Is it odd to go to once a year mammos 1 year after diagnosis?

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bedo
bedo Member Posts: 1,866
edited June 2014 in Stage I Breast Cancer

I had a 6 month mammo on bad boob, then one year anniversary mamo on both which was good, last week, and was told today, so.. .. see ya  in 3 mos for blood work (arimidex) and a year for a mammo, they will be once a year from now on!  I was diagnosed 1 year ago.

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  • Racy
    Racy Member Posts: 2,651
    edited August 2012

    I have only had annual mammograms and ultrasounds with three monthly alternating appointments and physical exams by BS and onc during first two years. I initiated my own blood tests. I believe my treatment is in keeping with protocol in Australia.



    It sounds like you are being well looked after.

  • NevadaPaula
    NevadaPaula Member Posts: 42
    edited August 2012

    I had my mamogram that showed cancer. 3/15/10 Went throught treatments. 1.5 cm t1c 0/20  E+  her2+. TCH, Radiation, and started Anastozle, now on Aromansin. I did not have any more mamograms until my year was up. I only had 3 breast exams by my oncol. during the 3 month follow-up for one year. Now on 6 month follow up.

  • bevin
    bevin Member Posts: 1,902
    edited August 2012

    My doctor sends me for mamo every 6 months on the cancer side and yearly on the non cancer side. So every other Mammo, I have both breasts done. At my cancer center they do this for the first 2 years then  go to annual for both sides.  For blood work, I go every 3 months, then at 2 year mark, they will switch me to 6 months.

    Good luck to you.

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited August 2012

    I get an annual mammogram and blood work every 6 months. Even my first mammo after the lumpectomy wasn't done until a year had passed.

  • pj12
    pj12 Member Posts: 25,402
    edited August 2012

    My mammograms were every six months for two years post lumpectomy, then switched to once a year. What I miss is that the every six month exams were "diagnostic" which meant I saw the radiologist who read them immediately following the scans. When I went back to once a year my mammograms became "screening" again which means I do not see the doctor but get a brief report in the mail with a copy to my oncologist. But I guess that means I am doing well so I won't complain. :)

  • FilterLady
    FilterLady Member Posts: 407
    edited August 2012

    My first post diagnosis mammo will be 9/12/12....praying for "all clear".

    I see the surgeon that performed the excisional biopsy and lumpectomy with snb every 6 months.  He performs a breast exam on both breasts.

    I see my MO and RO every 4 months.  I get a complete blood workup the day before I see my MO.  They also perform a breast exam on both breasts.

    I see my GP every 6 months with complete blood work done the day before my appointment unless I've just had it done at the MO.

    My mammos will be yearly as long as I keep getting the "all clear".

    LaDonna

  • proudtospin
    proudtospin Member Posts: 5,972
    edited August 2012

    me, been doing diagnostic mamos on the bad boobie every 6 months for 3 years and full screening mamo on both once a year.  They have me wait for the results the same time.

    unfortunately, this past June, had a screening mamo as all had been great for 3 years and on this I had to wait on the mail.
    bummers as new junk on it, back to diagnostic to find out all B9 but now will be back on 6 month thing for...not sure how long

  • gsg
    gsg Member Posts: 3,386
    edited August 2012

    Years 1 and 2 post-treatment:  mammo/ultrasound  6-mos later MRI  breast surgeon visit another ultrasound

    Years 3 to present (6 years):  mammo/ultrasound  6 mos later ultrasound at breast surgeon  

     See oncologist every 6 mos, breast surgeon once a year.  When I get off Arimidex oncologist visit will be 1 per year   Oncologist has agreed to keep me on Arimidex until the studies are completed on 10-year efficacy.  However, I'm starting to have bone density issues and that may have to change

      

  • peggy_j
    peggy_j Member Posts: 1,700
    edited August 2012

    What blood tests are you doing every 3 or 6 months? Tumor markers or ?? (someone mentioned "complete blood workup." Not sure what that means)

    My plan: annual mammogram and annual B-MRI, offset by 6 months, assuming the insurance approves the B-MRI. But even if they don't, my docs say an annual mammogram is enough since each one exposes us to radiation. (yes, my RO mentioned the radiation exposure. Hullo? Didn't I get a lot of exposure from him??) Perhaps the frequency is based on your risk of recurrence or grade of BC. Mine was grade 1, the slow growing kind. Perhaps recommendations vary if the tumor was grade 3. (?) I also get a physical breast exam each time I see my cancer docs (MO every 3 mon, BS 6 months).

