Clothing design challenges with LE

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  • Lee7
    Lee7 Member Posts: 657
    edited October 2012

    Good idea to wear a black glove if you can't wear the gaunlet. Atleast until there's a matching glove.  :)

  • Cindyl
    Cindyl Member Posts: 1,194
    edited October 2012

    I'll throw my vote in for pretty camis.  My trunk is much more of an issue than my arm... I understand the reluctance to do non medical grade stuff, but it'd sure be nice to "match" when my new pretty blue lymphadiva sleeve comes

  • Lee7
    Lee7 Member Posts: 657
    edited October 2012

    Another thought on differently designed sleeves.... I saw a garment that was one piece but it was for both arms. The sleeve parts were connected by a thinner (3" wide band that went across the back). What was nice about it was that if you wore it under a tshirt, it would just look like a long sleeve shirt under the tshirt.  It came in 15-20compression and I guess was meant to tone flabby arms.  BUT.. You could make one arm a 20-30 compression and leave the other one 15-20.   Just a thought.    I like the idea of both arms looking the same because I really don't like to draw attention to it.  The questions just get to me sometimes.

  • LympheDIVAs
    LympheDIVAs Member Posts: 35
    edited October 2012

    Lee7,

    I'm not sure when we'll be able to provide a 15-20, but you could always try moving up a size for the unaffected arm. As long as you still have higher compression at your wrist and lower compression along the way, that should be fine and would very likely be 15-20 or less. PM me your measurements and I can help you out. Ultimately, you should definitely talk about doing this with your therapist first.

  • Estel
    Estel Member Posts: 3,353
    edited October 2012

    Why the reluctance on the Grade I level compression for sleeves?  

  • BeckySharp
    BeckySharp Member Posts: 935
    edited October 2012

    Josh--I sent your picture to the six CLT therapists in my area.  I got some rave responses from them.  My support group meets on Nov. 6 and I will show it there.  I am also going to Lighthouse Lymphedema Network conference Saturday and will take the picture with me on my ipad.  I am ready to order!

  • LympheDIVAs
    LympheDIVAs Member Posts: 35
    edited October 2012

    Thanks BeckySharp! Let me know if they'd like me to talk with them as well :)

  • cookiegal
    cookiegal Member Posts: 3,296
    edited October 2012

    I would also vote oversleeve, since I can not wear your sleeves due to my arm shape. I have had one, and it made my lower arm swelling worse, it was good on the upper though.

    Or custom!

    Love the design.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited October 2012

    BTW, I do like your gauntlet. I am a glove girl, but on the rare occasion I wear a gauntlet, I do prefer yours.

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    GREAT!

    They say it doesnt hurt to ask!  :>)

    I just ordered a my first Lymphediva sleeve today.

    Thanks so much!

    I'll be in touch.

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    Absolutely!
    I ordered a lymphediva today, but they said I would have to order a  ' regular beige glove".

    I think these sleeves should have  matching gloves----if not in the designs then at least in cooridinating colors.

    A scarf in the same color would be great too.

    When I broke my arm , I often wore a fashionable scarf over the ugly sling.

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    Hmmm.....15-20 compression ?

    My LE is currently very mild.  They ordered the 20-30 since that was all they had.  Now I wonder if this is not good.

    I know  the ' wrong' compression can make things worse. Dont want that!

    As it is, the lady who measured said :  " I'm, sure we can get you into a small."  ( sounded like she was squeezing me in !)  I just said : " well , pls be sure"
    and she said : " Oh yes.'

    Not feeling very confident right now !

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited October 2012

    Purple - I have precautionary sleeves and my LE therapist told me to order the 20-30.. I don't think you need to worry..

  • hugz4u
    hugz4u Member Posts: 2,781
    edited October 2012

    Purple, Anyone that is trying to squeeze me into a sleeve would not be on my top ten list. Your reply was right. I may have added that you are in for the long haul and need a good fit as LE is so frustrating and an ill fitting sleeve would add to it. I have learned the hard way as I have a few ill fitting sleeves in my drawer. I don't plan on collecting too many more. Yikes this garment thing is the worst! Grrrr.

  • LympheDIVAs
    LympheDIVAs Member Posts: 35
    edited October 2012

    Hugz4u and purple32,

    I don't like the "I'm sure we can get you into a small" line either. If that was someone on my staff, I will absolutely speak to them about it. We prefer to use more objective numbers with our Fitters Aid tool where we can plot approximate compression at each measurement point to see if the compression looks good for any individual across all of our garments.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2012

    Thank you, Lymphedivas, for being on the case.

  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited October 2012

    Oh boy Purple - I didn't see the last half of you message - I would have told that lady where to go and would of found someone else...If you really know me,  I wouldn't "actually" tell them where to go, but I would tell them I didn't approve and question alot at what they said... I tried one fitter in town, that acted like she was God and I knew nothing..I don't like being talked down to.... I now get measurements from my LE therapist and order what I need together..

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    Josh is personally helping me with the sizing through PM.

    Thanks to all!

