Fuzzy's Romp Room
Comments
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crog - I am doing fine. Leaving this weekend for the next vaccine injections in D.C next week. We are taking my in-laws up so my FIL can see the WWII Memorial - he is a Pacific Theater veteran. We will have dinner with DS and his girlfriend - should be fun. The boat thing was fun - but today I have a LOT of sore muscles. Don't use those paddling muscles for a lot of other activities, so they are sore! I am really hoping that you make good progress and can get back to some sense of normalcy very soon!
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My scan is cancelled for Wednesday. I'm going to have the left tissue expander taken out. The skin is too thin and ripping open. He wants to do this before chemo. I'm glad I don't have time to get nervous. I'll be home that afternoon. After chemo he's going to do the lat flap.
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Veggy....another cancellation????I hope this done works out beta...gonna charge my broom up for the ride.....
Anyone want to be picked up just let me know
Where is Lauren?
I sent her a pm but no answer
Anyone hear from her?
Hugggs to everyone.
Grannydukes loves all of you -
I'm in anyones pocket that needs me!!!!!!!!!!!!!!!!
Love all the pics and stories!!!!!!!!!! smiles all around
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Veggy....whew. I guess you don't have any time to get nervous! Dang.
GG...are you out there my darling? How are you?
I'm sitting on my couch watching my oldest do her Physics...stuff. Whatever the heck all that business is. She must be the most dedicated person on the planet to studies - she's always been like this. I'd like to be able to help her or make this easier but I wouldn't know where to even start!! I'm not even sure what kind of class that is...math? Chemistry? Psychology (lol...kidding, sort of)...
Special...sounds like you need a nice relaxing bath with some menthol...ease those muscles!
Today is a little better as far as the pain is concerned. I'm trying to stay away from my little cocktail of pain killers and muscle relaxers...I know my liver appreciates my efforts! LOL
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Sorry to hear about your need for additional surgery Veggy. I must confess that I don't know what all this "flap" business is all about, but I'm starting to want to know. My foob feels strange. Maybe I had it squished in the bra too long today. I generally like that new bra. It seemed that I could do lots of raising of my arms without getting discomfort in the foob. Today, though, I didn't move the arm a lot; and the foob started bothering me several hours ago. I guess I should have taken off the bra then, but since I had just praised it for the way it kept the foob from bothering me, I figured I would just feel worse. I'm in bed now, without it, and yeah, it does feel worse. I hate to call the PS. Maybe I have to give it some room to breathe for a few days. Maybe it wants to drop and fluff, and the tight bra is preventing it. It feels more like it wants to move under my arm pit. NOT the right place for a boob or a foob.
Fuzzy, I loved Physics -- the theories anyway. I'm lousy at math, so I couldn't do much with physics.
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Hey ladies just need to get this out of my system...just washed my hair and it is coming out by the handful?!?! I am soooo not ready for this, i know probably none of us are, but just feeling really crappy right now. Im only day 12 so wasnt expecting it just yet. Have an appt thurs to get it cut/buzzed havent decided which yet, think it might be gone by then anyway :-( Supposed to go to LGFB tomorrow morning but think i might call and cancel..
Love u all..... -
Rider, I dreaded losing my hair. Not because of vanity, but rather because of many years of nightmares about getting radiation poisoning and having my hair fall out. That was the part that always jolted me awake from the dream. So, although I never went through that in real life, I feel as though I have experienced it. Hugs.
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Nancy...you're just cute as a button.
Rider...its a very real sucky part of this whole damn process. I don't think we go for more than a few minutes without fussing with our hair...so its hard. When I buzzed mine, it felt so much better, literally. It got painful as the follicles loosened. And I was pretty happy with my buzz...and when I shaved it all off. Maybe you'll find your silver lining in this...but it still sucks...Figuring out how to wear makeup with a bald head was a trick...I never wore a wig. When I lost my eyebrows and eyelashes...then I didn't care for this crap anymore...I officially looked sick.
Ate you going to wear a wig? What's you plan? If and when I have to do it again, I will make Tina Turner proud....I'd rock some seriously insane hairdos. -
WHAT??? NO POO FLINGING?? Man, I was just telling SKK how much you enjoyed his enthusiasm at this sport.
Oh yeah....I'm talking GIANT afros, all colors, unnatural designs....mmmmmhmmmmm. -
The first time I donated 13 inches of my hair. I still had enough for a cute style. Then on day 13 it fell out in handfuls. I had it shaved as close to the head as possible. I let myself cry just a little bit.
Trying to figure out where the forehead ended when putting on foundation was quite interesting. I hated wigs (it was summer). I wore one once and hated it. I felt fake. I wore hats and scarves (sometimes). DH wantd me to wear one whenever we went somewhere. Whenever I went out alone I went bald. I kept my head up but never looked at anyone in the face.
