Sept 2012 chemo
Comments
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Hello everyone,
I've been pretending that I'm not a cancer patient for the last week so haven't posted anything, but like you, Mariposa, I'm now beginning to get the pre-treatment jitters. Taxotere #2 on Wednesday, so will be popping those steroids like sweeties on Tuesday. Can't wait! Still, I comfort myself with the fact that when Wednesday is done, I'll be able to say that I only have one more to go. Yay! And I don't care how bad the last is, because it will be the last. I think I then have a break before Christmas before moving on to rads.
Jojo: What a complete bummer about your tumour growing. How disheartening for you. But, as others have said, hopefully the Taxol will give it a good kick in the shins.
Hope all of you on the East Coast keep safe from Sandy.
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Queen kong I also had terrible indigestion, the MO wrote me a prescription for Ranitidine 150 mg., it is fantastic and takes care of the problem instantly.
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I'm curious, who among us has made specific lifestyle or nutrition changes as a result of the breast cancer diagnosis? And based on what information?
I've been doing some reading about nutrition and breast cancer and I'm findng quite a bit of mixed information out there. Green tea gets a lot of press related to anti-cancer properties, but the National Cancer Institute's website says the evidence is inconclusive. Then there's alcohol. This site, and many others, recommend eliminating or significantly reducing alcohol, indicating even low levels of alcohol may increase risk - cancer.org. Yet the NCI website has information posted about the benefits of resveratrol (compound in red wine). Then there's soy - also mixed info.
I know this is the "chemo lounge", but I'm interested about your opinions on this since we've spent so much time together.
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Whenlifegivesyoulemons: I changed a lot right after my diagnosis, but decided during chemotherapy I am just trying to eat whatever my body wants and will tolerate (within moderation). I am definitely trying to cut down on sugars, eat more vegetables, and more lean meats. I also try to eliminate as much white flour from my diet as possible. I take resveratrol but in supplements- and I do not drink alcohol (I already didn't, so that wasn't much of a change.) The thing that I need to work on is exercise! I just have zero motivation right now. I have gained five pounds since beginning chemotherapy- which completely sucks. I am also trying to do a smoothie every morning- with lots of flax seeds, chia seeds, raspberries, strawberries and coconut yogurt. It is hard to think that I am going to have to change my lifestyle after all of this, but I know I will need to. I already eat organic- but now it feels even more crucial.
Englishrose: Congratulations on having only one more to go after Wednesday! I will have three more to go after Tuesday. But, I will be half way done at least:-)
As for the question about neo-adjuvant chemotherapy, everything I have read says that the benefits of doing chemo first is that the doctors can actually see how chemotherapy affects the cancer. It also helps with those of us with larger tumors to have more options around surgery. My doctors are hoping that they can do nipple-sparing by doing chemo first. We will see. I also read somewhere that for those of us with Her2-neu positive cancers, neo-adjuvant with Herceptin can lower our rate of recurrence. I am hoping.
I am trying very hard to stay in the present and not get tripped up in negative feelings about doing Chemotherapy this week. I hope everyone is able to stay safe from the storm and has a nice Sunday.
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whenlifegivesyoulemons, this week I went to see a dietician, which was fantastic. I brought my blood work, list of side effects from chemo, as well as a food diary and we went over everything. She (a 22 year lymphoma survivor herself) recommended supplements for SEs like mouth sores/metallic taste, fatigue, neuropathy and others. We also talked a lot about protein. I was afraid I wasn't eating enough, because meat has been a total non-starter for me since starting chemo (tastes terrible). She thought I definitely wasn't even under normal circumstances. She also cited a study that looked at protein intake and tolerance of treatment. Patients who ate a higher protein diet (80 grams per day) tolerated treatment betterin general than those who ate the normal amount (50 grams). She had a wealth of knowlegde...if a dietician is at all possible for you, I highly recommend a visit. I will meet with mine 2 or 3 more times throughout the next few months, with the end goal of transitioning to a strong anti-cancer diet for life.
