Fall 2012 Rads girls......come on in!
Comments
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hello ladies,
I wanted to speak about my sentiments also , concerning the radiotherapy.........I am OK, comfortable ,may I say comfortable?; with the hospital/doctors( all mans)/technicians ( all young mans) . maybe because they are very professionals? their attitude really helps and make me comfortable. I trust them all( I had all my treatments in the same hospital)
I don't know, but I hate cancer , so I love each treatment than helps to kill the cancer.......
just the traffic is a bit uncomfortable...every day 2 h at least
I wish all the best for every body. we'll finish and we'll be OK with the new life
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Gosh Naddine, 2.5 hours each way is my commute, too (with traffic, it can be longer). My work is half way between home and radiation treatments, so I stayed at a hotel and just commute 1hr or so to work (each way).
Is there any possible way for you to bring your child with you to stay in the area rather than commute? If not, can you have a family member watch your child while you stay in a hotel? Then again, I am sure you can't miss work either, but can you telecommute and work from the hotel during radiation treatments?
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@Virginia - I go to Carle in Champaign. I see that is where you live. Where do you get your treatments?
@Laurie - I have 3 kids and not much family help unfortunately. The kids are all too involved (i.e. basketball, Scholastic Bowl, etc) to miss school and they have managed to keep their straight A's through all this, so I am trying to keep their lives as "normal" as possible. If it gets too much, I'll find a way to stay an occasional nite in a hotel. My work is flexible and I can take it with me, so at least that's something. How far are you into the treatments? Is the fatigue taking its toll? I managed to drive myself too and from all the chemo treatments and all the doctor visits over the last 8 mos. I'm not very comfortable asking for help, but I will have to ask friends to drive me if need be, I guess. One day at a time, or its too overwhelming........
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Cottontail: I use the soaks once a day - guess you could use more, but for me the techs said once. Just make sure you dry properly and lube up after.
Welcome all the new ladies.
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Naddine, I am 15 treatments out of 20. Due to my commute. my doctor offered me one of the Canadian/European protocols of higer doses for shorter time (four weeks instead of 6.5 weeks). I am so appreciative of this protocol which makes things "doable".
I've not had a problem with the severe fatigue yet. After driving back and forth to radiation and work, attending a conference and going on a couple of mile hike yesterday, I feel lazy today, but that's it. However, I don't have children to care for which is far more energy-consuming than my schedule. I've always driven myself; from what I've heard, radiation is much easier than chemo and you should be able to drive yourself to your appointments...so that may add some relief. I don't know the age of your kids, but maybe instead of asking your friends to drive you, they can step in an watch your kids for an evening which may allow you to stay overnight a 2-3 times. If you could stay overnight even two nights in a row, you may find things easier....I hope
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I hate that tomorrow is Monday already and the radiation merry-go-round starts again. I will officially be halfway thru (18/18) after tomorrow and I am glad of that. Boob is red and sore and I can't imagine about what the second half will do to me.
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Hi Fall Rads Ladies: (some of whom I know well from other threads) just wanted to pop in and say how much I highly recommend saline soaks. My RO said 3-4 times a day, in particular once the skin starts to show reaction. Once the skin begins to break down that's all they would let me use aside from a barrier cream. My skin held up very well and healed so fast.
I DID find I got tired- not chemo tired, but sleepy so that I really looked forward to bedtime. I finished two and a half weeks ago, and feel mostly back to normal now (ha)
All the best wishes to you all as you go through this phase. -
Ditto to that PAEagles.
KCB thanks for the advice on the saline soaks... that many times a day eh? Maybe they told me only once because I've not yet really reacted.... although saying that today it feels really sensitive.
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KCB, thanks for the encouragement and great to "see" you again!
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Hi, thanks for the warm welcome everyone. Reading all the messages really helps and confirms that I'm not alone, even though I feel I am a lot of the time. Family and friends try but they don't really understand.
Tazzy, I haven't tried the saltwater soak as yet, I may need it soon though,I'm going to ask about it tomorrow. I've been using only aveeno lotion (I lay it on thick) and that seems to be working. I also just added pure aloe once or twice a day.
Kimbythesea, I am definitely finding rads more emotional than chemo, I didn't think it was possible. I'm taking this one day at a time. The countdown continues, 7 more left, 3 regular than 4 boosts to go, I pray I hold up.
