Starting Chemo October 2012
Comments
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Marlene18-I can't imagine the stress of being diagnosed and receiving treatment while pregnant! You've got such a positive spirit and it's a testament to your strength of character that you can still have a sense of humor in spite of what you are going through. You're my hero for today!
Fight4two-Please don't beat yourself up over not breastfeeding. We set such high expectations for ourselves and often feel like failures when life happens and we're not able to meet them. You are the best mom your little guy could ever ask for: you're taking care of your health so you can be around to watch him grow and one day run after his little ones, too! Glad you got through your first chemo treatment and are doing fine.
Marianelizabeth-I see you will be receiving AC-T. I was given the choice of AC-T or TC. I am going in for an echocardiogram tomorrow, but since I have a family history of heart disease (although my risk seems to be low due to lifestyle choices), I am leaning more towards TC.
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Well its 230AM here on the Mississippi coast and Im wide awake....been so since before 1. Blah. I think I might see a nap in my plans for the day today.
To you pregnant ladies, my heart aches for you. I cannot imagine having to deal with this shit while being pregnant. You're suppose to be enjoying these 40 weeks while creating life not dealing with a BC roller coaster ride AND You're not allowed to be on roller coasters in your condition!! 😜
Hoping you all have minimal SE's today and can have a good day while being positive. (((((Hugs))))) to you all. 💪 Here's some muscle too. 💘It is what it is...we don't have to like it but we have to fight to get through it. ~Kristie
Dx 8/20/2012, DCIS, 3cm, Grade 3Dx 8/20/2012, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-Surgery 08/31/2012 Lymph Node Removal: Sentinel Lymph Node Dissection (Right)Surgery 08/31/2012 Mastectomy (Right); Prophylactic Mastectomy (Left); Reconstruction: Tissue expander placement (Both)Chemotherapy 09/28/2012 Cytoxan, Taxotere -
MrsCinch... cant sleep?
me either...
*celine blows some purple bubbles your way *
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Best of luck to all the amazing October 2012 women! You are an inspiration! I am hoping chemo will start today. Still have oozing blister - worse after PT session yesterday - and hoping it doesn't slow things down. I'm definitely ready to rock and roll and get this show on the road!
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I echo MrsCich's thoughts to the pregnant among us - strength and courage to you.
I am now day 3 post first cycle of FEC - and feeling pretty well. Slight queasiness and tired at times (difficult to tell if that's new or just the rheumatoid arthritis!). I was given Aloxi and dexmethasone IV with the chemo, and Emend and dex days 2 and 3. I've also taken some metoclopramide (maxolon in Oz) and a tiny valium as I didn't sleep much the first night - not due to any distress, just tired but couldn't drop off.
I hope everyone else is coping well.
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As unfortunate of a situation as we're all in here, I also find comfort in hearing other's experiences with chemo. Most of my anxiety comes from the unknown.
Doing my sentinel lymphnode biopsy this morning and getting the results on chemo day one next week, which got moved to Wednesday.
I feel the need to complain a lot about doing this with two little kids, but I couldn't imagine dealing with cancer/chemo while pregnant. You both sound like you're doing an amazing job doing what you have to in order to be there in the long run for your families!
My heart goes out to all on this journey. -
Thanks for your warm wishes everyone. Luckily, my pregnancy has been pretty easy for me so far (other than wanting to eat only mounds and mounds of cheese and resisting that urge!) and I'll just blame the SEs on the fatigue of late pregnancy. For my sanity and upon the advice of my sister who participated in a fitness study while she did chemo, I am just working out as much as I can and otherwise trying to organize my life with as little stress as possible. I am fortunate that my job is pretty undemanding at this point so overall I can't complain. Once you get over the inital shock of your diagnosis, all you can do is just take it one day at a time no matter your circumstances. I'm sure that's what everyone in this group is doing too. When my sister was diagnosed a few years back, I was really emotionally devastated so in a way, I was probably more prepared to adjust to my own diagnosis, as untimely as it has been.
Marianelizabeth, I'm on a tri-weekly schedule for my AC.
Thinking of all of you already going through your first week of toxicity - keep hydrating!
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I can't imagine dealing with all of this and a pregnancy or newborn. You ladies are so strong ... Gonna be good mommies for sure 💕
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I never thought for sure that I wanted my own kids until I declined egg harvest and now I get intermittently panicked about making the wrong choice.