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Whenlifegivesyoulemons- I've incorporated Fage yogurt-plain. Has a lot of protein in it. I mix it with PB or fruit. Whatever sounds good. Also, more cottage cheese, more leafy greens, tomatoes, avocados. I still get those days where I sit down and give into Doritos (my weakness). But trying to increase protein and veges and decrease processed and refined flours. But week after chemo is the challenge. I tend toward carbs. I don't drink either. Didn't before hand. I need to go more organic with meats. I already do with milk and eggs. And I have been trying to get out and walk around the block daily. I need to exercise more too.
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I have mixed feelings about diet and cancer, a year before my DX I lost 30 lbs. I was biking 22 km. 6 days a week, walking, kayaking, eating veggies from my own garden(organic). Eating wild meat (elk)about the size of my palm several times a week.
Yogurt, ect. ect...green tea daily ..drinking a beer once a week or so. I don't smoke. I thought I was doing everything right. I will continue my life with no real changes.
My belief is it doesn't matter much, we have to do what we are comfortable with. I don't think they have a clue why some of us get cancer, none of our bodies are really the same. I have decided to keep exercising, eating as best I can, but I am going to do everything in moderation, if I want a burger and fries occasionally I will...this is just my opinion and how I choose to continue my journey. -
Hey all,
The storm is headed our way to the NY, NJ area. It's always scary when the Mayor closes the schools, public trans is stopping at 7pm tonight, many areas under evacuation. In addition to being concerned about all of this, my 3rd A/C chemo is scheduled for Tuesday. I so want to stay on schedule and get this A/C over. I only hope that my chemo doesn't get cancelled.
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Hello all,
Thanks for the advice about the shots, turns out I got a neupegen shot on Wed and Thurs, that plus the antibiotics and I'm feeling way better. I do have a little gut rot from the drugs, but the nurse recommended taking a probiotic to counter that, so we'll see. I can't remember excatly what my MO said on Wed about adding the the nuepegen and/or neulasta, but I think one or both will be part of my new rountine. Right now I am just hoping that I am good to go for Friday. I not getting the pre-chemo jitters, I am more feeling like I just really really really want to get this over with and get closer to being finished....I dream about being done...so fingers crossed for no delays.
Since the infection my doc said to stay away from fresh fruits and veggies, anyone else had to do this? I am really hoping this is a temporary thing and once my counts are up I can eat what I like. Also recommended staying away from places where there are lots of people...again this is a temporary thing right? I know I need to take care of myself, but at the same time I don't want to feel like I am living in a bubble, there has to be a balance...any advice?
Another question, different topic....those of you with tissue expanders, how much activity can do you do? My surgery was in July, but I have had issues with delayed healing and am finally at the point where the incisions are mostly healed...I have my TE, havn't had any fills yet...I have been doing a lot of walking, but would like to add some gentle yoga in as well. Just curious. thanks.
As far as my diet, I think I ate fairly healthy and worked out before my dx, now during treatment I am just trying to eat what sounds good and try to get some activity in, but I think when I am done with treatment I will go even further, work on more fruits and veggies, less carbs, etc. I just can't wait to feel good again and I know I feel better when I eat right and work out. I guess I feel like I have even more of a motivation to do that.
Jojo- sending you lots of positive thoughts and prayers that taxol will work for you!
I hope everyone is doing well, staying strong, staying positive, staying healthy, and moving forward. We can do this
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Whenlife: re: diet, I've read everything I could find on diet in terms of reducing risk of recurrence. Researching this could become a full time job!
As ER-, I saw food/lifestyle as my own personal version of hormone therapy. Where there seems to be consensus, as I'm sure you've read, is that alcohol, fat and sugar are not good. Exercise is positive. Green tea, flax, chia etc. are good (maybe because they decrease the absorpsion of fat.) Long list of "cancer fighting" foods which you have probably seen, mostly green leafy vegetables etc.
At the risk of being a bit controversial, my view on diet is this: Be sensible and use common sense. Eat lots of vegetables and fruits, exercise as much as you can, don't eat too much red meat (or too much of any meat at all), limit alcohol and eat a healthy, balanced diet. If you used to visit MacDonald's or drank four glasses of wine every day, probably best not to do that any more.