Like Fuzzy I hated it when I lost my eyebrows and lashes. I really felt like I was sick.
I am really dreading it this time around whenever it shall happen.
Hugs!
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My friend and I were buying a fleece hat at a craft fair for a woman having chemo. When we explained what it was for, she GAVE us the hat. She said she always did that for women having chemo. What a sweetie!
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I live in Baltimore. Our football team is the Ravens, and our baseball team is the Orioles. I was deciding on purple (for the Ravens) or orange (for the Orioles) when I was planning to do conventional treatment. LOL.
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Veggy I celebrate- your words of acceptance----a boob is not worth your life----I can say this b/c had I not acted when I did and did what I did, I would not be writing to you now. If someone needs to have an explanation of that statement I will write it . I just don't want to be repetitive when everyone knows the story. I have no idea what shoe will drop tomorrow, but I do know the decisions made 2009, are the reason I'm still here.
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And I for one are so glad you are still here SAS!!!!!!
Cindy -
Rider--love and hugs--so get the hair thing, as we all did going through it. MY twin was my guide. She had BC when we were 46. I was dx'd when I was 59. She had been guided by others and guided me. When the hair starts dropping ---just shave it. I did, BUT there was a difference. My body did not tolerate chemo---first dose almost killed me--WHY?---No one was willing to play Sherlock Holmes at the time. It was drug interaction between cytoxan and Norvasc/amlidopine( antihypertensive). I found this out on my own research 10 months later. The only reason I mention this is b/c I would recommend to anyone see if your body tolerates chemo first. Then cut your hair off.
But you haven't identified intolerance of chemo
So, shave baby shave, it prevents a whole lot of negative thoughts when the hair is all gone at once. Then think scarves versus wigs----personal opinion----(duh what were the rest of the opinions)-------In the 60's and 70's scarves were very artistic as they were in the 1920-30's-Had a interesting day at the BC support center that provide scarves--I was playing with them. First there was one volunteer and progressively there were four. They asked where I had learned what to do with scarves---I said the "60's flower child", but it was all the decades and much more. I had happened to keep most of my scarves from that time period---so I had allot to play with.
Rider lovey not minimizing your loss, seeing yourself bald is a shock, but your life is worth more than your hair.
I think BCO is quite active now b/c of typing responses, puter only does that when BCO is full. Hope this is enough info to help------Rider- love you sweets----sassy
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Hey sas thanks :-) Hair started coming out last night when i was washing it so i guess its inevitable now. I do have an appointment thursday to get it cut/shaved just have to decide which. Am thinking shave since its already started but we'll see... Still feel like i'm gonna die when i see myself bald stupid i know. Have my wig also couple scarves and hats and a sleep cap i got at LGFB today so it doesn't come out all over the bed..
Love u sas and alll... -
Rider, jumped right to a response to you and then went back, our fuzzy family has given you great advice and feelings all around about hair loss. Sweetheart, I know you can feel our care for you, each of us, we are a fuzzy family. I think your probably going to cry at this point----you are going through an emotional time, It sucks. But know that we love you --sassy
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Rider we crossed on time------but the message is the same lovey--- BIG hugs---Actually i was interested to see me bald, it was after Sinead(?) the singer had done it and GI jane. ---Strange-----I had a nice bald head---- no strangeness like the characters from Saturday Night Live with Curtain, and ________. Sorry forget who mentioned above, but it was a key statement that my twin mentioned from 1996, that was told to her by another BC person. "when the hair starts to hurt" cut it off.
Crog.:)
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(((((fuzzy family)))))
Jesus....I'm crying!! The sweetest women in the world are all here.
I discovered that other features really stand out when you're hairless...your eyes will be HUGE and bright...your jaw line is Really in focus....you will be beautiful on a whole different level.
Veggy...you might not lose It this time, right? I read that somewhere and thought of you. Has anyone told you that?
I have to say this.....for the first time in over 20 years...its Bosses Day and I don't have one!!!! LOL its just weird!! Yup...first time...
I haven't heard back from my PS. I got worried because there's a clear liquid that crusts on my TE side (I assume its plasma)...I didn't call to tell them because I thought they would have contacted me by now...kinda disappointing.
SAS...I'm glad you're here too. I Love the fuzzy family...you melted my heart. -
Whenever I start chemo, it keeps getting pushed farther and farther away, I was told that I will lose my hair. I saved all of my hats and scarves. I bought one wig this time that I might wear for the fun of it. Somewhere in the attic is my child-sized clown wig and nose. I would love to get different color hair...blue, purple, beehive, etc.
