Frozen Shoulder...It can get better

24

Comments

  • Artemis
    Artemis Member Posts: 759
    edited August 2012

    Hello, All ~
    My physical therapist released me two weeks ago because I wasn't making any progress.  She sent me to an orthopedic surgeon who put two more cortisone shots in my shoulder.  (That makes four that I've had since February.  The other two were from my PCP.)

    My shoulder now feels much more stable and not like it's falling out of the socket, and the pain isn't nearly as bad.  It's still ache-y, and it burns, but thankfully it's not that sharp stabbing pain.

    Gentle hugs to everyone.

  • Ginger48
    Ginger48 Member Posts: 1,978
    edited August 2012

    I have had 3 cortisone shots and lots of PT and my shoulder is much better in terms of range of motion and daytime pain but I still have lots of pain and cramping at night while trying to sleep.

  • Reality
    Reality Member Posts: 782
    edited September 2012

    cookie - Yes - WTH? Why were never told about frozen shoulder - the pain is absolutely unbelievable - especially at night - far worse than my post-surgery lx pain! Ironically, I guess it happened to me for a reason - If I had not had severe shoulder and arm pain for months, my Onc. would not have order x ray, bone scan and CT scan. The scans showed nothing for my shoulder and arm pain, but did show lung mets! Darn - what next? 

    I went to my BS yesterday - all is well with breasts. She stated that she would be really surprised if I have lung mets....well, she must be very surprised as my med onc called me last night to give me scan results.... I'm going to have a bx this week. Just cannot bring myself to change my info to state "Stage IV Mets", until after the bx report. Hugs to all.

  • Ginger48
    Ginger48 Member Posts: 1,978
    edited September 2012

    Reality- Just want to say I am sorry you are dealing with more crap! I hope the report shows that it is just scar tissue or something else easily treated.

  • fadheir
    fadheir Member Posts: 63
    edited September 2012

    is it possible that frozen shoulder will appear after 4 years from the surgury ?

  • crystalphm
    crystalphm Member Posts: 1,138
    edited September 2012

    I would say the answer is yes, especially if you are carrying your arm differently or favoring that side.

    Mine comes and goes, and I still have no idea why. I get it to stop hurting by immediately begin doing the physical therapy exercises prescribed. I should do them all the time, but well, i don't.

  • Momine
    Momine Member Posts: 7,859
    edited September 2012

    I have had the beginnings of it on both sides, although I only lost the sentinel node on the left. Crippling pain and impaired movement, no fun at all. So far I have found that if I make sure to stretch and exercise it as soon as it acts up, it gets better. I also found that after 3 months in the gym 3-4 times a week, doing just really light weight work on the upper body, my shoulders are in way better shape (they look completely straight at this point) and I have not had a twinge in ages. 

    So it seems as if proactive exercise can help, at least sometimes. 

  • Reality
    Reality Member Posts: 782
    edited September 2012

    I also find that doing exercises helps calms the pain down, but it is still always there to some degree. Ironically, if my shoulder was not frozen, I would not know that I have lung mets. as I would not have had a bone or CT scan done at this time. I do not, of course, mean to sound as those discovering mets is a good thing - I knew my cancer had spread or recurred. I felt the same way I did when original cancer was diagnosed-constant nausea and fatigue. Now I can move ahead and fight once again.

    The worst part of the pain for me is trying to sleep - I cannot sleep on the frozen shoulder side. I am not a back sleeper, so that does not work and I cannot sleep on my right side as my right lung collapsed during a bx last week. Darn it all.

  • Reality
    Reality Member Posts: 782
    edited September 2012

    Cookie- I just reread your starting post - I agree -why the heck didn't anyone warn us! Even now, none of my med profs will state why my shoulder is frozen. My BS told me that it just happens sometimes and noone knows why. I often feel that med profs are so afraid of lawsuits if the procdedure they did lead to the pain. Rads will not admit it could be the rad treatment. BS will not admit it could be the surgery. Not that it really matters. I just like straight answers.

  • Momine
    Momine Member Posts: 7,859
    edited September 2012

    Reality, that sounds incredibly bothersome. I am sorry you are dealing with that. As far as I can tell from what I read, the problem is  inflammation of the lining/pocket (I think) around the shoulder joint. It seems that almost all cancer treatment causes inflammation, so it may be that it is genuinely impossible to tell which part of the treatment brought it on.

  • fadheir
    fadheir Member Posts: 63
    edited September 2012

    Thank you Crystalphm,

    the side of the operation starts after Mas. but since 6 months i have the other side pain as well

    I wish its only Frozen shoulder and not somthing else

    you know what its very strange that i do not experience pain during morning when i do daily activity but when i go to bed the pain starts when i sleep on the opposit side while if i sleep on the frozen shoulder i do not have pain, its just like the pain starts when i dont use my arm or rest for long time.

