DIEP flap in Kansas City @ KU Med?
While researching my reconstruction options I saw that DIEP flap is offered in limited locations throughout the country, but luckily one of those is 30 minutes from where I live at KU Medical Center. Has anyone had this procedure done there? By Dr. Teresa Buescher? Just looking for feedback on your experience, especially if anyone has received care at KU Med. I'll be having surgery soon, hopefully within the next 3-4 weeks.
Thanks,
Becky
Comments
-
Hi Becky, I didn't have a DIEP done with Buescher, but I did have a PAP/TUG, which is more difficult than a DIEP. Buescher is AWESOME! A true genius who really cares about her patients. There is a thread on here with someone else asking about her. All results, that I know of, are awesome. Feel free to PM me if you want more information.
Good luck! Andi
-
I am having DIEP with Dr Buescher on November 8th. I'll let you know how it goes. Glad to see some more of her patients here!
-
I posted the same question here:
http://community.breastcancer.org/forum/44/topic/791239?page=1#idx_11
I have a consult with Dr. Buescher in December. I am also hoping to hear good stories about her here, it would be wonderful to not have to travel far out of the area for a DIEP.
I also went to KU for second opinions twice now (saw Dr. Lindstrom for a radiation 2nd opinion, and Dr. Sharma for my initial oncology 2nd opinion). I would recommend KU to anyone (although my local cancer center at Citizens Memorial in Bolivar is also awesome, and that has been my primary cancer care; they just don't offer the reconstruction options I am interested in).
-
Dr Buescher did my delayed bilateral DIEP almost 3 months ago. It is a huge surgery but I am glad I did it. I saw my oncologist today and he asked for her name to give to other women looking at reconstruction options. I wake up every morning so happy that I have boobs again. My Phase 2 will be in December, need to tweak a hard area on the right. Honestly though I really could just get nipples done and later tatoos (both as office procedures) and I would be pleased. My husband is also pleased.
Dr Buescher spent over an hour with me for my consult and fully answered our questions. I never liked the way the portacath felt under my skin so knew implants were not for me. Plus I had radiation so implants would not be a good choice. Months earlier I had a phone consult with Dr Marga Massey in NOLA and she told me what to look for in a surgeon if I did not come to NOLA. On the way home from the consult at KU I had confidence in Dr Buescher and decided then to choose her. My nursing care was good at KU. Dr Buescher pts go to the Burn ICU. Those hourly checks keep you from getting much sleep but I had a big smile every hour when I heard the Doppler swish of the blood flowing thru the flaps. I was in the ICU for 48 hrs and then to a regular (private) room on the Burn floor. There it was every 2 hr checks and then later the checks were every 4 hrs. I had an epidural for pain control for 3 days and a PCA pump to push for pain. Then I went to pain pills. My call light was answered fast and the nurses were very kind to my husband. Dr Buescher's office staff has always been helpful too. During surgery there are frequent updates to the family. My daughter jokes that her grandpa now knows more about my boobs than he ever cared to. Hope this helps.
-
LoL Faithunderpressure! Thanks for that! Very helpful:) I can't wait to wake up and have 2 boobs again.
-
Angelrose, I had the same experience last April with Dr. Buescher, KU and the Burn ICU. Just AWESOME, AWESOME care. Faith, I hear you on the doppler swish!!! It was like listening for the babies' heart beat every two hours! I just had my stage II (nips-yesterday). I am so happy with them. Can't wait for the tattoos. I just know you are going to love her and her crew.
-
Thank you for all theinformation. In the meantime since I posted this I called to schedule with Dr. Buescher and she is booked out until next March. Which means I'll have to do BMx now and recon later. I was really wanting to get things done in one shot, particularly with DIEP since it is a bigger surgery and longer recovery. I also consulted with a PS and have surgery scheduled for next Monday (BMx and tissue expanders for eventual implants), but am just so torn on if I'm doing the right thing or not. It seems that every avenue I go down to get a DIEP procedure done becomes a dead end for me. I can't travel to NOLA for it, and my insurance is no good there anyway. And my PS admitted he doesn't do DIEP but he also said he doesn't think Ih ave enough abdominal fat/tissue, although I have to disagree because I have a TON! I'm wondering if that's where a consult with a PS who actually does it would make a difference. I'm getting so discouraged.