Hope everyone had a nice weekend/ break fom rads
By the way what is cording? -
Hi Tina,
I was nodding the entire time I read your post. It made me feel much better. Like I'm not crazy.
I, too, am coming to the end...sort of. We also get to worry about this after every mammogram. I feel so many conflicting emotions and I am a little afraid to feel them all because I have to hang tough and get through the final 12 treatments.
I don't want to do this anymore. Part of me is kicking and screaming as I go in and do this day after day. I'm also tired of sitting there with my breast exposed and pretending like it's perfectly normal for three strangers to stare and draw on my breast.
Thanks for letting me vent.
Today I feel...weird. Tired in a strange way. Not so much sleepy as just very low energy. I should really clean the house, but ...bleh. I'm sure this is normal but I just hate it. I want my energy back.
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Kim--I'm nodding my head reading your post...It seems the last half is now so mentally challenging for me. My Mom passed away yesterday and the last thing I want to do is go for Rads tomorrow morning and be nice to everyone and act like I'm happy to be there...the first question I'll get from the tech tomorrow will be "Did you do something fun this weekend?" Sometimes life just sucks and sometimes all you want is your Mom.
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Junif, I'm so sorry. How awful for you.
For what it's worth. Today would have been my husband's 56h birthday. He died of a heart attack while we were on vacation on July 20, 2011. I was diagnosed with breast cancer a year later. He and I were married almost 21 years.
Like you, I'm trying to hang in there and look all cheerful and happy to be there tomorrow and its the LAST thing I feel like doing.
I may have to reward myself with breakfast out or something. Literally bribe myself to go.
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Junif, I'm so sorry to hear of your mother's passing. My thoughts are with you.
Kimbythe Sea, I'm sorry to hear you lost your husband at such a young age.
Hugs and prayers for both of you.
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Junif- so sorry to hear about your mom. It is so painful to lose your mom, you are so vulnerable now also. Mom's are so important and one of your biggest fans!
My mom died between my chemo and rads- has made it so much harder. I just want to talk to her sometimes. -
Junif, so sorry to hear about your mom. Hugs to you and all the rads sisters.
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Oh Kim--I'm so sorry about your husband. My Mom was 91 and had a wonderful life, so I shouldn't complain. Your life was interrupted and is so unfair. Oh and bribing yourself--I do it everyday in order to get through!
Nkb--I'm really sorry about your Mom. Sometimes, no one understands like a Mom.
Well, I guess we all get mentally prepared for Monday...here's to bribery!
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Naddine--
I live in Champaign and get treatment at Mills/Carle in Urbana. My MO is Dr Johnson and my RO is Dr Sapiente. I'm supposed to get a call tomorrow telling me when to come in for that 1st seesion with the xrays and such. I've been waiting 2 weeks and I just want to get started! Once we both know our schedules, we should arrange to meet up. It may also be reassuring to know that there's someone you know in Champaign-Urbana in case you run into car trouble or other issues.
I'm going to send you a Private Message with my contact info now, and another when I get my radiation schedule, so keep an eye out for my messages.
It seems like commuting to treatment is pretty much a full-time occupation for a number of women on this forum. Yikes!
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Hugs everyone... such heartache. You are such strong women.
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Tazzy, you are right about that. I see this thread and I see a sea of strong women.
Thank you all.
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Hi ladies,
I have been sooo busy. Finally got to catch up. S many new people going through this. So many hard courses. Hugs to all
I am done with 29 and have four more to go. They are just boosts to my lumpectomy site though. Thank goodness. I am not having all that much trouble with what is left of my little booby. But have itching and redness on the back of my shoulder and in my axilla. The axilla is just plain irritated. But they don't have to radiate those sites any more. The end is in site. Hard to believe that this nine month ordeal is almost done. Just tamoxifen and monitoring.
Kill cancer. -
junif- so sorry to hear about your mother's passing. You will be in my thoughts.
I was thinking tonight that cancer is not for wimps. No phase of this journey has been easy. Chemo, surgery and radiation....all has come with uncomfortable side effects and complications. While I know its important to search for a cure I also think its important that they come up with new ways to treat cancer that aren't so hard on our bodies. Radiation has done a number on my skin. Cancer sucks!