When I was first diagnosed as triple negative, I felt totally out of control, and so did alot of research on diet and lifestyle because I thought if I made certain changes, it would give me more security after chemotherapy and radiation--things I could do to positively impact my chances after treatment. My MO (who is very serious and a bit too relaxed for my liking) said that based on medical evidence he recommends the following things:
1. Eat a healthy balanced diet.
2. Don't drink excessively.
3. Exercise regularly.
I found these tips a bit too understated. I wanted the silver bullet! I went through a period of thinking that if I drink 4+ cups of green tea a day, never eat red meat, never drink alcohol and eat tonnes of flax and chia, broccoli, kale and blueberries, my cancer won't return. But now, I'm beginning to think that maybe my MO's advice is on the money.
So after a few months of watching every single thing that I put in my mouth, I realise now that such austerity isn't sustainable or practical. I always ate relatively well anyway, I prefer vegatables to meat, never was a big fast food or dessert fan. But I was partial to a nice glass of red wine, and anything carbohydrate or cheese related- yum! So, now, my view is that those are "special occasion" treats. If I say I can never have them, I will probably become obsessive.
I've decided that ultimately this will end up being a staring match between me and my conscience. If it comes back, it has to be a matter of chemistry and biology, not because of anything that I did or didn't do to help my chances.
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The whole diet thing has me bewildered. 2 years ago I drastically changed my diet, started exercising daily, read about all the wonderful foods to eat to lower my cancer risks, etc. I was in the best physical shape I have been in ever when I got cancer. So now I am letting my body guide me while still maintaining some sense of what I should eat. High protein, fruits, veggies, low carbs, but if I have a craving I let my body indulge. After all I have put it thru, its the least I can do :-)
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Butterfly, Bad taste, yuch. Achy joints. Blah feeling.
Jojo, hopefully the Taxol will go after those cancer cells. That's what a lot of us are hoping.
For those in the way of Sandy, we in the hurricane state, Florida, hope that there is not much damage. No power in September with 90 temperatures is bad. No power in the winter in the north, sounds terrible. Be safe.
Quick recovery, no SE all. Hugs.
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Re diet: I was so tripped up the first couple of times I met with a dietician I still can't keep all the things she told me straight. I was told absolutely no green tea while on chemo. And that because of the chemo I will be immuno-suppressed so to avoid raw veggies - try to eat steamed or cooked veggies. Also, try to have a protein in every meal. Major diet change? Not really. Just more vigilant when cleaning things.
In terms of lifestyle, I met a woman a couple of cycles ahead of me who introduced me to a professor at a university who was doing a study on the effects of cardio workouts on women on chemo. Score! Sign me up! And by "cardio" while on chemo, it means walking three times a week strapped up to a heart rate monitor. I love it because I really did want to exercise while on chemo but I was worried about pushing myself too much. So with the heart rate monitor I watch to make sure I'm not overdoing it. I was one of those really chicken-shit women while pregnant who didn't do all that much. I think I realized that I was just scared of doing too much so I did nothing at all. I didn't want to do that while on chemo. Mentally, I feel so much better after I've had my little work outs. It's a real boost for me.
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diet changes- I haven't done much of anything really. Before cancer, I was on Weight Watchers, which really pushes a lot of fruits and veggies, so I kind of have that mindset already. I would really like to go more vegetarian though, and try to limit sugars and processed food more. For chemo though- I pretty much have given myself a free pass. My waist is proof!
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Hi ladies , I hope you all had a wonderful weekend. Praying for all that are in the line of Sandy. Stay safe.... In regards to diet. I have changed the way I eat totally, but I do allow myself to have a few drinks once in a while. I use to have a glass or two a night before Chemo and I may have one or two twice a month now. I am defiantly going to push myself to work out. It has been hard during chemo but it does make me feel better when I do it. My thing is it takes me forever to get motivated
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Hi ladies,
Sorry I haven’t posted in forever. Grad school seriously keeps me super busy plus I had my third round of chemo on Friday. I am ¾ of the way done with AC. So sad how super excited I am about that!!! I feel really exhausted and tired. The achiness from the neulasta shot sucks…I can’t wait to not need that anymore!! One more round of the red devil then finally on to Taxol!
To all of you ladies that saw the story on me and my sister:
Thank you so much for your kind words. I read everyone’s posting I just haven’t had the time to respond back unfortunately. I am so lucky to have such an amazing family/support system. I think that is why I am able to get through this as well as I have been!And I just found out the other day that not only did my sister shave her head for me (which I knew) but that she is keeping it shaved the entire time while I'm in chemotherapy. I just thought she was doing it once out of solidarity which would've been enough of course! But the fact that she is keeping it like that throughout the next few months just speaks volumes to what type of person she is and how lucky I am to have her in my life!!
