For those starting TAC in March/April 2006....
Comments
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Terry Welcome to the TAC world..I won't lie to you and say TAC is easy because it is really tough on many people. The secret is dealing with the side effects as best you can. My advice is to Drink lots of fluids and pee a lot the first day of chemo at least once an hour first 6 hours to avoid bladder irritation, take your nausea meds for the first three days even if you think you don't need them. If you are taking nuelasta shots, make sure you have some pain meds to cover the bone pain. Crunching on ice chips seems to help prevent mouth sores when you are getting the taxotere, take a slushey drink with you to chemo. Use plastic utensils when you get that metal taste in your mouth a few days after chemo.And when you are feeling low..visit these boards, I have found the women on this thread very supportive when I needed someone who understood. You know where to find us.
Good luck Terry!
MarciaA. -
Hello, I am still alive and starting to feel a little better now. Last night was the worst that I have ever been. Very nauseated and tired, then of all things to get, I got a migraine. Finally got rid of it this morning. I actually went outside today and planted a few flowers with the help of my 7 yr old. I guess sometimes it is hard for me to deal with the treatment. I know that I have to do it and it will make me better in the long run. It is just hard doing it with none of my family living close.(Mom and sister) Hope everyone else is doing ok.
TAKE CARE!!
Mindy -
Hello All, Well, a new side effect (of the Taxotere specifically) appeared yesterday - looks like tear ducts are irritated, narrowed or blocked - I know I need to call the onc (she told me to call on this one if it happened) but reading about the pain associated with diagnosing it and treating it is putting me off big time. (Gail I think I left my big girl panties at home!) Anyway, one person posted that it cleared up for her after she finished tx, another says it didn't and she wishes she got the tubes b/c the later treatment is worse. Big sigh. Leigh
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Leigh, sorry to hear about your latest side effect. I tear up all the time because of the taxotere and people think I am crying because I am upset. Have you tried warm compresses on your eyes? I have heard of people dabbing prep H under their eyes to shrink tissues that are swollen around ducts...But that sounds pretty drastic to me. I know you must miss your hubby, how is the weather tracking going?
Mindy, sorry about your migraine. I have days when I think I should have a better day than the day before and suddenly something will come up like fatigue or numbness or nausea. I found out from these boards that chemo is not like getting over a cold where you feel better every day and they were right. Hope you are feeling better.
Paula, I like your idea of looking at the 6weeks versus 2 treatments. But you forgot to count that awful week following the last treatment. I am finding it really hard to get motivated for #5.
Well ladies tomorrow is my TAC#5. I am still having some numbness so I called and got my taxotere reduced by 25%. I was afraid I wouldn't be able to get thru all 6 if I didn't due to the numbness in my feet and tongue and fingers. I dread tomorrow. Not really psyched up for this one like I was for the others, it took longer for me to get back up to feeling normal this last time (mostly fatigue) I have had a runny nose and a hacky cough too but without any fever- it may be allergies to all this pollen here now. Well enough of my ramblings.
Best wishes to all!
MarciaA. -
Well that explains the tearing that I've jsut started getting. How freaky to just start looking like you are crying out in public! I thought it was allergies or something. This treatment I havent' had it yet, but it could still come along.
Marcia- I didnt' count the week afte the last treatment becuase.. well, because it's OVER!! hehehe don't have to even think about going back again after that, and that's a big thing for me the first week after. A real depresser. That's why I didn't count it. Good luck tomorrow with number 5 and let us know, I bite my nails anytime one of us goes in!
I'm feeling better this time, just tire easily. Strangely enough, my daughter is doing better with school. Probably becuase it's all field trips and almost over anyway. I can't wait until school is out for once lol.
Paula -
Hi Ladies, I have talked to some of my friends and feel better about tomorrow. Sorry to sound so down this morning. I found a link with a virtual tour of my chemo room.
http://www.cancercareofwnc.com/site.php?page=visit_virtual&title=Virtual+Tour
It has a waterfall that starts outdoors and goes indoors.It is very relaxing to watch the birds attracted to it. You can do a 360 of the pic at the bottom and see the room layout for the chemo patients. Thought you may be curious about other chemo settings.
