TV show "Parenthood" shows the breast cancer experience

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kira66715
kira66715 Member Posts: 4,681
edited June 2014 in Lymphedema
TV show "Parenthood" shows the breast cancer experience
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  • kira66715
    kira66715 Member Posts: 4,681
    edited September 2012

    I've been watching the show, and a character has been diagnosed with a 1.6 cm tumor and I'm finding the show to be the most accurate depiction I've seen of how this impacts the woman and her family.

    To the point, I found myself teary.

    My grown daughters have contacted me to say they've watched the show and cried, and I think that 4+ years out, we're still processing it.

    As this character is heading into surgery/radiation/chemo--there has been no mention of LE, but that's realistic also.

    http://www.nbc.com/parenthood/

    The full episode "Everything is not okay" is online.

  • wildrumara
    wildrumara Member Posts: 450
    edited September 2012

    I thought it was very realistic too.....I felt myself reliving the experience all over again.  Quite a few tears shed.   I liked how she didnt get overly emotional too.  Her first breast surgeon was a lot like my breast surgeon.   Excellent qualifications and experience (head of the NSABP actually)  but very matter-of-fact and academic with very little bedside manner.  My first appointment with him was tough, like Kristina's was. I actually got a little sick to stomach when I was watching that part because it brought back memories of that appointment.   But, I stuck with him, and it looks like Kristina may be sticking with the male surgeon too?     Anyway, Can't wait to watch the next episode!

  • Binney4
    Binney4 Member Posts: 8,609
    edited September 2012

    Do we need to wake them up about LE? It'd be wonderfully realistic (FrownYellSurprisedTongue out) if she ended up having to deal with it as part of the plot line.

    (Dream on, right?!Undecided)
    Binney

  • carol57
    carol57 Member Posts: 3,567
    edited September 2012

    So, who are the writers appearing on the credits? (Sometimes writers' names are not there...wonder if available from NBC's website for the show?)

  • kira66715
    kira66715 Member Posts: 4,681
    edited September 2012

    So that's why it was so realistic: it made my younger daughter, who was 19 when I was diagnosed, cry and I got teary.

    My older daughter works with autistic children, and she thinks Max is the best characterization of a kid on the spectrum.

    I was in a royal grump mood this morning, and I really think it was from 1) revisiting the breast cancer diagnosis experience, and 2) having someone I know tell me she's now stage IV after 25 years and her LE is out of control.

    I don't think we need to educate Parenthood about LE, just admire their honesty.

  • markat
    markat Member Posts: 909
    edited September 2012

    Hi I don't usually post in this section but the subject grabbed my attention.



    I thought the show was very good but I heard "cure" 2-3 times. That was the only part that I had a problem with.

  • hugz4u
    hugz4u Member Posts: 2,781
    edited September 2012

    The show has peaked my interest but after hearing about how it is stiring emotions I don't think I can watch it at this stage of my life. If fact 2 people volunteered me to talk and coach 2 other people that were just diagnosed. Of course I accepted as I felt for the newly diagnosis people seeing that I was there once  upon a time.  But I find it very hard to go back and think about it even though it pops into my head almost daily. Especially since LE takes up most of my time and then there is the fear of reoccurrence looming overhead. eeks can't I just forget about it.(how's that for being in denial mode!)

    I admire all those that watched the show. I am just not there yet.Wink

  • GreenEyes57
    GreenEyes57 Member Posts: 17
    edited September 2012

    I too found this show very close to my experience. My husband and I watched together. We cried. Based on the way the show ended the previous week, I knew this weeks episode was going to be about those first weeks that are so difficult and scary. My husband was very similar to the actor in that he kept on saying it was ok ....I was going to be ok.....I would just have surgery and all is good.... It was something to organize and schedule....stay off the internet . I still erase the history on my computer so that he cannot see that I have been on the BCO website or any google on breast cancer subject.... A year later and i learn everyday to move forward.....some days better than others....

    .Then he confessed after that show .... That at work for his charitable contribution he put BCO. Wow what a difference a year makes.

  • melly1462
    melly1462 Member Posts: 84
    edited September 2012

    Parenthood is one of my favorite shows.  My son told me about the breast cancer storyline and I was soooo hoping it would be realistic.  I cried my eyes out.  I'll continue to watch because it is a fave, but yes it is hard to watch and deal with those emotions.

  • wildrumara
    wildrumara Member Posts: 450
    edited September 2012

    @markat - To be honest, I too heard the word "cure" when I was first diagnosed by the nurse navigator at my surgeon's office.   You will be cured, she said!  