I took 2 anxiety pills almost tow hours ago and took a shower and I am still fired up. I should be out by now. I'll try to let you all know how I am doing tomorrow evening. I'm not looking forward to be a uni-boober. I guess I'll haveto wait before I can wear a falsie. One thing at a time to worry about. Lets just get through tonight and worry about tomorrow later.
Love you guys!
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My friend's friend told her that her pretty showed through more after she shaved off her hair. I thought that was pretty cool.
My foob feels full, so I'm wondering if it could be truncal lymphedema. It sure bothers me. I held it most of the day. This evening I finally told myself that I guess this is how it is going to feel and I need to get cool with that. It helped a little. Tomorrow will be a fairly busy day, so perhaps I will not notice it as much.
Take good care all.
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I tried to find a pic when my hair was falling out and I was using a lint roller to catch em...I can't find it...but my DD told me it looked like a photo from National Geographic...not sure if thats a good thing or bad thing...LOL
I'll keep looking...I think it's stashed in my FB pics...I can't find anything lately...
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I found this one...just had to share...it's my girls on Sleeping Bear Dunes at sunset...
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Well...I found one of the hairless Fuzzy...
Tell me somebody got a good laugh outta this!
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Fuzzy I have a pic and can't load of DH and I bald at the same time, but it sits in the bow window, Essa would so get into this Bow window b/c it has a a very old seamtress manequin that I have my wedding dress on. I was in 5 weddings. Told Dh that if there were any fights the wedding was off. His mom though a fit when I told her what I wanted to do-----1972 garden party hats and Halter dresses. Halter dresses were very new at the time or at least the word was. I siad after the phone call "if you want to marry me it's two weeks from today". It was accomplished. Whats different about the dress is it unbleached cotton, and has an 1800 look.. 12.99 at Hudson's in Detroit. Could have bought the same dress in the bridal department right next doo( 25 ft away) for much more. But wouldn't do it. ESSA into old concepts even at 21y/o. That dress is on the manniquin (seamstress body). Essa there is a word for it? The hat was onsale for 3.00$ . What a deal--eh? diverging like crazy, but what is in this bow window is all very old stuff--wish I could send a pic. Anyone into old stuff would be delighted. Essa -you'd go crazy for the old stuff. -------Sil showed up at the wedding in a halter dress that was very revealing--I put my head in my hands and said to myself ---fuck that's what caused the snit by MIL. t The dresses I wanted were up to the neck with cut away shoulders. DUh..... lesson learned. Took us years to get our anniversary straight, b/c it was 2 weeks from Saturday. Okay loveys, I told a story, hope it makes sense.
Yes Fuuzy, we are a family group here or what can be called a cooperative group. It happens all over BCO. For those that develop a most safe , loving place to go on the threads---sociologists would describe it as a psuedo family group. So, Pseudo babe--- we are a family----another word--LOL --we could be called a tribe. Fuzzy's the cheif.
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Jun 16, 2011 03:11 AM sas-schatzi wrote:
Along time ago this happenned----since 2009- or 2010 these were the words that I wrote at the time. For those that are new to the Catholic thread(fuzzy's thread may be) the question why we sign off with Namaste. What I have learned along the Journey is that this word was approved by Pope John Paul the second b/c of it's significance in the asian world. In the Yoga group the words have just a slight difference. In Fuzzy's romp room I'd like to introduce it, it holds a very special meaning. Another story.
Their is a nurse Karla on the Nurses thread who described that when she was on a trek in the Himalayas. She would observe the Sherpas greeting each other with hands as folded in prayer. Their greeting was Namaste. She asked for a translation. They told her it meant "I SALUTE THE GOD WITHIN YOU" After hearing that story, it so gripped me, within the deep soul of me. The strength of the statement in analysis goes to the heart of our belief in God. For if we believe that this statement regarding God-- being within each person. Then he is a part of our being. If that be true, then we are each joined together with him, and therfore, we are a part of each other. So, what happens to the one, happens to all. Namaste Sheila
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My DH was in a really good mood last night. We talked about our relationship and how we've been through so much....yeah there's been deaths, births, marriages, divorces...but he and I went through stuff that would probably shake the nerves of ya all so I'll just leave that be...but what we talked about was living and learning, loving and forgiving, and what really matters...time is an illusion. I wouldn't trade my life for anyone's...not because it was all rainbows, butterflies, and gummy bears...oh no...but because it was and is mine. DH and I don't talk like that often, but it was special. So, I needed to share that with my family here. My life is special and you are all part of that....just thought you should know.
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rider - I get it too! Would you believe I never looked at myself bald? I saw myself when it was buzzed and cried and cried and cried. I just couldn't do it again! I would close my eyes to take my wig on and off and put bandanas on and off. I would shower and put a towel turban on my head so I looked like my old self! Not kidding! We all totally understand the pain dear sister!
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