Breast cancer

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Daldred
Daldred Member Posts: 32
edited August 2015 in Just Diagnosed

Yesterday I was diagnosed with grade 3, after having scan,biopsy,mammogram , I have been told I need bone scan,ct scan before I speak to my oncologist then will have MRI scan and metal rod inserted into my lump which is 4cms that will expand or shrink with the tumour depending on if the chemo makes the lump shrink or grow, so I'm really anxious at the moment and feel I should of asked more but not sure of what my mum has had same was clearer last week after 6years I have just turned 41yrs old

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  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2012

    Daldred, I'm sorry to hear about your very recent diagnosis, but I'm glad you've found bc.org.

    The beginning of this journey is probably the hardest because it's all so surreal.  It sounds like you're getting all the right tests to get a full picture of your situation, and then it sounds like you'll be having chemo prior to any surgery.  Once you actually start your treatment, it seems to get easier.

    This website can be just a bit slow on weekends, so don't worry if you don't get too many responses.  Assuming you will be starting chemo soon, you might want to look for the October or November chemotherapy group.  Go to All Topics and then scroll down until you see threads with either October or November 2012 -- depending on when you're actually starting -- and introduce yourself.   You'll find great support there with other women who are also starting chemo!       (((Hugs))), and good luck!     Deanna

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  • Valjean
    Valjean Member Posts: 1,898
    edited October 2012

    Daldred - I'm glad you found us. Welcome.

    You will meet some of the most sincere, caring, knowledgable ladies here willing to answer any questions you may have & to offer support or a shoulder whenever you need it. One of the best things I have ever done for myself was to have come here. I have made some wonderful friendships.

    As Deanna said, check out the other threads & introduce yourself. You will be more than welcomed.

    Hugs!

    Val

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  • Daldred
    Daldred Member Posts: 32
    edited October 2012

    Well I have my appointments for next week, bone scan and ct scan then oncology to find out all the definites and if it's spread, it's the waiting that's hard for me I'm so impatient just want it gone and over, once I know if it's spread which I hope it's not I can get on with it cos there's still people worse off than me .

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  • mw900
    mw900 Member Posts: 76
    edited October 2012

    Daldred,

    Welcome to BCO. Sorry you have to join, but as said before, you'll find lots of women & men with great information for you. If you don't already, be sure to get a copy of your biopsy report. It will have a great deal of information. I always thought of lots of questions after my appointments, and I'm very grateful to have doctors who respond to emails very quickly. You may want to ask how you should get information if you have questions that come up after your appointments. Waiting is the hardest part. Best of luck.

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  • Valjean
    Valjean Member Posts: 1,898
    edited October 2012

    Just remember, Daldred, we are with you, 100% of the way.

    Thanks for letting us know how things are progressing.

    Hugs!

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  • Daldred
    Daldred Member Posts: 32
    edited October 2012

    Had my scans now, ct wasn't very nice I had an immediate reaction to the contrast, only 2 days till I see oncologist I so hope I get all information so I can stop all these bad thoughts, is this normal?????

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  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2012

    (((Daldred))) -- Oh, it's totally normal!  It's hard not to be afraid or getting additional bad news until you have the full picture.  Hopefully, you'll get those results very soon, and hopefully everything will be clear.

    And so sorry about that bad reaction to the contrast.  Be sure to find out exactly what it was, because you may need to avoid whatever it is or anything even closely related to it in the future, to avoid a more serious reaction.  A friend of mine had a bad reaction to a contrast that's related to shellfish (I don't remember if it was a C/T or other type of scan), and he was told he must avoid all shellfish, just to be sure he doesn't have a worse reaction the next time.     Deanna

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  • Daldred
    Daldred Member Posts: 32
    edited October 2012

    Thanks for that I just took it that it was the liquid I reacted too, didn't realise there was more to it so will ask x

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  • juliaanna
    juliaanna Member Posts: 1,043
    edited November 2012

    Daldred,  The contrast is usually iodine based but check to be sure. Shellfish have iodine, also, hence the connection for your friend, Deanna.  I had a CT long before BC and had a reaction-ended up in the ER.  When I needed a CT when I was diagnosed, they could only do it without the contrast.  Be sure to start listing it when asked about your allergies.  

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  • Daldred
    Daldred Member Posts: 32
    edited November 2012

    Well tomorrow I'd d-day I find out all my facts nerves are starting to kick in and worry that it has spread

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  • CelineFlower
    CelineFlower Member Posts: 875
    edited November 2012

    waiting is so hard.. try not to be hard on yourself...

    as for your nerves... try stepping on them... works for me sometimes lol

    if that fails... its cosmos and purple bubbles

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  • JRyan
    JRyan Member Posts: 178
    edited November 2012

    Daldred,  So sorry that you are here, but glad you found us.  I (and we all) totally get the stress and anxiety that you are going through today.  Do whatever you can to keep yourself busy, anything to make the time go by. I am sending good thoughts your way. Not only for a peaceful day today but for good results tomorrow. Please come back and let us know.