-
Steiner, a really good PS who does these procedures makes all the differencein the world! Don't get discouraged. I think there are enough flap options out there that even the smallest of ladies can get one IF you have a doc who knows what he/she is doing. I know Buescher is booked--that's because she's really, really good, and she's worth the wait. But there are a number of others. I suspect they are booked too for the immediate future, but you really want to find a good one for a flap.
If it helps I basically ended up doing what you are facing (TE, implants and then flaps). I didn't exactly choose to do it that way. I had chemo first, then surgery. I knew I wanted immediate recon (skin sparing mast with TE)--I just didn't want to have nothing there. But because I needed rads I couldn't do a flap (and I'm not all that big either so I got some of the same "there's really not enough here" talk. I tried to make the implants work for a year and then decided to do a flap (a TUG/PAP which is inner thighs for boobs plus fat grafting). I'm three years out and a few months from done (I just need my tattoos now), and I am soooooo happy with the results. They look good, the feel great. Honestly, I look better than when I started.
It was a long road, but it didn't feel as long as it was. In the end, I think I would have done it the same way--maybe skip the implants and just keep the expanders for a bit to hold the pocket??? That would have cut off about a year. I was just in such a rush to get everything done and be through it! I think everyone is. But the reality is this takes time. Now I wish that, although I wouldn't have wanted to hear it, someone had told me to just "slow down." "Here's what you can expect...." "You will be happy in the end, but this will not be a 6 month or an 8 month thing...." You get the drift. Plus, although I have absolutely no medical/scientific basis for this, I think that when you do the flap after all the stress of treatment is over, your body handles it better. You are asking a LOT of your body, your immune system, your vascular system, the list goes on. Give it the time and steps it needs to get through everything, and you will be pleased in the end. But don't get discouraged. You can do it!!!
Take care
By the way, where are you being treated?
-
I'm being treated at the KC Cancer Center North (Dr. Sheehan) and my surgeon is at St Luke's North (Dr. Gehrke) and PS is Dr. Bene from Monarch PS. I'm confident I'm in good hands, I've had so many people (medical professionals and cancer pts) say good things about all of my docs.
So amac...you had TE and implants then went back for a flap? Did your insurance cover the 2nd recon? Was there a medical indication for it or just personal preference? Sorry for so many questions, I'm trying to see what other experiences are.
-
Steiner - I didn't have my DIEP at your center, but I wanted to let you know that a staged DIEP can be done. I had a skin sparing bmx with TE placement which I had through the months of active treatment. I was originally going to have an immediate DIEP, but came up with a positive node which put the possibility of rads on the table, and the PS preferred to wait to do the DIEP later after all treatment. Once active treatment was over, I had my DIEP.
The reason for placing the TE at the time of the bmx is to keep the skin stretched out so you keep the benefit of the skin-sparing BMX. So it's definitely possible to get your bmx with TE now and go for your flap later. As amac says, doing it this way isn't bad. I had the TE to get me through active treatment - they weren't the most comfortable things in the world, but I never woke up flat, and with clothes no one would have ever guessed I had a bmx. Once active treatment was over, I was able to schedule my DIEP at a time when it was convenient for me and for my employer. I agree that having the DIEP after active treatment ended up being better for me - I was better rested, I was less stressed, I was a lot stronger, and it was more convenient.
That was over 4 years ago and I honestly forget most of the time that they are not the original "girls". Maybe the PS you want will at least consult with the breast surgeon who will be doing the BMX with TE to let the bs know exactly what he/she can do to help maximize your aesthetic results.
Good luck!
