In shock

11213151718233

Comments

  • seniormom
    seniormom Member Posts: 2
    edited October 2012

     I feel for bennymuffins. when diagnosed on July 12,2012, I had the same feelings. Shock, very sad, fear.. I felt like I had just been given a death sentence.  I cried and was terrible sad like I my days were over. For a couple of weeks I could not speak about it without crying. Many appointments later, not to mention lots of prayers. I told all my friends and anyone that asked. The more people knew, the more prayers I would receive. By the time the surgery for lumpectomy and lymph node biopsy on Aug. 1st, I had relaxed somewhat.  The cancer had spread to the lymph node, on Sept. 10th has axillary dissection, another cancerous node.  A total of 19 nodes, 2 were cancerous.  I keep very positive that all will be fine, and leave myself in God's hands.  I have just started on Letrozole (Femara) by late next week radiation. My oncologist did not recommend chemo, I took her recommendation.  My axillary dissection is still sore after 6 weeks, but getting better every day. I had a drain for almost 3 weeks. No more tears, if it comes back I will deal with it and I don't worry too much anymore, although it's always in the back of my mind. At some point you will probably feel the same way after the initial shock goes away. 

      I have read everything I can on this cancer, the more informed you are the less frightening it becomes. You will beat it just keep positive.

          ((Hugs and prayers))

  • msphil
    msphil Member Posts: 1,536
    edited October 2012

    hello all this is msphil I changed my name to mrsphil for security purposes but still me, hello sweetie, we have all felt "the shock" so u have come to the right place , I had my cry and then I started to get myself together and fight the hard fight for my life, and so I am very much a faith person got even stronger after diagnosis, and HOPE is very important in this fight,I stayed  yr SURVIVORPositive sayin to myself 'I will beat this with my belief in my higher Power which is GOD and now sweetie, I am a 18 yrSURVIVOR (Praise GOD).

  • Beesie
    Beesie Member Posts: 12,240
    edited October 2012

    Benny, 

    Love the pictures!  Diamond is beautiful.  And didn't you say that you are 54?  The woman in that picture cannot be 54! Gee, and here I was already envious that you live in Calgary, so close to the mountains. I think my favourite drive in the world is heading from Calgary into the mountains, seeing them in front of me and anticipating being surrounded by them within minutes.  It's been too long since I've done that drive!

    How do the appointment with the surgeon go?

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    Yay!! I have an infection!! Yay!!!! Laughing

    Never thought I'd be happy about that haha

    The surgeon has put me on Keflex and also told me that cancers don't change from one to another like that. He is such a great surgeon. I wish I could take a picture of him and post it. He's easy on the eyes too ;-)

    LiveItUp, posting pictures is easy but you will need an image host. I used Photobucket. Anyone can get a Photobucket account, it's free and instant. Once you've uploaded your photos to Photobucket, you can copy the URL from the picture you want. Then you click on that little picture of a tree in the status bar window when you're replying on a BCO discussion board. It will ask you to paste the URL. Do that and you're done. I had to experiment a bit with it to figure it out, which is why you see that deleted post right before the pictures haha Embarassed Would love to see a picture of your new boy and trailer!

    Seniormom, yes, I can honestly say this is the most scared I have ever been in my life. I still break down regularly (daily) and unexpectedly, as it continues to settle into my consciousness. Websister and I were talking about how it is similar to Elizabeth Kubler-Ross' five stages of grief. I have gone through (and continue to go through) 4 of the 5  stages in random order: denial (this can't be right), bargaining (please take this away and I promise I won't eat potato chips for supper anymore), sadness/depression (self-explanatory), anger (expletives here!), acceptance. I am not at the last stage yet. Thank you for the hugs and prayers, seniormom xo

    mrsphil, 18 year survivor? Yahoo! That's what I like to hear! Yay! You go girl!

    Beesie, yes, just an infection! I do know that drive you are talking about. That first photo was facing north but had it been taken facing SW you would have seen the foothills in the background. We can be in the mountains within an hour, and it is a breathtaking drive as you gain elevation and see the foliage and landscape change into majesty. I'm more of an ocean lover (not much of that here I'm afraid. There was a really big mud puddle across the street but it's frozen now) but I must admit the mountains are spectacular!!!

    Just had a bowl of ice cream and my second Keflex dose. Going to bed. Will venture out tomorrow to visit with the giant plush toy. Goodnight everyone. (((hugs)))

  • geebung
    geebung Member Posts: 1,851
    edited October 2012

    I'm so glad it's an infection! I hope it clears up quickly though. ;)

  • edithesther
    edithesther Member Posts: 183
    edited October 2012

    Benny, infection yay !! So glad for you. ( sounds awful but you know what I mean ) Your Doctor sounds really lovely. mine is like that it makes such a difference.

