Calling all TNs

15975986006026031198

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  • JazzyJ
    JazzyJ Member Posts: 126
    edited September 2012

    Born to- WOO HOO!! Yipee!!! Thrilled for you!!!

  • onvacation
    onvacation Member Posts: 1,344
    edited September 2012

    Tazzy - good luck on radiation!  For me the worst part was going every day!  Born - woohoo on the genetic testing!

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited September 2012

    Born - Brilliant news.

     

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited September 2012

    Good evening Ladies

    LUV - I notice you mention Dana Farber  a lot in your posts. Is this a cancer hospital where you live or a major hospital in your home town? I would have to travel an hour away to get a reasonable size hospital as Taupo is only a small one.  

    Titan - Very disappointed that I just cannot get those pics. 

    LSMattews - Congratulations on reaching a year. Wonderful news.

    Sandlake - thanks for the info on oophorectomy.  The problem I have is that I have a fear of nausea and vomiting. When I had my hysterectomy at age 32 the gas in my tummy made me vomit so I am scared to go for the oophorectomy because of the gas.  What did it do for you.  

    BAK94 - hope your surgery goes well for you.  I suppose I will have to make up my mind at some stage about having it done but I am dragging my feet quite a lot.

    I too am finding it hard to concentrate on my job at the moment.  I'm not sure if its the thought of a recurrence and having to take more time off that is making me depressed or what.

    Mags - hope your PET scan goes well for you next week.  Goodness knows how you put up with having the needles in your feet that would freak me out. 

    Born - that is terrible that all those people in your family have had  cancer, so scary for them.  But congratulations on you not having the gene.  Way to go.

    Luah - I totally agree.

    Minx - with you there.  I don't think I could handle the stress of waiting for results etc either so I just don't want to know.

    Hope - so glad you posted and hoping this treatment is so much easier for you.  Big warm fuzzie hugs to you.

    Melissa - hi Melissa sending you a big warm hug too.

    Tazzy - I can honestly say radiation was a breeze for me.  No tiredness, no burning, no nothing,  just a little bit of redness.  The worst part was being away from my family for five weeks.  You will do fine girl.

    Spica - thanks for your explanation on basal-like.  Medical terminology is so hard to understand when it relates to cancer. 

    Heather - glad to see you are back posting and you have your hubby with you now but sorry to hear you have anxiety.  Its such a horrible thing to have but a symptom everyone on here understands.  Thinking of you.

    Have a great evening ladies. Thinking of you and wishing you all well.              

  • borntosurvive
    borntosurvive Member Posts: 213
    edited September 2012

    SO cute Bernie.....thanks!!! 

    Cocker:  There is no history in my family, it's my husband's family where the history is.  

    The genetic counselor I saw yesterday said that if people were tested for the gene prior to 2004 they should be tested again.  Apparently then it was only catching 80% of people with the gene.  Now they catch 95%.  Amazing how we've evolved in research.  

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited September 2012

    CS - Dana Farber Cancer Institute is one of the most prominent cancer hospitals in the country.  It's located in Boston, MA, and is about an hour from where I live. 

    http://www.dana-farber.org/About-Us/History-and-Milestones.aspx

    The link will explain its history a bit. 

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited September 2012

    CS - Dana Farber Cancer Institute is one of the most prominent cancer hospitals in the country.  It's located in Boston, MA, and is about an hour from where I live. 

    http://www.dana-farber.org/About-Us/History-and-Milestones.aspx

    The link will explain its history a bit. 

  • Sandlake
    Sandlake Member Posts: 211
    edited September 2012

    Cocker~ I tell my anesthesiologist I get very nauseous, they give me something before they put me under.  They also put a patch behind my ear, it looks like the one I use when we sail to keep me from being sea sick.  My stomach was very bloated but I didn't feel sick, I just passed a lot of gas!!

  • netty46
    netty46 Member Posts: 296
    edited September 2012

    minxie why you chose no chemo 2nd time? what did docs tell you?

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited September 2012
    That patch behind the ear is called a scopolamine patch.  I used it for surgery and for chemo, and it worked great.  It does make you really thirsty, which is not a bad thing because you want to drink lots of fluids when undergoing treatment.  And it works well for seasickness Laughing
  • minxie
    minxie Member Posts: 484
    edited September 2012

    Netty - I consulted one of the top TNBC doctors in the country after my local recurrence, and she said there was no data to confirm that a second round of chemo after a local recurrence would help. She said there was a chance it might, but no one knew for sure. After my first experience with chemo (ACT) I knew I didn't want to do it again unless I had some guarantees it would make a difference. She also said the ACT was the strongest chemo out there, and if it didn't work on me, well... So I'm hoping the rads I did this summer kills it off this time around.

