Calling all TNs

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  • LynnME
    LynnME Member Posts: 35
    edited September 2012

    Luv, THanks for the information. I would rather know then wait for something to show up. Espicially since you didn't have any signs.

    Mags...just noticed you live in Melbourne fl, I used to live there off Wickham road near the zoo. Stationed at Patrick, miss Melbourne, but love being home in Maine, with the fall colors.





  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2012

    Luv, Thank you for your input. I am of the same methodology (sp). I WANT to know what is going on within my body. Are they testing, can they test. What do they mean? I have read and re-read my path report 1st and final. I want explanations not mumbo jumbo.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2012

    Luv, Thank you for your input. I am of the same methodology (sp). I WANT to know what is going on within my body. Are they testing, can they test. What do they mean? I have read and re-read my path report 1st and final. I want explanations not mumbo jumbo.

  • ksmatthews
    ksmatthews Member Posts: 812
    edited September 2012

    I went today for my 6 month follow up mammo and have graduated to 1 year!!!  

    Luv so glad that the trial is going good and easy on you!  ((hugs)))

    Inmate, and hope I pray you both are doing good.  ((hugs)) 

  • Sandlake
    Sandlake Member Posts: 211
    edited September 2012

    Hi Cocker~ It is so nice to come here and discuss our fears with people who truly understand!  This is a very difficult part of my life, hard to stay focused on all the good sometimes.

    My hysterectomy/oopherectomy was Aug 20th.  My onc/obgyn used the daVinci method, a computer guided robotic procedure a lot less invasive, faster recovery.  I had very minimal abdominal pain after, I think the gas they used during surgery caused the most discomfort.  I have 4 small incisions, no big deal!  I am 2 years post menopause, I shouldn't experience any hormonal problems.  I need to do my Kegel exercisesWink

    Enjoy your day!  

  • Sandlake
    Sandlake Member Posts: 211
    edited September 2012

    ksmatthews~ Yay for your graduation! Getting back on the yearly appts is a big dealSmile

    Luv~ Thanks for the information, I didn't know the difference in the test either.   Glad your trial is going well for you! 

  • Titan
    Titan Member Posts: 2,956
    edited September 2012

    ok..try this    www.snapped4u.com/galleries      then click on
    Williams/Welsh wedding

  • bak94
    bak94 Member Posts: 1,846
    edited October 2012

    So much good information posted here, thank you!

    Luv-so glad the chemo is agreeing with you. It would be nice for all treatments to be easy on us.

    Sandlake-Thank you for sharing about your hyst. I am having one in a few weeks using the same method as you had. Doc said it is a pretty easy recovery. My fingers are crossed!

    It is interesting about the breast cancer ovarian cancer connection. My mom was diagnosed with both at the same time. She went in to the doctor for stomach pains and they found a lump in her breast. They started treating her for breast cancer but her stomach wasn't getting better. Well, it was because she had stage 4 ovarian cancer along with the breast cancer. I am brca 1 positive, and I am sure she was too. I don't think they had the genetic test when she was alive. 3 of my aunts had breast cancer, but no others had ovarian cancer.

    I started back to school last Monday. already falling behind! I just do not concentrate like I used to! Something our instructor shared in class was lollipop.com. Totally freaky! If you have a facebook account you should check it out.

    Titan-I am with you about the pa thing!

    CS-you are too funny. You must have double posted on purpose:)Love it!

    KS-Congrats on going to the yearly appts!

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited September 2012
    Breast cancers found to fall into four main groups, raising hope for more targeted treatments
    • 'Giant step closer' to understanding genetic origins of four subtypes of breast cancer, says expert
    • Research that mapped 800 breast tumours could lead to more targeted drugs
    By CLAIRE BATES

    Breast cancer falls into four genetically distinct groups, according to the most comprehensive analysis of the disease so far.
    Scientists completed the genetic mapping of 800 breast tumours. They looked at the biological details of tumours, rather than focusing primarily on where the cancer arises in the body.
    Study co-author Dr Charles Perou, from the University of North Carolina, said the research was 'a near complete framework for the genetic causes of breast cancer, which will significantly impact clinical medicine in the coming years.'
    The study threw up some surprising findings. It found one of the most deadly subtypes, known as 'basal-like' were more similar to ovarian tumours than other breast cancers.