  • FilterLady
    FilterLady Member Posts: 407
    edited September 2012

    Peggy,

    I take meds for overactive bladder that can cause liver problems so that's one reason for the blood work every 6 months at my GP appts.

    My MO has blood drawn since sometimes I'm on the anemic side.  My bc was the slow growing type (grade 1) and my risk of recurrence is low as well.

    I'm praying if all is well, I can go longer between appts, if not then I'll just keep going....better safe than sorry.

    LaDonna

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited September 2012

    Peggy: I just started taking Vesicare for my stress incontinence. The ob/gyn didn't mention a word about possible liver problems.   Now I'm re-thinking my decision about taking it.---Darn----

  • FilterLady
    FilterLady Member Posts: 407
    edited September 2012

    dogs,

    I'm not taking vesicare, I'm taking Oxybutynin (I think that's the generic of something, can't remember right now, lol).  Mine is not for stress incontinence (had SPARC bladder sling in 2002 for that), it's for urge incontinence.  Now there have been problems with bladder slings, but no problems for me (so far). Most meds have some type of side effects that not all people will have but if the benefits outweigh the risks sometimes doctors will prescribe it.

    Lots of meds can cause damage to different parts of the body and I guess different doctors do different things. It doesn't bother me that I have blood drawn frequently, again better safe than sorry.

    LaDonna

  • msphil
    msphil Member Posts: 1,536
    edited September 2012

    I went for mammo every 3 months after treatment for awhile and then 1 time a yr even now and I am a 18 yr Survivor(Praise the Lord) and try and give back as much as possible, the right breast each year, the L mast side was every three months for a yr, God Bless Us ALL. msphil(idc, stage 2, 0/3 nodes,L mast,chemo and rads and 5 yrs on Tamoxifen)

  • DocBabs
    DocBabs Member Posts: 775
    edited September 2012

    What bloodwork did you ladies have?I am 16 months post BMX and have not had any bloods drawn.

  • FilterLady
    FilterLady Member Posts: 407
    edited September 2012

    Hi Y'all:

    I just had my first post diagnosis mammo and got the "ALL CLEAR".  I will have a mammo every 6 months on the left breast and stay yearly on the right breast.

    I did real good until I stepped up to the machine, then the mini meltdown started.  The techs are just wonderful and were so understanding and encouraging.

    My DH was with me and was in the waiting room.  When I came out and gave the thumbs up, he had tears in his eyes even though he kept telling me it would be all clear.  Bless his heart, this journey has been hard for him since he feels helpless.

    Take care,

    LaDonna

  • pj12
    pj12 Member Posts: 25,402
    edited September 2012

    My oncologist orders a CMP (comprehensive metabolic panel) and CBC (comprehensive blood ?) plus CA15-3 Tumor marker. I"ve had that once a year since BC diagnosis 3+ years ago. My primary care doctor wants the same tests done so I try to arrange it so that my appointments with the two different doctors are close together and I only have to have the blood work drawn once.



  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited September 2012

    I ask the lab to send copies of my bloodwork to all my doctors. If one doctor does your bloodwork instead of the lab, ask him to send copies to the other doctors.  They do it on the computer so no big deal for them.

  • pj12
    pj12 Member Posts: 25,402
    edited September 2012

    CBC stands for complete blood count :)

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2012

    bedo, I'm glad you have received replies from women very similar to you in Dx.  Obviously. a woman with a more agressive cancer should bear closer monitoring but, face it, a lot of these slow-growing ER+/PR+ recurrences don't even show up until agter the 5-year point.  For this reason, when I reached the two year mark, I put myself on annual mammos, rather than every six mos.  I don't think all that squishing and extra radiation was doing me any good.  The irony being, mammos did not even find my B/C in the first place.  The radiologist didn't put up a fight when I said this was my intention, although I am sure whe would have been happy to have my business twice a year rather than just once, as insurance will pay out for every six mos.  So, if you WANT a mammo every six mo., I bet you could get one, but I don't see the point myself.

