Calling all TNs

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  • adagio
    adagio Member Posts: 982
    edited October 2012

    Bernie - it sounds beautiful in the south of Ireland!! I also enjoy a glass (or more) of a good red wine - just wondering if that will be a no-no while I do chemotherapy. I forgot to ask about that - any input?

  • NavyMom
    NavyMom Member Posts: 1,099
    edited October 2012

    Adagio, I asked the nutritionist about drinking wine while on chemo.  She said No Problem.  But it didn't taste right until about 10 days after TX.  So I did have a glass or two when the mood struck me.    :)

  • adagio
    adagio Member Posts: 982
    edited October 2012

    Good to know that. Perhaps I won't even feel like having a glass of wine. Did you get a metallic taste in the mouth. Did your doctor give you a mouthwash? My oncologist gave me a prescription for magic mouth wash - swish it around the mouth and then spit it out - but I believe this if for the mouth ulcers.

  • OBXK
    OBXK Member Posts: 791
    edited October 2012

    Cat - wonderful news!!! Go celebrate.



    Tooky- I hope the transfusion gives you a nice energy boost!



    I left home at 10:30 arrived home at 6:15. Had to wait an hour for chemo ( storm back -up ) and they run it very slowly the first day. So far, only a wicked headache, but the pain meds have lessened it a bit. It is not helping that my yappy one, barks like mad, with each trick or treater. After being gone all day, I don't have the heart to lock him up.



    Hugs all around...

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    Karen give him something to chew!!!

    Hope your headaches goes soon.

    I have just realized how depressing my job is. I have been typing about cancer patients all day even a 24 year old with carcinoma of the stomach and a poor prognosis.  Puts my problems into perspective.

    Not taking my lap top to the cake conference so will catch up with you all on Monday when I get home. In the meantime keep well ladies and hopefully away from any side effects.  Annie   

  • Tazzy
    Tazzy Member Posts: 2,546
    edited November 2012

    Have fun at the cake conference CS.

    As for putting things in perspective.  Another lady on this board had her rad treatment delayed whilst they dealt with a 2 month old baby that needed the machine for an hour for the next 3 days.   Yep these things make us realise there are always people way worse off than us.

  • 5thSib
    5thSib Member Posts: 141
    edited November 2012

    Just found a message on my phone from my surgeon, not his nurse but him personally asking me to call him. Now l'm scared. What other bad news is he going to tell me.



    How soon after surgery do most people start chemo? I have not seen a MO yet. Did any of you see the MO before surgery? I've already had the lumpectomy and SNB but waiting to have remaining nodes removed.

  • ATeamNana
    ATeamNana Member Posts: 464
    edited November 2012

    5th. So sorry you have to worry about what your surgeon wanted to speak to you about.

    Hopefully it was just to check on you. My surgeon and oncologist both were very much involved in speaking to me personally several times.

    I had my chemo first then lumpectomy and SNB so I can't answer your question on how quickly they do chemo after surgery.

  • OBXK
    OBXK Member Posts: 791
    edited November 2012

    5thSib - I think I waited 6 weeks the first time and 4 weeks the second. Try not to borrow trouble. I know ... Easier said than done! Keep us posted.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2012

    Just love this. Todays giggle

    hehehehehe

  • Titan
    Titan Member Posts: 2,956
    edited November 2012

    really like these recent posts..love how we just sit around and chat like you are sitting right next to me..and maybe having a glass of wine or two...

    Brower..I hear you with the kids..my daughter was 21 at the time and was by my side most of the time..she was in college but came home to be with me. on weekends .even went to chemo with me...my son distanced himself but he is coming around now...they do handle it in different ways but I understand them both...

    ok..got two appts tomorrow..one with the onc and one with the bs..actually it will be with the pa for the oncs office..I'm going to ask her alot of questions about tn..about the ovarian connection..just want to see if she knows anything...maybe I will send her screaming to the onc...we will see...do you notice that I have a bit of mean streak to me??  LOL

  • funnygirl75
    funnygirl75 Member Posts: 13
    edited November 2012

    I made it!!!! Had my surgery Friday or I should say surgeries! Lots of pain the first 3 days but it's getting better. My breast are on fire, it feels like a 300 pound man is standing on my chest. The ovary surgery was easier but the gaz you get after is ridiculous. That's what causes most of the pain but I did! I'm alive and kicking, well not kicking but smiling.