  • minxie
    minxie Member Posts: 484
    edited September 2012

    Thanks for all the info Spica! Guess I'll see if my medical onc has any info next time I see him.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited September 2012
    Brother John entered the "Monastery of Silence" and the Abbott said,
    "Brother, this is a silent monastery; you are welcome here as long as you like, but you may not speak until I direct you to do so."
    Brother John lived in the monastery for five years before the Abbott said to him, "Brother John, you have been here five years now; you may speak two words."
    Brother John said, "Hard bed."
    "I'm sorry to hear that," the Abbot said. "We will get you a better bed."
    After another five years, Brother John was called by the Abbott. "You may say another two words, Brother John."
    "Cold food," said Brother John, and the Abbott assured him that the food would be better in the future.
    On his 15th anniversary at the monastery, the Abbott again call Brother John into his office. "Two words you may say today."
    "I quit," said Brother John.
    "It is probably best, you've done nothing but complain since you got here."
  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited September 2012

    Bernie - that was a great joke.  Thanks 

  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited September 2012

    Bernie...so funny

    Minxie...wow, so many things to learn. Glad you got a good consult.

    Luv...you are right...you will be here.

    Heather....damn anxiety

    Got great news today...MRI normal and CA-15-3 and CEA in normal range....

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited September 2012

    Hi Ladies! 

    I agree 100% with Luv.  I don't know why certain tests are not standard protocols from office to office.  It's confusing for patients to navigate their care, when we come to bc.og and see that like patients with like circumstances/diagnosis as ours having different sets of tests, different timeframes for follow-ups, etc. My logic is the same as Luv.  Isn't it easier to treat and possibly put something into remission, while it is small before symptoms present themselves, instead of waiting until it's a larger issue with outright symptoms?  

    I think also, trust your gut on what you think is going on as well.  Before I had confirmation of my BC, I cried in my bathroom every day for 2 weeks, just knowing it was BC, the female intuition thing.  Even though mine was small, round edges and moveable - the classic signs of a benign tumor, I knew it wasn't.  I only got relief the day I found out it was BC. The unknown was worst than the known. I still cried for a whole day when I got the news, but only until I met my Surgeon.  Once he walked through the door, I knew I was going to be okay.  

    Trust your gut, and get in with an office that makes you feel 'comfortable, alive, healthy, and believes in you'.  

    Hugs to all!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited September 2012

    This is what i think of cancer

     

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited September 2012

    Where's that LIKE! button when I need it!  LOL, Anne!

  • the5owens
    the5owens Member Posts: 99
    edited September 2012

    Hello ladies hope everyone is well!! I start my first chemo session Monday, October 1st!!! Terrified but ready!!

  • Tracyc3771
    Tracyc3771 Member Posts: 20
    edited September 2012

    Hi, the5owens!  What is your chemo regimen?  Are you interested in joining a closed group on Facebook for TN only?  If you are, let me know and I will get your info to one of the administrators.  It has been a great support and resource for me.  Sounds like you may have had surgery prior to chemo? 

  • Tracyc3771
    Tracyc3771 Member Posts: 20
    edited September 2012

    Hi, the5owens!  What is your chemo regimen?  Are you interested in joining a closed group on Facebook for TN only?  If you are, let me know and I will get your info to one of the administrators.  It has been a great support and resource for me.  Sounds like you may have had surgery prior to chemo? 

  • Lovelyface
    Lovelyface Member Posts: 674
    edited September 2012

    Ladies, does anyone on this site have any side effects from Lorazapam (Ativan)?  Please do tell, as I want to see if the problems I am having may be related to that.  I take just 1 mg. some nights.  If you notice anything that you might may be the side effect of this wonder drug, please let me know.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited September 2012

    Nice one Annie.. ha ha ha !!

    The5owens... thinking of you for October 1.... you are strong, you will come out the other side.  The waiting and anticipation I found way the worse thing.

    lovelyface.. sorry cant help - never taken ativan.