Have to find confidence in our decisions and that we do the best we can. -
Hi Ladies,
Hope you are all doing well
A big Salute to Marlene18 and fight4two, I wish you all the strength to go over your treatment pretty quickly and start enjoying your little ones.
I have a 9mo old baby and he is the world, my real motive to beat this disease and be there for him as long as I possible
I am day 2 post TCH and all is well. I was more active yesterday, and ended up in office in the afternoon to finish some work, everyone was shocked!
Today, I am taking it easy, I feel little dizzy nothing more but still able to work from home
Good luck to you all
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I'm now on day 4 of my first round of AC chemo and feeling tired and dizzy. No nausea or vomiting, just some intermittent queasiness on day 2. I'm scheduled to take one last Zofran and Decadron tonight at 8:30 and hopefully the risk of any nausea tomorrow is slim to none! I've been taking a generic version of Claritin once a day since day #1 and describe my Neulasta side effects as nothing more than mild achiness in my hips and thighs. Three more AC cycles to go.. Feeling some tingling in my scalp....no bladder irritation or mouth sores. If cycle 1 is an indication of how the next three go, this is definitely doable! Did anyone continue taking anti-nausea meds after day 4?
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Just had my first round of AC today -- so glad to get that under my belt! The only real issue is a horrible headache. I took three Advil, but it's not touching it. The nurse said they can slow down the Cytoxin next time to help with that. Anyone else having headaches from the Cytoxin?
Doing four rounds of AC every three weeks followed by 12 weeks of Taxotere every week. So one down, 15 to go! Then rads. The fun is just beginning
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For those who have been taking Claritin with Neulasta - how do you take it, prior to the Neulasta shot or after? Is it then12 hour Claritin? How many days after do you take it?
Thanks!!!!! -
My nurse navigator told me to try taking claritin and that a number of her patients have good results with the claritin and neulasta. I'm going to try it, for sure.
Can't wait to get my first AC over with next -
Websister: 24 hr Claritin once a day, but I don't remember the time frames.
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Hi all,
Just back from my first TC infusion. DH and I were the life of the party in the infusion suite with our cold caps! Every nurse in the place came in to see and watch the 'changing of the caps'. They were all wonderfully supportive and kept me supplied with warm blankets. The benadry made me sleepy but they assured me that it would likely wear off just in time for the dexamethasone to keep me awake all night:-)
Feeling fine at this point. They encouraged me to take compazine this evening. Will take Claritin in the AM before Neulasta later in the day.
Hugs to all!
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Jalessi92 we are practically twinsies ... I was diagnosed three days after you and we had the exact same surgeries on the same day
I guess you recovered faster than I did, I won't start chemo for one-two weeks yet.
Curious: Did you choose ACTH or is this the only option you were given? -
Hope the following info helps with the taking of regular Claritin to help with the Neulasta/Neupogen bone pain.
FOR THOSE GETTING A NEULASTA SHOT AFTER YOUR ROUND OF CHEMO: You may want to try taking regular 24 hour Claritin to help with the bone pain that may accompany the Neulasta shot. There is an ongoing clinical trial evaluating Claritin to prevent the bone pain. Here is the link: (clinicaltrials.gov/ct2/show/NC...)
According to the clinical trial, one takes the Claritin (10 mg) once a day for 7 days beginning the day of the Neulasta treatment.
I had my first Neulasta shot after my 3rd round of Cytoxan/Taxotere and took the Claritin in the morning before I had my afternoon Neulasta shot. I took the Claritin for 9 days in total. I did not experience any bone pain; however I did still had some muscle aches/joint pain which was from my chemo regimen. The Claritin doesn't help everyone but it is worth a try since from my understanding the bone pain may be intense. Just remember to ask your onco about trying the Claritin before you take it. Wishing the best for all.
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For all those that get the neulesta shot with questions... When I did the AC I took the 24 he Claritin along with an aleve 1 he before I went for the shot. Then I actually did not take it anymore until two weeks later for the next shot. I guess if u do feel aches you can take them again but I had nothing but minor twinges here and there do I think it worked for me. And the aches ate from you bone marrow creating white blood cells and during the AC and neulesta shot my white counts went to 40! So I know the shot was doing its job.