    BTW - Cosmos and purple bubbles do have a tendency to work too :)

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  • Daldred
    Daldred Member Posts: 32
    edited November 2012

    Sorry only just reporting my results had a bad weekend with other bad news, the good for me is it hasnt spread, it's hormone negative just waiting for one more result if that's neg I've been asked to consider a trial of avastin along side chemo not sure what to do x

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  • Daldred
    Daldred Member Posts: 32
    edited November 2012

    MRI scan done what a horrible machine

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  • juliaanna
    juliaanna Member Posts: 1,043
    edited November 2012

    I'm happy to hear you made it through the MRI.  It is an amazingly noisy machine even with ear plugs.  Hoping for negative results.  

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  • Valjean
    Valjean Member Posts: 1,898
    edited November 2012

    Keeping you in my prayers for a negative MRI.



    ((Daldred))

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  • Daldred
    Daldred Member Posts: 32
    edited November 2012

    What do you mean a neg MRI ? I thought it was to get an exact size of the lump.

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited November 2012

    Hi Daldred I think the others mean that they hope the MRI doesn't show anything more than what you already know.  Yes they do want to know the exact size of your lump but more importantly, they want to know that the cancer has not spread anywhere else.

    As they all say, I hope it's clear for you.

    Love n hugs.  Chrissy

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  • Daldred
    Daldred Member Posts: 32
    edited November 2012

    Bit panicked now cos already been told its not spread just not 100% on lymph nodes until these biopsy or operate, I will remember to ask oncologist tomorrow thanks for my reply .

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited November 2012

    Please don't panic, it's all just part of the staging process.  Your Onc will give you all information when you see him/her.  If you've been told that there is no spread then I would go with that.  Yes, they will be able to see the nodes so hopefully they are clear.

    Love n hugs.   Chrissy

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  • Daldred
    Daldred Member Posts: 32
    edited November 2012

    Thanks feel really fed up at minute other personal stuff to cope with as well always the same eh!

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  • Daldred
    Daldred Member Posts: 32
    edited November 2012

    Can anyone recommend a good website for headscarfs please

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited November 2012

    Daldred life is always either one thing or another......... The unfortunate part of that is it never seems to come one following another but everything as once. Hope you manage to find some peace somewhere.



    Love n hugs. Chrissy

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  • dlb823
    dlb823 Member Posts: 9,430
    edited November 2012

    Daldred, my favorite catalog for scarves for chemo is this one:  http://www.anokhiusa.com/

    Another couple of options are:  http://www.headcovers.com/  and  http://www.tlcdirect.org/

    You want to stay away from silk because it will slip off your head too easily.

    Deanna

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  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited November 2012

    Lots of scarves on scarves.net as well as lots of tutorials on how to tie them for headwear.  You can find them everywhere, you don't need anything special.  Also, wal-mart has bandanas for a buck.   And, the turbans can be nice and soft - I just gone one from Follea that was lovely.

    Oh, and I used to like to wear the buffs, you know, like on Survivor?  They are really good when your hair starts falling out - keeps it in place until you shave it.

    Good luck! 

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  • msphil
    msphil Member Posts: 1,536
    edited April 2013

    hi sweetie, u have come to the right place for info and for friendship, we have been there and are here for you, take a deep breathe.  msphil (idc, stage 2, 3 nodes, L mast, chemo and rads and 5 yrs on Tamoxifen) and by the way I,m a 18 yr Survivor(Praise God) P S you will get thru this it is overwhelming at first but when u have a plan it will ease up.

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  • Daldred
    Daldred Member Posts: 32
    edited November 2012

    Well it's 4.40am and not slept yet took my steroids today ready for chemo tomorrow, I was warned about no sleep but due to being a person who could sleep the clock around didn't think I'd be effected too much how wrong I am

    No sleep= very narky person x

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited November 2012

    Daldred try and get some meds that help you sleep when you need to take your steroid.......no sleep is not good.



    Live n hugs. Chrissy

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  • Daldred
    Daldred Member Posts: 32
    edited November 2012

    Just got home after my 1st chemo I'm made up I had no reaction, I've had a lymph node biopsy and coil fitted into my lumpx

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  • dlb823
    dlb823 Member Posts: 9,430
    edited November 2012

    So glad to hear your chemo went well, Daldred.  If you haven't already, you might want to look for and join the November 2012 chemo thread here (go to All Topics/Chemotherapy to find it).   It's a great way to share info and get day-to-day support with others who already have or will be starting chemo this month.

    Which chemo are you on?  With some (like TC), it's common to feel absolutely normal for two or three days after your infusion, then to experience flu-like weakness and just an all over crappy feeling for a couple of days.  After the first time, I always had a good book on hand to look forward to on those days when I didn't feel much like getting out of bed.  So just a heads up that it could happen, and it usually passes within just a couple of days.     (((Hugs)))   Deanna

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