April/May 2012 Chemo hang out

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  • kjiberty
    kjiberty Member Posts: 1,385
    edited October 2012

    Pauletta:  The aquafor is very thick--like vasolene.  YOu can mix it with a little pure olive oil for better consistency. Be careful as it may stain your clothes.  As far as radiation:  I had a little pinkness and tightness in the area--that's it.  It can depend on how fair you are.  Actually, the fairer, the better. I am very fair. It's been 6 weeks for me, and you would never know I had rads.  Rads are a walk in the park compared to chemo, IMO.  

  • Pauletta
    Pauletta Member Posts: 54
    edited November 2012

    I got a big container of Aquaphor at Walmart. Do you think I will need to get Miaderm to use during the day? I want to have as little problems with my breast as possible during radiation. 

  • kjiberty
    kjiberty Member Posts: 1,385
    edited November 2012

    I would use the Miaderm during the day.  The aquafor can be greasy.  It's got the consistency of vasolene.  It's good to mix with Pure Olive oil, which is the thickest olive oil.  I put that on at night.  Are you fair-skinned?  I am.  The fairer skinned people tend to "fare" better than darker skinned women per my sister who is a radiation therapist.

  • Pauletta
    Pauletta Member Posts: 54
    edited November 2012

    Got a question for ya'll. My oncologist just called and (well the nurse called) I'm waiting for him to call me back so I can get more details.

    He put on my chart to hold the Herceptin. I had an echocardiogram done last week. She said that they got the results back and he put on my chart to hold the herceptin. Has anyone had to stop the herceptin after having in for 15 weeks? And if so, did they start you back on it? I am just wondering if they stop it.....what is going to attack the HER2? I am really worried here.

    I had my first radiation today. 

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited November 2012

    Pauletta- I'm still getting Herceptin. I had my 3rd echocardiogram a few weeks ago.  My heart rate function looks fine so I get to continue with the Herceptin.  You probably want to have a meeting with your MO to talk about what the numbers look like for your heart function.  I know of several woman that have stopped the Herceptin because of the decreased heart function.  I don't know remember which chemo regimen you had.  If you had AC or ACT, the A can also affect heart function.  Hope your rads went well today.

  • Pauletta
    Pauletta Member Posts: 54
    edited November 2012

    Hi Melrosemeir,

    I have an appt with my Oncologist today @ 1. She said that she would talk to me about it then. I had Adryinmycin and Cytoxan and also Taxol. 

    My radiation went well yesterday. I was wondering what a good bra is to wear while I'm getting radiation treatments?

    Have a great day!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited November 2012

    Pauletta- Head over to this radiation thread via the link below.  You'll find many of the familiar names/faces from this thread.  You may be able to find the answer to what to wear to rads question there!!!!!!

    http://community.breastcancer.org/forum/70/topic/789322?page=27#idx_798

    Hope all goes well with the MO today!!!!  Keep us posted!!!!!  HUGS to you !!!!

  • Pauletta
    Pauletta Member Posts: 54
    edited November 2012

    Hi Melrosemeir,

    Well I did find out what test she is talking about that I will be having on my heart. I had a follow up appt with my surgeon today. He wanted to see me after all of my chemo was done. I asked him what kind of heart test started with an M would my Oncologist be talking about? He said a name and I said YESSS that is what she said. What is that????

    He said it is a Stress Test with dye. Not walking on a treadmill.

    So, I will talk more to her about it at 1:00 when I go for my appt. I just hope I can be back on herceptin and not have to stop again because of my heart.

    Thank you for the site to go to for radiation questions.

    Hugs to you too!!!

  • bcbarbie10
    bcbarbie10 Member Posts: 319
    edited November 2012

    Im about to start my every three week triple dose herceptin. Done with the 1/3 dose weekly, got away with minimal side effects like small pimples, occasional constipation. Hope the triple dose will be just as this, or better.

  • mt4ever
    mt4ever Member Posts: 105
    edited November 2012

    Pauletta it is probably a MUGA test for the heart.  I have to get this every 3 months since I am on Herceptin.

  • Pauletta
    Pauletta Member Posts: 54
    edited November 2012

    Hi mt4ever,

    Yes that is what the test is called. Is it painful?

    They are taking me off of Herceptin til January, to see if my heart will go back to where it was. I sure hope so. As much as I hate getting Herceptin, it is the only thing that can attack the Her2!

    I had my 3rd radiation today. Have you or anyone on here ever heard of anyone using 100% EMU oil? I have heard it is better than any of the creams that they give you to use. 

    I am really tired tonight. Can't imagine it being from the radiation this soon.

    Have a good nite and look forward to seeing a response.

  • mt4ever
    mt4ever Member Posts: 105
    edited November 2012

    It is not painful.  They shot some sort of dye into an IV you have tosit for a while and then you lay on a table while they take pics.  Sort of like the radiation table.  One of the easier things to go through!! 

    I sure hope your heart goes back to before treatment.  It is sad that we have to endure all the other side effects to try to save our life!! 

    Hang in there!!

  • nofear2012
    nofear2012 Member Posts: 160
    edited December 2012

    Ok ladies I cannot take it anymore. How the heck is everyone doing? Last entry was in the beginning of November. I am sure all of you are getting on with your lives and living them to the fullest, but it kindof breaks my heart that this discussion group has stopped. We supported each other so well. I am hanging in there. I finished up treatment on 10/5/12 and I am getting my life back. So please, I would love to hear from all of you again!