Hope this helps everyone elliviate this side effect :-)
Melissa -
I go in for my first infusion (TCH) tomorrow morning. A nurse called in a prescription for me to start tonight, DH had to pick it up because I was at work- it's something like Dexamethasone? I read up on it at work, and it sounds kind of scary- I think maybe I'm taking it to prevent nausea? But it sounds like it lowers immunity, etc. I just got home and took the first 2 pills along with some crackers, we'll see how it goes. I am getting so very nervous!!! I feel completely unprepared- even for the simple basic stuff like getting all my stuff together in the morning, eating a good breakfast, and getting my daughter to preschool on time. It's show and tell tomorrow and she hasn't even picked anything to take yet...can you tell I'm just completely freaking out about everything at this point? Lol.
Hope everyone has a good night/day (we've got people from all around the globe!) -
Went to the doc today to "go over my test results". Blood work all good, heart looks great, ready to get this show on the road. I had plenty of questions and she was pretty patient about answering them, but when she told me about side effects, I felt like she was really downplaying it. Maybe they don't want to scare you? She didn't say anything about many of the things I've read here. Still insists that most patients can keep working all along, drive themselves to treatments, etc. (my hubby will go with me the first time, at least, until we see how it affects me).
So I now have a starting date. 10/16. Still plenty scared but now that I'm commited to doing it, I just want to get started and get through this part.
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Goldfinch don't worry about the Dexamethasone, it should really help you get through. I also have it prescribed along with several other things though not yet filled as still waiting for the chemo date (24th but they are trying for the 15th).
Jennie93, I am with you, would like to just get this show on the road.
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Marlene, my MO called today and they are trying to get me in for the chemo start on the 15th so maybe we will start together at the Vancouver BCCA!
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Got through chemo today. :-). It went smoothly and I'm still feeling pretty good. Got a headache and feel a bit urpy at times so not complaining. I did stop at drug store for the numbing cream for the future visits. It hurt pretty good and threw me into an instant hot flash! Nurse got a chuckle. Will post more tomorrow on how the night goes. Just wanted to say thanks again for being there in my pockets the whole time. :-). Hugs to each one of you.
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Happy for everyone whose treatment went well, and for those of you who are still waiting, hang on and dont believe all tho horror stories you hear. Listen to the wonderful knowledgeable ladies on this board they have helped me and others more than i could ever have imagined.
Had my first AC today and not feeling too bad. Body very tired but mind wont sleep wonder if that is the dex as someone above mentioned, i hadnt thought of that. Supposed to work all weekend so heres hoping the s/e's stay minimal.
Good luck and good wishes to each and every one of you. Sorry any of us are here but on the other hand it is a good place. -
Oh poor Goldfinch! I hope you wake feeling at least a little rested! I packed a "chemo bag" for each treatment (esp. since I go every week). I put my blanket in there, my Kindle, a word search, water bottles, crackers/snacks etc... This way I can leave it packed & just grab it and go (one less thing to think about). The dexamethasone is a steroid. It helps with several things, allergic reaction, inflammation, and nausea. Steroids aren't great for your body, but invaluable in cases like this. It may make you very awake. The night of treatment my body was tired,but my mind was clicking a mile a minute & I couldn't sleep. This is what ridergirl is dealing with (yep the dex is the evil-doer)LOL. Everything will be fine tomorrow and the anticipation part will be relieved. Hopefully after this, you'll feel like a pro (is that a good thing? haha), and maybe not feel so harried.
Smali (and anyone else battling headaches)-the biggest key is to DRINK (and not the good kind LOL)!!! With the reading I've done, we should be drinking (at minimum) 2 qts/day. Caffinated drinks do not count (caffeine is dehydrating). BE CAREFUL WITH ADVIL/NAPROXEN!! Chemo causes a decrease in your platelets (what helps your blood to clot). We're at risk for bleeding & taking NSAIDS can compound that. By all means consult your physician & take their advice, but please check with them before loading up on advil trying to battle headaches (if taken too much-or if you already have hypertension- it can also raise your BP and that in itself can cause a headache as well). Also, if on Taxotere, you can have issues with fluid retention, NSAIDS can add to this also. My MO has told me that I can only use acetaminophen (Tylenol). (sorry-taking of my nursing cap now) hehehe
As for the Claritin...I was told the 7 day regimen as well. I asked my oncology nurse if it would make a difference if I took it daily (I'm allergic to ragweed and it's that lovely time of year) and she said she didn't think it would help or hurt. So, I'm giving it a whirl. It didn't seem to help with my pain...but holy cow Melissa--you jumped to 40!! I only went from 6 to 10 and felt crappy! I am thinking you should have awesome numbers through this!
