Calling all TNs

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  • the5owens
    the5owens Member Posts: 99
    edited September 2012

    I would love to be a part of the Facebook for tn...please sign me up!!



    I did have surgery before chemo...I had a lumpectomy.



    Thanks so much!!

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  • the5owens
    the5owens Member Posts: 99
    edited September 2012

    Ladies thank you all so much for your support. You are all so knowledgable and kind...thank you for helping me through this and always answering my questions!!

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  • OBXK
    OBXK Member Posts: 791
    edited September 2012

    Awaiting my PET/CT. I am hungry and tired!!!!

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  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2012

    you and I can wait together OBXK!  Had mine 2 days ago.  I hate the no eating thing when they schedule you in the afternoon.  It is cruel and unusual punishment!

    Maggie

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  • laura_g
    laura_g Member Posts: 38
    edited September 2012

    Thanks for posting the metformin article, Fighter.  I've been taking the stuff for pcos for 16 years.  Here I am with breast cancer, so I guess I wouldn't be helpful to their study.  Although who knows, may breast cancer would have come sooner if I hadn't been taking it.  I'll be curious to see their results.

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  • OBXK
    OBXK Member Posts: 791
    edited September 2012

    Mags - I hope all the best for you! The freaking machine went down, just as I was going in, had to wait an additional 2 hours. I was feeling very fussy!

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited September 2012

    My PCP prescribed metformin for me when I asked for it and showed her the trials....can't tolerate the amount they are using in the trial.

    Celebrating that my bilateral breast MRI one year PFC is NORMAL!!!!

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  • Titan
    Titan Member Posts: 2,956
    edited September 2012

    Just saw on the news tonight that a woman tried to "fake" breast cancer so she could get implants...seriously...she is going to spend a year in jail...good for her...gah..

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited September 2012

    Titan... that is sick.  A year in jail ??  I'd make her do chemo, mx with no recon and radiation.   Disgusting !

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  • TifJ
    TifJ Member Posts: 1,568
    edited September 2012

    Lovely, I took Ativan for a year, but never had any side effects. Sometimes I had a rapid hearbeat, but I was never sure if it was just anxiety or the one of many meds I was taking at the time!

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  • borntosurvive
    borntosurvive Member Posts: 213
    edited September 2012

    Painting:  I am part of the study and could not tolerate the 2 pills a day but in the study it says you can just take 1.  So I'm just doing the 1. 

    Titan:  That is SICK.  Not sure if you remember the incident of the woman who faked cancer to get money from a fundraiser at her school where she taught.  Some people are sick and desperate.  

    Just came home from Yin Yoga and feel really good - exactly what I needed tonight.  

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited September 2012

    borntosurvive....Thank you that is good news. That is what I am doing but taking half inthe morning and half at night. How are you doing it.

    Titan...well why doesn't that surprise me....I am sure she isn't the first.

    Lovely...I took ativan during/before chemo and other tests....barely made a dent in my anxiety. For me it did next to nothing so I didn't have any side effects. I don't know what would happen if they had given me more but the first treatment I had 2mg and felt next to nothing. I did not get sleepy or calm or disoriented. I may have been a little less anxious but had to use my friends to distract me and get me through those first days.

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  • borntosurvive
    borntosurvive Member Posts: 213
    edited September 2012

    I am taking the full pill with my dinner.  It seems to help when I have a meal in my stomach and also if I get a stomach ache, it's when I'm sleeping.  So that seems to work.  I have tried 2 pills a few times and the result is me not being able to digest anything or eat anything raw.  Not worth the constant trips to the bathroom and stomach cramps.  I was happy that I could just take the 1 pill and still stay in the study.  Good luck with yours.  There are some promising stats coming out. 

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  • TiffanyF4
    TiffanyF4 Member Posts: 171
    edited September 2012

    Hello lovely ladies! Just wanted to drop in and wish everyone well. Haven't posted in a while but I try to stop by every week and read up! I celebrated my 3 years as a TNBC survivor on Sept 22nd. Spent the day at the ball park with my family watching my 10 year old son play baseball and then the evening with friends. Can't think of a better way to celebrate being alive!!!! Just know that I continue to keep all of you in my thoughts daily.  Not a day goes by that I don't realize that there are so many fighting hard for their lives. Kiss

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  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2012

    Wow 3 yrs...that is wonderful TiffanyF4!!  We all celebrate your victory and here's to gettin on with life!

