DIEP 2011

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  • rtnyc
    rtnyc Member Posts: 155
    edited September 2012

    hoya03mom:  I am thinking the same thing yet schedule first week in Oct for nipple recon. PS says she gathers the skin from the flap area, wraps it and who knows. She actually there's not much in terms of healing, as I take longer to heal as well, said there won't be pain cause the foobs are already numb. But what about 3D tattoo? 

    Has anyone out there done the 3D tattoo? I've read it looks incredible, so what if you don't have a nipple, we'll never have feeling in it anyway... Oh god, have no clue what to do. I wonder if you can do the tattoo and then do the nipple recon if you change your mind? Anyone know????   

  • micheleboots
    micheleboots Member Posts: 1,993
    edited September 2012

    these are all questions I have as well

  • Dutchy
    Dutchy Member Posts: 432
    edited September 2012

    rtnyc:  I had the nipple gathering and then the tatoos and I am very satisfied with the outcome.  I watched the doc tor gather the skin to make the nipples as I only was numb in the breast.  It only took around 45 minutes.  I had the tatooing much later because no one would take my insurance until I found Jeanine who is out of New Mexico and comes out here to California once a month and does it in Tustin, CA.  When I was done with the process a friend of hers, who has a boutique shop called "Blondie's Boutique", gave me a "bling bra" that had rhinestones on the straps and was very sexy as a way to start anew.  Jeanine also threw in free tatooed touch up of my eyebrows and eyeliner.  All of it was a wonderful experience.  

  • Dutchy
    Dutchy Member Posts: 432
    edited September 2012

    rtnyc:  I had the nipple gathering and then the tatoos and I am very satisfied with the outcome.  I watched the doc tor gather the skin to make the nipples as I only was numb in the breast.  It only took around 45 minutes.  I had the tatooing much later because no one would take my insurance until I found Jeanine who is out of New Mexico and comes out here to California once a month and does it in Tustin, CA.  When I was done with the process a friend of hers, who has a boutique shop called "Blondie's Boutique", gave me a "bling bra" that had rhinestones on the straps and was very sexy as a way to start anew.  Jeanine also threw in free tatooed touch up of my eyebrows and eyeliner.  All of it was a wonderful experience.  

    Duthcy Evelyn

  • 2miraclesmom
    2miraclesmom Member Posts: 131
    edited September 2012

    I had my Diep in Sept. of 2011. Everything went great, but we knew then that I was going to have small implants put in as well, so I will have that done next summer. The reason for the implants is because I was a 34DD before and now I am a 34 not even an A. lol I just did not have enough fat to get the size I wanted. Right now I am scheduled on Oct. 2 to do the fat transfer thing. Where they do lypo and then put that into your breasts. Has anyone ever had this done? They are basically fixing the areas from the Diep and instead of wasting the fat, putting it in my breasts to make them more fuller. My cup size will not change, but I will just fill my bra up better. Has anyone had this done and if so, how did you like it?

  • 2miraclesmom
    2miraclesmom Member Posts: 131
    edited September 2012

    I had my Diep in Sept. of 2011. Everything went great, but we knew then that I was going to have small implants put in as well, so I will have that done next summer. The reason for the implants is because I was a 34DD before and now I am a 34 not even an A. lol I just did not have enough fat to get the size I wanted. Right now I am scheduled on Oct. 2 to do the fat transfer thing. Where they do lypo and then put that into your breasts. Has anyone ever had this done? They are basically fixing the areas from the Diep and instead of wasting the fat, putting it in my breasts to make them more fuller. My cup size will not change, but I will just fill my bra up better. Has anyone had this done and if so, how did you like it?

  • 2miraclesmom
    2miraclesmom Member Posts: 131
    edited September 2012

    I had my Diep in Sept. of 2011. Everything went great, but we knew then that I was going to have small implants put in as well, so I will have that done next summer. The reason for the implants is because I was a 34DD before and now I am a 34 not even an A. lol I just did not have enough fat to get the size I wanted. Right now I am scheduled on Oct. 2 to do the fat transfer thing. Where they do lypo and then put that into your breasts. Has anyone ever had this done? They are basically fixing the areas from the Diep and instead of wasting the fat, putting it in my breasts to make them more fuller. My cup size will not change, but I will just fill my bra up better. Has anyone had this done and if so, how did you like it?

  • rtnyc
    rtnyc Member Posts: 155
    edited September 2012

    dutchy:  were you able to wear an underwire bra?  They bother me and start hurting within an hour. Even  lace barlette is bothersome...so here's question; how did you feel afterwards any discomfort? Enjoy wearing the sexy bling bra!!

  • Dutchy
    Dutchy Member Posts: 432
    edited September 2012

    There really was not that much pain with getting the nipples and they really look real, especially with the tatooing.  I think you may regret not getting them, at least I would.  Don't know about 3D tatooing or where to even get it.  It was difficult enough finding someone to take insurance and the damn insurance still has not paid my lady.  We are in appeals again.  I had had to appeal to get the DIEP but I won.  I know they say there is not any feeling in the breasts anymore but I still had some and had to be numbed.  So be sure to speak up if you feel pain. 

