Calling all TNs
Comments
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Here is my dog! lol -
Good Morning Dear Friends - I'm home from hospital and now a flat-top. So far recovery has been very easy. Just a little discomfort, but no need for pain meds! I'm amazed, but so delighted. Surgeon said all tissue looked healthy and didn't expect pathology to turn up any cancer. I'll go with that.
Thanks for all your kind messages of support. It means so much to me. I'll soon be back to sewing lap quilts and pillows for that kids camp.
Good wishes to all of you in treatment and those just getting diagnoses now. Jan
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Hope your recovery continues to go well, Jan.
KS - what an adorable picture of your dog!!!
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You all are amazing and so inspiring!! So glad I found this board.
Having just started this journey, it's so wonderful to talk to someone who has been there. My friend with breast cancer isn't triple negative so she didn't have to go thru all of this.
Hope everyone gets good news with path reports and has a wonderful day!
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Hadn't seen this before: The cap on my prescription bottle is pink with a bow! That will surely help us! NOT
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Hadn't seen this before: The cap on my prescription bottle is pink with a bow! That will surely help us! NOT
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question.
On my pathology report it says that there is lymphatic vascular invasion present. Does anyone know what this means and what are the implications?
Appreciating all the useful tips and advice!
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Taz - I will check and see if I have any photos of the little shit. Thats her permanent name now. I notice you say you don't have any children so she would be perfect for you to keep you company. She can't go to people with childrern cause she would eat their lollies (sweets).
KSMatthews - now that is one lovely dog. What gorgeous eyes.
Jan - so glad you are home and all is well you little flat top. Rest and recuperation for you now.
txjunebug - we are glad to be of help to our friends. Can't always answer questions but can be there for you at all times.
adagio - my report also says that and I think it is because it is found in the lymph nodes but check with your oncologist just to be sure.
Karen - thinking of you today. Hope all goes well.
Have a great day ladies. Thinking of you all. Annie
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KS- I have a Pug too!
Her name is Pixie. I will try to put a picture on here... -
My little Pixie -
And my other dog Charlie -
C_S: No children and no pets. Used to have German Shepards when I lived in England, but since being in Canada haven't had any... unless of course you count the DH ?? Oh and I know what lollies are. Being a Brit I think we have pretty similar terminology to you NZ'ers.
Cute dogs everyone.
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adagio.. mine said that too.. and I agree with Cocker - but always ask your onc for clarification. Good luck.
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Just to add what others have already said
Adagio, Lympho vascular invasion (LVI) means that the cancer cells have gotten into the systems that carry blood and lymphatic fluid in the breast. Many with this on their path report will also have positive nodes and are at a greater risk for the cancer to spread elsewhere. I certainly do not say this to scare you , just to give the info you were looking for.....that being said, i am almost 3 1/2 yrs out and NED. I, too, had LVI and tumor necrosis..which means that the cells were growing so fast that the circulatory system could not keep up to bring oxygen and nutrients, so some of the cells died.
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It's raining dogs....LOVE it. They are all so cute!
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Taz - you don't know what you are missing if you haven't got a 'little shit' in your life!!!! Thats what we call dogs and kids that are mischievious here but its affectionately said most of the time. What made you move to Canada.
Babs gorgeous dogs. Believe it or not I do love my dogs very much and wouldn't want to be without them. I just love Pixie's tail and Charlie looks real cuddly.
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I have the same necrosis in my tumour. I am well aware that it is an aggressive one - dreading the chemotherapy though.
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adagio - chemo is doable and you will get through it. Believe me if I can get through it so can you because I'm the biggest baby going when it comes to any sort of treatment. I dreaded the first one but there was nothing to it. Once you have your first one, your nerves will calm down and you will be fine. Just remember to take your medications, drink plenty of fluids and rest as much as you can. Do you have good veins or do you have a port. If you have a port put it its just a bit sore for a day or two. I love my port. Anything is better than them trying to find a vein.
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C_S: moved to Canada for a better quality of life. DH & I were sick and tired of working to just pay bills and rent. And we both had very well paid jobs. The space here as well. Dont get me wrong, I love London and most of England... but it is so bloody cramped there. Everywhere you turn someone else is there. Its friendlier here, people actually acknowledge you whether you be walking in the park or at the hospital, anywhere.
adagio... cocker is right, chemo's hard but doable and once the first one is out the way you know what to expect... and drink lots of fluids. (((hugs))))
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Loving the dog pics!
I traveled 2 1/2 hours... For nothing. Path report was incomplete on her2 and FISH.
Was neg for hormones. We need this info to pick and order my freaking chemo! Will not know until Monday.
While I was in the big city, I had my haircut off, in anticipation of the upcoming shedding event. 13 year old son says I look like a lesbian.