Anyway you all take care until I get back.
MarciaA. -
Marcia, thank you for sharing that website. It is interesting to check out other chemo rooms. It is really nice, especially with all those windows. Just beautiful. Good luck tomorrow.
Well, I got a prescription for my port infection over the weekend and it is amazing how fast things cleared up. So happy that I won't have to delay treatment 3 this Friday.
Terry, I was absolutely terrified of my first treatment. It is the fear of the unknown. Once you have your first treatment and know what to expect, I think things are easier....mentally anyway.
Molly -
Molly I am so pleased your infection cleared up and you won't have to delay treatment.. Port infections can be so horrible. I wish I didn't have to get herceptin and keep mine another year. Good luck with your treatment, I will be thinking of you.
MarciaA. -
Hi Ladies,
Well, tomorrow is TAC #4 - my appointment with the onc is not till 10:15 and he has scheduled me for a 40 min instead of the ususal 20min. I didn't ask him why. I have a few questions for him. Need to talk about rads as they start 3 weeks after I'm done with chemo and I have not met with a radiation oncologist yet. Also want to ask him what all the blood work means that they do each time. People ask me if they got all the cancer,and I say I don't know. I guess they did - double mastectomy and lymph nodes - but how do i know for sure. Also going to call the ps and see about stopping in tomorrow after chemo and talk about taking some saline out - my regular appointment with ps is not for another week.
Molly - what did they give you for your port infection? I had 3 days of IV Rocephin and oral Levaquin for 7 days. Just finished antibiotics on sunday. Today I feel pretty good (one of two days since chemo #3 - the other day was day 11 when the infection was spotted) and tomorrow I get to feel lousy again from chemo. My main side effect is horrible nausea, lack of appetite and fatigue.
Leigh or is it Paula? - hope your tear ducts are better. Marcia and Mindy how are you feeling?
I started the decadron this morning and both #3 and this time it has me "reved" up so I stay up late the night before chemo. Didn't notice it the other times. Tomorrow is my darling 8 year olds last day of school. It is a 1/2 day and she gets out at 12:45. Hubby has to pick her up and she may come to the clinic while I'm in chemo. She has come to weekend clinic when I get IV hydration. Well, I better go as I feel like I beginning to ramble. Karen -
Karen, my doctor gave me Keflex for my port infection. Pills taken for 7 days. By the end of the first day, i was feeling much relief. I didn't have an iv. Good luck with your treatment today.
I start Decadron today. Yea! haha. My main side effect from treatment is the fatigue and also heartburn and mouthsores. My friend is taking all of my boys to her house for the weekend so I should be able to get some good rest time in. I'm just excited to get another treatment done. One more closer to being done.
Molly -
I had my first TAC today. It was easy as far as today went. Now I just have to see what side effects I will have. I am glad to have the first one over with.
Thanks for all of the info. -
Terry, Congratulations on making it through your first treatment! I felt a great sense of relief getting my first treatment out of the way. I was always fearful that I would have an allergic reaction or something weird happen to me the first time. When it didn't, I thought, this is something I can do, not fun, but worth it.
I have found these message boards to be quite valuable mentally. It is good to hear from people that are going through TAC and have similiar experiences. For me, the hair loss was quite traumatic. It is been a little difficult the way people react to me as well....people seem to be either really, really nice or ignore me completely because they don't know what to say.
When you have any question, post it here and you will find friends and comfort in the answers of others who are just ahead of you. I promise.
And...drink lots and lots of water. It really makes a big difference.
Molly -
Well, #4 is behind me. Feeling good this morning, off for the Neulasta shot soon. I'm having hot flashes at night, was awakened about 6 times the night before last. Onc suggests Effexor so I'm giving it try (it treats the cause vs. the symptom, so worth trying). Tearing has stabilized for the moment; she wants me to consult an opthamologist if it worsens.
