Diep 2012

Options
18283858788122

Comments

  • Hoya03mom
    Hoya03mom Member Posts: 135
    edited October 2012

    Cindy...so glad you are on the other side and path results were good...now you just need to make sure you don't overdo and heal properly!

    I had my visit with the oncologist and first he examined me and said "wow"...how did your PS achieve such symmetry?  Everyone one seems to rave about the new girls, but I still think they are too big!  He also concurred with BS that no further treatment needed!!!

    question about stage two...dog ears, scars, etc....are their more drains involved???  I am not doing new nipples...other than probably trying to book an appt with Vinnie Myers 3 D tattoo artist after done with stage two.

  • bdavis
    bdavis Member Posts: 6,201
    edited October 2012

    Ymac.. thats a long surgery. Mine was 10 hours and included the BMX and GAP flap (flipping me). Does your sugeon not have a surgical partner?

    Hoya... I had drains after stage II, but they were short lived.

  • Beckers
    Beckers Member Posts: 1,883
    edited October 2012

    Yvonne,



    My surgery was 12 hours for BMX and Bdiep. Doctors were teamed up. It is a lot to go through. I personally could not have worked at 2 weeks. I was in hospital 1 week and almost to 2nd week when I started managing own meds. But....some ladies are off pain pill very soon. I maybe wouldn't commit yourself if you have the freedom to take the wait and see approach.

  • willy5js5
    willy5js5 Member Posts: 140
    edited October 2012

    Ymac, I worked from home at two weeks and would have loved another week off. It was rough. I did 10 hr days to allow a 2 hr nap midway and used a pillow to bear sitting at my computer. Took tylenol for pain until after work then back to the narcotics. Pack loose fitting flowy type clothes. I wore underwear over the compression girdle. Also found dresses and maxi skirts worked well to conceal the drains. Button front tops were easiest for me to get on myself at first.

  • positivenergy
    positivenergy Member Posts: 73
    edited October 2012

    Hello All!  I have a question, mostly curiousity is getting the best of me.  I'm 5 weeks post-DIEP and doing well I guess.  A little disappointed that I have not kicked the pain meds completely yet, but I'm trying.  Anyway, I have no idea what to expect on phase II of the DIEP.  Can someone help me with that.  It's kind of scary after everything I've already been through.  Do they do it in a surgical atmosphere??  What exactly should I expect?  Thanks for any input on this.  God Bless you all. 

  • Beckers
    Beckers Member Posts: 1,883
    edited October 2012

    Positive, my stage II will be in operating room in outpatient surgical center. I will go home same day. I am having necrosis removed from center of abdominal incision, dog ears on sides of abdominal incision, a lift of right breast, lipo and fat grafting to left breast, and they are revising breast scars as i had skin sparing but have a strip of tummy skin that is a different color. I am told recovery is much easier so I am not worried. After what we have been through, you can't scare us! Ha. I will not return to work until 4 weeks after, probably because I do patient care so on feet all day and lifting.



    I still take a half a pain pill on occasion so don't worry...and I'm almost 3 months out.

  • ymac16
    ymac16 Member Posts: 138
    edited October 2012

    My PS said she takes 14 hours because she takes her time when connecting the blood vessels to ensure she is making good connections. She does have a surgical assistant but the PS really does all the work.



    Thanks for the feedback on working. I guess I will play it by ear!

  • mcz62
    mcz62 Member Posts: 2
    edited October 2012

    I am considering diep and live in Dallas area.....who is your PS?

  • Beckers
    Beckers Member Posts: 1,883
    edited October 2012

    Ymac, good luck with this storm coming your way. Get your provisions! I'm watching weather channel.

  • bdavis
    bdavis Member Posts: 6,201
    edited October 2012

    Just to clarify... I went  back to work 2 weeks after stage II, not stage I. After I stage I, I was out for about 8 weeks, but actually had 2 stage I's and was working 4 weeks after second stage I. Stage II was not nearly as difficult to recover from. Lipo makes you sore, but it improves quickly.

    ymac... most of us have 2 plastic surgeons working together, not one PS and an assistant. So with 2 PS one on each side it gives each PS half the work, cutting the time considerably. Plus I like this because I personally can't imagine working solo on anything for 14 hours straight.

