Calling all TNs
Comments
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I've been checking in, too, hoping to hear from Dawn and Hope.
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Maggie
Breath, you know what I bet it is the radiology. I was told that when that happens to let them know just in case they don't read the form I'm sure you filled out stating cancer/radiology duh!! I underlined mine big time so they better check that first before they say something is showing up. Prayers
TiffanyF4 & LOVELYFACE~~~KEEP KICKING BUTT!! So Happy & Proud. Makes me feel a whole lot better when I hear news like that~GIVES ME HOPE!! Congrats!! & Many....Many...Many More!!!!
Titan Agreed !! That is very sad and very sick of that person!!
pray all my tests/scans are good next Wednesday!! Ready to take my first step in moving on!!
Tazzy night and day!! JUST REMEMBER THIS....they will mention a cream to use .....ASK FOR IT THE FIRST DAY!! Tell them you want to stay ahead of any sunburns/burns!! Use it after every treatment and at night because you can't use ita few hours, I think 6 before the treatments
AND if you run out ask for more!!Again Prayers All
Karen
Catwhisperer that is the scan I am scared of too !! It is very hard to wait for scans/tests and then getting the treatment started!!
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(((Mags))) - the important words are "no signs of hypermetabolic activity." Those are reassuring words, so try not to worry too much.
(((Inmate))) - thinking of you and hope you are doing ok with the brain rads and keeping comfy. Much love to you!
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I've missed quite a few days, but I wanted to agree with LuvRVing about finding mets earlier than later. I'm still trying to find a place to keep my mind day-to-day so I'm not obsessing about what-ifs, but there's no question that if I can buy just a little more time of good health and good days, I'd rather find out earlier.
One thing I was wondering about some of that new research that came out - would there be any benefit for me to go through another round of chemo with the regimen they now think works better with TN and ovarian cancer? I don't like the idea of chemo again, but if I can wipe out a few more cancer cells, I'm all for it. If anyone hears of any clinical trials, I'd be interested in looking into them. Right now my MO says I'm NED, but as a TN, I don't put much faith in that, having had vascular invasion.
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Hello Ladies........
Just a short note. It has been pretty bleak around here. I find myself sruggling with typing and thoughts. But I miss you all so please interpret as best you can and I can help if it gets way too garbled. I finished full brain radiation last Tuesday. Low and behold my hair fell out yesterday morning. Ugh! Now it's just very grippy 5 o'clock shadow on my head!
This brain cancer shit sucks! I feel like I am going crazy half he time and then I feel normal but find myself doing something crazy and i just makes me sad. My husband has been my rock. I couldn't be more proud to be his wife. He keeps a close eye one me since I am on a full time pain patch.I am still layering all my clothe in an effort to wear everything even my specil occassion stuff. Every day is a special occassion! I have been reverse nesting while making such weird purhases. I think my husband might have to put me on an allowance. Today's purchase, a very large and heavy cement slipper chair for my yard. Boy, we did not need that at all, but I was obsessed and just had to have it. I do have 3 cement pillows to go with it. Big garage sale 12,13,14. I would like to get rid of a few things so my husband doesn't get stuck with so much of my lifelong picking junk. Getting tired. So will check back in a couple days.
Love to you all...........dawn
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((((inmate)))) I do not have any words to describe how I feel for your plight... you are so strong and....an inspiration to us all. I dont know you but love and have nothing but admiration for you... hang in there sister. Your post brought tears to my eyes...sending nothing but love and positive thoughts to you and your DH.
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An unmarried woman is newly pregnant and gets into an auto accident. She suffers a head injury and lapses into a coma for nine months. When she awakens in the hospital, she panics and asks about her baby.
Her doctor is called in and gives her a mild sedative, then he sits down to answer her questions. "I'm so happy to see you recovering", he says. The woman responds, "Thank you doctor, but what about my baby? Is everything all right?" He replies, "Yes, despite your injury, we were able to perform a fairly normal delivery procedure."
"In fact," he goes on, "you've given birth to twins - a boy and a girl."
The woman is very happy and asks when she can see her new babies. The doctor replies, "Right away, but we've already sent the infants home with your brother. We'll call and tell him you're okay. While you were unconscious, your brother took care of everything for you. He even gave the babies names."
At this point, the woman gets upset, "Doctor, my brother is an idiot! What name did he give my little girl?" The doctor answered that her name was Denise. "Oh, Denise, that's not so bad. What name did he give my boy?" The doctor answered, "Denephew".