    Maggie

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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited September 2012

    Congratulations, Tiffany!  That's a fabulous milestone!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2012

    Tiffany,3 years!!! Wow that is wonderful..

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited September 2012

    How come when you mix water and flour together you get Glue ?

    And then you add Eggs...

    And Sugar...

    And you get Cake ?

    Where did the Glue go ?

    NEED AN ANSWER ?

    You know darned well where it went !

    That's what makes the cake Stick to your bum and hips !





     
     
      
      
      
      
      
      
      
      
      
      
      
      
     
     
     

     




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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited September 2012
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  • journey4life
    journey4life Member Posts: 517
    edited September 2012

    Bernie - keep the jokes coming. I so look forward to them!

    Born - congrats on your negative BRCA results!

    Luv, Lory, Lynn, Inspired and anyone I forgot - I completely agree with knowing vs. not knowing, especially when there's the possibility that mets may give no symptoms until they're "bad." I like what Inspired wrote: "the unknown is worse that the known." Hopefully, I'll be able to convince my MO of that...

    Painting - YAY on your normal MRI, CA15-3 and CEA results! I hope you're still celebrating!

    the5owens - I'll be thinking of you on the 1st. You can and will get through it! ((((hugs))))

    Tiffany - thanks for the encouragement. As I'm sure you know, we all need it more often than we admit.

    Cocker - I totally agree with you when you said that you feel like you'll never be free of cancer...waiting for the other shoe to drop. That's been my constant outlook since this journey started. At the oddest moments, I break down. I finally decided I needed some help and went to my PCP yesterday. She prescribed Zoloft and Xanax after telling me I had acute depression. She assured me that I would start thinking positively (like I used to) and would be able resume a life that isn't consumed with cancer and all the changes it has made to my life. I sure hope she's right. I HATE CANCER AND WHAT IT HAS DONE TO MY LIFE. I just want to go back to the normal worries like paying bills, making home repairs, etc. I'm tired of being so down and having to put on a happy face when I don't want to!

    Love and Hugs to all, Lisa

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  • bak94
    bak94 Member Posts: 1,846
    edited October 2012

    Just stopping by to say hi to everyone!

    Glad to hear good news.

    Has anyone heard from inmate or hope? We are thinking of you! Would love to see a quick note from you gals when you feel up to it!

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  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2012

    Need your hugs ....picked up my pet scan report.  See the ONC on Tuesday for the results officially but on it says there is a nodule on the left lung.  That is the side that I had rads so I am really hoping that is what it is.  Says that it shows no signs of hypermetabolic activity and should be checked again in 3 months.  Blah...It is going to be a long weekend til I see her on Tuesday and get her opinion.  I hate this stupid disease so much.  It has turned me into a hypocondriac!  I am going to try to stay calm til I here different but man this is tough!

    Maggie

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  • onvacation
    onvacation Member Posts: 1,344
    edited September 2012

    HUGS Maggie - hope it is just the rads like you said!

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  • JAN69
    JAN69 Member Posts: 947
    edited September 2012

    Maggie - I feel your fear and sending you warm, gentle hugs filled with understanding.  Jan

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  • xxxxx
    xxxxx Member Posts: 67
    edited September 2012

    Hello Everyone

    Know I haven't been in for the past few days-week. First congrats to everyone on their progress and prayers to all that are still treading the chemo/rad/tests/surgery waters. Did that make sense? haha Sincere prayers and congrats. Hope that made better sense Cool

    Made it through my first 2 of 3 tests. Mammo on Monday. Not too many track marks left from 6 attempts to find a vein in my poor arm. Yikes I tried to trade in my port but it doesn't return so they couldn't use it. I am proud of me for not first, cursing, LoL and second passing out. I had one of my sisters with me and she almost got sick from watching. I TOLD HER NOT TO!!! LoL No results back yet but I expect great errrr good ones. Positive vibes kicking in there. I get total results and feedback on Wednesday. I am begging and requesting still more prayers.