  • fredntan
    fredntan Member Posts: 1,821
    edited October 2012

    Hi yvonne,

    I am near you in fredericksburg. My mother took me shopping, got me a moo moo. Eww i hate it. Seriously people where pj s to walmart. Silky pj bottoms are easier to slide in. Just wear something that will make you feel comfy.i wore binder home, bring pillow for car ride home to place between seatbelt and your insicions.

    You will feel immediate relief to get that damned te out.

    I am almost three weeks out. Get tired easily. Mentally fine

  • ttay
    ttay Member Posts: 100
    edited October 2012

    Ymac: I'm almost 6 weeks out from DIEP at NOLA. You'll want Soft non-restricting panties, that hit above or below the scar line. You'll need them to hold ABD pads along the scarline and to protect the drains. I bought Hanes hipster undies and the boy shorts...these worked for me. Also, soft loose pants...no zippers or buttons. I think a lot of us favor tank tops or mens' A-Shirts (wife-beaters). I usually love my pajama pants, but have been wearing nightgowns mostly,



    I'm off work 8 weeks. My energy hasn't been great. Also sitting in regular chairs is really uncomfortable the first few weeks..with the drains...and the swelling... Especially with regular clothes on. Listen to your body. I think most women regret returning to work too soon after Stage 1.



    Best wishes to you, and all with upcoming surgeries.

  • howhm02l
    howhm02l Member Posts: 147
    edited October 2012

    Yvonne - I was able to work from home about 4 hours a day around week three. Stamina was really the biggest issue for me. If I worked all morning, I was wiped out for the afternoon. I will probably go back to the office the first week of November, which will be 8 weeks post DIEP.

  • cg1234
    cg1234 Member Posts: 181
    edited October 2012

    Hi diep sisters! Wow yesterday started good but ended up being a tough one. Felt so strong going into surgery but the emotions and physical effects finally caught up to me. Had a good cry (the hyperventilating kind that was awful for incisions darn it!). And of course I started my period!!!



    I am trying to give it time. Can't imagine going back to work in 2 wks. I have a couple months if I want but I know others might need to back sooner. I am so happy my nurse sister in law was proactive for me. Splurged on relaxed yoga pants from nordstrom (zella) and loose zip up athletic jackets with inside pockets. Not bothering to get dressed until ride home. Was emphasize about good pain control, diflucan to avoid yeast infect, cranberry juice to avoid bladder infect, colace/miralax for constipation, as well as scopolamine, steroids, zofran etc for post op n/v. It had made such a big difference. Make sure nurses know how to do good transfers in/ out of bed too. My surg was 12 total w bmx and diep. It was not a problem although I also worried at first. If you have great drs they are prepared for it. May pain is really very good and doesn't even compare to awful c- section but each is different.



    Also really appreciate all the info on stage 2. My girls are still very numb but look great. Am constantly inspired by all of you ahead of me.

  • cg1234
    cg1234 Member Posts: 181
    edited October 2012

    And sorry about typos. Lol, I'm still on dilaudid

  • fredntan
    fredntan Member Posts: 1,821
    edited October 2012

    Does everyone elses boobies feel sore at times. And sometimes i will have sharp ouch in breast. My radiated side harder than the good side. Doing my litttle massages twice daily

  • Browner
    Browner Member Posts: 1
    edited October 2012

    This is my first post on the forum and I’m hoping to get some feedback from the group, especially about being treated at NOLA.

    I've just been diagnosed with ILC and have decided to have a unilateral MX. Now, I am incredibly confused about my reconstructive options (maybe tormented is a better term!). I am strongly considering DIEP, however my plastic surgeon will not guarantee pre-surgery whether he can perform DIEP or TRAM. After a lot of reading on the forum, I'm very curious about going to NOLA for my DIEP operation. I would be flying from out-of-town (Los Angeles area) and am curious how it went for others flying to NOLA from out of town.