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Junif- so sorry to hear of your mom
Nkb- hugs to you as well
Kim- sorry your husband passed away at such a young age..xo
You are all strong women. We are all strong women.
I also feel emotionally drained...found myself emotionally eating tonight for the first time in ages (chocolate) and it's because it's Sunday night and I don't want tomorrow to come and start the rads roller coaster again... although I only have 3 left. However, my skin ,esp base of neck is very red and raw. Hoping it holds up.
Although, I'll be happy to be done, not sure how to transition forward to a 'normal' life now. Anyone else finding this?
Hugs to all as we start a new week....
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I agree. Our lives will never be the same.
I wonder how long it takes for the breast, the chest and all the other brutalized skin to heal. Anybody know?
I'm also wondering how long the fatigue lasts after the rads are done.
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My RO says the skin heals fast 2-3 weeks. I have 4 more to go. I am not sure what I will do with the time. I have a MO appointment in a couple of weeks. I suppose I will get some kind of imaging and then would really like to her the words "you are cancer free" this has been such a long horrible year. It is hard and wonderful to believe my last treatment is on Thursday. Then it is healing time. I am sure the energy levels will take weeks or months to recover. The hair years. If ever. I am scarred and have fear of recurrence and lymphedema to live with but man I plan on living.
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jpmom,
I feel exactly the same way. 4 days left for me too, I really can't believe this long journey is almost over. I have been so focused on getting through treatment that I really don't know how to begin thinking about moving on. How to not worry constantly about it coming back, how to make the positive changes I want to make.
I've been off of work all year and I know they are chomping at the bit for me to come back. And for some reason I am terrified of going back! Part of it is that they haven't seen me at all without hair (or with short short short hair). Part of it is that I have really gotten used to being home and around my kids and don't want to go back to sitting at a desk all day every day. Part of it is that I'm just tired and not ready to go back (I hope that's part of it anyway!).
Here's to getting through the next few days, we are almost there! Looking forward to 2013!!
Rose
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Junif- I am so so sorry to hear about your mom. My thoughts are with you. Hugs.
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I am just catching up on posts; welcome to all of the new ladies!
Hugs to all those who are having a tough time. I think Tazzy summed it up in a few sentences, How are we "supposed" to feel - what is the right way to feel?
Everyone seems to know how you should feel, or they act like they do, but they don't, do they? They aren't you. And it's different for everyone, it's just not a cookie cutter thing.
I took Friday off from work, not because I was physically exhausted but because I was mentally exhausted. Everything just felt like it was piling on at once and I just felt like I couldn't do it anymore. I really needed some time to refresh, and it did help.
Today is my last treatment. I feel like I should be really happy, everyone here at work is like "Yay your last day!" this that and the other thing. But I feel very ambivalent about it. Maybe it's 'cause I can't believe that this part is done. Or maybe like Grateful said, I'm not sure how to get back to a "normal" life now. I mean now for me it's going to be just watching and tamoxifen.
There are things that I put off lately that I was like "I can't deal with this now because of the Big C", "I'll deal with it later" that now I have to deal with. And then I feel bad about that, like there's so much to do that I let go. I don't know.
I'm just feeling weird about this.
Dang, my spell checker's not working - sorry for any typos!
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Hi Rads buddies! I've been checking this site pretty frequently since my diagnosis in July, but this is the first time I'm posting. I'm currently undergoing radiation to my left chest wall (down to my last 9 treatments- woohoo!), and I'm having the fatigue and skin "burns", but I'm also having some shortness of breath. My Rads onc. said that I shouldn't have that, but I do. I've been keeping pretty active (walking, taking my dog on hikes, going to work, etc), which I know I'm supposed to do. I just don't know if this is something anyone else has ever experienced...?
I've been so thankful for this community of women throughout my diagnosis and treatment. Sometimes I just come on here to read comments so that I know I'm not alone in what I'm feeling.
Lots of love and healing to all.
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Hi everyone - I go for my radiation simulation tomorrow and my first official day is Wed. When I went for the CT they marked me with permanent marker but didn't say anything about tattoos. I'm getting nervous. Everyone has been telling me that, after chemo and surgery, radiation is the easy part, but from everything I've been hearing about it, it doesn't sound easy. I'm not expecting it to be, I've just had a very rough time with my treatment, and am not looking forward to having six more weeks of a rough time. I just want to get the first one over with so I know what to expect.
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