Sept 2012 chemo
Comments
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Cindi, thanks for bringing up movies! I also watched one that was good, but not good for right now. (We Have to Talk About Kevin - great film, but yikes, depressing!) You've probably already seen As Good as it Gets, but that's a great one. One I watched recently that I really liked is Jeff Who Lives at Home. Anyone else have any netflix recommendations?
I got my hair buzzed on Saturday, and have been thinking a lot about Ripley, so maybe the Alien movies are appropriate.
Just want to give another word of reassurance to people who are worried about taxol. I'm on it now, it's really not so bad. AC sounds much worse. My main SEs are tiredness, mouth sores and bad taste in my mouth. The hair loss is by far the worst thing.
Has anyone here tried restorative yoga? I've been going, and it's been really great. I've found it to be an important way to reconnect with my body...at times I feel like I'm at war with my body, so doing this has been good. It's different from regular yoga in that you do only about 7 or 8 long poses for the 2 hour class. You use props to help you get into the poses, and there are lots of adjustments the teacher can make if you can't do something. I started going about 5 weeks after my surgery.
It's also a great way to check in and really notice how I am recovering, because sometimes it feels like I'm not and I'll never get back to the way I was. But there really is a difference with what I can do in each class.
Hope everyone has a good day.
xoxo
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Hello Everyone, it has been a busy weekend, and a Happy Thanksgiving to the Canadians on the board.
Justegan, you are so beautiful but I totally understand the day you are having.((HUGS))
The only thing we can control right now is the 24/7 tape we play in our head! We just need to keep rebooting it!
Mariposa, I hope you enjoy the tide pools, you didn't know it but you took a piece of me in your pocket with you. Thank you, I love the ocean.
JoJo, a cruise, wow your sister is so nice. Make sure you have a beer for me on that cruise, because i will be in your pocket too! Also to the negative comments, I was told I looked tired last night, I just wanted to kick that person. Didn't they learn from there moms if you don't have anything good to say don't!!....
Cindi, I hope you feel better soon. I love the movie The Proposal with Sandra Bullock and Ryan Reynolds. If you haven't seen it you may enjoy it.
Kidswithlabs, I know a lot of you are having hair troubles this weekend, but let the hair go, it is CHEMO hair now, lifeless, and just gross. Your new hair will com in fresh, and pretty, I know it is hard but I think once it is gone you will feel a lot better. I think Patricia is running around with a razor if you need help!
Patricia, enjoy the Chinese food, I make sure I have it at least once every 2 weeks. I am picturing you running around chasing people with the razor in your hand....you go WARRIOR girl!!
Timbek, you are beautiful too, it is hard to not run into people you know when you live in a small town. I have switched grocery stores, I don't know why I have done that, I have no problem going into Walmart, Costco or anywhere else....but the grocery I go clear across town to one where I don't know the clerks. I guess I just don't want the look(feel sorry look)..take care..(hug)..
To all those going through SE this week I hope you feel better soon. I am thinking of you all!
Take care -
Toastiecat, You are so beautiful. The picture is like a modern medieval painting. There should be some way to go commercial with it. Thank you for sharing. Did you have it commercially done? The lighting, drapery, all come across as art. Eye catching.
Your expression seems strong, a tiny arrogant, not at all like a victim.
A Wonderwoman in control.
I love it.
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Bearcub,
Thank you. I was walking up to CVS today (decided walking was better than driving my car since it was beautiful out) and today I felt pretty...not goregous or anything but I felt pretty and that was good.
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Cindi, Ahh, I wish that were a picture of me!! Sorry for not being clear....that's Ripley (aka Sigourney Weaver) from the movie Alien 3. She buzzes her hair in that movie, and I've been thinking about it a lot. You're right, she's completely gorgeous. In my opinion, all of us here look just as beautiful and tough with our bald heads.
xoxo -
Timbeck2 I too feel the fatigue this round. I have been reading and watching TV from my bed all weekend . After I get the kids up and off to school I do my cleaning then back to my veg state , I like all of us am usually non stop , but I guess right now are bodies are telling us to rest for once
Weenlife thanks for sharing about Taxol I am so hoping that I feel like you on it . So sick of the AC
Jojo - I am so excited that we o ly have one more AC the taxol . I hope you have no SE this last red devil
Have any of you noticed that people you would think would be there for you are not . My own sister in law who lives half a mile away from me saw me in the hospital when I had my breast removed and has not been around since . So sad -
Good morning my beautiful sisters...........bearcub you made me laugh so hard i really can picture myself doing that!!!! i woke recharge and ready for this week with my visit to the onco to see my WBC i hope its where it needs to be....im loosing my hair and i DONT CARE like bearcub said.. "its CHEMO HAIR"... i needed new hair any way cause i dye it so much and perm it that it was coming apart...my sister always thought that i was crazy for damaging my hair and i never cared...so thats how i feel now....when i had my avatar look ....i dyed blond..then pink...which came out orange!!!! lol...i guess i need to stop that habit...so with my BRAND new hair i wont dye it!!!!!!!!!!!