-
Steiner, yes, I had a skin sparing mast (one side cancer the other side prophy) with TE. They stayed in for about 5 months (through radiation and a bit after while my skin "settled down"). I swapped for implants at about 5 months out. I lived with the implants for about a year and a half. They were OK--looked like boobs and were very perky, but I hated the feel of them. I just couldn't get used to that hard ball stuck to my chest. Before my surgery I spent many nights awake and crying, wondering what it would be not not feel anything on my chest, because I knew I would lose sensation. After surgery (and implants) I actually longed to not feel anything on my chest. I had very little sensation (some skin sensation between my boobs and on the sides under my arms, but nothing where it mattered. However, the implant recon, under the muscle, left me feeling like something was constantly squeezing my chest. It wasn't horrible (I wouldn't say it was painful although at times I would have spasming pain). I just HATED it. I was technically a grate 2 to 3 on the Baker scale. I'm not sure what my docs told my insurance company, but they did pay for everything, no questions asked. I'm sure it was labeled a necessary medical revision. With my new flap boobs, I feel NOTHING! It's awesome. I feel completely normal, and I actually like their shape better than my pre cancer boobs. I just got nips, and can't wait for my tatts. They look so real! They are real!!! Feel free to ask me as many questions as you have. I'm happy to help in any way posssible.
Take care, Andi
-
Thank you so much NatsFan and Andi!! That makes me feel so much better. I'm going through with my bilateral bmx w/TE placement on Monday. And I have a consult appointment at KU Med with Dr. Holding in a few weeks, she works with Dr. Buescher and they are the only 2 who do DIEPs in the KC area.
Thank you everyone for the feedback! These boards are becoming tremendously helpful in my search for information and options, I am so glad I was referred here by a friend.Becky
-
Steiner and Angelrose, thinking about each of you as you will have surgery this week. I found a cheap pair of kitchen tongs was very useful for reaching lightweight things in thoses early days at home.
Kim
-
Amen Kim! I didn't count on the difficulty in bending over. I used my tongs for EVERYTHING. Thinking of you Angelrose. I hope you love KU as much as I did. I wouldn't call it a 5 star resort, but pretty close. Steiner, I think Holding is the new doc. They are VERY excited about this addition. I think you are in great hands.
-
Dr. Buescher reconstructed my lumpectomy and reduced/lifted my other breast to match. She did an amazing job! After my areola tattoo I feel like a new woman. Highly recommend her.
-
Hi Becky: In April, 2013, I will be 3 years post DIEP reconstruction (bilateral mastectomies) secondary to my breast cancer diagnosis in November 2009. Dr. Teresa Buescher was fairly new at KU when I had my surgery. I cannot say enough about this truly gifted, skilled surgeon. She is one of the most caring and compassionate individuals I have come in contact with during my breast cancer journey. I had my surgery at KU-was in ICU on Burn unit for 2 days and then went to regular room. I was in for 6 days because post surgery, they went back and did a node dissection. DIEP flap reconstruction (mine was immediate-I was in surgery for 14-1/2 hours) is not for sissies, but neither is breast cancer. The end result is unbelievable. I flash these breasts to anyone who is contemplating reconstruction and speak to women on a regular basis about it. I would do it again in a heartbeat. If you have specific questions you would like answered, I would be happy to talk to you. Good Luck to you. nancy
-
Hi! I see you used Dr. Holding for your DIEP flap here in Kansas City. I am planning on using her 04/25/16 and was wondering what you thought of your experience and results. I haven't found anyone else that has used her has their surgeon and would be so greatful if you let me know.Thank you so much!
-
I'll be having my DIEP at KU MED and I've decided to go with Dr. David Chandler. I had my tissue expanders placed by Dr. Korentager, but he does not do DIEP and also has been off work lately due to illness. While I was in his office for a fill last week Dr. Chandler came in and drained my seroma. It turns out he is just coming back to KU after working in Alabama for the past several years and has done many DIEPS. I talked to my nurse about him and she says she remembers working him back when he was the chief resident and that he is an excellent surgeon and a truly good person. He's coming back and going into practice with Dr. Korentager and I have a consultation with him on 4/4. He did kind of a mini consultation with me when he drained my seroma and I got a good feeling about him. His schedule is pretty open. He's going back to Alabama for the next 2 weeks to tie up loose ends there then he'll be back.
-
Hello, reezhazhakira, I hope you are doing well! I am considering Dr Holding at KU to do my Diep surgery and wondered what your experience was like?
If anyone else has had bad or good experiences at KU in Kansas City, your comments would be helpful as well!! Dr recomendations welcome!
Thank you!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team