Calling all TNs

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    By the way Karen I am typing with me jammies and me dressing gown on so you are not alone.  Haven't even had my shower today yet. Hope nobody calls unexpectedly.  

  • adagio
    adagio Member Posts: 982
    edited October 2012

    Funnygirl - did you have chemo? I am confused about the mammo and ultrasound. I just  can't bear the thought of a mammogram just having had surgery three and a half weeks ago!!!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    Annie:  not finding the rads worrying, just like Groundhog Day driving in and out day in, day out.  Just a right pain in the arse.   Skin is a little pinkish but I am using saline soaks and lubing up more.   It is what it is and some days I am just tired of it... you know how it is.  Today has been a good day though. 

    Hugs and love to all xxx

  • adagio
    adagio Member Posts: 982
    edited October 2012

    Are you taking this metformin prior to chemo or instead of chemo? Do you know of any articles written on this drug for cancer? Much appreciated.

  • Luah
    Luah Member Posts: 1,541
    edited October 2012

    OBXK: Warped is good sometimes... that story reminded me of Laura Linney's character is The Big C. Any of you watch that show?

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    Adagio I think you might find LurVing might be able to help with Metformin issues.  She seems to be a brilliant adviser on it.  Hope Im right.   

  • mags20487
    mags20487 Member Posts: 1,591
    edited October 2012

    recon is on for Nov 1st...doc says even with this cellulitis flare I will be done with the meds by then and should be fully recovered.  So excited---and scared--but cannot wait to close this door!!

    maggie

  • OBXK
    OBXK Member Posts: 791
    edited October 2012

    Mags - I hope the time flies for you, and the next thing you know, this is all a dull memory!



    Annie - thank goodness the only thing my four footed chews up, are paper towels. He will steal one right out of my hand and have it in a million pieces before I can find him. I know Chloe is happy to have her mom home - too bad about the headset! For all Augie's yapping and snapping - he is a great comfort to me.



    Tazzy - wishing you energy!



    Tomorrow I see the onco. Hope he

    has my path report from the liver biopsy.



    Hugs all around!

  • TifJ
    TifJ Member Posts: 1,568
    edited October 2012

    Sending good thoughts Karen!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    Thanks OBXK.  Thoughts and positive vibes coming to you for tomorrow.

  • mags20487
    mags20487 Member Posts: 1,591
    edited October 2012

    hugs to you Karen...wishing you all the best...we will all be there with you

    Tazzy--just wanted you to know that the fatigue from rads will be over pretty quickly when you finish--at least it did for me.  Let's hope it is the same for you too..hang tough girlfriend

    Maggie

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    Thanks Mags.   My days go up and down.. today wasn't too bad.  and sure hope I am like you when its over.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    Karen- when your hand feels warm tomorrow you will know it is mine holding yours.  All will be fine I am sure.  Love and hugs to you. Annie 

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    This little polar bear is saying good luck Karen. We will all be with you.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited October 2012

    The little animals are so so cute!!!! I have a bicon-poodle named Brandie and I dress him in a dog costume at Halloween. This year he's dressing up as a devil. What's more, he'll have two tails to chase.  Other than Halloween, I don't dress but he wears a coat when it's really cold in the winter.

  • OBXK
    OBXK Member Posts: 791
    edited October 2012

    Thanks friends - I'm feeling the love!



    Sugar - photos please!

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited October 2012

    Here's last Halloween dressed as a hot dog.  The year before he was a lobster. I'll try to dig up a picture of that one. Lol...this year's he'll be a devil and he actually likes the costume. Laughing 

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    Sugar I used to breed Bichon's.  They were the cutest little dogs around.  We had them ever since my girls were small but when I lost my last one I just couldn't have another as I loved her so much so went for a different breed.  With all that my Chloe chews up I would have done better to have had another bichon  as they were no trouble lol.