    Life is good, life is grand and I can do anything.

  • txjunebug
    txjunebug Member Posts: 212
    edited November 2012

    Happy Halloween!!!

    Hello to all the new ladies!!   I hope you find this thread as informative and inspiring as I have.   

    5thSib - my surgeon likes to call late in the evening.  Wish they wouldn't so they could return calls!! 

    Met with my MO Monday for the first time.  Found out that I am stage 1 (questions arised after CT scan wasn't clear about liver).  Will be starting chemo in a few weeks.  They asked if I wanted to join a clinical trial.  It is a nationwide trial to see if docetaxel and cyclophosphamide is as effective as doxorubicin and cyclyophosphamide with docetaxel or paclitaxel.  Still reading but there is no new drugs involved.  MO said that they the study combo for women that have heart problems before chemo.   Anyone heard of this trial??? 

    DH just read the clinical trial info.  I can tell from our conversation that he is scared of me having chemo.  Besides the obvious hair loss, he is concerned with the more serious side effects.  Said he will support my decision but I can tell he is afraid of how I will handle the treatments.  Any suggestions on how to help him??

    Hope everyone has a good evening/day.

    Dx IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR-, HER2-Surgery 10/08/2012 Lumpectomy (Right)

  • Velociraptor
    Velociraptor Member Posts: 45
    edited November 2012

    Hi Ladies.. when TNBC comes back does it usually come back for good? My mom's had a recurrence 4 years after her first go round and this time its Stage 4. However after a short stint on GemCysplat, 3x FEC-100 and 3x Taxotere, she's showing signs of improvement - lungs completely clear, liver met shrunk and bone mets shrunk. Im happy for that but my mom and the whole fam are reeling at the thought of more chemo. Trying to be positive bc this is such a good thing, but Taxotere has really done a number on her - like, very little she can do, quality of life out the door. I keep saying to her and my fam, that we have to push on thru, otherwise its like leaving a job half done.

    Anyhoo just wanted to know if there are any TN sisters who've had a recurrence and did okay...

  • Hopex3
    Hopex3 Member Posts: 397
    edited November 2012

    Hi everyone! I am having my last dose of AC tomorrow! Half way through! Then onto Taxol! My doctor said I should do well on it. But I'm reading that some of you have had bone pain. Does taking a Claritin really help?

    Im feeling good though although my eyes look a little funny! Kinda glassy eyed!

    Anyways, trying to keep it positive cause I feel too good to let this cancer get me down!



    CatWhispurr...congratulations to you. Must be a great feeling!



    Happy Halloween everyone!

  • TifJ
    TifJ Member Posts: 1,568
    edited November 2012

    Hello ladies- just a quick post to welcome all the newbies. I am sad you have to be here, but these women are pure gold! I am past 2 years now and don't feel the need to post as often anymore, but I think of you all and read the thread regularly. I still think about cancer everyday, but it no longer consumes me.

    Bernie you are hilarious!

    Hoping to see something from Hope or Inmate soon!

    Happy Halloween!

  • Hopex3
    Hopex3 Member Posts: 397
    edited November 2012

    BernieEllen.....Funny! I'm a catholic, ( when i want to be) went to catholic schools with the nuns so I can really appreciate that!



    Thanks for the laugh!

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited November 2012

    I did promise to post a photo of my dog in his costume.  Here are my two babies: a bumble bee and a frog.  Happy Halloween everyone!

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012

    Morning Ladies.