  • RoulaG
    RoulaG Member Posts: 239
    edited December 2012

    Nofear - I am doing well. Had my revision surgery yesterday on my right implant and nipples put on. Feel pretty good, just some pain down my right arm where he did the revision, but otherwise ok. I still have herceptin until end of march, but other than that trying to get back to normal, or whatever the new normal will be.



    I hope you are well. I am happy you revived this thread, I completely forgot about it.

  • rgina
    rgina Member Posts: 100
    edited December 2012

    I'm doing great.  Finished my last TCH 9-14 and finished my radiation the Tuesday before Thanksgiving.  The radiation kicked my behind, for me it was much worse than the chemo, I burned really bad, even had an exit burn rectangle on the back of my shoulder, but all is now healed. Still have Herceptin until next May, but that's a piece of cake compared to all that is now behind me.  My hair is coming back very very slowly and since it came back all white, I've dyed it auburn - at least it makes it look like I have more hair!

    Hope everyone is doing well and a very very Merry Christmas!

  • bcbarbie10
    bcbarbie10 Member Posts: 319
    edited December 2012

    I finished ACT last September 26th. Now still on herceptin. Growing back my hair, too! It's about 1 1/2 inches long now. Very fine and a bit wavy. Went back to the gym for three weeks now. Trying really hard to be back to at least very near normal.



    Hope the new year will be better for all of us. God bless everyone and Merry Christmas!

  • chapter4
    chapter4 Member Posts: 155
    edited December 2012

    Hey Ladies,



    I finished treatment 9/26...started a new job 10/11...been on tamoxifen so far without side effects except night sweats. Hair is coming in. Stopped wearing a wig to work a week ago...boy were they surprised, since it was a new job, no one knew...

    Having another mastectomy 1/15 with expander placement...then sometime in the spring, reconstruction on the radiated side. Any tips on how to deal with zero breast for awhile? Can't wait to be whole again.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited December 2012

    Chapter4:  Please post a pic of your new "do".  PS--Are you getting much snow?

  • lisa2012
    lisa2012 Member Posts: 652
    edited December 2012

    KJ your hair looks great!!

  • nofear2012
    nofear2012 Member Posts: 160
    edited December 2012

    I loved hearing from all of you & how u are getting on w yur lives. Chapter 4 I had a dbl mast & only one side has been expanded. The other spacer had to be removed, so I am living w one breast. I have a prostitic which makes them even & that helps. I have no magic words other than u are more than a woman than just yur breasts. Stay strong.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited December 2012

    Nofear:  Just noticed you and I have the same "cancerversary date".

  • chapter4
    chapter4 Member Posts: 155
    edited December 2012

    kjiberty - is that your hair? it's really grown!  My new pic is from a month ago, it's longer now. I got highlights two weeks ago. I was so excited!  How is everyone feeling? I can't believe Im coming up on one year since diagnosed...is that what people mark as their anniversary? or is it the day of your operation when the cancer is removed?

    nervous about the rebuilding process - but here goes.

    snowing here in upstate NY - about 5 inches!

  • nofear2012
    nofear2012 Member Posts: 160
    edited December 2012

    kjiberty - it is hard to believe it has almost been a year already. What a rough year, hoping 2013 is all about recovery and appreciating my life.

    Just wondering if anyone is taking a multivitamin? I used to take them before I was diagnosed but stopped during chemo. I am taking tamoxifen and my oncologist said that this medicine builds bone density so I do not need to take extra calcium, anyone else hear of this.

    I hope everyone continues to do well. I found the after chemo discussion Lisa2012 started so I wil jump over there to continue the conversation.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited December 2012

    Chapter4:  Yes, it's mine! Yeah!  It's growing like a weed.  I have had it cut 4 times--just trimmed.  I want it to look like a "style".  Using a 1/2" flat iron on the top and sides and letting the curl do it's thing in the back.

    Nofear  I am taking both a multivitamin and extra calcium and Vit. D.  Bone scan showed osteoporosis, so I have to get a Prolia injection 2x's a year as well.  Am taking anastrazole (for post-menopausal gals like me!), which also causes bone loss, joint pain, and on and on.  

  • chapter4
    chapter4 Member Posts: 155
    edited December 2012

    Nofear2012 I'm taking a multi vitamin, B6, D and tamox

  • nofear2012
    nofear2012 Member Posts: 160
    edited December 2012

    Thanks ladies, I think I will start taking a multivitamin again. It just got to a point where I was sick of taking so many pills. Now I am starting to come back around. Happy New Year to you all!

  • lucygoosey
    lucygoosey Member Posts: 1
    edited May 2013

    Stacie, it's been a while since you posted, so I don't know if you'll read this or not, but I wanted to thank you for posting the link to the DermaTran website. I know of several people who have found relief using their creams, and it's so nice to know that it helped with your neuropathy. I want to do everything I can to reduce the number of oral meds. Thanks again!

  • kjiberty
    kjiberty Member Posts: 1,385
    edited May 2013

    Lucy:  I will let Stacie know you have posted on this page.  

  • lisa2012
    lisa2012 Member Posts: 652
    edited May 2013

    I have been taking a multi since I started Aromasin. I have a very hard time taking calcium, it just makes my stomach feel bad or digestion feel weird. I've tried pills, capsules, chewables, different doses. Now I try to do almond milk (lactose intolerant) and soy yogurt sometimes, and hope. Any suggestions? My baseline bone density was good and my last blood test (6 mos) showed calcium fine.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited May 2013

    Lisa, Have you tried the Caltrate Gummies?  I am lactose intolerant, but can handle yogurt (regular and greek).  

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