Terry - congrats on getting the first one down! It really reduced my overall anxiety to know what to expect.
Molly - glad to hear the port infection cleared.
Boat update - after a wild night, they are nearly on the NC/VA border and expect to put in somewhere in the southern Chesapeake tonight and then to go on to Solomons tomorrow, so the will have done the trip in 7 days!
Leigh -
It has taken me awhile to find this forum. I have been bewildered reading through the notes from people on the other regimes. My experience was so different. I will blame my confusion on my "chemo brain". It is encouraging to find people who are dealing similiar issues. I thought I was just a wimp.
Jackie -
Hi:
Today ois day two. I am a bvit tired and spacey ansd I have a sore stomache when I touch it. I don't feel much else. Can anyone say wht I might expect and when. I am wondering about work and other obligations. I feel like I am just sitting around waiting to feel sick. Yikes!!
Terry -
Terry - I'm at the low end of the side effects - I get more from the Neulasta than the chemo per se - but I find I need a full four days of no obligations or commitments. I travel to DC on day five, and go to work on day six. I do get the "sore tummy" but no nausea, I'm achy and exhausted after the Neulasta, have minimal appetite, and a funny taste in my mouth, all of which eases by day 5-8. Most of us need at least a few do-nothing days, mentally and physically. Leigh
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Hi Terry,
Today was my 3rd treatment and I am feeling a bit spacey from all the medications and very tired as well. But I'm half way through!!! yea. I usually start out tired, and have a burping affect and some heartburn. I get a little nauseated but it seems like all the stuff they give me for that takes care of it. I've not thrown up, as of yet. Are you taking the neulasta shot the day after? I get mine tomorrow and then I have some bone/joint pain for a few days.
Everyone experiences things differently and you may just get some mild symptoms. Sounds like day two is going very well for you. That's wonderful!
Molly -
Hi Ladies
Well its Sunday I still feel lousy - chemo #4 was on thursday and I have gone back for IV hydration and antinausea every day. Ususally by sunday I start feeling better, but not this time. The only good thing is that I only have two more to go!!! My onc is sending my records over to the radiation onc so I can schedule an appt and get the ball rolling there - to start rads the end of July - 3 weeks after chemo. saw the ps after chemo on thursday and had him take 50cc of saline out of each side - atleast my chest feels better - don't think the ps was too happy, but heck, its my body!!! well, just wanted to check in - hope everyone is having a good weekend. karen -
Hi Everyone,
Am back from the East Coast and the confernce and visit to my parents. It was great to get away for a few days and not have to think as much about the cancer and chemo thing( it's still there, just not centre stage). The conference was great - I even got in my presentations. Now back to reality. Tomorro the bloods and the doc and Tues. TAC 3. I hope that it is no worse than before - but you have all taught me that each can be different. Meanwhile, for someone who rarely cries, the tear ducts have opened up. I am trying to look at it as another part of cleansing.
Meanwhile it has been great to have you all out there helping me to be aware of what this TAC journey is and will be like. That is more helpful and reading about others on different protocols.
Tally ho!
Jeannette -
Welcome back Jeannette; Karen, sorry this one was tough...me too. Just getting over TAC #4 on Thursday; my tear ducts were a real problem at the beginning of the week (before tx) but have settled down. Figure it might come and go as I go through the next treatments. Had a lot of fatigue this time, and like after #3, one bout of being sick, very brief. Really taking it completely easy this time - haven't ventured out at all (very hot here). Husband and crew made it to landfall in Hampton, VA on Friday night, spent two nights in a marina there, one night at anchor in Fishing Bay last night, and are (we hope) going to make Solomons today. I'll see them tomorrow in DC...hooray. Leigh
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Leigh,
Am glad to hear that you will be reunited soon. Must have been hard not to make the trip. Also I am hoping that my tear ducts will settle down for a few days after the next round. They are anoying - but I wouldn't trade for some of the other possible side effects.