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Cherioo I wish I was going for the last AC, I have 2 more. The fatigue is horrible, it's like sitting on a heated bus with no air conditioning....lethargic feeling. I often wonder how you ladies do it with young kids. You are amazing...sit in bed though until they are home from school, recharge....and yes to thinking people who cared making a disappearing act. Maybe she isn't handling it very well, but you just want to say buck up already, I am the one with cancer..just to see us makes them face there fears...and some just cant do it...it is sad.
Patricia we have to embrace the situation.....and laugh out loud!!!.....we will be okay! -
I'm digging this "mirror".
Yes, there are a few potential downsides - crooked wig, food caught in teeth, really bad make up. But there are some days I might be ok making that trade.
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When life gives....lmao!....love it!
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Whenlife - I am going to write that on my mirror - LMAO
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I love that "mirror" and want it haha!
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Love the mirror! Could have used one like that today. 3 days after 3rd TC and this time it's hard.
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The mirror is awesome...AC number 2 tomorrow, hoping for minimal side effects.
Hoping everyone has minimal SE's.
Carla
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butterfly14 wishing you a no SE treatment tomorrow
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My sister i went to me onco and she said im ready for my next chimo....so my tumor was 4cm and its 3cm..its working which im thankful.....my blood count is great but my hemoglobin is good but as much as last time....what shoud eat or drink to bring it back up........good night my ladies!!!
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Patricia that is great your blood work is all good. You will do great this round as well . My eating habits have not been the greatest I have little appetite but try to eat salads and chicken, spinach and fruits and veggies . I would love a nice steak but the thought makes me feel nauseous . Feel like when I was pregnant .
Great new on the tumor shrinking . -
WhenLife... You have found the perfect Mirror! Love it.
Patricia...I will be out of town so wanted to say give that BGC Hell sister! kick its ass! I will be thinking of you. Much Love
I am finally out of my fog had my last treatment on Wednesday and today I was suppose to attend the Look good feel Better seminar but just couldnt do it. I needed a break from Cancer. I will reschedule but as of this moment I am sick of Cancer and sick of receiving cancer oriented gifts. I have gotten plaques, bracelets, books, blankets.. you name it! I am sick of it buy me something fun! The last think I need to be reminded of is Cancer.....
I have one last treatment of the dreaded A/C then Im hopeful that Taxol will be easy on me. My first Taxol is on Halloween BOOOOOOOOOOOOOO! I pray it treats me right so I can take my babies trick-or-treating (they are 4 and 7) boy and girl going to be batman and robin!
I actually drank some wine today and it stayed down well and felt amazing to let loose..
Butterfly... Good luck tomorrow!
Shockd2bhere...I like how you think... I will be writing it on the mirror tomorrow!
bearcub...It is hard dealing with the fatique and kids I am so out of my element I am or was supermom until cancer... I have relied so much on others help I cant stand it! Its hard letting go of the control and just flowing with it.
Justegan...I am positive that you were with out a doubt beyond beautiful today on your way to CVS! I have came to the conclusion of this Screw Them! ha! I have been rocking the doorag like I invented it... My hubby actually calls me doo rag lmao gotta keep laughing..
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Neta I hope you have a better time of it this round.
Patricia great news on the shrinkage.
Good luck Butterfly with your treatment tomorrow, hope for minimal SE .
Cherioo, I hope your appetite comes back, unfortunately for me I never lost it and my weight is creeping up even with the biking....
Amy I hope your Taxol goes well and you can get out and do the trick or treating thing with the kids. And the doorag looks good on you, I prefer buffs and scarves that I made that look much like a doorag.
If anyone has seen Kristen Wigg on SNL do her skit with the singing sisters and the little doll hands and bubbles, I thought this Halloween I could pull that character off with the high forehead wig....pull the wig way back....I will never have this hairline again....omg it would be funny!.....
Everyone have a symptom free week! -
Hi everyone!
I got my bloodwork today. My oncologist said my headscarf really brought out my big brown eyes. Which was nice that he was joking with me, because I felt like crying through most of the visit. My hematocrit was low (which was a little worrisome-if it doesn't go up, I may have to get a blood transfusion). But all of the my other bloodwork was fine- so I got the okay for chemo tomorrow. I am bringing my sister and my mom. Then I will be 1/3 done. Yes!
Toastiecat: I loved the picture of Ridley!!!! I posted her on my facebook page as something I would visualize while I am in my chemo chair:-) Thanks so much for sharing. The inspiration I feel on this board is incredible.
bearcub: I love you snuck away with me to the tidepools:-) It was lovely! I took my new avatar with the water behind me. Plus I got to see some sweet seals:-) Another thing I love about this blog is how others are feeling what I am feeling- even though I haven't named it yet. I too haven't gone to my regular grocery store. I have been going to a grocery store I never go to. I guess it feels like too much for everyone to see me, ask questions, feel sorry for me... best to avoid it. Thanks for voicing what I was feeling.
Cheerio: I have also been really surprised by who isn't around supporting. I have been trying very hard not to take it personally. I am also equally surprised by who has really been hugely supportive! People have emerged from my life in ways that I would have never imagined. Which has been wonderful.