For those of you in the path of Sandy, be safe! I know I am staying with my parents in CT until it passes!
Hope you all have a great day with minimal SEs!! -
Hey justegan -
I am starting a/c on nov 8, hope u r doing well. Be safe with the storm!! -
Hey Dakota,
It has been forever since we've chatted! I hope you stay safe too!! -
whenlifegyl, Between my biopsy and the date I started chemo, I went on a very sugar-free diet. I even did a couple of 36 hour fasts (and tolerated them very well). I eat a fairly "paleo" style diet but in my mind that just means no processed foods, tons of veggies, and no fear of traditional fats in good clean foods (bits of coconut oil or butter in cooking, fat in grass fed or pastured meat). I even limited fruits somewhat to just a serving a day. I did lose some weight but the thing that I keep reminding myself about is my surgeon remarked that the tumor they removed from my breast was somewhat smaller than they expected and that was only after a month of eating that way. !!! down by 2 to 6 millimeters depending on direction of measurement. That was what I was intending and also hoping to starve any frikkin cancer cells that might have got loose from my biopsy. O hope that and the chemo kicked the shyte out of any of those. However, during chemo, sweets have crept back into my diet because I pretty much can't taste anything else anymore and also I'm not sure I'm digesting anything else anymore! But I still eat fairly well because, as a celiac, I can't just go pick up pizza or burgers for take out and buying special glutenfree foods for every meal is cost prohibitive for me.
Like bearcub, I still think there's not much proof about prevention. For a lot of us it seems it's about some combo of the hormones and who knows what else? Three years ago I was hospitalized and on super strong antibiotics, one of which had a cancer risk warning on it. Who knows...Like English Rose, I am developng a solid "moderation in everything" attitude. -
Allurbadday my grandson (16) has Crohn's disease and was hospitized for 4 months 12 hours from home, in 2010, couldn't eat anything but boost drinks....surgery helped his recovery..he also is on a heavy duty drug that has cancer risks, Humeria..I worry for him. My DD and my gson are down (they live 4 hrs from PG....on Thursday as the doctor he see's is coming to PG, bonus for me I get a visit!!
Next Wednesday my last AC woohoo.....I can't wait.
We have had a weird weekend here, we had a huge earthquake off the coast, 7.7 magnitude. I never felt anything but lots of people in PG did. Now we have had snowfall warnings all weekend. It's certainly going to ruin the Halloween for the kiddies. We have a TON of snow... DH is out snow blowing as I type. I am pulling the cancer card this winter......lol...no snow blowing for me!...(that will last about a month)
Justine, I always wanted a sister, you are so lucky. I had 3 brothers!!
May all the Sept. 2012 sisters have a fantastic week....with NO or at least minimal SE ... -
Bearcub,
I am lucky as my sister is amazing! Although I'm sure it would've been cool to have had a brother lol! -
Just need to vent on health care...just received notification today from United Health Care that they are canceling their contracts with BayCare hospitals and doctors. BayCare is the largest medical group in Pinellas County, with 9 of 10 hospitals and the majority of the doctors being affiliated with them. So in the middle of cancer treatment i can either A) find all new doctors and and use a hospital that is 25 miles away from where I live or
after paying 8000. in out of pocket expenses since July of this year, I can now pay for out of network expenses.....the fun seems to never end!! -
Butterfly that is terrible that you have this stress at this time, the casualties are always the patients who need none of it. Good luck with your decision.
Justine, brothers can be okay at times...lol, mine have not been very supportive. My youngest brother has probably been the best, he asks via text about once a month how I am doing...he does live 6 hrs away. His wife and daughters have been wonderful though!! one brother passed away at 37 of heart disease, and the other only contacts me if he wants something. That's the way the ball bounces, we don't get to choose our family. Your sister is amazing....your bond seems so special.
PLEASE stay safe everyone in the way of Hurricane Sandy!!.... -
Hi everyone, Sandy here in full blast right now. My 3rd A/C got cancelled but not because of weather, I need to get neupogen shots for three consecutive days to get my wbc up in order to get the next chemo. I am so disappointed, my surgery was on August 9th. Over 2 months later and I have only had two treatments. I've seen posts look for the end of the tunnel. Sure wish it was closer. Be safe all.