    Screening: Around 48,000 women in the UK develop breast cancer every year. The latest research could lead to more targeted treatments
    It opens the possibility for more effective treatment options that target genetic weaknesses of the tumours, perhaps using some drugs already in use.

    Study co-leader Dr Matthew Ellis, from the University of Washington, said: 'With this study, we're one giant step closer to understanding the genetic origins of the four major subtypes of breast cancer.

    Step closer: Dr Matthew Ellis has led the search for the genetic origins of breast cancer
    'Now we can investigate which drugs work best for patients based on the genetic profiles of their tumors.'
    The researchers analyzed DNA of breast cancer tumors from 825 patients, looking for abnormalities. Altogether, they reported, breast cancers appear to fall into four main classes when viewed in this way.
    One class showed similarities to ovarian cancers, suggesting it may be driven by similar biological developments.
    'It's clear they are genetically more similar to ovarian tumors than to other breast cancers,' Dr Ellis said.
    'Whether they can be treated the same way is an intriguing possibility that needs to be explored.'
    Around 48,000 women in the UK develop breast cancer every year, most of whom are over 50. There is a good chance of recovery if it is detected in its early stages.
    Professor Carlos Caldas, from Cancer Research UK, said: 'This comprehensive new analysis of 800 breast tumours is a welcome addition to the wealth of new information about the underlying biology of breast cancer, and will be a precious and valuable resource for cancer researchers.
    'This will allow us to further refine understanding of the disease, with the ultimate aim of improving things for those who matter most - people diagnosed with breast cancer.'
    Professor Caldas added that the study corroborated the findings of the Cancer Research UK-funded METABRIC study, which revealed breast cancer to be ten separate diseases.
    The report is the latest from the federally Cancer Genome Atlas, and was published in the journal Nature.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited September 2012

    No go Titan wouldn't let me in to see the pics

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited September 2012

    The Smiths were unable to conceive children and decided to use a surrogate father to start their family. On the day the proxy father was to arrive, Mr. Smith kissed his wife goodbye and said, 'Well, I'm off now. The man should be here soon.'

    Half an hour later, just by chance, a door-to-door baby photographer happened to ring the doorbell, hoping to make a sale. 'Good morning, Ma'am', he said, '...I've come to...'

    'Oh, no need to explain,' Mrs.. Smith cut in, embarrassed, 'I've been expecting you.'

    'Have you really?' said the photographer. 'Well, that's good. Did you know babies are my specialty?'

    'Well that's what my husband and I had hoped. Please come in and have a seat !.

    After a moment she asked, blushing, 'Well, where do we start?'

    'Leave everything to me.. I usually try two in the bathtub, one on the couch, and perhaps a couple on the bed. And sometimes the living room floor is fun. You can really spread out there.'

    'Bathtub, living room floor? No wonder it didn't work out for Harry and me!'

    'Well, Ma'am, none of us can guarantee a good one every time. But if we try several different positions and I shoot from six or seven angles, I'm sure you'll be pleased with the results.'

    'My, that's a lot!', gasped Mrs. Smith.

    'Ma'am, in my line of work a man has to take his time. I'd love to be In and out in five minutes, but I'm sure you'd be disappointed with that.'

    'Don't I know it,' said Mrs. Smith quietly.

    The photographer opened his briefcase and pulled out a portfolio of his baby pictures. 'This was done on the top of a bus,' he said.

    'Oh, my God!' Mrs. Smith exclaimed, grasping at her throat.

    'And these twins turned out exceptionally well - when you consider their mother was so difficult to work with..'

    'She was difficult?' asked Mrs. Smith.

    'Yes, I'm afraid so. I finally had to take her to the park to get the job done right. People were crowding around four and five deep to get a good look'

    'Four and five deep?' said Mrs. Smith, her eyes wide with amazement.