    Tazzy rads aren't bad just time consuming, at least for me. I only still have one problem from it and that is I get real tired two or three times a day so I have doubled my caffeine intake. I am trying as of today to cut back on my coffee consumption BUT I am rationalizing that there aren't too many things I enjoy in life. I want for not much at all, a paint brush, canvas, WINE, sewing machine, tons of art supplies and fabric. HaHa Oh yeah and to enjoy this FALL season, My most favorite time of year. Last year I hugged the bed, this year so far I have put pumpkins, witches and deoc's in my yard already in anticipation that I should not be so fortunate to enjoy the holiday seasons this year. It is HE$# to have to wait and worry.

    Whew made up for the time not being here!! I do sincerely pray for the day that NO ONE has to go through all of this and that we can at least have the comfort in knowing through all that we are going through that we are helping to end or ease those who may follow.

    Have an AWESOME LIFE EVERYONE!! Pray we all have a GREAT HOLIDAY season and may all our treatments and test get us that much closer to KICKING CANCER IN DA BLEEP!!

    Prayers

    Karen

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited September 2012

    Hugs and thoughts Mags.

    Thanks kareybeth... everyone says rads are a walk in the park compared to chemo... so hoping for a nice stroll for five weeks.

    Everyone have a wonderful, joyous weekend.

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  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited September 2012

    Lovely, I have no side affects from Avitan.  It doesn't really seem to do anything for me, as Painting described.   I still take one now and again when I am having trouble sleeping and it helps some.

    I am taking 2 850 mg metformin that my MO gave me based on the trials.   I am small too and tolerate it fine but went VERY slow working up to the 2 pills.  It took me 6 weeks total by doing 1/2 pill once a day, to 1/2 pill twice a day, to 1 pill AM and 1/2 pm, then up to 1 pill AM and 1 pill PM.  I always try to take it with food.

    I had my first mammo/ultrasound since treatment ended.  All looked well but my anxiety isn't really better because I have no faith in mammos anyway.  I have dense breasts and don't expect them to ever find anything small.  I feel that I will find anything abnormal if a lump comes up again, just like I did the first time.  I am still contemplating asking the MO for one scan just so I can get an all clear and move on.  I see him in 3 weeks.

    Mags, it sounds like it is nothing.  Hang in there.  We are holding your hand.  Waiting is THE WORST! ((Hugs))

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited September 2012

    So much to celebrate ladies, a 3 year anniversary, and a clean bilateral MRI.  Ladies, rejoice, good news, I am so happy for both Tiffany and Painting.  Bak - don't forget to tell us how the pet/CT goes.  Painting - your breast tissues must be really nice and fresh, as MRI's show so many false positives.  I have had to do biopsies with MRI's but yours - you got such great news. Thanks to all who told me about their side/effects or experience with Ativan.  I am in the same boat, it kind of helps me sleep, but now I am kind of afraid to continue to take it.  I have taken 1 mg. since the cancer diagnosis, every other day or so, kind of loosens me and gives me a good night sleep, but I have some weird symptoms always going on, so was just wondering, since it is the only drug I take.  I counted and realized I had taken 500 of those 1 mg. by now........ I wonder what it does to your brain.

    Someone wrote about scans - I know it is such a personal decision whether to get something checked out or not, but I am so freaked out about scans, as every single time I have one, a few months later, I have something going on in that area.  and then running to doctors to sort things out.  I had a brain scan in April, 2012.  Now I am dealing with eye problems and pain behind the eye...... headaches.  I am not going for another scan, even if it is the monster.  It doesn't scare me anymore......... come whatever may, but I am staying away from scans.  It is a very personal decision.

    I am a little worried about Dawn (our Inmate).  I hope that sweet, beautiful, woman is feeling okay and having a comfortable time.  I am sending prayers to her that she is comfortable.  Such a beautiful and brave woman, she is.  My hats off to her.

    Fighter - good to be here.  Love you all so much.  You are all my family.

    Annie - That was so funny!!!!  Those pumpkin bumps!!!!

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  • TifJ
    TifJ Member Posts: 1,568
    edited September 2012

    I'm worried about Dawn too. She hasn't logged on in 6 days. Hoping she is alright.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited September 2012

    I actually just signed on to check on Dawn. 

    Dawn I hope you are doing ok ((hugs)) 

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