Calling all TNs

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Comments

  • OBXK
    OBXK Member Posts: 791
    edited October 2012

    Luv - I am so sorry to hear about your mom and you vacation plans.

    I hope she has a gentle passing.



    Annie - I smoke when I have a cocktail - which isn't very often, the pain pills set off the same urge. So far the electronic one is working. Give it a go - I bought a disposable one for about $6 to try.

  • bak94
    bak94 Member Posts: 1,846
    edited October 2012

    Luv-So sorry to hear about your mom. My heart goes out to you.

    Funnygirl-you are right, I had bad delivery, and I send my heartfelt apologies to you. I had a bad day, and I took your words to mean that those of us that have recurred or had new primaries were negatives and you only wanted to hear from those with the best stories and better outcomes. That hurt me, and hurt me to think of those that have fought bravely before us like LJ and Suze and lost their battle are stories that some do not want to hear about, only the positive, but they were the most positive people I knew. Am I making sense? I don't want to hurt anybody or scare anybody. I understand the loss. I had bmx and could not have reconstruction yet, now I am just a week out from a full hysterectomy. I am moody! My past year and a half I have been in some kind of recovery. It is scary to deal with all this but you will get through it . And I hope to get through my crabbines. And get through these hotflashes.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012

    Welcome back our kind wonderful BAK

  • borntosurvive
    borntosurvive Member Posts: 213
    edited October 2012

    Thinking of you Luv and your dear mom. 

  • onvacation
    onvacation Member Posts: 1,344
    edited October 2012

    Luv, so sorry to hear about your Mom, I hope she will be at peace.  Sending prayers your way.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited October 2012

    to all the darling ladies new and old (not in age). We try so hard to be positive and upbeat but there are times we say it as it is.  Not because we mean to hurt or offend but because we need to share our paths.  To love, help and support each other is why we are here.  Believe you me I wish with all my heart that none of these forums were needed.  I wish we could have all met under completely different circumstances.

    When I first posted on here I was scared, lonely and lost.  This turned out to be my lifeline.  I do not always agree and sometimes do not like what I read however I do know that we all came hear for a reason.  To be together through the good and the bad.

    All my love 

  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited October 2012

    Luv, my prayers are with you and your familly during this difficult time.  I am glad you think your mom is now at peace and is better this way.

    Welcome to the newbies.  Ask any questions you have.  This forum has been a tremendous help to me.   I am almost a year out too (from my surgery).  I had a lumpectomy because my tumor was under 2 cm.   I feel good with that decision as it is not a recurrence in my breasts that I fear, as I feel I will catch it again if it does.  It is the fear of it coming back elsewhere that I cannot seem to shake because it took so long for them to get me into surgery and the tumor grew so fast and started to enlarge my lympnodes, even though nodes were neg.  Now that treatments are done, I feel I don't know if it cleared all the bad cells out.   I met with my MO this week for the first time since the end of treatments.  I had a clear mammo a month ago, but like I said, I don't give much credence to mammos because I have dense breasts and my tumor was close to my chest wall.    I have had a cough since I had Adriamycin and coughing up phlem.  I think it is drainage from my sinuses and ears but it bothers me that it hasn't gone away.   I have also lost a lot of weight but am hoping that is due to starting Metformin.  I am down under 110 lbs.  Weight loss and low grade fever are the only symptoms I had before finding the lump.   Anyway, my MO said he would order a PET/CT if I wanted just to get an all-clear for my peace of mind and I am going for it.   He doesn't feel they will find anything but he wants to do whatever will make me feel better.  He said we could use the cough and weight loss for a reason and he would fight with the insurance if needed.   It must have been approved because I am set to have the scan on Tuesday.   I hope it will finally give me a peace of mind so I can move on.   

    The same day, I am going to see a cardiologiest as I have been having funny heart flutters and am scared the adriamycin and/or rads has damaged my heart.

  • txjunebug
    txjunebug Member Posts: 212
    edited October 2012

    Luv - while I am new to the board, I will be praying for you and your family.

    Again it is wonderful to talk to others that understand.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    BernieEllen: beautiful post.

    Annie: the cake conference sounds wonderful - yummy!!

    Michelle:  thoughts with you at this time.

    (((hugs to all))))

    I am doing OK on rads.  Lubing up lots and using the saline soaks which take away the itchiness.   Seems I'll be going on tamoxifen after my trip home to England.  Will have to gen up on that as something else which is new.  

  • Titan
    Titan Member Posts: 2,956
    edited October 2012

    wow...I have to think that all of you are the best women I have ever "met"....

    Bak...even with the new ladies there still has to be reality....we all want to hear that we will be fine...but we all have to face facts also...I guess we have to come to terms with ourselves about what may or may not happen...

    alot of people here say it is a crapshoot and it truly is..

    dang..but I always used to live for the weekends...now I enjoy Mondays...well...somewhat...

  • tlangston07
    tlangston07 Member Posts: 354
    edited October 2012

    Hi Ladies..I haven't posted on this forum before, but I have a question and hope you can help me. I am TN and  stage IV right out of the gate. I have not been on any kind of chemo since May 25. I had right mx and finished up rads last month. My last CT scan shows liver stable and 3 nodules on my lung. This is really starting to scare me. And I am finding it very unusual that I am not on any treatment. Onc is just wanting to ((monitor me)) til more scans in Dec.  Are any of you not on any chemo or treatment? And If so how are you feeling? 

    Thank you so much!

    Terry

  • OBXK
    OBXK Member Posts: 791
    edited October 2012

    CatW - I hope you get good news from your PET, so that you can ease your fears and enjoy moving forward.



    Terry - Welcome! Great news that you are stable. You may be able to have your questions answered better, in the stage IV forum. Wishing you all the best!