    Five stages of grief is really interesting, makes so much sense, mine is at the anger bit at the moment find myself wanting to punch people who look at me sideways. The temptation to use really eloquent swear words overwhelming at times too, ha ha.

    Your pictures are wonderful, you and Diamond look stunning and there is no way you look your age !! It must be living in such a beautiful part of the world, we will all have to emigrate.

    Have a lovely day with your plush toy, hope infection leaves quickly.

  • Momine
    Momine Member Posts: 7,859
    edited October 2012

    Benny, lol on being happy about an infection. This is one of the more amusing things about having cancer, suddenly all other ailments pretty much are cause for celebration, because at least they are not cancer. 

    I hope I look as good as you in 5 years.

  • Beesie
    Beesie Member Posts: 12,240
    edited October 2012

    It is kind of funny how an infection can be good news, isn't it?  But YEAH! to the good news that it's just an infection!

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Benny, I did not post for a while, but have been reading here. Genuinely so happy for you that it's only an infection. As time goes by, you will get accustomed to the 'new normal'. Yes, you will get used to it. It sounds crazy, but it is the truth. The more you learn and educate yourself, the less scared you will be. If you know what you are facing, you can prepare yourself, and then you are in charge of the situation. You are the boss, not just another cancer victim. No way! You should become the most important player on your medical team against the cancer beast. Together you will beat this thing - it's the only way to go.

    Diamond is a beautiful horse, and you will be riding him for many years to come. Trust me! (((HUGS!)))

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    Update:

    It's 1:40 in the morning and I am freaking out and crying. I have been on the antibiotic for 5 days now. Not only has it not cleared up, it has continued to get worse, MUCH worse. It is covering about 1/3 of my entire breast now and spreading. It is swollen, itchy and very very red. The skin is flaky and almost feels dead to the touch. Is it possible to get two different kinds of cancer in one month in the same breast??? Why wasn't this picked up in the pathology report? The surgeon said it can't morph into a different type of cancer. Was he wrong?? I am doomed. I can't believe this is happening to me.

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Benny, I'm still awake. My advice is to phone your doctor tomorrow first thing, and tell him what is going on. Make that decision now, and you will have more peace. Then try to sleep a little. (((HUGS!)))

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    Yes Liefie, I will do that. He was so certain it was just an infection. I have been crying so hard I can't breathe through my nose. I am a mess. Not sure on the sleep thing. My life was so normal just two months ago. I feel like I'm in hell.

  • Momine
    Momine Member Posts: 7,859
    edited October 2012

    Benny, try to take a deep breath. It is, as best as I know, highly unlikely that you have suddenly developed IBC on top of the previous cancer. It is far more likely that you have a nasty infection that needs a different or stronger anti-biotic. Get a hold of the doc as soon as possible and insist that they see you right away and deal with it properly. You should not have to go through all this anguish.

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited October 2012

    Benny, do you have a fever too?  I'm sure you realize how very unlikely it is for a whole new cancer to pop up and increase that quickly.  Pretty much unheard of, I would say.  It sounds like the infection is not responding to the antibiotics.....  or perhaps you are having some sort of reaction to them.  Either way your doc needs to know ASAP.  Until morning, just try to relax.... easier said than done, I know!  (Queen of insomnia here.)  Boy oh boy, do I totally understand how you feel.  Three months ago my life was totally normal and routine in every way, if anyone had told me what I would be doing now I would never have believed them in a million years.  It would be inconceivable.  Yet here we are.  Stay strong, we will fight on through this thing and kick cancer's butt!!  Every one of us!!  I truly believe that.

  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited October 2012

    Hi Bennie,  your infection may just be going through a phase, you know "gets worse before it gets better" type of thing.  Trust me I freak out at every little ache of pain I have. My onc calls me his little hypocondriac!!  Hey better safe than sorry!!  On to better things: I am losing a week of riding thanks to hurricane sandy!! Next year hoping to have the indoor arena up then inclement weather will not be a factor.  I just go hang out at the barn and brush the horses and take in their horsey smell!! (Sigh,,, I just love that smell)  There is nothing like the smell of a barn full of hay and horses on a cold rainy day, or heck anyday!!  Take care of yoursef and when you start to feel hopeless visualize yourself healthy and riding. I am seeing a hypnotherapist via skype and he is helping me be more positive and relax using breathing and deep visualization.  It has helped so far.  There is a powerful connection between mind and body. Visualize your healthy cells beating back any remaining cancer cells, really see it and it will happen!!  I have done some research on the mind/body connection and it really is amazing. 

    ((((HUGS))))Cheryl

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    Yes Momine, that is what I thought too...... highly unlikely for a second and rare cancer to pop up within a month of the first. But then, according to the National Cancer Institute, I had less than a 1.3% chance of getting BC at all, and here I am, so weirder things have happened. This thing has the characteristics of IBC: red rash, orange peel skin (not all over tho'), swollen, itchy, pain, nipple changes. I am terrified.

