Questions for those who have had a local recurrence...

1) My initial dx (DCIS and IDC) was in April 2008.  Had 4 x AC, and 12 weekly Taxol with concurrent Herceptin, then just Hercepting and 30 rads.  While still on Herceptin and in the midst of my rads, I was diagnosed with IBC.  First symptoms were noticed in Jan. 2009 but everyone thought it was side effects from the rads.  They kept telling me I had had so much chemo and rads that there was no way I could now have IBC.  Actualy biopsy was not done until June 2009.  So, I guess the answer to your first question is 9 months.

2)  Have not had any additional recurrences.

3)  No.  It has been 3-1/2 years and it has not spread any further, praise God!

4)  ER-/PR- and HER2+

Hope this helps you some.  Good luck!

Glostagirl,



That last paragraph is so, so true!

12 years after my tn. local reurrence

1) How long after your primary diagnosis was your local recurrence found?  19 years.  But the docs are calling it a new primary (in the same breast) rather than a recurrence of the original.

2) After the first local recurrence, have you had any more local recurrences? If so, how long between the two?  No, but I had a BMX the second time and it's only been about 9 months.

3) After the first local recurrence,did you go on to develop distant metastases? If so, how long between the two?  So far, no.

4) What is your ER status?  Triple negative both times.

2) After the first local recurrence, have you had any more local recurrences? If so, how long between the two?  No

3) After the first local recurrence,did you go on to develop distant metastases? If so, how long between the two?  No

4) What is your ER status?  Triple Negative both times

I too was wondering about recurrence too.I was dxed with stage 1 grade 3 tn with clear nodes Aug 3rd this year mine is a new primary,  I had bc 1999 er/pr positive in opposite breast.Sept 27th I had bilat mast. because of the cancer in right breast but on removing my left the also found 3mm ICIS so oncol said good thing I went for a dmx. Anyways been a month and I have pains all over and the swelling under my right arm as well as the muscle there is more swollen then it was when the dr saw it a week ago. Actually both drs said it was the fluid but it would reabsorb,but now it is looking worst, I'm getting mild stomach pains and my right shoulder is really starting to be painfull, thats why I've wondered if you can have mets a month after surgery?It may seem a bit quick but after having mri and ultrasound to find nothing 5 months later 1.8cm tnbc that the day my dr found the lump I had an hour before had a clear mammo also. Medical oncol said it was worrysom as my cancer had not showed on the tests and it was only because my rad oncol did an exam after my mammo that she felt it. So does that make a person susseptible (for lack of better word) to having a recurrence or mets so soon after dx. Geesh I haven't even started chemo,not until the 15th

1) How long after your primary diagnosis was your local recurrence found?  2 years, 1 week

2) After the first local recurrence, have you had any more local recurrences? If so, how long between the two?  no

3) After the first local recurrence,did you go on to develop distant metastases? If so, how long between the two?  no

4) What is your ER status?  ER/PR+ & HER2+

Never thought for a moment, in those two years, that it would return.  I had bilateral diep in June & hope, once again, I can return to my same, happy, oblivious self very soon...LOL.  Thinking of you all!

I hear these horrid stories about recurrence. I can honestly tell you I cryed a river for like 7 months.  Family told me I need therapy.  I had the chemo C/T and surgery. My nodes were clear and tissue removed also and also the margins. When first found in June I had every scan under the moon and then again in October.

I feel a little lost . First they said Chest Wall recurrence then surgeon said once she went in she thought its not . Ribs were clear and sternum and all the other places that would signify such. Then not sure if its a new cancer. Its like your left in limbo.

 My first bout was 12 years ago. I am TN.  I will have Radiation soon. Been looking around this site for similar stories but you dont find many. I have a Local recurrence and then again maybe not they say because its been so long.  Actually thats the best factor I was told that its been 12 years.  I know a lady in NJ who recurred 7 times she refused chemo every time. Last time they finally forced Masectomy on her. We speak on the phone and she is very funny anf has this great attitude. She also had cervical cancer way back. She cheers me up.