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Be safe, Waiting! I am in Va but have family in NY and NJ. Hoping your counts come up soon. Prayers to everyone esp those in the path of the storm!
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Thanks, record flooding in some areas. We are hanging in though. Can't wait to go to sleep tonight so it will be over by morning.
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Butterfly, your insurance compamy actions are terrible. Why I favor single payer. Hope you can work something out. I hope the election goes for those who will protect medicare.
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Cindi: Amen on your prayers for the election!
Butterfly: That is so horrible about your insurance! I am going out of my HMO to get better treatment. It is extremely difficult financially, but I feel like I need to give myself the best chance for full recovery and no recurrence so I can raise my little ones. I feel so lucky compared to those who have absolutely no options due to no insurance. My heart goes out to them.
Waitingfor: That is terrible about all of your delays! I know how it is to just want to get finished as soon as possible. I am glad you are safe in the storm. I am all the way on the other coast, but have been watching the news all night. I am saying prayers for everyone.
Justine: That is utterly cool that your sister is going to stay bald with you! I have heard that one of the hardest things about people shaving in solidarity is watching their hair grow back so quickly, while yours just kind of stays bald:-( My sister is a singer songwriter in Texas. She just finished writing me a song and sang it to me on the phone tonight. We were both crying by the end. Since she is on stage all of the time, I didn't really think she would shave her head:-) I love my sister so much! Sisters are awesome:) My little brother sent an amazing care package today to my son and daughter full of Halloween treats, toys, and craft projects. So sweet. I wouldn't trade my siblings for anything! Just wish they were closer to me. Hooray for siblings!
Beacub: You stay safe too in all that snow!
I am in the big girl chair tomorrow:-( I think of it as my short descention into the underworld. But no worries, I am arming myself with an aresenal of good drugs, supplements, support, and healthy foods so I can emerge on Tuesday of next week, unscathed, and hopefully it will have kicked more of that cancer's butt!!!! My doctor was very pleased with how well things are going, which makes the notion of chemo a bit more doable. I did cry with my oncologist today a bit. I was asking about the Her2 vaccination. He told me that I couldn't do it because I am in active treatment, and by the time I am done- the study will no longer be taking new people:-( He was so supportive- and really focused on how well I was doing and gave me so much hope. The first oncologist I ever spoke with was so cold and robotic. I am very happy that I got a second opinion, and went with my gut.
Hope everyone is able to stay safe and have no SE!!!!
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jojo2373--
I saw on your post back on 10/23 asking about what kind of surgery to get. I got a left mastectomy back in February of 2009 for IDC. My lymph nodes were clear, I had an Oncotype DX of 19, and BRCA negative. I did 4 rounds of Taxotere and Cytoxan finishing in June of 2009. On August 21, 2012, I felt a lump on a whim as I was massaging my left pectoral muscle above my left mastectomy site. I thought it was scar tissue at first, untiland ultrasound and biopsy confirmed that it was the same cancer that I had previously. I had had a breast MRI in July that was clear. This new lump was up high where the breast MRI can't really detect it.
I guess when I decided on having a mastectomy, I thought that I would never get breast cancer again on that side because there is no breast tissue. What all the experts have told me is that I probably had one cell that escaped through the ductal systems and took root in a lymph node in the pectoral muscel that didn't die with all the chemo I had last time.
Now I'm doing chemo again to shrink it first before surgery. I was SO angry when I found out, because I felt that I did above and beyond what was required and the cancer came back again. Sorry for venting.
I guess what I'm trying to say is that no matter what kind of surgery you choose, we have to be vigilant in doing our self-exams and knowing when something doesn't feel right. My MRI missed it and that was a side where mammograms aren't done.
Stay safe and praying that Hurricane Sandy is kind to you in MD.
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Hi Mariposa--hope all goes smoothly for you today. I'll be following you for Taxotere #2 tomorrow. First round of mega steroids down. Wondering what to do with all that energy this afternoon...See you on the other side!
Waiting--pictures coming out of NYC this morning are not pretty. Hope you're safe and secure.
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