    I would be very interested how you decided on NOLA? Were you were happy with this decision? How did you manage the out-of-town flying? How long did you have to stay in New Orleans after your first surgery before flying home. Alternatively, has anyone had a good experience with DIEP using a PS in the Los Angeles area?

    Thank you all. This thread has been so helpful!

  • goldlining
    goldlining Member Posts: 1,178
    edited October 2012

    Oh cg1234, don't even think about going back to work in 2 weeks! I think the recent posts about 2 weeks were gals talking about their stage 2. Two months is more like it. I did take a few business meetings in under 2 weeks, but I was seriously loopy in the head, not from medication but probably from the lingering anaesthesia. I was just slow. (For the same reason, I did not drive until about 3 months. My body could have but my reaction time, not so much.) I was okayed to go back to work at 8 weeks, but the paperwork was fraught with miscommunication so that my work was angry that I did return because they did not have the actual letter yet, despite the fact that I did a half marathon at 6 weeks in 3:07 which I think amply proved that I was physically okay to do it. (Still have lingering ill will over them not appreciating my effort to return to work. I wish I'd just stayed home eating bonbons until they had the letter.)

    DFOnt, I know what you mean about feeling the odd one out of the binder lore. At about 9 months post DIEP now, I can't remember when I noticed that the swelling went down. My jeans now fall down without unzipping unless I belt them and the scars have healed well although I can still see the faded line above my jeans waistband. I don't know, maybe the binder speeds things along or something, but I am not feeling deprived binderwise. It seems to be a thing where you just need to follow the directions and let someone else do the driving. Heaven knows, we have a lot of decisions to make and I am not in need of making any that I don't need to make! :-)

  • MartyJ
    MartyJ Member Posts: 1,859
    edited October 2012

    Browner - you might want to cross post to the NOLA in September thread.  All of those women are going to NOLA for either the Breast Center or Dr. Marga Massey and are flying or driving in.  I will be going there to Dr. Massey in 2 weeks.  We are flying.  There are several women on that thread from your area.  Good luck in your decision!

  • cg1234
    cg1234 Member Posts: 181
    edited October 2012

    Had setback with a few too many narcotics today. Felt terrible and they finally switched to Tylenol only. What a difference. I walked several laps and feel so much better. Still waiting for success n bathroom. I'm thinking of Fran and know how great it will be! Lol! Goldlining, can't imagine running marathon so soon (or ever!). Thats amazing! Resting up for dc home I hope mon. Family has been great. Hugs to all for your advice and support. May need to buy marenas after reading posts. Nite!

  • cg1234
    cg1234 Member Posts: 181
    edited October 2012

    Btw did any of you have vision problems? I can't see anything clearly close up.

  • bdavis
    bdavis Member Posts: 6,201
    edited October 2012

    Browner... I agree that you should also post on NOLA in September... I flew from NJ to NOLA and have no regrets. They make it very easy - a car service picks you up at the airport, takes you to all appts and returns you to the airport. They can arrange all hotels/Hope Lodge reservations as well (with a discount). Ichose NOLA after a couple of other consults, and decided after my NOLA consult that they were a step above the rest. I consulted with a local PS and Dr Allen in NYC in addition to Dr Dellacroce in NOLA.

    I flew in on a Tuesday, had surgery Thursday and could have flown out the following Friday. I chose to stay the weekend with my husband, but that was not mandatory. Once home, all follow up was by phone and email. They were very attentive to my needs.

  • fredntan
    fredntan Member Posts: 1,821
    edited October 2012

    Yeah i think it was anesthesia, and narcs working on vision.



    Cindy you live in dc? I start the ae37 trial tomorrow up at sibley memorial. Dont know what this hurricane will mess with my plans.



    Browner I flew from va to san antonio to see PRMA docs. I am very happy with how I was treated there.

    The ACS american cancer society can help with airfare. It didnt work for me. It seemed like tpyou call this number and then another etc etc. But mercy medical is actual ones that help with airfare.

