a lot of the time. It is easy, does not hurt or bother anything and you can wear the same clothes without adjustments.

    If you prefer to go without, you will need to experiemnt a bit with what you like and what suits your new shape.  

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2012

    I had my tissue expander removed after doing immediate recon after my mastectomies, so I had a lopsided chest for 7 months while waiting for surgery to put it back - I was doing chemo in the meantime.  I found a variety of prosthetics that worked with different clothes, and also found that ruffles, pleats, ruching, gathering and draped necklines worked as camoflauge.  I did wear plain shirts with scarves also.  Here is a link to a scarf tying video that is cute:

    http://www.youtube.com/watch?v=5LYAEz777AU

    I received a traditional prosthetic from the American Cancer Society for free from one of their gift closets.  My insurance would not cover payment for one since my situation was temporary so it was very nice to have one from ACS as they are quite expensive.  I also used the insert from my surgical camisole - it was soft cotton and I could use more of less of the fluff - it worked like a little pillow sham - and it was very comfortable and lightweight.  Here is a link for making any bra into a mastectomy bra if you sew:

    http://www.whatididtosurvive.com/category/how-to-make-a-mastectomy-bra/

  • River_Rat
    River_Rat Member Posts: 1,724
    edited October 2012

    SpecialK, that's the best scarf tutorial I've ever seen - bookmarked!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2012

    RR - Glad you liked it - I thought it was cute and creative.  A friend showed it to me - she has been uber supportive throughout my BC experience, including giving me a place to stay when I travel to Washington, D.C. for the Her2+ vaccine trial every three weeks.  Love her!

  • scared2death2
    scared2death2 Member Posts: 22
    edited November 2012

    Hi Karensimone,

    I had a bmx on September 27 and know exactly how you are feeling.  I hate looking at myself.  Oddly enough, I thought I'd be okay and wouldn't look until I had some plan for reconstruction.  As you probably know, it is impossible not to look.  I don't know what I was thinking.

    I was just fitted today for my first bra and prothetic.  I feel like an old lady and I'm 51 and single (which makes this worse).  I never wore a bra that was so damn high cut.  They are so high maintenance as well.  Placing them in 'containers' every night before bed.  UGH

    I can't accessorize either.  However, several weeks ago I saw a woman wearing a plain white t-shirt with a pretty scarf.  I would have never though of wearing a scarf with a t-shirt but it looked really nice. 

  • Dawn7
    Dawn7 Member Posts: 66
    edited November 2012

    Hi. I had a BMX on Oct 25 2012 for ILC. I choose no reconstruction and don't regret it. I am very fortunate in that the tumor board reccomended no further treatment as the Ca was small and I am post menopausal. But heres the thing- I find myself suddenly depressed with a feeling of unreality about the whole process. I'm also scared about cancer being " somewhere else" as two of my relatives died of ovarian cancer. I am gene negative. They didn't do any scans. Are these feelings normal?? I was proud of myself for being brave before- now I'm feeling kind of wimpy.

  • scared2death2
    scared2death2 Member Posts: 22
    edited November 2012

    Dawn, I'm so new to this that I don't knew whether this is normal or not but I feel the same way.  I keep thinking if it could be somewhere else.

    Fits to a T when I read 'I find myself suddenly depressed with a feeling of unreality about the whole process'. 

  • Racy
    Racy Member Posts: 2,651
    edited November 2012

    Dawn and Scared, yes your feelings are totally normal but that doesn't mean you have to feel that way. Counselling or psychological therapy can help you process your feelings and you can talk openly to a therapist about your fears in a way you may not want to do with family and friends.



    I strongly recommend that you speak to your doctor or cancer centre and get a referral for counselling. Some cancer organisations offer free counselling.



    And keep in touch on this site for valuable support as you deal with and process your diagnosis.

  • peb
    peb Member Posts: 48
    edited November 2012

    Having bilateral on nov 12th with no recon now. I just wondered if the chest gets numb and stays numb?

  • Galsal
    Galsal Member Posts: 1,886
    edited November 2012

    Great scarf tutorial!

  • MENA1954
    MENA1954 Member Posts: 194
    edited November 2012

    I has a BLMX on August 1, 2012. When I made that decision after discussing it my husband, we decided that to avoid a longer surgery I would NOT have recostruction done!

