Is it odd to go to once a year mammos 1 year after diagnosis?

Options
2»

Comments

  • xxxxx
    xxxxx Member Posts: 67
    edited September 2012

    Hi Everyone

    New to this post but believe it or not I actually had 2 mammos within a year from my onc, one from my surgeon and on my right breast for my radiologist AND a full mammogram Monday. Yes I GLOW in the light and dark. I was told every 6 months for my right breast and once a year which is Monday for the full yearly mammo-the one after all my treatments. Could it be because I am triple negative?? Anyway it appears that every doctor is different in their procedures!!

    I did have rads(34) and was told more than likely I will be back for the other breast-left side.  Real sweet one there!! If that will be the case I will refuse rads over my left HEART side no matter what age I am!! I HATE it when someone lectures you instead of talks and communicates with you so I shut down on him and did what my oncologists advised.

    Prayers to Everyone

    Karen

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited September 2012

    Yes, my age was a big consideration. He told me all the pros and cons and said it was my decision. He then added that whatever I decided I shouldn't second-guess myself.

    He was very honest about the possibilities of rib breakage (though he had never seen it in his practice). He did say part of the lung, about 6 to 10 percent, would be in the radiation field as would the bottom part of the heart. And there was a chance of rads causing other cancers.

    I liked that he was so upfront about everything.

    I think all our providers should be like he was. Honest with all the pros and con of every treatment and then let us decide what is best for our situation.  

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited September 2012

    http://www.asco.org/ASCOv2/Home/Education%20&%20Training/Educational%20Book/PDF%20Files/2012/zds00112000059.PDF




    This lecture was discussed at the recent  2012 ASCO meeting regarding surveillance following breast cancer diagnosis. 

    Keep in mind, there are exceptions... 

  • xxxxx
    xxxxx Member Posts: 67
    edited September 2012

    LOVE to keep us confused!!

    Thanks, will read it Cool

    Upfront is good, but blunt to rude I dunno!! I want information but in a polite professional way and in english for me Cool

    I do understand certain things that I am against and that would be one because like mammo's I have somewhat to a full suspician that do they or don't they really help that much????

    Prayers

    Karen

  • edwards750
    edwards750 Member Posts: 3,761
    edited September 2012

    wenweb that's what I thought too. I have my last mammogram on the affected breast next month and then was told back to the total mammogram every 6 months for the first 2 years but it probably isnt a universal thing. Also, I get the bloodword by the ONC mainly to see how the Arimidex is affecting the bones.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited September 2012

    Regarding the ASCO lecture...Here are the protocols for breast cancer surveilliance following breast cancer diagnosis at the leading medical centers....It comes from the table in the article.  I must apologize that the entire table doesn't cut and paste....It also includes when to have physical screening exams:

    "Institution Mammography Physical Examination:

    M. D. Anderson Cancer Center At 6 mo, then annual diagnostic for 5 yr; screening from year 6 Every 6 mo for 5 yr, then annual


     

    University of California, San Francisco Every 6 mo for 5 yr, then annual screening Every 6 mo for 5 yr, then annual


     

    University of California, Los Angelas Every 6 mo for 2 yr, then annual diagnostic Left to primary care


     

    Moffitt Cancer Center Every 6 mo for 2 yr, then annual diagnostic until yr 10 Every 6 mo for 5 yr, then annual


     

    Brigham and Women's Hospital and


     

    Dana-Farber Cancer Center


     

    At 6 mo after completion of radiotherapy, then annual diagnostic Every 6 mo for 5 yr

    _______________________________________________________________________________________

    Don't forget...there are exceptions....

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited September 2012

    Maybe my onc felt that with such a small cancer, medium growing, that nothing would show up after only 6 months?  That's the only reason I can think of why he didn't even mention a mammo even after one year---

  • wenweb
    wenweb Member Posts: 1,107
    edited September 2012

    As ususal, interesting information VR thanks for posting.

     I have been thinking about the value of an MRI over a mammogram lately so I find this interesting as well.  I am going to see my BS in a couple of weeks and plan on asking him about this.  I have been having discomfort (as in premenstral) in the breast that had the cancer.  At my mammogram last week I informed the mammo person about this because it was on a form I filled out, but no comment was made about it.  It makes me a bit nervous and that's why I was wondering whether an MRI would show anything that a mammogram does not.  It's hard not to wonder what is in there that is causing discomfort.

  • xxxxx
    xxxxx Member Posts: 67
    edited September 2012

    Interesting post. I still say it is what each personal physician thinks???? Mine is every six months & yearly for 5 years on the sixth month one. Maybe it is because I am triple negative???? Prayers it does not come back ANYWHERE!! I personally think too much scanning & xrays of any kind isn't possibly good. My 2 cents worth.

    Prayers Everyone

    Karen

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2012

    Kareybeth,  The size, stage and aggression (Trip. Neg) of your B/C is certainly something that can affect whether you are a "frequent flyer" for mammos or not.

    v-reader,   Thanks for posting actual article of the idea I was trying to convey (but was to lazy to search out citations for.)  Seems even the more renowned Centers have some variance on follow-ups.

    So let's just say if a woman is getting mammos more frequently than every 6 mos. or getting none in over a  year's time, it might be time to ask the docs what the deal is.  All others are falling in the range of "standard follw-up."

  • xxxxx
    xxxxx Member Posts: 67
    edited September 2012

    elimar, I didn't even consider that. BUT it was the radiologists and the onc that were requesting the mammos before they would do their procedures AND I seriously don't think they go along. I am going to also ask tomorrow when I go to get the yearly one!! Thanks for pointing that out!!