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(((INMATE)))
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((((Inmate)))) I love that you're making every day a special occassion. I can just see you in fancy party dresses. You're amazing and an inspiration to all of us. Hang in there Hun xoxo
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(((Inmate))) Dawn - yours is a difficult road and we are all here for you. Has there been talk of chemo after you recover from the brain rads? I think there are a few that cross the brain barrier. I know from the Brain Mets Sisters thread that many women do quite well after treatment for brain mets. I am so wishing that you will join that group! Now, a cement chair and cement pillows? I tried to look that up and couldn't find any examples of a concrete chair. I hope it's a comfy thing that you can use to sit in your yard and enjoy the outdoors. And yes, every day is a special gift, so you wear those special occasion clothes to celebrate life! My heart goes out to you and your dear hubby. Your strength and courage have shown no limits. Sending my love special delivery from coast to coast.
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Dawn:
Just wanted to let you know that you are always being thought of, and wished nothing but the best. May every day bring you strength and healing.
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Dawn, thank you for letting us in your life. I was very happy to log on and see your post. Considering what you're going through, you are allowed to do and say crazy things!! Sending you a big hug and healing thoughts.
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for our beautiful Dawn
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(((Hugs))) Dawn. I'm glad to hear you have such a great husband for support. Keep fighting, but finding those things every day to enjoy.
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Dawn - thanks for posting. You are in my thoughts. Every day is a celebration...so true! (((((hugs)))))
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Dawn so great to hear from you. Enjoy your everyday life!
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Girls I have a question. How long do we have pain in our cancer side breast? I am 14 months out from lx and almost a year out from radiation. The past 3 or 4 days I keep having pain on my cancer side. Sometimes it feels like it could be the bone? I had a ct scan, bone scan, and mammo recently and all was clear. So wondering if this is normal or if I should call MO next week. When I push on the bone it feels bruised. I have not said anything to anyone, cause I just don't want to go there. Any advice or info would help thanks!
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Dawn, you are so strong, an inspiration. I think of you often and know so many others are too. Still sending you positive healing thoughts...you deserve to enjoy every day!!
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ksmatthews - I'll be watching for others to chime in on your question. I, too, have a very sore spot (on the bone?) under my mx. I'm about a year and a half post mx, and almost a year post rads.
Dawn - So glad to hear from you. Wishing you the comfort of knowing you have many sisters here who are pulling for you. I'm working on your idea of wearing "special" clothes for no special reason. What am I saving the good dishes, shoes, clothes for anyway?! Thanks for posting.
Wishing everyone a joyful day. Jan
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KSmatthews - I too am having (mild) discomfort on my lx side and recently asked my MO why NOW, after 15 months since surgery and 7 months after ending radiation, when I never had this before. He said it is perfectly normal and part of the healing process, and for many women, it can last for years. Since I too recently had a clean mammo, I will accept his explanation.
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I am 21 months PFC and I still have sore spots. I just had a 3 month check up on Thursday and my MO squeezes my ribs with the palms of his hands and it doesn't hurt, but there are small spots all over that are tender to the touch. Like if someone pokes or tickles me, it hurts. I also have pain beneath my MX area. Dr. says it is all normal and may last for many years.
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Dawn, I have no words but to say that you are such an inpiration for me, have been ever since I first came to know you. Your pictures were absolutely stunning, in beauty and strength. I wish and pray to God that you have many more wonderful days and nights to spend with your DH and enjoy all your wonderful clothes and things you enjoy. You are very fortunate to have your partner next to you, taking care of you, he must be an angel. Sending you tons of hugs and love, and praying God to give you a lot of strength to recover from this disease. Don't you ever think that a miracle is still not possible, everything is possible with God.
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you Dawn...you are the best inspiration for all of us. Maggie
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I will be walking tomorrow in the Run for the Cure with my team of friends and family. I will be walking for ALL of you and will be thinking of you all tomorrow. xoxoxo
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I am walking in the CIBC Run/Walk for a Cure in Ottawa tomorrow. We formed a team 6 years ago in memory of my younger sister, Donna, who lost her fight with TNBC at 53. We have 22 team members this year and have raised about $1600. This year (and many years in the future), I will proudly wear the pink survivor t-shirt. We will be walking for all our "sisters" (and "brothers") who have fought, are fighting or will fight this terrible disease! Will be thinking of ALL of you tomorrow!
Doreen
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Thanks to you walkers and runners who are participating in Run/Walk for a Cure. Yes, thanks from the bottom of my heart. Jan
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Good luck to everyone doing their walks and runs! good good stuff!
Inmate..dang I wish I could just hold you for a second or two...I'm a great hugger...your hubby is a keeper...but of course how could he not love you???
I just signed up for a run in Columbus, Ohio for the Stephanie Speilman Foundation...She had tn..diagnosed while pregnant when she was 30. My son and I are going to run in it..it is going to be a very emotional run for me...meanwhile...my son will kick my **sss...but that's ok...he should
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((((((inmate))))))
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Warm thoughts to all doing the runs and walks.
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Inmate, positive vibes in your direction from across the pond.
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