    When I went to see my BS who I think of as my "ANGEL" I told her about wanting to also remove the GOOd breast but NO reconstruction.  Her immediate response was " I support you on the DMX but definitely NOT on NO reconstruction.

    She told me that I would regret such a decision and that opting to have the reconstruction at the time of the surgery would save me from additional surgery if I changed my mind later on

    Before going into surgery I took a picture of MY BREASTS so that I could remember them as they once were.

    Now when I look at my new ones I cry...then I think...well at least I have them and they are mine, nothing foreign in them! 

    I cannot imagine looking in the mirror and seeing nothing!

    O f course I am not judging anyone who chose or is chosing NO RECONSTRUCTION, all I am saying please give it a second though before your final decision!

    Since I valued her opinion so much and trusted her with my life, I decided to go for it!  A decision I will never regret!

    I went to sleep with breasts and I woke up with breast! 

  • Dawn7
    Dawn7 Member Posts: 66
    edited November 2012

    Hi, Mena,

    I am pleased you are happy in your decision to have reconstrution. I chose not to have it because I think I look fine without breasts. My feelings of sadness 10 days out are more about having experienced cancer than not having new breasts and concerns about a reoccurence elsewhere. That said, I am profoundly grateful to be alive and am thankful to my radiologist who spotted a very small invasive cancer before it could do more harm. Take care, Dawn

  • Dawn7
    Dawn7 Member Posts: 66
    edited November 2012

    Mena,

    After taking another look at my previous post, I think I came off as a bit self righteous. I hope no one took offense. I appreciate all the different view points about the choices women have after masectomy and am glad that this website gives a voice to so many going through such a difficult and stressful time. I have received tons of support and advice which has helped me get through this. Thank you ladies. Dawn

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    Hi Karen,

    I had my BMX in june 2012, my BS and I decided against immediate recon, because we didn't know if I would have to have chemo or rads. I was really wanting to have recon at that time, and was very upset. I don't regret the delayed reconstruction because I was able to get myself healed before I went for the next surgery. I understand about not wanting to look at yourself in the mirror post surgery. I told my husband I wanted all the mirrors in the house covered up. My husband, said that he was not going to do that and that we were going to face this head on. I have changed my mind on the final stages of recon nips and tattoos so many times. I have finally made the decision to go for the whole shebang. Cancer took my breasts and happiness for a while and with the help of my amazing dr's I'm getting it back.

    Make your decision for yourself not for anyone else. hugs

  • crystalphm
    crystalphm Member Posts: 1,138
    edited November 2012

    Dawn, It is very normal to have times of sadness, breast cancer is *alot* on our plates to cope with, no matter how we proceed with it. My mastectomy was a year ago today and I feel uncomfortable all day.

    Mena is new to our groups and maybe she didn't realize she was posting in a forum where women are choosing to *not* get reconstruction. Here, we have all chosen to not be reconstructed, and we support each other in our choice to be flat and beautiful. I think I look fine without breasts too...no need for major surgery after cancer surgery, that is for sure.

    Peb, my chest (double mastectomy) has alot of sensation, I feel clothing move against me, I could feel a very light tickle...so while some women have no feeling at all, I have quite a bit of feeling left.

  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited November 2012

    Has your surgeon showed you pictures of this tummy tuck you get with reconstruction? The pictures I saw from a PS had a large scar going across the abdomen. I never did get reconstruction, but at first I was excited about geting a tummy tuck. When I saw the pictures, I was sorely disappointed.

    I am not trying to discourage you from reconstruction. I totally support you. I just don't don't want you to get caught in the uplifting news of a tummy tuck then seeing the pictures of what it looks like.

  • MENA1954
    MENA1954 Member Posts: 194
    edited November 2012

    I am so sorry if in any way I offended anyone!  Believe me, I had no intention what so ever to do that!

    The reason I posted in this particular forum was because I wanted to share  that my original decision was NOT TO HAVE RECONSTRUCTION and that the only reason I changed my mind was because my BS  convinced me to do it by explaining the benefits!  Now, after the fact I will forever be thankful to her for changing my mind!