J. -
My stupid tear ducts have opened up the floodgates again! This is the week before TAC 5 for me. Same time it happened before. Oh well, only 2 more to go then it's over until rads. I'm seeing my onc tomorrow, and going to get the name and number of the rad onc so I can get the ball rolling there.
I had a pretty crummy weekend watching people all around me do normal things, and having fun, while I sat in the house dog tired because the temperature shot up in the 90's. This weeks weather looks much better, and it's a short week for the hubby and daughter.
Paula -
Karen, I am feeling alot better. Thanks for asking. Tac#4 will be a week from tomorrow for me. (June 6th) At least I will be able to go to my nephews graduation on June 3rd, with his open house on the 4th. Then back to feeling crappy for a while. I always have swollen ankles starting at the end of week #2 and it lasts up until next treatment. Anyone else do this?
TerryJill- Hope that you are feeling ok.
Peejay- I know the feeling about the tearducts. Mine do it also. I know how you feel about the crummy weekend also. It sucks watching everyone else be normal and having fun playing basketball and softball at a get together and not being able to do either. He*l, I cannot do anyting without getting worn out, out of breath or sweating to death. LOL! Not to mention the 90 degree weather that we have been having.
Take Care,
Mindy -
My next TAC is also the 6th, which is the day before my daughter gets out of school. At least she's not graduating or anything! I know she will be glad to finally be home while I am not feeling well. Yeah, the getting worn out quickly thing is starting to get old here also. Bleh, and the weather, you ain't kidding!! At least it's only going to be high 70's this week.
Paula -
Hi everyone:
It is the evening of day 6 and I still feel lousy. Does anyone iknow if it gets worse during the period when the counts are low? I hope that each one doesn't get harder because this was pretty hard. On the evening of day 3 it felt like a mack truck hit me and as if I had a horrible flu...achy. I can deal with this but I am afraid that each one will be worse. Any advice?
Thank you. How is everyone? -
Just wondering how number 5 went for you. I hope that you are doing ok. All weekend you kept popping into my mind, since you are right before me on schedule. I hope that you are doign well and just resting!
Paula -
I am day 6 past my 3rd treatment. This was definitely more difficult for me. I can't believe how absolutely tired and exhausted I have been. I can't wait til I'm all through with these. Sounds like number 4 is even more difficult from what you guys are saying? It's exhausting thinking about it.
molly -
Hi Paula, thanks for asking about me. I had a reaction to the Taxotere while it was being given. I had flushing of my face and rapid heartbeat. They slowed it down for a while and gave me more fluids then started it up. The next few days I felt tremendous pressure in my abdomen like my liver or spleen was about to explode. The nurses say that you can build up an intolerance to the Taxotere so I guess I must be there. I plan to see about taking the Adriamycin and Cytoxin and leaving off the taxotere for the final chemo on June 14. Will have to see what my doc says about it. I am currently experiencing the burning eyes and nose from the Taxotere. The numbness is still present but the neruontin has helped. I am so ready to be over this chemo thing and go on the radiation. I hope your chemo goes well too. And your daughter will be out of school too. Maybe she will inspire you to breeze through the last treatments.
Take care!
MarciaA. -
Marcia, Sorry to hear the most recent Taxotere was so difficult for you - it's tough stuff, for sure. IMHO, you've gotten plenty to do the job! Hope the onc agrees. I'm back to work today, feeling a little light-headed. Not sure why. I was more tired this time, and the hot flashes are getting to me, but I'm not sure what the dizziness is about.
Paula, glad to hear your daughter will be home. One of the bright sides of this has been the amount of time I've been able to spend with my mom.
Leigh -
Terry and Molly - For what it's worth, the aching doesn't really get worse for me from treatment to treatment; it's the Neulasta that does it and it's been pretty consistent in duration and intensity. However, the fatigue does seem to worsen each time, certainly I feel it with #4. I'm also having hot flashes that interrupt my sleep (onc has me trying Effexor - I'll let you know how that goes), so that doesn't help the tiredness. I do start to crawl back out again by Day 7...Leigh
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