    (((((to everyone)))))

  • ksmatthews
    ksmatthews Member Posts: 812
    edited September 2012

    Tazzy rads were so easy compared to chemo.  The worst part is the going everyday and fatigue.  I had no burning or anything.  My RO gave me a lotion called Miaderm and I used it faithfully.

    Hope so glad you were able to post.

    Born yay for your great news! 

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited September 2012

    CS - I "stole" your picture for my blog.  It is so funny!!!

  • borntosurvive
    borntosurvive Member Posts: 213
    edited September 2012

    5owens:  Good luck.  The first one is always the most anxiety provoking but once you get that one under your belt you're one step closer to the end and you'll know what to expect.  I found charting my symptoms each day helped me to find a pattern of the "good days" and not as good days with my side effects.  We'll be right there with you.  GO get em Girl!!!

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited September 2012

    http://www.businessweek.com/news/2012-09-25/five-cent-diabetes-pill-from-1958-may-be-new-cancer-drug For those who are on the Metformin study. Some positive info. to read.

    It was Tuesday night I couldn't sleep well. I saw this special on PBS about scans and how they produce so many false positives, and then patients are over treated. Most Drs. said patients would have lived with rather than died from most things discovered. Also, most of the doctors that were interviewed came to the same conclusion that too many scans produce cancer in most cases. However, no one said what a better solution would be either. So I guess it comes down to a personal choice. What can you tolerate??!!?? Also with a TN dx being proactive to me is always a good thing.

    Cocker that pix is tooo fun-nay!!

    Inmate and Hope (((HUGS)))

    Lovelyface-nice to see you again

    Standard of Care-It is so confusing. I am checked every 3 mos with a breast exam, blood draw and then he takes this mallet and pats it down my back. Since I had a BMX I am not due for a Breast MRI just yet.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited September 2012
    The following came from an anonymous Mother in Austin, Texas...
    Things I've learned from my boys (honest and not kidding):

    A king size waterbed holds enough water to fill a 2000 sq. ft. house 4 inches deep.

    If you spray hair spray on dust bunnies and run over them with roller blades, they can ignite.

    A 3-year old Boy's voice is louder than 200 adults in a crowded restaurant.

    If you hook a dog leash over a ceiling fan, the motor is not strong enough to rotate a 42 pound Boy wearing Batman underwear and a Superman cape. It is strong enough, however, if tied to a paint can, to spread paint on all four walls of a 20 x 20 ft. room.

    You should not throw baseballs up when the ceiling fan is on. When using a ceiling fan as a bat, you have to throw the ball up a few times before you get a hit. A ceiling fan can hit a baseball a long way.

    The glass in windows (even double-pane) doesn't stop a baseball hit by a ceiling fan.

    When you hear the toilet flush and the words "uh oh", it's already too late.

    Brake fluid mixed with Clorox makes smoke, and lots of it.

    A six-year old Boy can start a fire with a flint rock even though a 36-year old man says they can only do it in the movies.

    Certain Lego's will pass through the digestive tract of a 4-year old Boy.

    Play dough and microwave should not be used in the same sentence.

    Super glue is forever.

    No matter how much Jell-O you put in a swimming pool you still can't walk on water.

    Pool filters do not like Jell-O.

    VCR's do not eject "PB &J" sandwiches even though TV commercials show they do.

    Garbage bags do not make good parachutes.

    Marbles in gas tanks make lots of noise when driving.

    You probably DO NOT want to know what that odor is.

    Always look in the oven before you turn it on; plastic toys do not like ovens.

    The fire department in Austin, TX has a 5-minute response time.

    The spin cycle on the washing machine does not make earthworms dizzy.

    It will, however, make cats dizzy.

    Cats throw up twice their body weight when dizzy.

    80% of Men who read this will try mixing the Clorox and brake fluid.

    Those who pass this on to almost all of their friends, with or without boys do it because:
    a) For those with no children - this is totally hysterical!
    b) For those who already have children past this age, this is hilarious.
    c) For those who have children this age, this is not funny.
    d) For those who have children nearing this age, this is a warning.
    e) For those who have not yet had children, this is birth control

  • netty46
    netty46 Member Posts: 296
    edited September 2012

    Luvring  how hi was your marker?  when was your last pet scan? before this one?

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited September 2012

    Hilarious, BE Laughing

    Thanks for the link to the article about Metformin, Fighter.  We still have a long time to wait before there is any firm evidence.  In the meantime, the story continues to be promising. 

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