    We all do what is good for us and I respect all of you for doing what was or is GOOD for YOU!

    It is not my place to judge!  Again sorry....

    Mena

  • Dawn7
    Dawn7 Member Posts: 66
    edited November 2012

    Mena,

    You are happy with your decision and that is a good thing! No offense taken at all but.... My breast oncology surgeon supported my decision NOT to have reconstruction and for that I am also grateful. The beauty here is we are both pleased. :0). Here's to diversity - boobs, foobs or flat. More importantly- heres to more research, funding and finding a cure and ways to prevent this horrible disease in the first place!!! Dawn

  • Starak
    Starak Member Posts: 536
    edited November 2012

    Mena927 - First, I am so happy that you made the right decision for you.  At the end of the day that is all I wish for any of us.

    That said, I must ask the following about your BS reaction.   Was it A) Because she knew you so well that she knew YOU would regret the decision or B) That she is so sure of this in her own mind that SHE feels compelled to essentially ram it down all of her patients throats?  In other words if you had still come back to her with "I have really thought this through very carefully and have come to the conclusion that recon is not for me" would she have accepted your decision or not?

    My BS stood ready to accept whatever direction I wanted to go be it recon or no.  When I told her there would be no recon with no equivocation on my part, she accepted my decision without argument for which I am so grateful.  Even though I made the opposite decision, I too made the right decision which only goes to show that one size does not fit all.

    Barbara

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    As a slight sidebar to this discussion, I just wanted to point out there are women who spend time on this forum while they are waiting to reconstruct or have had issues with reconstruction and are waiting to try again. They need support finding garments, prosthetics and have their own issues of coping with being flat. A while back I posted something and one of these gals gently reminded me of that, and she said it was sometimes hard to feel welcome here because many of us seem so anti-reconstruction. This really gave me pause and made me think about how all the forums here on BCO often overlap. Breast cancer is what brings us all together, and we all deserve support in our decisions even when they differ from others. BC diagnoses and treatments overwhelm and make it difficult to know what to choose. Some will be happy with reconstruction; some will regret it; some will be forced to undo their recon when it fails; others choose no recon and don't look back; and yet there are others who live flat by choice for many years and then decide to reconstruct. BC is a wicked ride, and as much as I rant against certain things, I always wish for my sisters to be happy with their bodies once surgeries and treatments are complete.

  • Starak
    Starak Member Posts: 536
    edited November 2012

    Tina337 - You make a good point.  In case there was any misunderstanding about my comments, I am NOT at all anti-reconstruction nor do I think anyone who has decided against reconstruction should feel even the slightest pressure to go flat, I DO NOT!!   My concern goes to the medical professionals that feel compelled to force their view of the world onto their patients.  Their job is to provide information, fairly present all of our options, and help us to look beyond all the terror and emotion of the moment to make truly informed decisions.  After that we deserve to make our own choices and to have those choices respected by everyone.  As you so rightly say, for any number of reasons, whether simply by a change of heart or medical complication, new choices will be made by a significant number of us.  Which brings me to something that has really weighed on my mind lately and I think dove-tails right into your comments but again goes back to the professionals.  As a professional when you convince a patient that if she refuses recon that she will be ugly, mutilated, and unhappy, where does that leave her if for whatever reason she ever finds herself with a failed recon?  They poison the waters.  I see remarkable beauty all around me whether with recon, breast forms or flat and I hope that each of them sees that beauty in themselves. 

    Barbara

  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited November 2012

    I chose delayed recon with the help of my surgeon and my spouse. I HAD to get used to the idea that I had bc. Plus, if I had to have chemo or rads I didn't want to compromise my TE's. It is truly a personal choice for each brave woman affected by this disease to make. To me it was the same decision I had to make on deciding to do nips and tattoing. I was deadset on not doing them, then 2 weeks I changed my mind but kept it to myself. For me, I wanted to feel "normal" again, or as normal as you can be after being affected by this. Everyone has good points on their arguments and I see everyone's views. Like I said it's a tough decision to make.

    Karensimone- I hope you make the right decision for you. My thoughts and prayers are with you.

    christy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    That scarf tutorial was fantastic !

    Beth

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