  • cookiegal
    cookiegal Member Posts: 3,296
    edited November 2012
  • cookiegal
    cookiegal Member Posts: 3,296
    edited November 2012

    These are sold out but casual and fun, I would think they would distract

    http://www.eileenfisher.com/EileenFisher/GeneralContent/OurAdvertising.jsp?bmLocale=en_US#

    The rainbow gauntlets are in the NYT ad, look at the bottom right of the gallery

  • cookiegal
    cookiegal Member Posts: 3,296
    edited November 2012
  • cookiegal
    cookiegal Member Posts: 3,296
    edited November 2012

    this was a very very expensive blouse, but it looked amazing with the glove. I actually am thinking of getting a glove for the other side so it all just matches.

  • LympheDIVAs
    LympheDIVAs Member Posts: 35
    edited November 2012

    Hi everyone! The sleeves are all ready to go and will be on our store on Monday. If you'd like to order earlier, please call us tomorrow at 866-411-3482 or PM me with any questions.

    LympheDIVAs Hospital Sleeve

  • Marple
    Marple Member Posts: 19,143
    edited November 2012

    I'm sure this has been mentioned before but just in case, if one is having general anesthetic I don't think a fitted sleeve would be a very good idea.  I assume the above sleeve is a compression sleeve or is it simply an arm cover?

  • carol57
    carol57 Member Posts: 3,567
    edited November 2012

    Marple's point is spot on. The sleeve is an amazing option for when we go to get our vaccinations, get blood drawn for tests, or for the weigh-in/BP moment with each MD visit. And of course, for those who want to make a really BIG statement about what it means to have LE! But it's not safe to wear a compression sleeve while sleeping, so of course that means it's not wise during general anesthesia.

    So...Josh? I know you've said here that the company has to be mighty careful about making sure that all the garments are medical grade. I think that's what you've said to explain why you're not able to sell non-compression sleeve covers. 

    But would it be possible to offer a paper sleeve of this astounding sleeve design, in full glorious yellow color?  In other words, a disposable alert to end all arm alerts, that we could buy in packs of 5 or so, for when we want to shout out the message, but it's not medically sound to be in compression..like going into surgery.  It wouldn't have to be a sleeve; it could be a flat item that we trim and tape to fit.

    Just a suggestion, and whatever your answer, you and LympheDivas totally rock in my book. Anyone who's ever read 'about us' on your website knows why you take lymphedema and BC to heart personally, and wow does it show in your responsiveness to requests for help. 

    Carol

  • purple32
    purple32 Member Posts: 3,188
    edited November 2012

    Very chic , cookie

    I'm starting to see LE is pricey!

  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited November 2012

    I wore old sleeves for my last two surgeries...my husband wrote in big black sharpie marker "NO IV, NO BP" all over them.  My surgeons/anesthetist had no issues with the sleeves.  My surgeries where for less then 4 hours each time.   I can see sleeping with the sleeves being an issue as we move around so much in our sleep and that can cause pinching or shifting but when in surgery we are pretty still (unless the doc's move us around).  I was more concerned that the surgeon would take issue since the sleeves were not sanitized...Undecided

  • Kay_G
    Kay_G Member Posts: 3,345
    edited November 2012

    When I just had my nipple reconstruction surgery, I wore my sleeve. Neither the surgeon nor the anesthesiologist had a problem with it. I am not sure if it had been a longer surgery if they would have let me wear it or not. It was only about half an hour or so.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Lymphedivas, you guys are wonderful! Thank you for listening and for creating an amazing sleeve! I will PM you about size/class question.

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited November 2012

    The concern about wearing daytime compression sleeves for sleeping is the possibility the sleeve top will slip or roll down, creating a tourniquet effect.  For patients who already have problems with slippage during the day or who are very "active" sleepers, it is a real risk and should be avoided.  I suspect, however, that a fair number of LE patients, myself included, have at some point "napped" during the day or even overnight while wearing their daytime garments without any adverse effects.



    While I believe awareness and avoidance of potential risks is to be encouraged, I don't believe it has to be an absolute in every situation or for every patient.  I have worn my sleeve and glove during minor surgery and colonoscopy procedures, both which were under IV sedation for less than an hour.  In addition to the vaccination, bloodwork, BP and office visits mentioned above, I see this warning sleeve as an appropriate option for outpatient procedures of brief duration that do not involve general anesthesia.



    Bottomline is that full communication with medical personnel in which the risks can be discussed and weighed, must be accomplished prior to any procedure.  Proper notation should be made on the record that allows staff to recognize if action is required on their part in the event the procedure goes long or not according to plan.  A patient who knows their LE well, must decide if the benefit of maintaining compression during a brief procedure outweighs their risk of sleeve slippage or the additional swelling they will have to manage if not wearing compression. The decision will vary pending the type of procedure and the individual patient.



    I believe this new warning sleeve will have many useful applications and am looking forward to ordering one for myself.  Thanks to Josh and LympheDivas for their amazing responsiveness to the needs of the LE community!



    Linda

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