  • kira66715
    kira66715 Member Posts: 4,681
    edited September 2012

    What I heard was the empathetic surgeon say "You will recover after a rough year"--I don't know if I can handle watching it again to listen for cure.

  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited September 2012

    I heard cure several times and that bothered me. But the emotions were so real!



    Dawn

  • Christine5
    Christine5 Member Posts: 78
    edited October 2012

    I found it very hard to watch. My surgery was Dec. 29, 2010 and it felt like yesterday. I was so teary most of the time, seeing how stoic she is and judging my own response to this whole thing that has changed my life so dramatically.

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    RE: " I  don't think we need to educate Parenthood about LE..."

    I'm sure you are right, kira but imagine all the peope that PARENTHOOD could educate about LE?!


    I have  a friend who was dx app 5 mos before me. She is one of handful of ppl. who even know I have BC. I wrote her an email when I was noticing LE symptoms and sent her the speak up links etc and  tried to warn her to be careful and what to avoid.  I know she exercises about an hr a day which is FAB., but I wondered if she counted that as " repetetive arm movements"  ( The brochures that I NOW have  list mopping or raking)

    She wrote back saying:

    " Luckily, I dont have LE. I was spared of that much at least."

    She does not realize she can STILL get it !  I didnt want to scare her, but I sure wish I had known more,  and it would be a great service if a show like that could help spread the word RE: symptoms and things to be careful for etc .

    Everybody knows about " BC Awareness".  There is PINK everywhere this month.


    How many ppl have heard of LE Awareness and walked for a 'cure' ?

  • carol57
    carol57 Member Posts: 3,567
    edited October 2012

    For whatever it's worth, I sent the Parenthood producers an email explaining LE and that the most common experience is that it's not explained during BC diagnosis/treatment, and is usually a surprise when it develops afterward. I pointedly suggested that they include this slice of real BC life in their story line, both because it's real and because their TV voice could be so powerful in putting LE on the radar screens of real-live BC patients and survivors (and their healthcare providers who also watch TV).  I indicated that I could suggest appropriate LE experts they might approach if they want to pursue this.  I also suggested that someone mention LE to the producer's wife whose BC diagnosis apparently prompted the story line...let her know that she's at risk, in case no one ever covered LE during or after her treatment.

    Too bad that the instructions for submitting comments were crystal clear that any story line suggestions would be deleted without being read. (I'm not sure how they know what's in an email if they don't read it!)  I suppose they have to be wary of making money from a show that includes a story line someone 'out there' will claim as an original idea.  In any case, I thought it was worth a shot, but I doubt anything will come of it.

    Maybe if lots more women wrote in, along similar lines?

    Carol

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    Good for you, Carol!

    I'd be happy to write in. Would you pls share the contact info ?
    THX

  • New-girl
    New-girl Member Posts: 358
    edited October 2012

    Did anyone watch the Friday episode on TLC of Say Yes to the Dress Atlanta?  Lori the shop owner was diagnosed in April of this year with breast cancer.  Showed her finding out , going through a lumpectomy and returning to get a bmx with reconstruction.  I have to say she looked amazing after just one week.  Not sure how much the make up team and hair people at TLC had to do with it but she looked great.

  • carol57
    carol57 Member Posts: 3,567
    edited October 2012

    Purple, I used a contact form on the Parenthood website.  Here is a link: http://www.nbc.com/contact/general/ 

    Carol

  • markat
    markat Member Posts: 909
    edited October 2012

    Hi Carol, the only problem with suggesting they add that into the story line is that they have probably already shot atleast half the year's episodes. Good for you though!



    I know another message board I post on was up in arms about the parents lying to their daughter at the end of last weeks episode. Granted, those women don't have BC. I don't blame the parents at all and I probably would have done the same.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited October 2012

    When her husband realized he had to say goodbye to here at the OR doors I was sobbing.

    Finding out about the one node was also all too familiar to me.

    Ironically there was a testicular lymphedema sub plot on Grey's.

    I do find this kind of ironic since Maura Tierney had to drop out of the show to be treated for BC.

    As for the LE plot, I would love to see it selfishly, not sure it's really right for that show which is more about relationships than medical conditions, but boy I would love to see it on something!

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    Well cookiegal as I am sure you know-they could certainly work relationship issues into LE.

    Carol

    Thanks for the link. I hope many here will write. I know I will!

