March 2012 chemo

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  • Alice72
    Alice72 Member Posts: 38
    edited September 2012

    Hi all March Chemo friends,

    I finished taxotere and carboplatin on July 6. Still have Herceptin through February. Finished 25 rads and 6 boosts yesterday ( Friday). That went well until this past week. Having discomfort and pain from burns and maybe skin allergy. Feels like a combination of an itch, tickle, and pain. I'm using saline soaks, Gluconpro Pro 3000, and RadiaGel. Nothing's really makes me feel better. My rad onco also gave me some SpandGel applications. Those felt good for a short time, but hard to stay in place. The "tube top" is uncomfortable. Soon...

  • KCB
    KCB Member Posts: 365
    edited September 2012

    Alice72: congratulations on being finished rads! Sorry to hear about the discomfort though, it sounds miserable. Hang in there...

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited September 2012

    Hi all! Starting to enjoy things more and more PFC. Had terrible taste issues this time, and a fever Friday night for reasons unknown (it stayed below 100.5 so no trip to the ER, yay). Fine today! My hair is up to at least a half inch long all over my head. Not real thick but I had baby fine hair anyway. It is much more salt than pepper, so as soon as it's long enough, I'm going to dye it again. Only just a few hairs in my eyebrows have grown back and no lashes yet as far as I can tell. Have my first appointment with RO next Wednesday and also appointment re: Metformin study.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited September 2012

    Hi all! Starting to enjoy things more and more PFC. Had terrible taste issues this time, and a fever Friday night for reasons unknown (it stayed below 100.5 so no trip to the ER, yay). Fine today! My hair is up to at least a half inch long all over my head. Not real thick but I had baby fine hair anyway. It is much more salt than pepper, so as soon as it's long enough, I'm going to dye it again. Only just a few hairs in my eyebrows have grown back and no lashes yet as far as I can tell. Have my first appointment with RO next Wednesday and also appointment re: Metformin study.

  • KCB
    KCB Member Posts: 365
    edited September 2012

    Indigo: yay re: taste. Isn't it miraculous to enjoy food again, even slightly?

    Let me know what you think re: Metformin study. I am also invited to take part and haven't really felt like I wanted to do it. Mostly because it can cause intestinal upset I understand, and I've had my share of intestinal issues, frankly, since the start of chemo. But what if it turns out to be THE next big miraculous step forward in BC prevention.... Or what if I'd get the placebo and have no issues... As you can tell I am conflicted. I'd be interested in your thoughts.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited September 2012

    Hi KCB!  I'm a bit conflicted too.  I'll let you know what more I find out.  I posted a question on the Metformin study thread too.  Not real crazy about the possibility of stomach issues - I certainly have not been through what you went through, but Taxotere has wreaked a little havoc on me.  It'll probably get better with time, but still.  I definitely have a lot of questions to ask on Wednesday.

  • lanagraves
    lanagraves Member Posts: 596
    edited September 2012

    Hi ladies! It's been awhile since I was here. I am finished with chemo and rads and scheduled to start Tamox this week. It's definitely scanxiety time. I see my MO on Thursday and he will schedule PET then to check this ongoing rib issue. I thought I was doing ok with it, but as it gets closer, I find that I am a basket case. Hope everyone is doing well.

  • kltb04
    kltb04 Member Posts: 1,051
    edited September 2012

    Hi all...about to go for my second Herceptin only today. BMX is one week from today - yikes!

    Oh I never updated on my port issue.  When they did the port check, they could find no kink or problem near the bump I was concerned about but there is a kink further down the line under my clavicle so if I start having issue with it, it may have to be replaced.  But as for now, still don't know what the bump is - radiologist/dr said not to be concerned, it may just be scar tissue...

  • lanagraves
    lanagraves Member Posts: 596
    edited September 2012

    kltb: I think you will be surprised how easy the BMX seems after all the chemo, etc. My port placement was worse than the BMX. I was surprised at how very little discomfort I had. My surgeon gave me Lortabs but I didn't need them and only took a few, mostly to help me sleep, not for pain. They explained to me that my chest area would be numb because they sever all those muscles and nerves, and it was (and is still). This is one time the loss of feeling is a blessing. I can't imagine how painful it would have been otherwise. But, all in all, the BMX has been the easiest part of this (at least for me).

  • kltb04
    kltb04 Member Posts: 1,051
    edited September 2012

    I think I am dreading the drains more than anything!  And just the process...the anesthesia - I hate that time in pre-op where they "let people come back and see you" before surgery and it's all "hey, good luck, hope ya don't die!"  LOL.

    I am finishing up prep work - getting the house clean - I am getting the rental hospital bed simply because my insurance will pay for it 100% so I am going to try it.  I have TONS of pillows and I am going to also get a wedge for my bed.  Then I am borrowing a regular old recliner from my parents just to have somewhere in the living room to sit/sleep if I need it.  Just ordered some camis w/drains that my ins is paying for and about to also order some of the press on pockets for drains and a lanyard. 

  • kltb04
    kltb04 Member Posts: 1,051
    edited September 2012

    I think I am dreading the drains more than anything!  And just the process...the anesthesia - I hate that time in pre-op where they "let people come back and see you" before surgery and it's all "hey, good luck, hope ya don't die!"  LOL.

    I am finishing up prep work - getting the house clean - I am getting the rental hospital bed simply because my insurance will pay for it 100% so I am going to try it.  I have TONS of pillows and I am going to also get a wedge for my bed.  Then I am borrowing a regular old recliner from my parents just to have somewhere in the living room to sit/sleep if I need it.  Just ordered some camis w/drains that my ins is paying for and about to also order some of the press on pockets for drains and a lanyard. 