(we have a lot of lesbians in our life)
While I know it would be better if I have morphed into Her2+ - that would mean I would have that damn taxotere again!!!
Waiting is so much fun! -
Miy tumour also had comedo necrosis...growing very fast!
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Adagio: I too had nodes involved and LVI. Doing well 3 years on.
Jan: So glad to hear the surgery went well. Rest up.
OBXK: Crap, waiting is the worst. Hope you can stay busy til Monday.
Desertmama: You may want to ask your MO about switching to taxotere; some ladies find that easier than taxol (and some harder).
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Babs Pixie is so cute. My Sadie is much bigger she is 25lbs lol!
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love the pics of the dogs...annie..would love to see a pic. of your little shit...I laugh so hard every time you talk about your dog. I love pugs too! and all dogs..just don't have any...we have 2 cats but I grew up with dogs..had a fox terrier, some beagles..and some...garden variety dogs...loved them all...only one lived in our house though.
wanted to let you guys know that I had a flu shot today..not that is big news but for the life of me I couldn't remember what arm I needed to get the shot in....so yeah...bc can be far from your mind....
So..my path report says absent of necrosis..so that is a good thing? if so I am excited about that...I asked the bs about lvi because it said NA...I was like..was it not applicable or didn't they check...he just said I didn't have to worry about it...ok..guess I wont...we have enough to worry about!
Going to a run this weekend with my son...we are doing the 5K in Columbus, Ohio for the Stefanie Spielman Fund...ALL proceeds go to tn research at the OSU Cancer hospital.....last year there were 7000 people involved... I am not a big "pinkster" but I will love doing this with my son...he was 18 when I was diagnosed..and now 3 1/2 years later he is finally acknowledging the fact that I had/have BC I'm loving his support of me now...I dunno..maybe it took him this long to accept it? Anyone else have this kind of thing going on with their kids? when I was having surgery, chemo, rads he just kinda ignored the whole thing...I guess everyone handles it differently..maybe he was scared..
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Tazzy - love ground hogs day description of radiation - that is exactly what it is like!
I had lymphovasular (sp?) invasion but 0 lymph node involvement.
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oh and Jan...glad things went ok for you..hang in there
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Cockerspaniel - Thanks so very much for the Monday photo - I have three cats - they often give me that look!
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crap OBXK...waiting is the worst...so sorry. I know you want some answers so you can get it on!!
Maggie
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Sugar - mine is very fast-growing also. When my orig. tumor was discovered, my onc had me take the time to have a port put in place and to wait a month for me to recover from the port placement before starting chemo. This time, he started chemo one week after lung bx., without a port. I will have a port put in next week and then just continue with chemo. He states we have to keep going as the tumors are spreading quickly. It does not matter now, but I wonder why my med team did not watch me more carefully since they knew I had an aggressive, TN breast tumor that had an incomplete response to chemo. If I had not had severe pain from a frozen shoulder, a bone scan would never have been done. The lung tumors were actually found on the bone scan. A CT scan and two bxs were done soon after. I do not agree with the current Onc trend of "wait and see" - especially with a history such as mine - (and, not that it should matter, but I have insurance that covers everything without question!) Oh well - that's in the past. I hope the tumors slow down for both of us!
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Taz - good on you for doing something with your life but I wish you had come to NZ. I love England for the palace and pomp etc but I would miss our amazingly blue skies and the pretty lake and mountains. We have plenty of space here too. Its a great place for kids to grow up in as we are very sport orientated too. And yes when I walk by the Lake everyone says good morning etc. So lovely to live in a place like that.
Karen - bummer all for nothing and now a long wait. Oh gosh do lesbians only have short hair (I have short hair, not a lot but its short!!) Why do you have a lot of lesbians in your life? Or am I being too nosey.
Titan - I have no idea what to do with this little shrimp. The old fellar and I watched her at lunchtime. She lifted the lid of the recycle bin with her nose, stood on tip toe as it opened. Rummaged around till she found the tin she took a fancy to. As she got it out the lid closed itself and she pranced off to put teeth marks in every little mm. We put up a fence to keep her in so she dug and dug until she could get underneath it and he put it in deep. I tell you she was so black she looked like Hairy McLairy from Donaldsons Dairy in the end. Nothing is safe from her. I even thought about giving her away to a little old lady but I was the only little old lady around here lol. There are bitten tins all over the driveway today. Its a wonder she doesn't cut her little mouth. I threatened not to take her to the vets if she did but her beautiful eyes win every time.
Good luck on your run. I guess at 18 years kids are just not old enough to take in a bad diagnosis but now he has grown up he realizes more. Nothing unusual about him, they are all the same. I think he probably was so scared he didn't want to acknowledge it and he didn't like the thought of maybe losing his dear mum.
Will put up a pic of the little shit when I find one then somebody might take pity on me and take her home.
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