    'Yes', the photographer replied. 'And for more than three hours, too. The mother was constantly squealing and yelling - I could hardly concentrate, and when darkness approached I had to rush my shots. Finally, when the squirrels began nibbling on my equipment, I just had to pack it all in.'

    Mrs. Smith leaned forward. 'Do you mean they actually chewed on your, uh...equipment?'

    'It's true, Ma'am, yes.. Well, if you're ready, I'll set-up my tripod and we can get to work right away..'

    'Tripod?'

    'Oh yes, Ma'am. I need to use a tripod to rest my Canon on. It's much too big to be held in the hand very long.'

    Mrs.. Smith fainted

  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2012

    HAHAHAHAHA  that is hysterical thank you Cocker for that.

    hold me ladies..Pet Scan today and results next week.  My onc feels as many of you have expressed.  Catch the mets earlier and give yourself a chance to fight it down while it is small.  I am glad she does even with the anxiety tests and procedures can give you.  I get a scan every 6 months for now.  I think after 2 years it will be 1 a year for a little while

    Maggie

  • borntosurvive
    borntosurvive Member Posts: 213
    edited September 2012

    Genetic testing results day for rme today.  I will let you all know what I find out. 

    My DH's aunt is a 15yr BC survivor and was just diagnosed with cervical/ovarian and uterin cancer and it has spread to the lining of her stomach.  That's 3 Aunt's for my DH with BC as well as his grandmother and great-grandmother.  But all the sisters had the genetic testing and none of them have the gene. 

  • Luah
    Luah Member Posts: 1,541
    edited September 2012

    Inspired: You make some excellent points about routine scans for follow-up. Call me a cynic but I think the intersection of women's fears/anxieties and the medical establishment's financial interests makes fertile ground for medically unwarranted (and not entirely benign) interventions. http://jnci.oxfordjournals.org/content/92/22/1798.full   and a reference to TN in particular here and the rate of false negatives: http://www.asco.org/ASCOv2/Meetings/Abstracts?&vmview=abst_detail_view&confID=55&abstractID=30702

        

  • minxie
    minxie Member Posts: 484
    edited September 2012

    So how would one find out if their cancer is basal-like or not? I dodn't recall it being on my path reports.

    Hope and Inmate, hope you both are doing well! Congrats on the happy mammo, Titan! 

  • minxie
    minxie Member Posts: 484
    edited September 2012

    Screens and tests... After my first diagnosis, my onc wanted a bone scan. I was terrified and had nightmares for weeks leading up to it. It was all clear and I was very happy to put that behind me. Then about 1.5 years after diagnosis I began having dizzy spells, balance issues. Onc ordered a brain CT, due to the obvious symptoms. I was terrified, but it was all clear. The symptoms were most likely due to severe anxiety and panic attacks.

    Now this time around, with my local recurrence, everyone demanded a full body PET/CT - my onc, my rad onc, the specialist I was consulting. I was crazy with fear about this one and wouldn't do it. My counselor ended up scheduling it for me, and waiting for me the morning of to make sure I didn't skip out. They wanted it because a local recurrence vs a stage 4 diagnosis has very different treatment, and I understood that, but it was the realization of what a positive scan meant that just immobilized me. That was the longest waiting EVER but my counselor, with her secret ways, found out the good results ASAP and called me. Whew.

    I will never willingly undergo a scan unless it's apparent something's really wrong. I cannot handle the stress.

  • Hope60
    Hope60 Member Posts: 223
    edited September 2012

    Hi ladies...just wanted to check in and say hello to everyone! My first chemo cycle really knocked me out so I didnt have much energy for posting, but I did try to keep up with my reading here...



    Had the 2nd round yesterday but got new premeds so hoping things will be a bit easier this time.



    Congrats to all who are celebrating anniversaries or other good news!



    Luv ... So happy to hear your clinical trial is treating you gently.



    Inmate ...how are you sweetie? Thinking of you and sending a big hug.



    Well, it's a beautiful day here and my se's haven't kicked in yet....so I think I'll try to get out and enjoy the day while I can.



    Love to you all!