Halfcan- I'm glad you are done with number 1!! Yay! Even though you're urpy (love that--perfect description of how I felt) keep drinking! I feel like I'm in college yelling....chug, chug, chug.....except it's water! LOL I hate that you can't get the EMLA! I got it in generic here and it's just prilocaine & lidocaine. Can they give you anything similar? Good idea from Poke on the OTC's just check with your doc (like she suggested) to be sure it's ok. I hope you find something so it doesn't smart so much!!
Sorry for rambling ladies....it's 1:30am here and can't sleep. Today is the day I'm going in for my GI Jane hair-do. (or as they say here in the south...I'm gonna go and get my hair-did) I know I shouldn't be so silly about it. It's just hair, I'm losing it because I'm saving my life, and it'll be a remider for those who see me like that to take better care of themselves.....but then again.....my cancer is no longer hidden. It's no longer private, and everytime my husband or kids look at me, all they'll see is CANCER screaming at them. Ugghhhh ridiculous to be crying over hair at this time of the morning, but I can't help it. To sit and cry at the hairdressers today is going to be embarrassing. You are supposed to leave there feeling better about yourself. Everything about this disease is hateful. It takes so much from you....boobs, hair, femeninity, energy, confidence....life. My husband says he loves me and not my hair....but you always wonder what they really think. It's kind of like asking if your jeans make you look fat....what are they supposed to say? They lie (at least mine does-God love him) and they say no...you look fine- I love you the way you look. I have serious self esteem issues WITH hair! OK, that's my pity party for the night. I'll move along. Sorry so long winded! I need to find a job! Oh! I actually may have! I've applied for a phone triage job where I can work from home! It's part time...but I can make my own schedule to a certain extent! I'm keeping my fingers crossed!
I was up front about the BC, but their company states that it specifically helps nurses who are disabled (not that I'm disabled....but any other employer will see me that way) have a job!
I hope everyone is well today! TGIF!! ~Andrea
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alcb, I love your rambling as that is how I think a lot of the time, rambling thoughts and sometimes rambling posts. I think many of us are not sleeping well; I kept waking up and finally got up just afte 0400. I too am a nurse, albeit an old one who has not practiced for a very long time though the need for research and information never seems to go away. I had a look at the link for Claritin above (UofVermont) but note it is for Neulasta. I have not googled Neupogen but am wondering for those of us who are or will be on that regime if it might be the same? Are you doing chemo to shrink the tumour then surgery?
Still dark here in Canada!
But so peaceful.
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Alcb70.... After my first shot my WBC were in the teens then went to 20's then 35 then 40 after my fourth and last one! I only got the neulesta after the AC treatment. Once I started taxol they went back to normal range and have been between 7-9 every time. I am on my 8th taxol out of 12. My MO said all my counts have been all in the normal range thru taxol so hoping they stay that way. But I have been feeling pretty normal though and that's why she said she understands why my counts are so great.
I really never packed a bag for chemo. My center serves us breakfast and lunch and has a kitchen with anything u want in it. They give u blankets if u want them but I am a person that is never cold lol. And the have books and magazines too. But I say bring whatever makes you comfortable and helps u get thru the treatment!!
The biggest thing with taxol is neuropathy which I am taking b6 for and it seems to be keeping it away pretty much. And my nails discoloration tenderness. My MO said soak in Epsom salts and use tea tree oil for that. I am just trying to avoid my nails coming off :-(.
Hope everyone in treatment has minimal se's and those waiting, after your first it will get easier :-) -
Marian,
Here's my timeline:
June 19: Routine mammogram
June 21: Phone calll for return
June 22: Repeat mammogram, US - conversation with radiologist who indicated 'most likely' small (1.0 cm) IDC
6/27: Core needle biopsy
6/28: Biospsy results confirm dx
7/2: Chest x-ray, MRI
7/9: Consultation with breast surgeon, plastic surgeon
7/12: Consultation with second plastic surgeon
8/16: Surgery
9/5: Results of Oncotype DX, consultation with medical oncologist
10/4: Start chemo - delayed X 2 weeks because of infection, readmission, IV antibiotics
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Andrea - I got some EMLA cream for my the rest of my infusions. It is sold OTC but behind the counter here in BC.
Should make the rest of the visits easier. Good luck at the hairdressers today...I hope you can make the best of it...whatever that is? I will be buzzing mine by day 14 I think. Sooner if it gets tender. Just try to remember that it will grow back when this crap is done. Get some really cute hats or scarves and have some fun with it. Sending a hug for your tough day ahead.
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