Clothing design challenges with LE
Comments
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I made these blouses so that I could get to my sleeves - gives plenty of room and everyone has complimented me on them..
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I'd like 'Resticted Extremity' 'No needles, no BP' on the yellow sleeve.
Great blouses Gma, you're very talented.
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I do like "Restricted Extremity," Marple. Good one! But then you don't need the No Needles, No BP because that's what "restricted extremity" means. Also, you could wear it out-and-about, too--people who aren't medical personnel won't know what it means, but it's intriguing, so kind of fun.
Binney -
Gma - those are beautiful - and there's probably a market for them
For the sleeve design - the Do Not Stick is great, but Marple is right in that it also needs a version of No BP. I'm concerned that Restricted Extremity isn't clear enough, so I like the No Needles, No BP, but want to keep Do Not Stick.
Working on ideas for No BP...
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Lymphedivas - Thank you so much for listening to us!
I'm not creative in this type of thing at all but I agree that it needs to be as clear as possible. Some of the medical people I've come in contact with are incredibly dense with all things lymphedema so clarity is paramount IMO.
This is a tangent...but will mention it since you're listening...
My worst swelling is in my fingers...would you all consider making gloves? Gauntlets are not an option for me. And since I'm bi-lateral...I wear low compression 15-20on my prophylactic side...my only option on that side is beige. I would so LOVE if you made pretty sleeves in lower compression.
There are so few who listen to our needs, it is a blessing that you are here. Thank you. -
I kind of like the thought of the legend "don't even THINK about touching this arm" somewhere on the sleeve. Just kidding, as it's too long. Or "hands off this arm!"
Seriously, Josh, thank you for working on this. Now, a practical question: should we wear day sleeves while in surgery, meaning do we worry about a fold or wrinkle, which is one reason we do not sleep in them? -
I'd also like to thank you for listening to us, Lymphedivas. What a breath of fresh air!! I agree the message has to be clear to all medical personnel, that the sleeve cannot be mistaken as a decorative or fun item.
Perhaps the words:
Protect This Arm
(and)
No Needles, IVs or BP Cuffs
I think the word CAUTION in capital letters should be repeated around the upper and lower edges of the sleeve in a size that allows the word to be seen immediately without having to turn the arm, much like the CAUTION tape you see wrapped around an area you need to sidestep.
Finally, I will piggyback with Dawne-Hope's request that you make gloves as well as gauntlets. I love the look of your sleeves but without a glove, I have to pass. It would be great to have a fun sleeve and glove to wear. -
Probably not for surgery, Carol--better to wrap. But for CT scans, colonoscopys, regular doctor visits or other procedures that don't involve outright sleeping, they'd be ideal. The G-Sleeve is a better choice for surgeries or hospitalizations. If we're awake with it on we don't need all the instructions written on it, we just need it to shout at the medical folks to notice. We can do the explaining ourselves. This wouldn't really cut it as a medical ID.
I was thinking more along the lines of a conversation starter, something to wear in public as well as for doctors, a fun, in-your-face garment for when you're feeling snarly enough to flaunt it. I'd love a sleeve that just announced LYMPHEDEMA on it in big fat letters. JMHO.
Be well!
Binney -
LYMPHEDIVAS, How about a choice to have it in a few universal languages such a English, Spanish, French, Chinese,etc. If you only want to produce one sleeve then maybe script each language on it somewhere.
How about a compression tee shirt? When are gloves coming onto the market? How about a compressionless sleeve/gauntlet to wear on the non LE arm so we don't look so oddly clothed walking down the street?
Many thanks -
Gma, You need to set up a website and sell those. I also think they would make cute medical outfits with that neckline. Maybe pockets on the shirt and matching pants!
I'm thinking out loud again! -
You are all quite welcome - I've been meaning to spend more time on these forums and I'm glad to help!
Instead of words and other languages, what doy ou think about a caution tape color scheme with placed images of No Needles and No BP Cuffs? Something along the lines of this?
I've thought about a non-compression matching sleeve, but the problem is that we are still new and having a non-compression garment may negatively impact therapists and fitters impressions of how well we work.
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Oh, I do like the idea of caution tape color scheme and placed images rather than words on the sleeves.
On cold weather outerwear, I have a free pattern that i got from Handcock fabrics around 2000 for a 'warm winter wrap up' that is basically a long sleeved shrug made out of polar fleece that sits high on the neck and covers the back and is very loose on the arms. I have worn mine at my office when I am cool but don't want a tight sweater on and wear it around the house when I am chilly, it works great when reading a book in bed to keep the arms warm but free to hold the book. the pattern is not available anymore on the website but I do have a copy of the pdf from their site as well as a word doc I made up with some adjustments I have come up with: no ribbed cuffs on the ends of the sleeves, as well as notes on adjusting the size. If anyone would like the pattern, let me know in a pm and I will send it to you.
Sheila
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I have nothing to add but want to say this is a GREAT idea. Thanks Josh.
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I Agree That is a great Idea ladies - Pre printed no BP/needles/IVs would be great - then I wouldn't have to wear all the bracelets - for me images or pictures - either way.. As long as the medical field people understand the images...
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I like the image as well, these days language is becoming such an issue with medical personnel from did countries.
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Binney, I didn't realize you wanted fun and a conversation starter! LOL! Well, then I want Cookie's slogan:
LOST: Lymph Nodes... will pay huge reward for return -
Lymphedivas, I like the "universal" signs. That's a no brainer... even for medical personal!
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I think we're going to try both approaches and see how they look. I'll upload some pics once we've got them!
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Just an aside, 'Restricted Extremity' idea came from Binney a long time ago.
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I am with Binney4. I like the "caution" colors with Lymphedema in bold black letters. Definite conversation starter, especially with medical personelle, if they don't know - Let's Teach Them! We are our own advocates.
alternatley you could try Bright yellow with small Yeild signs? And I like the idea of the "caution tape" that sounds cool. -
Lymphedivas, You are dead on... images are the best idea. I just remembered "a picture is worth a thousand words." It is so effective!
Dang about not having a compressionless sleeve for just looks. But I totally hear where you are coming from. Perhaps in the future.
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We're working on some designs, should have something next week to show you
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OK so let us leave the designers to ponder all of our requests! creative minds need time for the best ideas!
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Feel free to keep the ideas flowing!
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Lymphedivas
How about a discount for any of us who take part in this thread? Some do not have INS . Others have high copays ? It would be a help.
I would like to see scarves that match different outfits and can go over the sleeve. Then the " caution sleeve' could be worn out without any unsightly colors etc .... yet the scarf could be removed to reveal the message.
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Some days I want a sleeve that has a big pink ribbon on it and says Lymphedema: a side effect of breast cancer. We could put a sad face inside the loop.
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These are crazy, but the patent leather one is kind of cool...
http://shesabetty.typepad.com/.shared/image.html?/photos/uncategorized/2007/09/30/glovedupcomp.jpg
tamer, but I actually bought these today!
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I am a size 20 and finding truncal compression is tough.. I have a short torso too - every kind of compression I have is too long and rolls on me..
Other than that I think all the sleeve ideas are great!! Cookiegals idea: Lymphedema: a side effect of breast cancer would save alot of explaining that's for sure...
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I can absolutely do a discount on a purchase for everyone participating in this thread! If you are interested and you've actively participated in the discussion, please PM me and we'll figure out way to order (most likely call us and give your name) and I'll give you 20% off.
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Cookie, love the gloves--but you have to have the bubblegum to go with them!
Binney
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