    Jennie, no, I don't have a fever. I've been around 37.2 since this began. The other thing I've noticed is a burning sensation in my OTHER armpit so I am now thinking the lymph nodes on the other side are now infected or cancerous. And, I have a cough that is not going away. So even tho' I'm on Kelfex my cough isn't responding either.

    Cheryl, I love the smell of horses too! People must think we're nuts! Yes, the dank smell of the barn on a rainy day...... smells great! I desperately need some positive thoughts because I am courting disaster here with the thoughts I am having right now. The clinic opens in 15 minutes and I'll be on that phone one second after that.

    Thank you all so very much for the support and positive thinking. (((((hug)))))

  • Momine
    Momine Member Posts: 7,859
    edited October 2012

    Benny, I really hope you can get this cleared up soon. Please let us know what the doc says. Also, do not be shy about demanding real answers.

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    The RN who answers the phone was non-committal, but I have an appointment at 3:15 tomorrow with the surgeon. The oncologist is on holidays but it's the surgeon who saw this first and thought it was an infection so he needs to see it's not clearing up at all. I hope he knows what IBC looks like (and doesn't look like).

    Okay, will just try to breathe til then.Undecided

  • Momine
    Momine Member Posts: 7,859
    edited October 2012

    Good grief! You would think they would see you immediately, since it is most likely a complication of surgery. But then I am used to Greek docs of the private variety.

    Breathe!

    Any chance you can go for a walk or a ride?

  • bennymuffins
    bennymuffins Member Posts: 412
    edited October 2012

    Yes, I am going to finish up the laundry here then head out to the barn and visit the giant plush toy. I might not ride her because it's a full moon and she's a nightmare when it's a full moon (spooks over EVERYTHING), but there's other horses I can ride, so that will keep my mind off things temporarily. Thanks Momine!

  • bearcub
    bearcub Member Posts: 485
    edited October 2012

    Benny, I think you need a stronger antibiotic or maybe it will settle down the more antibiotics you get in you. Enjoy the horses today, I love the smell of horses too!!....we have a ton of snow....can't get too far today..heavy snowfall warning today....



    Hope everyone is having a SE day!

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited October 2012

    Benny-

    The girls are right it's probably an infection and needs a stronger antibiotic. Starting chemo next week. Any suggestions. Starting with A/C. What is the icing everyone talks about and when??

  • edithesther
    edithesther Member Posts: 183
    edited October 2012

    Bennymuffins, hope you get some relief soon. Sure it is just not responding to this antibiotic but think they should see you sooner.

    Dakota good luck with chemo, starting mine tomorrow so scared I want to run away !! If one more person tells me it will be fine I will flatten them. Sure I will be, just wish they could come to the house and do it. One bit of advice I had is to take lemon flavoured sweets to suck as they help, don't know how but some in my bag. Will let you know how it goes I am just being a big baby.

    Hugs to you Benny.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited October 2012

    Edi-



    Good luck!! I will take any advice possible !!!

  • edithesther
    edithesther Member Posts: 183
    edited October 2012

    Dakota Thank you sure we will soon be old hands at this chemo stuff ha ha.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited October 2012

    Edi-



    Ur probably right but I don't mind paying it forward :)

  • bearcub
    bearcub Member Posts: 485
    edited October 2012

    Dakota and Edith, I am starting my 4th and final AC in another week. You will be fine, it is scary the first time. You will walk out of there feeling no different. Make sure the nausea meds they give you work, if you feel sick at all call them at the clinic...drink lots of fluids to flush the drug out of your system. Use baby wipes to save your *****region from the harsh drug. Always remember this drug will help you, small price for your life!

    My nails have held up but my skin on my hands is so dry from hand sanitizer. Also get onto the November chemo thread or start one for people starting chemo in November so you can walk this path with people going through exactly what you are. I am thinking of you, breathe, you will be fine.

  • liefie
    liefie Member Posts: 2,440
    edited October 2012

    Dakota, when you get Taxotere or Taxol, you keep your hands in iced mittens during infusion to prevent neuropathy damage and numbness in your fingers. Some people keep their feet in ice too.

    Benny, glad you got that appointment. Wish you could get in sooner, though. If it gets worse, go to an ER, please.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited October 2012

    Liefie-

    Thanks. I will keep that in mind. What about latisse and silica?? Any thoughts ?

  • Momine
    Momine Member Posts: 7,859
    edited October 2012

    Dakota, I freaked a fair bit when the lashes disappeared. But by the time I had gotten around to the conclusion that I HAD to do something, they started growing back.

    There are places that do lash extensions for people who have lost lashes. Had I known about it prior, I might have done that. It would have been nice.

Categories