    Karen

  • xxxxx
    xxxxx Member Posts: 67
    edited September 2012

    elimar 

    THEY SURE AS HECK BETTER NOT BE HOLDING ANYTHING BACK ON ME!!

    I am taking my sister with me Wednesday to ask her questions too!! She of course got orders from at least one of our older sisters!! I'll get some answers Wednesday for sure!!

    Karen

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited October 2012
    Kareybeth,  Never hurts to take some back-up and an extra set of ears to those appts.  Smile
  • xxxxx
    xxxxx Member Posts: 67
    edited October 2012

    elimar

    SO TRUE Cool

    Have a good night everyone.

    Karen

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited October 2012

    Wenweb...Regarding your radiology appointment...Did you see the radiologist? I have heard from others that they don't see their radiologist at their appointments. Not sure if it is because I was diagnosed, but I meet with my radiologist following my tests. In fact, I go more by his opinions than the rest of my teams' opinions when it comes to surveillance. If I listened to my BS, I'd probably be glowing by now and be a basket case from the anxiety of making the radiology appointments and having the appointments.


    If you don't know your radiologist, I would suggest you contact their office and ask to speak to them regarding the results of your most recent exam. Explain you wrote down that you were having discomfort in the breast when you had the appointment and no one questioned you further that day.

    Hope all is well.

    On this journey I believe a radiologist whom you trust is the most important guide!

  • pj12
    pj12 Member Posts: 25,402
    edited October 2012

    Last time (3 years post DX) when I had my mammogram I did not get to see the radiologist. Previously the radiologist would come in and discuss the results. When I asked why-why not, it was explained that I was back to "screening" mammograms since I was now 3 years post treatment. In the couple years after DX I was having "diagnostic" mammograms which include a personal discussion with the radiologist.



    I did like getting to talk to the radiologist immediately after. But do like it that I am considered a "normal" patient, I guess.

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited October 2012

    Years ago the radiologist would come out and discuss your mammograms with you. Regardless of the findings, he would then check your breasts.

    These days I never see the radiologist after the mammo. Get my results in the mail.

  • xxxxx
    xxxxx Member Posts: 67
    edited October 2012

    Morning Everyone Cool

    Mammo was cleared <insert happy dance>Cool Said they would see me in 6mths because MY ONC SAID SO!! Not going to complain. See him day after tomorrow. May hear about my other two tests CT/BONE scans today. They usually call me when they get the results.

    With me individual doctors DO NOT SHARE scans! Henceforth my many scans but they are going to be a 6mth & yearly mammo and a yearly CT/BONE!! Got that straight~My oncologists said he does not feel good with TN and they have to keep checkingme. I will not get anyone requesting anything unless my onc says so!! I will find out WEDNESDAY also my grade(only because I did not ask that)!! duh on me!! Can't remember if they said blood labs every 4mths or every 6mths BUT they are giving my situation all the attention they think it needs and I agree with them.

    As far as my port goes, I don't want the reminder of it if I am cancer free, I want it out if/or until  I should cross that bridge again. DECIDED once everything is cleared on Wednesday I AM GOING TO HAVE IT OUT!! If it isn't there neither will the reminder of cancer every time I feel a pinch or a pain. I know my chances and if and when I cross that bridge I will deal with it!! 82% chance it will NOT return per my onc so I am gonna hold tight to that!!

    MY next plan FIND A GOOD GYNO/PRIMARY!! Been to 2 since my cancer dx and I still am not happyFrown

    I am so happy that I get to hear how everyone elses doctors do things. Gives me hope, strength and ????? as to why or why my doctors aren't doing this!!

    Hope everyone has a GREAT Day and all your worries, pains & progress continues to be in Gods hands.

    Prayers

    Karen

  • stephN
    stephN Member Posts: 284
    edited October 2012

    pj12, that's what they told me at my clinic...they said diagnostic meant that I would stay until the radiologist looked at the screening shots and if there was anything questionable, they would follow up right then.  They told me that once you have cancer, you always get diagnostic mammos from then on at my place.

    FWIW, I get screening mammos now, but I still get them every six months on the cancer side and every year on the good side.  I am one year out and 44. 

  • wenweb
    wenweb Member Posts: 1,107
    edited October 2012

    VR I am assuming mean the radiologist who reads the mammogram.  On occasion, I would see her-she was the one who read my mammos with some regularity.  She has since left her position, and for my last 2 mammograms have not seen anyone other than the person who tells me everything is fine and when to return.  

    Unlike yourself, I liked my BS better than any of the new Dr's I started seeing when I got my DX.  Therefore, he is my go to person.  

    I do think that any woman getting a diagnostic mammogram should be given the time with the radiologist.  I wonder what would happen if I insisted??

    Thank-you for the helpful advise. 

  • xxxxx
    xxxxx Member Posts: 67
    edited October 2012

    I am doing a HAPPY DANCE right now. Had a long talk at my oncologist office today. ALL my test came back GOOD. I have been told I was cancer free as of March 2012 but also told that I would have to wait until the end of my first year of all of this well TODAY I was told I am CANCER FREE as of today.  I am so releived and happy.

    I asked about my port and was told the onlcologist prefers I keep it in a year. I told my nurse navigator that I would prefer she go back to him and tell him I want it out now!! Said she would call me back today!! I just think that having it in a year is long enough considering others get theirs out right after chemo.

    One more question How long should you wait to dye/color your hair? My chemo ended February and my Radiation June. It has been 3 months and is growing out grey and black. I want my strawberry blonde back. haha I know that sounds selfish considering but I just now am getting it back and I wanted to look as good as I feel right now. Wanna grab every moment I can.

    Karen

Categories