  • Reality
    Reality Member Posts: 782
    edited October 2012

    Hello to all - my computer has been down for awhile, but I finally took the time to run the self-repair function and it worked. I have also been busy with med appt's. I had another lung bx. that confirmed triple neg. bc in lungs - oh well - my mo and I expected that. I have started chemo again - already did the ceremonial head-shave. I find it's better to just go for, rather than wait for the hair to fall out. I also found it tough to keep looking at my hair and fixing it, when I knew it would be gone again. I even did it myself this time. A good friend shaved it last time, but she cried throughout the procedure. She is expecting now, so I decided to save her and me the stress of  her doing it for me. 

    Thanks for the support concerning the frozen shoulder - I have been doing exercises, but the best help so far has been the darn steroids I receive IV at chemo. I hate steroids as they make me feel like a hyperactive maniac, but I must admit that the pain relief in my shoulder is a definite plus! 

  • cookiegal
    cookiegal Member Posts: 3,296
    edited October 2012

    Gosh, I have not checked on this thread in some time.

    I actually think that (at least for me) the exercises at PT were a major factor.

    If I do the wrong ones for LE, I still can set off spasms.

    I mean I wouldn't take back my surgery choices, but it is ironic since my reduction/lumpectomy was supposed to have the added benefit of PREVENTING shoulder problems.

    I also had a very very very very long wire insertion, and I think that didn't help.

    Reality, damn, sorry for all you are facing.

    I have a friend who after having a lump, decided to have a bi-lat, elective.

    While I respect her right to that decision, I feel like in those situations women should know about all the possible side effects.

    I mean not driving for 4 months had a big impact on how and where I could work.

  • Artemis
    Artemis Member Posts: 759
    edited October 2012

    Hi, All ~
    I haven't checked in lately either.  I've learned that all the PT has done no good because I have a "hooked acromion".  That means a small and misformed (Is that a word? Maybe I mean "deformed".) bone under the clavicle is constantly digging into the inflamed tendons which explains why the pain is lingering.

    The only way to fix this is with surgery to file down the bone.  I'm hoping to get this done before the end of the year. 

    Reality ~ I'm so very sorry about your lung mets.  (((hugs)))

    Artemis

  • di1947
    di1947 Member Posts: 13
    edited January 2013

    My frozen shoulder (adhesive capsulitis) started a year after my umx. I had upper arm pain, which I thought might be LE and I could not reach back with my left arm to fasten my bra. The physical therapist said that scar tissue had built up in my armpit and she is working now to break it up. She said she sees it often after breast cancer surgery, but no one mentions it to patients. She manipulates the shoulder and I do exercises which is already giving me some relief.

  • gillyone
    gillyone Member Posts: 1,727
    edited January 2013

    You are right di 1947. There are so many of us who got frozen shoulder and knew nothing about the possibility of it after surgery.

  • DATO
    DATO Member Posts: 127
    edited January 2013

    I had a mastectomy on the cancerous side in 2006, and prophylactic mastectomy on the other side in 2007.  It wasn't until about 6 months after the reconstruction (DIEP) in 2008 that I developed frozen shoulder.  Mine never caused pain; I just lost about 50% of my range of motion in my left shoulder (non-cancerous side).  I went to PT and I now work with a trainer at the gym two days a week.  It is SLOWLY getting better.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited January 2013

    Now wouldn't it have been nice if someone warned us in advance of the possibility of frozen shoulder???!!! Following my surgery to clean up my shoulder, I was a good girl who did her exercises every day for a long time. I had had shoulder surgery 5 years before on my other shoulder, so I really needed to strengthen my shoulder blades. I was doing pretty well, until Sandy hit and we were evacuated twice. Before I knew it with all the schlepping and cleaning up, my shoulder started hurting by day and started to wake me up at night. I immediately resumed my stretching and strengthing exercises and I am now feeling better. I am resigned to doing my exercises for the rest of my life and also contemplating moving inland.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited January 2013

    V.R. sorry about all of it! Are you NJ, NY, or CT?

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited January 2013

    Cookie... Don't worry about me! I only had $4k damage to my home and thankfully no flooding! I have friends whose homes were destroyed. Daughter's building now has 40% occupancy. Ghost town. Miss my stores. Feel bad for so many business owners. Spoke to building inspector today. Going to take 5 years for my community to get back in shape.



    I feeling better. Doing my exercises EVERY.SINGLE.DAY.



    Two friends have frozen shoulders now...Oy how time marches on.....