  • carol57
    carol57 Member Posts: 3,567
    edited October 2012

    Markat, if you think about it, it would be quite timely for LE to enter the picture a year from now. Or any time within the first three years post-surgery, when some 90% of LE cases show up.  So there's plenty of time for the writers to figure out how to do this well.  Seems TV shows love a crisis...this would sure be one of those!

    Cookie, that OR-door goodbye kiss is the most emotion-provoking memory I have from the whole darn experience. Ironically, on the very day I had surgery, a friend who subscribes to some kind of poem of the day received one called The Kiss in his inbox. It was about THAT OR-door kiss.  He sent it to me the day I came home from the hospital, explaining its timing.  I think I filled a bucket with tears reading that email with its poem. I still can fill up half a bucket just thinking about it now.  I don't know how they convey the depth of these emotions on screen.  They 'get' it, but 'real' is much deeper, I'm sure.

  • Ginger48
    Ginger48 Member Posts: 1,978
    edited October 2012

    I have watched this storyline and although it has been emotional, I think it is helping me process the last year and a half. I also had to call my daughter in her freshman year of college and deliver my cancer news. She came home too. She would have been very angry if I had lied to her. It was hard to watch it from the daughter's perspective but kind of eye opening too. I think they have done a great job of keeping it real so far!

  • Hattie
    Hattie Member Posts: 414
    edited October 2012

    just saw this episode tonight.  glad to be watching without my loving family. everyone's experience is different and they cannot convey all.  i am 7 years out and was just remembering how the school custodian took my kids to the school carnival so my husband could be with me.  one of the many heroes in my life i am going to thank again.  life is hard and beautiful.   i was truthful with my kids but understand that the characters are making a different choice.  so hard.

    take care,

    hattie

  • Hattie
    Hattie Member Posts: 414
    edited October 2012

    it is so hard that lymphedema is not talked about.  even my hot shot docs never ever mentioned it.  and my mom told me her sister was not careful and got it--that was the thinking back in the day, but her sister just tried to carry on doing everyting as usual.  i ony learned about it her, and in support group.  thank you all for that knowledge.

    take care,

    hattie

  • longislandmom
    longislandmom Member Posts: 248
    edited October 2012

    I have cried a lot watching it. All very very raw for me. Just had my exchange surgery last week. Truly, I wish they did not have this story line. I look to tv for a bit of escape. I love parenthood, but this season is taking me down....

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    three years post-surgery, when some 90% of LE cases show up.


    True.

    I notices  a little ' something' different in the breast 3 weeks out, but it wasnt until 5 mos that my rings didnt fit. I thought it was from too much salt or weight gain.

    Nada.

    I was VERY careful with the arm doing virtually no lifting at all- no BP no blood draws etc , no repetetive movment , ...tho' I will say there were more precautions that I was never ever told about.  I type a lot so did that cause my fingers to swell? I dunno'  LOTS of women type for work and dont get LE.  Who knows ?

  • cookiegal
    cookiegal Member Posts: 3,296
    edited October 2012

    To heck with it, I have decided they should do the LE storyline.

    Here is what concerns me, from Mitt's wife, to Giuliana, anyone who had a node out and is flying all the time, do they ever wear a sleeve for precautions. I'll admit I didn't but I was not on a plane every day.

    For that matter, are airline crew members who have had bc allowed to do anything. Do they have to quite if they get le?

  • LAstar
    LAstar Member Posts: 1,574
    edited October 2012

    I didn't expect to get so emotional watching this, but it brings back so many memories from the past 8 months that I haven't really had time to process amid all the surgeries, recoveries, and trying to get anything done in between.  What a blur it's all been.  It makes me glad to be along in my treatment rather than newly-diagnosed.  It was such a scary stressful overwhelming time.  

  • marejo
    marejo Member Posts: 1,356
    edited October 2012

    I too watch the show.  My hubby and I use to watch the show and then for some reason we haven't watched it in a couple years.  I learned at her2support.org that they diagnosed one fo the characters with her2 positive breast cancer.  I was naturally fascinated by that because I, too, had her2 positive breast cancer and you don't hear of that one much. 

    Being a 7 year survivor, who really has put this all behind me, and honestly, truly can hardly remember going through it all, was SHOCKED at how emotional I became at many parts of the show(s).  The tears were just streaming down my face and those emotions I thought were buried came bubbling up to the surface. 

    I look forward to watching the rest of the episodes. I love the show....all the characters and things going on, but naturally, this one really touches my heart.

    Mary Jo

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