    She's laying here snoring beside me at the moment after being severely told off.  I nipped to my work to get some more and whilst I was gone she got somehow and chewed a whole packet of little dog  chews that I stupidly left on the top of a table.   I think she must stand on my Tessa's back to get at things. Little shit.

    iDx 11/3/2011, IDC, 6cm+, Stage IIIa, Grade 3, 4/11 nodes, ER-/PR-, HER2-

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited October 2012

    CS - I know what you mean. We love Brandie so much!  He's trouble sometimes and he's a diva (....or, a devo). Last week, he jumped up and sat at the table expecting dinner to be served to him (see below).  We were only serving humans that night at the table.  He also has his own little sofa, which he loves!!!

       

  • funnygirl75
    funnygirl75 Member Posts: 13
    edited October 2012

    adiago- yes I had chemo before, last one was 3 weeks ago friday.

  • funnygirl75
    funnygirl75 Member Posts: 13
    edited October 2012

    question? how long do you stay in the hospital? bmx and removing the ovaries all in the same surgery, I'm just trying to plan my home, anybody in the same situation?

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    Sugar your Brandie is so gorgeous.  Fancy a swap? I would rather she sat at the dinner table than chewed the legs off it.  Though come to think of it she has tried chewing the corner of the settee and the corner of my dressing table.  Trouble is she has the face of an angel and when I pick her up to tell her off she looks at me so innocently.  I'm gonna get a tortoise next time, will have not trouble catching them lol.

  • rachelvk
    rachelvk Member Posts: 1,411
    edited October 2012

    Borntosurvive - I'm waiting for that test to be discovered, too. So much of my thinking and planning has been constrained by a "well, it probably won't matter much" reflex, and that's just not the me I used to be.

    Adagio and txjunebug - Welcome to the group. I do more lurking than writing, but I find a lot of great support with this thread.

    Regarding chemo, the advice I would give is take the time to get a wig that really 'is' you. I went with a red wig, since I always wanted to be a redhead, and frankly, losing my hair was one of the easier things to deal with. I don't do scarves too well but I got some good looking turbans. I wore the most dangly earrings I could find almost every day. And one very big piece of advice - try swishing and swallowing a tablespoon of olive oil twice a day. I can't say why or how it works, but I didn't have too many issues with metal-mouth or losing my taste buds (they'd go off for one day each round, but they came back really quickly). A friend of mine recommended it (her doctor passed the tip on), and I'll swear by it. Good luck as you head into chemo.

  • OBXK
    OBXK Member Posts: 791
    edited October 2012

    Sugar - he is yummy! I just love his sofa. Thanks for posting the pics.



  • DesertMama
    DesertMama Member Posts: 47
    edited October 2012

    Hahaha Sugar, I laughed so hard at your lil hotdog that all the names and thoughts I was compiling in my head from the previous several pages of this thread went straight out of my head. I have a ginormous mastiff//lab mix and the extent of his costuming runs to an orange pumpkin scarf at Halloween and a red tartan one at Christmas. Every Halloween I claim he is a poodle dressed up as a mastiff. 

    Sending energy and hugs to all the ladies here. Pink October is almost over and that should give us all a boost! 

    I was interested in the statistics in the article about recurrence. Better than I thought, but I suppose it is different in every case. I have no idea what my prognosis is aside from the shattering crap I found online before my husband forbid me to look any further. My oncologist won't give me any numbers. He just goes on and on with a very long story about driving on the highway and the guy that reaches his destination is 100% alive and the guy that doesn't is 100% dead. Drives me crazy- I want to know! I keep thinking he won't tell me because my odds are crap. Sigh.