  • Hope60
    Hope60 Member Posts: 223
    edited September 2012

    Hi ladies...just wanted to check in and say hello to everyone! My first chemo cycle really knocked me out so I didnt have much energy for posting, but I did try to keep up with my reading here...



    Had the 2nd round yesterday but got new premeds so hoping things will be a bit easier this time.



    Congrats to all who are celebrating anniversaries or other good news!



    Luv ... So happy to hear your clinical trial is treating you gently.



    Inmate ...how are you sweetie? Thinking of you and sending a big hug.



    Well, it's a beautiful day here and my se's haven't kicked in yet....so I think I'll try to get out and enjoy the day while I can.



    Love to you all!

  • melissa119
    melissa119 Member Posts: 172
    edited September 2012

    Hello ladies. I know it's been awhile but I needed a break and now am ready to come back to see how you all are doing. I have tried to catch up but a month and a half away is a lot of posts! So I will just say my thoughts are with all of you whether in treatment, done with treatment, starting treatment, just diagnosed and all if those in between :-)

    Fall is in the air around here and I am loving the weather. Trying to enjoy every day. Really happy my kids are back in school! Lol. My house is quiet!! I am hanging in with treatment and can see the end finally! AC was thankfully pretty easy for me and taxol seems to be even easier. My 6th taxol is thursday and my last one will be nov 8th! For all just starting I truly feel the anxiety before chemo was far worse than actual treatment. My biggest hurdle is the IV every week as I don't have a port. But other than one treatment where I had to get stuck 5 times 3 nurses all has gone ok.

    Hope you all have a wonderful day and enjoy the beautiful fall air. Get out and enjoy life. I never thought I would be able to have a day where this did not consume me but I do and plan on having many many more as we all are!!! Hugs

    Melissa

  • melissa119
    melissa119 Member Posts: 172
    edited September 2012

    Hello ladies. I know it's been awhile but I needed a break and now am ready to come back to see how you all are doing. I have tried to catch up but a month and a half away is a lot of posts! So I will just say my thoughts are with all of you whether in treatment, done with treatment, starting treatment, just diagnosed and all if those in between :-)

    Fall is in the air around here and I am loving the weather. Trying to enjoy every day. Really happy my kids are back in school! Lol. My house is quiet!! I am hanging in with treatment and can see the end finally! AC was thankfully pretty easy for me and taxol seems to be even easier. My 6th taxol is thursday and my last one will be nov 8th! For all just starting I truly feel the anxiety before chemo was far worse than actual treatment. My biggest hurdle is the IV every week as I don't have a port. But other than one treatment where I had to get stuck 5 times 3 nurses all has gone ok.

    Hope you all have a wonderful day and enjoy the beautiful fall air. Get out and enjoy life. I never thought I would be able to have a day where this did not consume me but I do and plan on having many many more as we all are!!! Hugs

    Melissa

  • melissa119
    melissa119 Member Posts: 172
    edited September 2012

    Hello ladies. I know it's been awhile but I needed a break and now am ready to come back to see how you all are doing. I have tried to catch up but a month and a half away is a lot of posts! So I will just say my thoughts are with all of you whether in treatment, done with treatment, starting treatment, just diagnosed and all if those in between :-)

    Fall is in the air around here and I am loving the weather. Trying to enjoy every day. Really happy my kids are back in school! Lol. My house is quiet!! I am hanging in with treatment and can see the end finally! AC was thankfully pretty easy for me and taxol seems to be even easier. My 6th taxol is thursday and my last one will be nov 8th! For all just starting I truly feel the anxiety before chemo was far worse than actual treatment. My biggest hurdle is the IV every week as I don't have a port. But other than one treatment where I had to get stuck 5 times 3 nurses all has gone ok.

    Hope you all have a wonderful day and enjoy the beautiful fall air. Get out and enjoy life. I never thought I would be able to have a day where this did not consume me but I do and plan on having many many more as we all are!!! Hugs

    Melissa

  • Tazzy
    Tazzy Member Posts: 2,546
    edited September 2012

    My rads start October 4, so I am trying to get out and enjoy this good feeling I have before that date.   Maybe they will be good to me - sure hope so.   But whatever they bring I will deal with then.