    Hi adagio - I did drink during chemo but not the first two - to three days after - too hard on the live apparently.  I don't think at this stage my liver would have actually noticed.  The taste of red wine was yuk so I drank Rose - very refreshing.

    What I did find strange - i don't eat chocolate but for three days after chemo I craved chocolate cake with cream. DH thought it was funny until I sent him shopping at 7am one morning.

  • EnglishRose75
    EnglishRose75 Member Posts: 147
    edited November 2012

    txjunebug: I don't know about that particular study, so I'm not sure how helpful this will be but the standard, first line aggressive chemo regimen here in the UK is FEC-T: Fluorocil, Epirubicin, Cyclohasphamide, Taxotere (Docetaxel). My Oncologist told me that Epirubicin is used since it is thought to be equally as effective as Adriamycin, but easier on the heart.  He also said that there is a big clinical trial over here to look at whether Docetaxel is better specifically than Taxol for TN--the thinking is that it might be.

    Wide awake at 4:30 a.m. and wired on steroids.  It seems fundamentally wrong to be up before the kids!  Bernie, what are you up for at this ungodly hour?! Not looking forward to the weekend's aches and pains from the Taxotere.  Still, one more to go now--roll on November 21st!  Looking forward to getting my PICC line out finally too.

    Karen: Hope you feel good today.Laughing

    Sugar77: What a lovely picture.  Your daughter is very beautiful.

    Hopex3: I post on the September chemo group and there are loads of ladies about where you are right now moving from AC to Taxol and lots of good advice on side effects and what you can do to lessen them.  It's a really supportive group so I'd suggest you check it out.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012

    Hi Rose, I don't need steroids I'm manic bipolar. Haha

    when I had A/C chemo last year with the steroids I was wired to the moon. Cleanest my cottage, garden, field and animals had ever been.  DH said i was like a demented duracell bunny.

    I spent many years in England, grew up in Harpenden, Herts.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012
  • NavyMom
    NavyMom Member Posts: 1,099
    edited November 2012

    Having a sleepless night, so I thought I would pop on and see who else is awake!

    5thsib: I started chemo 6 weeks after BMX/ALD.  And had a port put in 1 week before chemo started.

    FunnyGirl: Congrats on surgery being done.  You sound great.

    TXjunebug:  Sorry I can't help with the clinical trial advise but as far as your DH goes, there is a book written just for men that have wives with BC.  I am not sure of the title.  But I did get from the library when I was DX and my DH and I read it and it was very helpful for him.  Maybe one of the other girls will know what the title is and chime in.

    Velciraptor: Sending hugs to you and your Mom.  Wishing you both strength to meet each day.

    HopeX3: I love your attitude...Keep on keepin on!

    Sugar: great pix.  Beautiful daughter and cute pup.

    I went to the DMV last week.  Was time to renew my dirver's license.  Last time I had to go in was 8 yrs ago.  I had to tell the guy that I can longer be an organ donor....got angry all over again at BC. 

    Feeling crabby and blue lately.  DS is preparing for deployment at the end of the month.  I made a deal with God that I would like to stay NED until after DS left so that he could leave seeing me healthy and strong. 

    Saw my MO on Monday for 6 mo check up and I reported that I have some hip pain and a strange pain near my clavicle at the port site.... going for a PET scan next week.  MO was not overly concerned but symptoms cannot be ignored either.  So, here I sit on the worry train again.  

  • NavyMom
    NavyMom Member Posts: 1,099
    edited November 2012

    Txjunebug:  The book title is  Breast Cancer Husband: How to help your Wife(and youself) during Diagnosis, Treatment and  Beyond.  Author is Marc Silver.