    Also, bear in mind that what you will get yearly will be a diagnostic mammo, not just a screening...so it's a good look.

    You may find that when you get to the 2-year point, you will only have to go for bloodwork every six mos.  This is a common interval.

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited September 2012

    Elimar - All my mammograms missed my two cancers, but I still go once a year.

    I just had my first one after my lumpectomy in February. When I called they asked if I wanted a screening or a diagnostic. Since I didn't know, I opted for the screening.

    Can you tell me what the difference is?

    Thanks!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2012

    dogsandjogs, It does not sound like your imaging center is on the ball, or maybe they just have one clueless dodo working the phones, I don't know.  It is my understanding that while you are in the 5-year follow-up, you should be getting the diagnostic mammos.  I believe it is two (or more) extra views on an oblique angle, sometimes a couple of magnified views.  You're getting those whenever they put on those "paddle" shaped attachments. 

    Next time, if they give you, the patient, the option, why not reply that you already had lumpectomy and which are you SUPPOSED to get?   If phone person has no idea, ask for someone who does.

  • wenweb
    wenweb Member Posts: 1,107
    edited September 2012

    I'm a little late jumping in on this topic.  I thought it was universal (in the US anyway) that it was mammograms every 6 months for the first 2 years and then yearly after that, continuing with Dr visits every 6 months until year 5.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2012
    wen,  Many do have that protocol, but I wouldn't say it is universal.  The doctors' have their preferences, and with not all breast cancers being alike, you will find variation.
  • wenweb
    wenweb Member Posts: 1,107
    edited September 2012
    elimar  Thanks for the clarification.  I guess that I'm in my own little cocoon here Surprised
  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited September 2012

    Thank you Elimar! My onc had not mentioned I needed one so I went ahead and scheduled it on my own.  Around the 6 month mark I had asked when I should get one and he just said "Not yet."

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2012

    dogsandjogs,  My own actual timeline was mammo & Dx in June, surgery in July, rads finished by second wk. of Nov. and first mammo check was second wk. of Jan., so mine was 6 mos. after my surgery and 2 mos. after my rads ended.  It can vary a little because they do want you to be healed up from rads., so some might go a little later than I did.  If you are meaning it is your RO who is saying "not yet," maybe it is to wait until you seem healed adequately from rads.  Hope that makes sense and I have not confused things for you.

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited September 2012

    Elimar: I didn't have rads. After an hour-long discussion with the RO I decided against it due to my cancer being on the left side, serious osteoporosis, etc. And I'm only at a 4 percent risk over someone who DOES do the rads.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2012

    hmm, interesting the differs

    I was put on 6 month mamos. diagnostic ones with lots of shots!  at three years, all clear and told to go to yearly as I was so...........good.

    at the yearly, bunch of junk on the mamo and had to do a biopsy, which turned out to be B9 for totally Fd up my summer with the stress!

    now back to 6 month one and plan on having a diagnostic one....in Jan at the 6 month thing

    wonder if overdoing it?

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited September 2012

    I'm not sure they are dangerous, but they are only 85 percent accurate (according to my doc)

    And after having them annually for 30 years, they still missed both cancers. I found them myself doing my monthly self-checks

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited September 2012

    dogs, With what you said two posts ago (no rads) and doing the math from your last post, you're in the ballpark of 70 years old AND that is the magic age when they will sometimes let you opt out of rads (when you have the slow growing cancer.)   For the rest of us lumpectomy gals, rads is almost always part of the package.  If I am wrong, let me know,  but I don't want 40-somethings reading your post and thinking, "oh, her doctor let her skip rads 'cause it was her left side."  That being said, anyone, at any age, can refuse rads treatment.  

    Sorry, not trying to thread-jack away from the mammo topic.

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