    Sitting in bed with my laptop today. My oncologist has cancelled my chemo this week, which is freaking me out. I am not tolerating the taxol well and the SEs are getting really bad. He says I need an extra week of rest to regenerate nerve endings or some such thing. My feet are all fricked up and I can hardly walk and I am covered in an attractive warty rash just in time for Halloween, and and and... I just want to get this over with! I thought the taxol would be a breeze after the horror of my summer of AC, and am really disappointed. I guess it is obvious that I am having a whiny baby day today, bleh.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited October 2012

    : Astride his shiny new 125, Frank was thoroughly excited about going riding in the mountains for the first time. After going only a few miles, Frank was surprised to see what appeared to be a half-acre of brown fur just off the trail ahead. Recognizing it as a huge grizzly bear, Frank nailed the throttle hard, hoping to get by before the bear could react. The bear was too quick, though, and with one leap was totally blocking the trail. Frank had no choice but to stop.

    "Now that you've disturbed my sleep", said the bear, "you have two choices. Either I maul you to death or we have sex." Frightened beyond belief, Frank decided to bend over.

    Still sore a week later, Frank vowed revenge. Back to the cycle shop he went, where he traded in the 125 for a hot 250. Soon he was back on the mountain, heading down the trail. It wasn't long at all before he spotted the grizzly again, napping beside the trail. Feeling certain he had the necessary power this time, Frank nailed the throttle and shot ahead. But once again the bear was too quick, and again he blocked the trail. "That was a big mistake, Frank", said the bear. "But, you know the drill. Either I maul you to death or we have sex... rough sex." Fearful for his life, Frank again decided that it would be wise to comply.

    This time it took weeks before Frank recovered enough to get around. But still outraged at the bear, he traded in the 250 and got the hottest 500 money could buy before heading back to the mountain. Now he could outrun the bear, and now he'd prove who was the master! And with the faster 500 under him, it took no time at all before he looked ahead and saw the huge grizzly again. Frank lowered his head, down shifted, and confidently nailed the throttle hard, rocketing ahead so quickly he was barely able to hang on. Incredibly, however, the bear was quicker still, and Frank had no choice but to come to a sliding halt in front of the bear now blocking the trail. A chill ran up his spine as he waited for the bear to speak.

    "C'mon, Frank", said the bear. "Admit it. You don't come here to trail ride any more, do you?"

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    Bernie - brilliant. Never expected that ending.

    DesertMama - know how you feel about taxol.  I had a bad experience with it too.  Allergic reaction on the first infusion, terrible itchy rash on hands and arms that nearly drove me mad in bed at night, numb, tingling fingers that were bent up so I couldn't type very well and shocking finger nails that have still not come right.  I think the AC and red devil was probably better because at least you got two weeks of feeling good.   

    Sugar I love his sofa too.  One contented little dog.

  • DesertMama
    DesertMama Member Posts: 47
    edited October 2012

    Cocker Spaniel, sorry about your poor nails, eecch cancer sucks! A few questions please: Do your fingers work properly now? Do you still have any neuropathy? Did your oncologist change the schedule or dosage of taxol during your treatment?

    I am halfway through 12 taxol doses; had SEs from the first one, but they have intensified with each round.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    DesertMama My hands are a lot better and there is not too much numbness at all now.  At one time I could really squeeze my fingers  and they wouldn't hurt but now it does and the side of my hands are a lot better, they were also numb.   There is still some numbness but nothing like it was through taxol.   I was to have 12 taxol but because of the problems they stopped it at 7.  I thought they might have reduced it but they just stopped it. Yes like you it got more worse with each round of taxol.  My finger nails are just as bad,  almost like a dark yellow and red lines all across them.  My oncologist said that was from the AC.  The only good thing that I think about is perhaps as they have not come back to normal yet there may still be some chemo in my system that may be keeping a recurrence at bay.  Not sure if there is any truth in that though, just my silly thoughts. I hate my nails now though and keep them in my pocket if I see someone I know. They used to be well manicured and lovely but now they are ugly.  

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    C_S: do you have any pics you could post of your 'little shit' ?  I am like you with my nails...never lost any, but they are now so short and horrible I try to hid them as much as possible.   My hair was gone months before but once my nails kept breaking and now so short, I actually hated that more than losing my hair??  Weird.

    Hugs to all xxx

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