  • DorisMarie
    DorisMarie Member Posts: 129
    edited November 2012

    Morning ya'll..haven't posted in awhile..doing good..am thru with treatment!!!chemo was finally done..out of 6 every 3 weeks ..4 times had to be postponed because of blood counts..after #4 had two units of blood..delayed for 2 weeks..and funny thing is I felt fine..didn't know how low it was..am sooo glad to be thru..last was 10/24..see mo 11/21 to check blood then get port out..wahoo...don't get me wrong..really was glad of the port during chemo..but MO must be purty confident to suggest removal..thought I'd have that thing for at least a year..for all you newbies dreading chemo..it is doable..and the fear is way worse than the actual ..i want to Thank all on the board..you have been a real help for me during this..I come in and read every morn..Hugs to all me sisters..

  • txjunebug
    txjunebug Member Posts: 212
    edited November 2012

    NavyMom -Thank you so much for the book info!! I'm going to see if I can find it or order from Amazon.

    EnglishRose - thanks for your input on the study.  I'm trying to learn as much as possible about all the chemo options before this process begins.

    Hopex - I love your attitude!!!  Good to see others who are doing well with the chemo.  All most people who haven't gone thru this hear is all the bad so hearing post like yours helps me find hope that I can do well on it too.  Thank you!

    Bernie -- Where did you get that picture of me with PMS????  LOL!!  I love it!

    Sugar77 - beautiful daughter and a cute picture of her with your 4 legged baby!!!

    I find myself worrying more about the DH and kids than myself.  Kind of wishing I could put off chemo until after the holidays but that doesn't appear to be possible.  I love Christmas!!  Love it Love it Love it.  Told DH and kids that we're decorating before 1st chemo treatment. Don't care if it's not Thanksgiving yet.  I always go all out at this time of year.  5 Christmas trees in the house each with a different theme and every room in the house is decorated.  DH and kids (24 and 23) help every year with the process.  Just don't want the holidays interrupted because of chemo. 

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited November 2012

    A group of third, fourth and fifth graders accompanied by two female 
    teachers went on a field trip to the local racetrack to learn about 
    thoroughbred horses and the supporting industry. 
    During the tour some of the children wanted to go to the toilet so it 
    was decided that the girls would go with one teacher and the boys 
    would go with the other. 
    As the teacher assigned to the boys waited outside the men's toilet, 
    one of the boys came out and told her that he couldn't reach the 
    urinal. Having no choice, the teacher went inside and began hoisting 
    the little boys up by their armpits, one by one. 
    As she lifted one up by the armpits, she couldn't help but notice that 
    he was unusually well-endowed for an elementary school child. "I guess 
    you must be in the fifth," she said. 
    "No ma'am," he replied, "I'm in the seventh, riding Silver Arrow. 
    Thanks for the lift anyhow." 

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited November 2012

    NavyMom my heart goes out to you. I can feel how much you love that wonderful young man of yours.  I too made a deal wth God when my girl had a breast lump and he heard every word and will hear yours too. He will be home again before you  know it. You will have to stay NED for when he comes home again so hopefully your pain will turn out to be nothing. Keep going girl and stay strong and healthy. We can do this.

    I will take my lap top to the conference so I can keep up with you all.

    I am a donor too. Can you not be one if you have had cancer?

    Hope so pleased to hear from you and to hear that you are doing well. Half way through yay.

    Sugar beatiful daughter, beautiful dog.  You lucky lady.

    Now for some bonding time with my Mandy.   

    Have a good day ladies.  Keep well. Keep away from side effects if you can.  Big hugs. Annie 

  • browerl
    browerl Member Posts: 126
    edited November 2012

    txjunbug-I hear you about the holidays.  I just had my last chemo today, Yea me!  Surgery (total bmx with reconstruction) on November 19th(the Monday before Thanksgiving), I always do that holiday therefore, we are having our Thanksgiving on Sunday the 18th a little earlier but way more special.  I just can't wear my wig while I make the turkey, haha.  And yes my husband read a book (for husbands) that seemed to really help him, not sure of the name.  But my cancer center has a free library inside and they are very helpful so they directed us to the correct spot.  If your center has one I suggest you check it out.

  • adagio
    adagio Member Posts: 982
    edited November 2012

    Thanks for the encouragement. I need to hear that it is doable.

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