    Wishing you all minimal SE's, positive healing thoughts and a place to find your happy today.

  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2012

    Tazzy....I had 35 rads and I just want to tell you that for me rads were a cake walk compared to chemo.  My only SE was a rash that came on about 2 weeks into the 7 weeks of treatment.  It was controlled with hydrocortisone cream and Aquafor cream 3-4 times a day.  The fatigue kicked in at about the 3rd week but what not as intense as the chemo fatigue.  I know this is just my experience but for me it was not a horror story.

    That leads me into today that was a horror story.  I went for my pet scan at 11am...starving.  They finally get me back and I tell the tech that she must do the needles in my foot as I am Bilat LE.  She asks super for permission who says you must call the doc who tells them to do it in my foot.  The blood for glucose was bad enough but then it really turned into a torture session as she could not get the IV going after 3 tries I said forget it just do my hand.  Hopefully I did not just make the LE worse in the arm.  It was more emotionally draining than anything.  Yes very painful but I laid there on the table while the tried to cram this thing into a vein and realised the this is just yet another thing that BC had taken from me.  The ability to tolerate needles without any problem.  Both my feet and now my hand are sore as even the hand was tempermental today probably because at that point my body was done.  ERRRRRRRR!  Now I need to talk to the surgeon who is doing my recon next month as she said they will do the IV in the foot....lets hope they know what they are doing!

    Maggie

  • Lovelyface
    Lovelyface Member Posts: 674
    edited September 2012

    Luv, you have explained it the best, thanks so very much.  I tried very hard to put into words what my Oncologist said or I thought what he meant, but I couldn't really, as I never really understood him, or that like you said, they try very hard to not say it.

  • borntosurvive
    borntosurvive Member Posts: 213
    edited September 2012

    I got my genetic testing back today and I DON'T have the gene!!!!

  • mags20487
    mags20487 Member Posts: 1,591
    edited September 2012

    woot woot for born!!!!!!! That is fantastic news

    Maggie

  • Sandlake
    Sandlake Member Posts: 211
    edited September 2012

    borntosurvive~ Very happy for you and your family!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2012

    Born, that is fantastic news. I know I felt so relieved for my children when I got my news!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2012

    Born, that is fantastic news. I know I felt so relieved for my children when I got my news!

  • Spica16
    Spica16 Member Posts: 130
    edited September 2012

    Minxie,

    Most likely you won't find a "basal-like" description on your pathology report. It depends on the pathologist, and how detailed they are in their dictations, but I don't think that specific terminology is standard on any pathology reports. If there, you would find this in the "microscopic description" section of the report (following the "gross description"). 

    I would ask your MO about the "basal-like cell type". That's the doc who would use this info, since it is related to chemotherapy regimens. Most likely, he/she would need to ask the pathologist to review your slides to get those results. Contacting the pathologist yourself may help, but could also prove to be more confusing - pathology lingo is unique! (I know...worked with it for 8 years!) Honestly, I think the "basal-like" description is only really used in research. Of course, with the new BC genome study, and the comparison of basal-like cell type BC and ovarian CA, this will be highlighted more, and will eventually be reflected in targeted therapy for these cancers. YES!!!

    Here is a description of this type BC from BCO's "How Triple-Negative Breast Cancer Looks and Behaves" :

    Usually is a cell type called "basal-like." "Basal-like" means that the cells resemble the basal cells that line the breast ducts. This is a new subtype of breast cancer that researchers have identified using gene analysis technology. Like other types of breast cancer, basal-like cancers can be linked to family history, or they can happen without any apparent family link. Basal-like cancers tend to be more aggressive, higher grade cancers - just like triple-negative breast cancers. It's believed that most triple-negative breast cancers are of the basal-like cell type. 

    And to make things even more complicated, other research shows that not ALL basal-like BCs are triple negative, and not ALL triple-negatives are basal-like. Clear as mud!

    Hope this helps (???) ~ Shar (TNBC & BRCA1/2 negative...Hmmm, waiting for more research)

     

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