    I was not able to wear an underwire right away but after 4-5 months I was able to.  Really the pain is not that bad with the nipples and after what we went through it is a walk in the park.  I think I still had some vicadin and took one but not sure if I really needed it now that I have already gone through it. 

  • Dutchy
    Dutchy Member Posts: 432
    edited September 2012

    There really was not that much pain with getting the nipples and they really look real, especially with the tatooing.  I think you may regret not getting them, at least I would.  Don't know about 3D tatooing or where to even get it.  It was difficult enough finding someone to take insurance and the damn insurance still has not paid my lady.  We are in appeals again.  I had had to appeal to get the DIEP but I won.  I know they say there is not any feeling in the breasts anymore but I still had some and had to be numbed.  So be sure to speak up if you feel pain. 

  • Dutchy
    Dutchy Member Posts: 432
    edited September 2012

    There really was not that much pain with getting the nipples and they really look real, especially with the tatooing.  I think you may regret not getting them, at least I would.  Don't know about 3D tatooing or where to even get it.  It was difficult enough finding someone to take insurance and the darn insurance still has not paid my lady.  We are in appeals again.  I had had to appeal to get the DIEP but I won.  I know they say there is not any feeling in the breasts anymore but I still had some and had to be numbed.  So be sure to speak up if you feel pain. 

  • mamaoftwo
    mamaoftwo Member Posts: 267
    edited September 2012

    Rtnyc- did you ever get information about the tattoo nipples and what did you decide?  I have my procedure Friday 10/5 at NYU and am really nervous about another surgery so would be interested to hear what you found out.

  • rtnyc
    rtnyc Member Posts: 155
    edited September 2012

    I'm scheduled for nipple recon this wednesday but I think they'll cancel becuase I have a really bad chest cold right now. Not so sure I'll be better by Wednesday. I spoke to the nurse, she said that she has had a few women do the tattoo only and thereafter come back to do the nips as they realized they wanted it. The 3d tattoo they said sometimes still looks flat but depends on who does it, still just tattoo and not a more natural feel and look. So its so personal.  I honestly don't want permanant headlights but it is more natural to have than not to have so I'm gonna do it; maybe not this week but delayed a few weeks now (I think)

  • IowaSue45
    IowaSue45 Member Posts: 586
    edited November 2012

    Hi ladies, I have not been on this board for a long time but I would like to know what you ladies had done for nipples? I had just the tattooing. I wonder if any of you had to go back and have the tattooing touched up. Also if you had if done at the PS office or a tattoo artist? My insurance has not paid for the nipple tattooing yet and its been since May had to appeal it. Anyone else have this problem. Kinda stupid if you ask me. The insurance will pay for all phases of reconstruction except the nipple tattooing? Frustrating!! Thx ahead of time for any imput.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited October 2012

    I have only had the diep.  I think I am done with procedures.  Could care less about nips.  Don't want the perky nip thing.

    RTNYC, how did it go.

  • LindaG47
    LindaG47 Member Posts: 400
    edited October 2012

    Hi Sue, I had my DIEP with Dr. Massey in Charleston.  I am having stage IIB next month with her in Chicago.  Good for me because I only live 2 hours from Chicago.  I am not to the nip stage yet and don't know if I will, but did you know there is a lady that is a permanent makeup artist in in NC who's name is Earlene Bennett and she does the nipple tattooing free of charge to breast cancer survivors, (or at least she use to).  Here is  her website.  http://www.ashevillepermanentmakeupclinic.com

    Good luck.

    Linda

  • LindaG47
    LindaG47 Member Posts: 400
    edited October 2012

    Yes, Vinnie Myers is a fabulous 3D tattoo artist.  He also now works with the Center for Restorative Breast Surgery  in NOLA.  He will also do the areola and nipple besides the 3D.  Take a look at his web site; vinniemyers.com  You will see his wonderful work that is so realistic you won't believe they aren't "real."

    Linda

  • IowaSue45
    IowaSue45 Member Posts: 586
    edited October 2012

    That is awesome that she does it for free considering the time Im having getting the ins to pay for the tattooing even though it was done thur the PS office.

  • Bugot
    Bugot Member Posts: 1
    edited October 2012

    Thank you for the list of's....Very helpful.

    I am tentatively scheduled for bilateral mast. with immediate bil DIEP sx.  Dec. 2012.   I have read several posts about stage I and stage II surgeries.  Am I misinformed about one stage surgery other than nipple or tattoo? 

    Also, is there a list of highly recommended surgeons who do DIEP?  I have heard of NOLA and Dr. Kline in SC, however, is there anyone in FL or MD that people care to share information about, or direct me to web site that I can research.  I am finding several doctors in MD, but have not seen any posts regarding differenct doctors. 

    Thank you so much for your help and support. 