Whenlife: I too will be writing that on my mirror. (and printing out that picture of Ridlye to put next to it!)
Patricia: Congratulations on the shrinkage!!! I am visualizing all of our tumors becoming smaller and smaller until they disappear:-) Stupid Cancer doesn't have a chance!
Butterfly14: Good luck tomorrow! Hopefully we both will get through without a hitch and feel good with no SE!!!!
Now I have to figure out what to do with all of this steroid energy!!!!! Last time I painted a wall of my house red. Maybe it is time to organize all of my junk drawers:-)
Hope everyone has a great Tuesday!
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Donna we haven't heard from you in a while I sure hope you are doing okay.
Same with you Amylovesbub how are you doing?
Thanks Mariposa, I needed the day at the tide pools, if only in your pocket.. it makes me smile...have a great week. -
First round of mega steroids taken in preparation for Taxotere tomorrow and I'm feeling a bit like this:
Feel like I need to find some vines to swing off or some alligators to wrestle. This is going to be my most productive day at work EVER.
I'm so excited to see what side effects the Taxotere will bring me (not)!
Whenlife, that mirror is awesome. Today I have made my first attempt to pencil in my eyebrows in preparation for their full departure, and with my dark red, pre-Taxotere finger nails, I feel like something out of a bad Christmas pantomime. I'll definitely be avoiding all reflective surfaces today in case I scare myself.
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Amy,
Thank you...and you are right...a "screw them" attitude is just what I need to keep in my head lol!
As for everyone going into treatment tomorrow, I wish you the best of luck!!Remember that you are only that much closer to getting it done. As for me, I don't have my second AC treatment until Friday...I am glad for the good week (although it will be filled with a lot of schoolwork). I am nervous for my second AC treatment since on Saturday I will get no rest =/. I have to be in Wooster, MA for a conference that I said I would be go to months and months ago (so I have to go). My parents have offered to drive me from CT there and back (which is amazing of them!). I originally wanted to go for the entire day and whatnot but I have a strong feeling I will just present my poster and get the hell out of there! =/ For everyone else, I wish minimal SEs!!!
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Oh. My. God.
Eight 2mg tabs of dexamethosone now in my system and all I can say is thank goodness for the Diazepam which I will need to take when I get home. Maybe I should try carrying my car home. With one hand. I'd probably be able to manage that and it might burn off a bit off this extra energy.
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EnglishRose-
Look out world!
You want alternative energy? Forget solar, forget wind - it's Dexamathazone, baby!
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I am also wondering about the ladies we haven't heard from, hope all is well. I was anxious to hear how Donna did.
If I ever fail to respond to anyone, it's not that I don't love you all. My short term memory is "kaput".
Patricia - congrats your on your way to being cancer free. YEAH BABY!
Toastie - Ripley is my new inspiration. If we add the Wonder Woman costume, are we invincible?
English - Storm before the calm?
Justine - Good luck with your conference.
Best of luck to all who climb into the BGC this week!
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Thanks for checking in on me! I am 2 weeks from 2nd a /c and doing better. Had a cold during last treatment, now on Z pack to get ready for next round. MO giving me choice of taxotere or taxol, trying to research which to choose? Any suggestions would be helpful. Btw I am triple negitive so............????
Minimal SE everyone!!!!!! -
{5} my friend who has been battling breast cancer for 35 years takes claritin d when the bone pain starts coming. and maybe for three days after. it really seems to help, and run it by your doctor. I don't know why, thet dont know why. I also take the hottest bath I can stand with epsom salts. Also I found this creme called topricin, that really works for me, its online cheaper than the stores, a homeopathic, fragrance free non greasy solution to nerve, bone and muscle pain. Believe me, I was a sceptic, because I have bought and tried all the crud, and been dissapointed, any way for me it seems to work and wont stain your clothes or sheets. look it up. Drink lots of water! I just finished my second round of taxotere, herceptin, and doxetaxel. It is a little difficult but doable. They have so many more ways of making it easier on us than when my friend first started. welcome with love and you are not alone. 10*9*12
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Timbek2: I understand being upset about someone telling you to excercise & barely being able to stand up more than 15 minutes. I used to walk with my dog every morning 3 to 6 miles. It is so difficult to do it in the morning and our poor dog sits in the living room waiting each morning to see if I put my shoes on. When she realizes that I am not putting my shoes on, she gives me the disgusted look and goes and jumps on the bed. I feel much better at the end of the day and try to walk at least a mile or 2 after dinner.
I think your friend was trying to help though. My doctor and the physician's assistant both encouraged me to keep walking. They said even if it is as simple as going down the driveway. I believe they think it is for our mental being and also helps the chemicals to move out of our body. The same as when the doctors and nurses are telling us to drink, drink, drink.
I have also found, for some reason, being out in the cold, crisp, autumn air makes me feel better. Sometimes at night I will sit on the deck with a coat, hat, scarf and just breathe. The cold air seems to mask any side effects I might be having. Or perhaps, I'm just so cold and numb, I can't feel anything. Either way, it makes me feel better! Brrrrrr.
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