  • kltb04
    kltb04 Member Posts: 1,051
    edited September 2012

    I think I am dreading the drains more than anything!  And just the process...the anesthesia - I hate that time in pre-op where they "let people come back and see you" before surgery and it's all "hey, good luck, hope ya don't die!"  LOL.

    I am finishing up prep work - getting the house clean - I am getting the rental hospital bed simply because my insurance will pay for it 100% so I am going to try it.  I have TONS of pillows and I am going to also get a wedge for my bed.  Then I am borrowing a regular old recliner from my parents just to have somewhere in the living room to sit/sleep if I need it.  Just ordered some camis w/drains that my ins is paying for and about to also order some of the press on pockets for drains and a lanyard. 

  • KCB
    KCB Member Posts: 365
    edited September 2012

    Wow kltb, sounds like you are all set. Thinking of you. What's your date?

    All done phase 1 of rads today, just the 5 boosts left. Tired and weepy and trying to hold it together through my work day.

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited September 2012

    Hi all! BMX went well on the 26th. I had 2 positive lymph nodes before chemo and there were none that were positive in surgery. They removed 5. Pains nowhere near as bad as I thought it would be. Vicodin 5/500 one or twice a day. Drains are the worst part! Hate them with a passion. They didn't even keep me 24 hours. It's crazy how quick they release you. It's like a drive thru mastectomy. At least I have another thing crossed off the list!

  • KCB
    KCB Member Posts: 365
    edited September 2012

    Triplem: good for you, checking off onemore thing.

    Can you explain how you had two positive nodes before surety but none in surgery? I'm a bit slow; do you mean the chemo did something to the nodes?

    I had chemo after lumpectomy and SNB, so I don't understand the finer points of chemo before routine...

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited October 2012

    KCB-they put markers in the positive nodes so they knew which ones. Plus they put radioactive dye into my breasts to check the nodes my breast drain into. When they removed them during surgery they had no trace of cancer in them. So the chemo did get rid of the cancer in them. Also kept it from spreading further. So my cancer reacted well to the treatment is what they say.

  • lanagraves
    lanagraves Member Posts: 596
    edited October 2012

    Hi ladies. Haven't checked in here in awhile. As some of you already know, my doctors say the rib issue is a bone met. But it is small and it is only one, so I fully plan to kick it's ass with Tamoxifen and whatever else they recommend. I plan to be around for a very long time.

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited October 2012

    Lana- So sorry to hear that. I truly believe you will kick its ass. No mercy girl! And they caught it early, so that's a good thing.

  • KCB
    KCB Member Posts: 365
    edited October 2012

    Lana: you kick it!! Stupid cancer. You can totally do it.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited October 2012

    Michelle, glad surgery is done and went well - and that there was no cancer left in the nodes. Hoping the drains don't have to stay in long! Purple healing energy to you!

  • kltb04
    kltb04 Member Posts: 1,051
    edited October 2012

    Michelle - glad you are recovering from surgery. Good news on the nodes. I empathize with you on the drains.



    Lana - love and hugs you can do this!



    I am in the hospital on the other side of BMX. Not nearly as terrible as i imagined. Obviously uncomfortable but I have a demoral pump. Had to have zofran earlier due to extreme nausea. Getting up and down and going to the bathroom is my exercise. 5 times thus far.

  • Januaryice
    Januaryice Member Posts: 120
    edited October 2012

    Kltb - hope you start feeling better and better each day!!!!

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited October 2012

    Kltb- Glad you're on the other side. It really isn't so bad pain wise. Just very slow moving. Feel better soon girl. Just know I'm right here with ya.

  • lanagraves
    lanagraves Member Posts: 596
    edited October 2012

    kltb - Glad to hear everything is going well. I didn't think it would be as bad as you were expecting. So far, of all the things they've done to me, the BMX has been the easiest. Big ((hugs)).

  • Alicethecat
    Alicethecat Member Posts: 535
    edited October 2012

    Hi Kltb

    Delighted you are out the other side!

    Pleased you are getting some exercise! That will help prevent clots or so I was told. Hope the happy pump will work well.

    You are through the worst - now is the time to enjoy the meals if you can!

    Best wishes

    Alice

  • KCB
    KCB Member Posts: 365
    edited October 2012

    Kltb: glad you are through the surgery. Wow, what a huge hurdle. Thinking of you as you heal and regain your strength. And I forget: has rads vs. no rads been decided yet?

    I had my last rad today, ladies! What a crazy good feeling. Now I have to screw up my courage and start the tamoxifen (RO said wait a little)

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited October 2012

    KCB- wow! Congrats on finishing rads! How many weeks did you have? Seems like you just started.

  • KCB
    KCB Member Posts: 365
    edited October 2012

    Michelle: I started August 20, so 6 weeks (25+5 boosts). Weird, it did sort of go by fast...except to think it was still summer when I started and now it's almost Canadian Thanksgiving.

  • journey4life
    journey4life Member Posts: 517
    edited October 2012

    Lana - I am so sad about your bone mets. Damn cancer. Its a good thing it was caught early - kick ass, woman! ((((hugs))))

    KCB - Congrats on finishing rads! Are you looking for the light at the end of the tunnel?!

    Michelle & Kltb - Glad your surgeries went well and you're on the mend. Take those pain meds and let people pamper you. Believe me, you'll heal much more quickly!

    Love to all

  • onvacation
    onvacation Member Posts: 1,344
    edited October 2012

    kltb - glad you are on the other side!  How long are you in the hospital?

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