    Bugot

  • LindaG47
    LindaG47 Member Posts: 400
    edited October 2012

    Bugot,  Who are you scheduled with in Dec?  Are you having second thoughts?  I don't know anyone in MD.  I heard of someone in Gainsville FL, but don't know anything about him.  I think his name is Rosenburg or something like that.  If you can manage at all to go to NOLA or SC, I would look into that.  I had mine done in SC by Dr. Marga Massey and love her.  However, she doesn't do stage I in SC anymore only NOLA. The Center for Restorative Breast Surgery in NOLA was not in network for me.  You should at least call the Center in NOLA and Dr. Kline in SC.  They are world leaders in Breast reconstructive surgery.

    Good luck with your decision. Linda

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited October 2012

    Bugot - Stage II is just if you want it done, if the abdominal scar needs some touchup or if the breasts need some as well. If I had bilateral DIEP I probably would have needed minimal touch up, but my Stage II etc. has been mostly trying to get lefty and righty (or foob and boob as my husband would say) to match. We're getting there though.

  • mamaoftwo
    mamaoftwo Member Posts: 267
    edited October 2012

    Bugot - Dr. Ahn in NYC is also nationally recognized and excellent. 

    Nipples are usually done surgically, with general anesthesia.  I know there are exceptions and have heard of women getting it done in a surgeon's office with local anesthesia, but I think that most often it's done surgically.  There might also be some fat grafting to even them out, or add volume, plus scar revision if necessary.  There could be 1 to 2 more surgeries, but nothing on as large scale as the first one, the DIEP and MX.

  • LindaG47
    LindaG47 Member Posts: 400
    edited October 2012

    Bugot, Yes Dr. Christina Ahn in New York is an associate of Robert Allen, the Pioneer of DIEP, SGap, Siea, etc. Dr. Joshua Lavine is also in the NY office with Sr. Ahn, I think.  The most important thing you need to know and to ask is how many muscle sparing surgeries (Diep, etc) they do a year.  Success rate % and failure rate %.  Just do your homework and you will be fine.  Most experts in this field do 100 or more a year.  Dr. Massey so learned under Dr. Allen and have many others.  

  • LindaG47
    LindaG47 Member Posts: 400
    edited October 2012

    Bugot - I just was reading the Charleston Bound part II thread (page 45) and there is some conversation going on about choosing a free flap (DIEP) doc and also discussion about success and failure and how prepared doctors  are to go to plan B if there is a failure.  Very important.  You may want to go to that thread and take a look.  Pretty interesting.

  • bdavis
    bdavis Member Posts: 6,201
    edited October 2012

    Bugot... If you want a doctor in Maryland, look into Bernard Chang out of Mercy. I went to NOLA (Dr Dellacroce), but Chang was on my short list, as was Dr Massey.

  • rtnyc
    rtnyc Member Posts: 155
    edited November 2012

    bugot...i was referred to Dr. Carlin Vickery, NYC from the president of the breast cancer research foundation. Dr. Vickery was and has been great, highly regarded as well.

  • netty46
    netty46 Member Posts: 296
    edited February 2013

    Bernard Chang did a diep on meand left my old tissue behind. I had problems from beginning. Stomach busted from hip to hip. He left a hole in my breast in middle. Alot of necrosis developed at bottom. During 5 yrs I emailed I'm. I begged him to help cause it was getting painful. He always said it will get better it's not cancer. I went 5 yrs with no mammo on that breast cause he said I did not need it. Finally 2010 a surgeon in Florida tried to help me only to discover that dr Chang never removed the old tissue from my chest. Dr Chandler thought he did but then admitted to my doc on the phone he did not. I was sick with worry . Well here I am that necrotic piece turned up cancerous 12 yrs later chemo again, Masectomy, radiation, and severe sadness and depression. What did Chang say? Sorry to hear this but I'm sure your in good hands.

  • netty46
    netty46 Member Posts: 296
    edited February 2013

    Bernard Chang did a diep on meand left my old tissue behind. I had problems from beginning. Stomach busted from hip to hip. He left a hole in my breast in middle. Alot of necrosis developed at bottom. During 5 yrs I emailed I'm. I begged him to help cause it was getting painful. He always said it will get better it's not cancer. I went 5 yrs with no mammo on that breast cause he said I did not need it. Finally 2010 a surgeon in Florida tried to help me only to discover that dr Chang never removed the old tissue from my chest. Dr Chandler thought he did but then admitted to my doc on the phone he did not. I was sick with worry . Well here I am that necrotic piece turned up cancerous 12 yrs later chemo again, Masectomy, radiation, and severe sadness and depression. What did Chang say? Sorry to hear this but I'm sure your in good hands.

  • rtnyc
    rtnyc Member Posts: 155
    edited March 2013

    michelleboot.  to answer your question about the nip's.  the surgery went well, i discussed with my doctor that I wanted really small nipples becuase I didn't want headlights ALL the time. so I got small and flat ones, right side is flatter than the left but I'm ok with it (I think) I still have not done the tattoos as I want to see what happens after I loose some weight, my goal is 25 lbs, I've just lost 10 in 2 weeks and hope to keep it up. If things change due to the weight loose I want to do revisions by fall and finish up if possible by year end.  I hate how my boobs look and wearing bras seem to hurt after a couple of hours. Do you find that too? 

    I hope your doing well!  Robbin

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