  • TifJ
    TifJ Member Posts: 1,568
    edited October 2012

    Luv- I am very sorry to hear about your Mom. I hope she is comfortable and passes peacefully. Big hug.

  • adagio
    adagio Member Posts: 982
    edited October 2012

    Did you have chemotherapy? Just wondering what it is like?

  • adagio
    adagio Member Posts: 982
    edited October 2012

    Bernie ellen, did you have chemotherapy? How old were you when you were diagnosed?

  • JazzyJ
    JazzyJ Member Posts: 126
    edited October 2012

    Luv - Hearts and prayers are with you.......

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited October 2012

    Hi adagio, I had 6 rounds of A/C once every three weeks. The last 2 were delayed.  I had to have a line put in and then I had really low blood count.  Mostly because I was resting and looking after myself enough. I was 51.

    B.

  • Lovelyface
    Lovelyface Member Posts: 674
    edited October 2012

    Luv, I am so sorry to hear of what you are going through right now.  It is hard, very hard when it is something about our mom.  My prayers are with you at this time.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited October 2012
  • bak94
    bak94 Member Posts: 1,846
    edited October 2012

    wow, I can't seem to say anything right lately:) Maybe it is the pain or pain meds.The less I say the better. Trying to delete all my past posts, taking awhile as I "talk" a lot. I don't want to offend and the only way to do that is keeping my mouth shut. And I am just going to step away from this thread. Have a great life.

  • DesertMama
    DesertMama Member Posts: 47
    edited October 2012

    Luv, I'm sad for you to be losing your mother. Hugs.

  • journey4life
    journey4life Member Posts: 517
    edited October 2012

    Luv - I'm sorry about your mom. I'm sending strength and love your way - I hope you'll feel both as you face the days ahead.

    Bernie - Well said. In time, the new ladies who've joined us will "get it." We certainly do.

    Bak - This disease isn't pretty and we're all entitled to tell it like it is. It is our way of letting it out so it doesn't fester and completely destroy us. For some of us, this board is our lifeline, to share joys and sorrows. There is no good time for a bad day - we all know they happen when we least expect them.  Unfortunately, your post was misread or misinterpreted and you felt the need to justify it. I would like to think that any of us can post here without fear of judgement or recrimination (is that the right word? damn chemo brain!).

    That's why we're here...to share, support and care for each other.

    Off my soapbox now...I'll post again later. Love to all.

  • journey4life
    journey4life Member Posts: 517
    edited October 2012

    Bak - I see nothing wrong with anything you've said. Please stay.

  • ksmatthews
    ksmatthews Member Posts: 812
    edited October 2012

    Luv so sorry to hear about your mom.  Praying for her and you!

  • journey4life
    journey4life Member Posts: 517
    edited October 2012

    does anyone know how to send a message to the MODS?

  • LRM216
    LRM216 Member Posts: 2,115
    edited October 2012

    Luv:  I am so very sorry to hear your most recent news concerning your mom. Sending prayers and heartfelt thoughts to you, along with added strength. 

    Bak:  Please do not go anywhere, there is no reason for you to be deleting any of your posts made in the past.  If someone's feathers got ruffled by the writing of some words, a simple apology for the misunderstanding is all that is needed.  We all remember the fear and doom we all felt upon just starting out and I know I too tried to grasp at only the posts and words that were promising, but also realized at the same time, that was a totally unrealistic way to handle this new battle in my life.  Unfortunately, cancer is not a pretty disease, and while many of us will do just fine through all the trials and tribulations, some of us will not - and that is a fact that no pretty words can change.  There was nothing wrong with your delivery, other than a newbie was reading them with great fear, and that too is completely understandable.  This is a support forum - and that means that each of us on it must also learn to handle the bad news along with the good.  Our newbies need to know that in time, they will handle this much better, and until such time, we are here to hold their hands and walk alongside them during this new horror in their lives.  You have been through so much, please do not put any more than you already have on your shoulders.  There is room and a special place for each of us on this thread, and I hope your reconsider and stay - you belong here.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited October 2012

    Well seems I missed what has been going on here.  

    Bak : I have no idea what you said nor does it matter if I do.   This disease is hard on us all and makes us speak us like it is... we dont sugar coat or bullshit anything.  That's why this board is so wonderful.  We are all different and have different opinions and should be allowed to express without judgement.   From your past posts, I cannot believe you would ever, ever intentionally hurt someone with your words.   To agree with the others.... this is our lifeline so please dont go anywhere.  We need you as much as you need us. 

    (((hugs)))) to all.

  • mags20487
    mags20487 Member Posts: 1,591
    edited October 2012

    I agree with what these ladies have said BAK...we love you and do not want you to leave us.  We are all in this together.  I must have some really thick skin because i just never get offended by what anyone here says.  We all choose our own way through this crappy road

    Maggie

  • christina1961
    christina1961 Member Posts: 736
    edited October 2012

    Luv, I'm so sorry that your mom is in hospice and that you had to end your trip early.  I'm glad she is peaceful, though, and my thoughts are with you during this time. My grandmother had dementia.

    Brenda, Please don't go anywhere!  I missed whatever happened, but you are so warm, funny, and wonderful.   I always look forward to reading your posts.  I hope you are recovering well, and will post again very soon.

    Catwhispurrer, I wish you the best on your scans and you are very courageous to seek one out.  It seems the metformin is hard on some people's stomachs, so hopefully the weight loss is from that.

  • christina1961
    christina1961 Member Posts: 736
    edited October 2012

    Terry,

    Hi, and I'm sorry you are dealing with this but I'm glad you are stable. I hope you will be able to get some input from others.

    In addition to BCO, have you also checked out the tnbcfoundation.org site?  There is a recurrance section on there and also very friendly people, too.

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