    My docs wanted me out few days before to prevent blood clot. I stayed inhosp 5 days, private room. My procedure was maybe 8 hrs. I woke up giggling and laughing. I stayed 6 days after getting out of hosp. I could have left sooner,but fever started up. Prob pnuemonia trying to settle in. They took care of it quick.



    The new orleans one has hope house-free place to stay after



    I didnt think the flying was that hard. I personally felt worse after my mast with TE placement. Probably since i wasnt ready for dc. Little pain control goes a long way

  • ymac16
    ymac16 Member Posts: 138
    edited October 2012

    Hey fredntan, I live in DC. Had my BMX and chemo treatments at Sibley and still go there for follow ups and check-ins for the 2 clinical trials I'm in. Having the DIEP surgery at Suburban Hospital in Bethesda.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited October 2012

    Browner - I'm in Los Angeles as well. I've done everything at UCLA and have been happy with the results and treatment. If you want specific doc names let me know.

  • mommaof4
    mommaof4 Member Posts: 62
    edited October 2012

    Amanda- I had a delayed diep after a bmx, chemo, and a heavy dose of radiation.  I am sad with the outcome of my radiated side so far.  I'm only about 5 weeks out from stage 1 but my rad side is definitely harder, shaped a little odd, and over to the side more.  They do look nice in clothing but I still have a hard time looking in the mirror :(

    can anyone tell me what areas of the body can get lipo?  I have Dr Kline and he said stage 2 would be a lipo/contouring fest but I don't know if I'll be able to give him a "wish list" of if he decides?  Anyone have stage 2 experience w/ Dr Kline?

  • RonnieKay
    RonnieKay Member Posts: 2,067
    edited October 2012

    cg1234..glad to hear surgery went well & just know that we all probably had those tough days...but they get better!  I went off dilaudid the day after I came home from the hospital (it was wonderful during those first days) and felt so much more clear headed.  Tylenol just works for me...hope it's giving you enough relief :)

    bdavis..you said to wait a week or 2 after stage 2 to get the marena girdle.  Do you not need it before that?  I was ready to just use my old flexees but I think you've sold me on the marenas! 

    My stage 2 is Thursday and I'm a bit anxious just hoping everything turns out well...I'm so over surgeries!  My ps said I won't have drains.  I'm hoping they take fat from my outer thighs.  Fat from under arms and arm pits & end of tummy scar (dog ears) will be taken.  Have a couple lumps on upper right breast that he said he will soften and he'll move my circular scars up so when nipples are done they won't point down.  Will add fullness to upper breasts.  It sounds a bit daunting to me but thanks to many of you, I'm feeling ok with it :)   Thinking of all of you...thankful for your posting!!!

  • fredntan
    fredntan Member Posts: 1,821
    edited October 2012

    My rad side is harder has the football scar, doesnt hang as good as the good side. I was instructed to gently massage them and my abd scar 5 min each twice day. I hope it helps it soften up. Rad side looks like B good cide nice C.

  • Beckers
    Beckers Member Posts: 1,883
    edited October 2012

    I have one firmer side too fredntan. It has softened some. At stage II he is working on that one. The other side feels so nice and squishy. He is going to lift that one a bit. Hopefully will even things out. I need to be diligent with massage 2 times daily.



    Good luck Thursday Ronniekay. Its good to hear what everyone is doing at stage II. Made me wonder about my breast area under arms. He is planning to work on area where SNB was done I know. Have they mentioned if the fat grafting to add fullness to upper will be a one time procedure? To you have to buy that Brava contraption? If not fat grafting, how are they plumping them up?



    Gold lining, I can't wait til the swelling goes down in my abdomen. It is so firm.



    Hope everyone is doing well.

  • Beckers
    Beckers Member Posts: 1,883
    edited October 2012

    Cg1234, your vision issue reminds me that when I was in the hospital I couldn't even read menu. I needed help filling it out. I truly believe being under anesthesia and on diuladid took a toll! If I could see the words, I don't even know if I could comprehend them! Ha. I was pretty out of it. It got better before I was discharged so that was good.

Categories