  • cfdr
    cfdr Member Posts: 549
    edited February 2013

    Frozen shoulder is most common in women who are post-menopausal: same group that is most likely to get BC. So although there can be a connection, it's also possible to get it regardless of whether or not you have had BC/surgery/rads.

    My right shoulder started freezing up before I was diagnosed with BC; in fact, I was already in PT when I began BC treatment. They had to modify my position in the radiation bed because I couldn't get my arm above my head. A year after the frozen shoulder was healed, I started to get pain in that shoulder again, and was told I have minor rotator cuff tears. Not sure how they got there, as I never lift anything heavy! I know my limits, and I don't pick up anything heavier than a cup of coffee.

    While in PT for the rotator cuff, the left shoulder started freezing up. So now I'm in PT for that. Add to that the PT I've had for lymphedema, costochondritis, and pelvic floor dysfunction, and I'm getting frequent flyer miles at the PT clinic.

    I found that the cortisone shot *did* help for the pain, and enabled me to do the PT exercises. My range of motion increased immediately with PT. I'm pretty faithful about doing the exercises every day, twice a day if I can. I can sleep on both sides now, and I'm not afraid that the pain will make me see stars because I looked over my shoulder while putting a dish in the cabinet or some other minor motion.

    The rotator cuff is tougher...PT hasn't helped much with that. I do those exercises daily, too, but have been told that the only real solution is surgery. Feh.

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited February 2013

    cfdr...Following surgery for my right shoulder, it took a very long time to recover...so I wasn't in a hurry when several years later I needed surgery for my left shoulder.  WAS.I.STUPID!    With the second surgery, my recovery was SWIFT!  I was kicking myself for not doing the surgery sooner!   I can't tell you how much pain I was in before the surgery and how sleep deprived I was!  That was FEH!Tongue Out

  • Momine
    Momine Member Posts: 7,859
    edited February 2013

    CFDR, you sleep on both sides? I meant to ask my doc about that, but forgot. After my surgery, I was told I could not sleep on the side where I had nodes taken, forever (or that is how I understood it).

  • nihahi
    nihahi Member Posts: 3,841
    edited February 2013

    Anybody have shoulder issues flare up because of an implant capsular contracture? I have been doing physio for bilateral shoulder "impingement" problems. Left side has resolved and is about 95% of normal. Just needs to be strengthened. The right shoulder, OY!, and that is the side that has the "alien" implant. We found that as the shoulder released, the implant pain increased, so have decided to stop aggressive physio tx on that shoulder until after my DIEP surgery in April. I'm still doing the ROM and strength home exercises as best I can. I'm a bit worried of what they might "do" to my shoulder while I'm in surgery but am hoping once the contracture has been eliminated, the stress on the shoulder will resolve too.

  • alilou7497
    alilou7497 Member Posts: 69
    edited April 2013

    Hello guys:

    My issue is not necessarily frozen shoulder, at least I don't think so.  I can move my shoulder my problem is a dull annoying pain in the middle of my right shoulder blade.  My cancer was in the right breast.  I haven't had reconstruction because the TE had to be removed due to infection.  Then I had radiation which left me severely burned and scarred so I don't know if the pain is steming from any of those problems.  I am however, extremely concerned.

  • mrenee68
    mrenee68 Member Posts: 383
    edited April 2013

    Have you talked with any of your Drs about your pain? You can always get a referral for an evaluation from a PT. You should differently talk to someone, being in pain is no fun. Take care.

  • msphil
    msphil Member Posts: 1,536
    edited April 2013

    I had frozen shoulder and arm, I had 3 nodes removed and I was sent to physical therapy and it was painful for a few and then it actually got better, I couldnt use my arm at first But PT really did the trick, I started by walking my arm up and down the wall, thank God it was back to normal in no time with pT. msphil(idc, stage 2, 3 nodes, L mast, chemo and rads and 5 yrs on Tamoxifen and by the grace of GODI am now 19 yrs this year Survivor.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2013

    Wow!!!  I am so grateful that there is all of this information to read about things I am going through as well.  I only wish I found this earlier.

    God bless you all

    OneHungLo

  • LilacBlue
    LilacBlue Member Posts: 1,636
    edited May 2013

    I too developed frozen shoulder during PT after left mx/reconstruction. The setback was debilitating, getting worse and finally my PT refered me to an orthopedist.  That is what turned it all around for me.  I received a  corticosteroid injection in my left shoulder joint.  That did it, finally free from pain, my PT was able to perform stretching exercises using specific techniques to move the joint in all directions.  I now have full range of left arm movement although, I don't push it nor press weights at the gym.  Odd that my PS did not think the surgery was responsible and yet the Orthopedist and PT both said it was due to mx surgery trauma.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2013

    The injection brought me immediate relief painwise as well. Finally, I could sleep at night. Then pt to work on range of motion.

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