Illinois ladies facing bc

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  • camillegal
    camillegal Member Posts: 16,882
    edited September 2012

    beata --u sound so sensible good for u--and he probably does have to blow off steam--like we all do sometimes--that's why coming here is so helpful--a lot of support with women in the know (not me) but everyone else. Get u rest whenever u feel u need it and I hope this isn't to hard on u.

  • beata44
    beata44 Member Posts: 19
    edited September 2012

    So I made him go to breakfast. Kids are fighting and his head hurts. I'm laughing.

  • doxie
    doxie Member Posts: 1,455
    edited September 2012

    beata44 - Good for you!  Glad this is a minor transgression and you can get some laughs out of it.  As others have suggested, he may need to step away from all the stress of the bc dx ant tx.  In fact he probably does.  It's hard on everyone.  

    My daughter's problem was that she never imagined that I would get something as serious at bc.  I take care of myself.  She always thought her father, who is older and neglects himself, would be the parent she lost first and wouldn't have been surprised at cancer, stoke or a heart attack.  She still cannot deal with "unknowns" and "perhaps."  With the eye problem I now have, she tunes out.  As I approached each third week of chemo, she stopped helping around the house and disappeared.  To her it seemed I was just fine and back to normal.  In the end I was grateful for the help she gave me.  

    You DH might be freaking a bit. 

  • C-squared
    C-squared Member Posts: 514
    edited September 2012

    beata~ I hope he brings back some flowers for you too!  I'm glad that you can laugh at it now!  Pay-backs are a bi**h!.., as they say.  Hang in there!  You came to the right place to vent.  You are safe here.  Keep us posted.  We are all hear to lend an ear and support.

  • camillegal
    camillegal Member Posts: 16,882
    edited September 2012

    Beata ---C- said it all come over any time--we're here.

  • Adey
    Adey Member Posts: 3,610
    edited September 2012
  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited September 2012

    joan and camillegal thanks for the words of encouragement.  It means a lot to me. Camillegal so glad you had a great dinner filled with laughter!

    beata44 I am sorry. There is nothing that justifies that behavior.  I hope that you will be able to talk about it. There are other ways for him to deal with how he is feeling. Being with single women is NOT it!

    I love the quote about joy. I wrote on my meesage board on my kitchen counter "Live with joy and intent"  It is so timely.  It is easy when you are in  the depth of this to forget our choices.  Just coming out of a deep dark place I know how hard it is for us to do it at times.  Sometimes it takes a great effort but in the end it is worth it when the time is right.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2012
    You cannot be lonely if you like the person you're alone with - Dr. Wayne Dyer.
  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited September 2012

    joan and camillegal thanks for the words of encouragement.  It means a lot to me. Camillegal so glad you had a great dinner filled with laughter!

    beata44 I am sorry. There is nothing that justifies that behavior.  I hope that you will be able to talk about it. There are other ways for him to deal with how he is feeling. Being with single women is NOT it!

    I love the quote about joy. I wrote on my meesage board on my kitchen counter "Live with joy and intent"  It is so timely.  It is easy when you are in  the depth of this to forget our choices.  Just coming out of a deep dark place I know how hard it is for us to do it at times.  Sometimes it takes a great effort but in the end it is worth it when the time is right.

  • Adey
    Adey Member Posts: 3,610
    edited September 2012

    You all are part of the reason I am not lonely!

    Thank you.     (c:
  • Adey
    Adey Member Posts: 3,610
    edited September 2012

    What the heck happened?!  Tongue out  Oh well..... hugs to all.

  • lago
    lago Member Posts: 17,186
    edited September 2012
  • joan888
    joan888 Member Posts: 810
    edited September 2012

    Adey.... morning!  And Brrrr!  But it is still a nice day when the sun shines.  I got in a nice long walk late yesterday afternoon and actually worked up quite a sweat.  I downloaded a new app on my phone called "mapmywalk".  Am I the last one to discover this?  It is a really fun way to keep track of your route, pace, mileage, calories burned, etc.  The GPS is so sensitive that it shows you wandering from one side of the road to the other.  I think this app is going to keep me incentivised to keep working on bigger goals.

    Just FYI... you have probably been hearing about the latest findings in a breast cancer study that have been in the news for the past day or so.  Here is a link in case you want more details.. http://www.bloomberg.com/news/2012-09-24/breast-cancer-dna-study-yields-new-targets-for-therapy.html.  Not sure if I did that right.

  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited September 2012

    Great link Joan, thanks. It is exciting to know that there are still huge discoveries being made and maybe someday a true cure and proactive way to keep bc from ever starting in the first place. 

  • Lynn27
    Lynn27 Member Posts: 110
    edited September 2012

    I need some advice from you been-through-chemo folks.

    I'm halfway through the taxotere carboplatin herceptin 6-cycle regimen and things are not going as swimmingly as I had hoped or anticipated.  Chemo class said there was no cumulative impact and how I reacted the first time would be the pattern for the other times.  Not the case.  I thought #2 was messed up because of the GI "upsetment" I had right before the infusion.  But #3 is only marginally better than #2.  I'm taking diarrhea meds every other day and nausea meds every day.  Yes, it is getting slowly better (it's not as bad as days 3-6), but I'm on day 12 now and I should be past all this (per cycle 1).  Is this cumulative impact what other people experienced?  I'm beginning to wonder what it will be like come cycles 5-6.  I really don't want to whine to the MO for fear that she'll lower the dosage.

  • lago
    lago Member Posts: 17,186
    edited September 2012

    Lynn you must have misunderstood or they goofed and slipped up.
    It IS cumulative. The best way to keep up is to start medicating just before it happens. I got the big C instead of the big D. I started to take Metamucil the night of chemo to prevent what happened the first time. I would take it till things moved properly again. I didn't get nausea either but from what I read you can't wait to medicate because once it's really bad it's harder to treat.

    I too had 6 TCH. I seemed to have different SE as you but don't worry I got my own special SE that sucked too. Some they had no meds for (nueropathy, painful lifted finger/toe nails… every single one).Granted nausea must suck. If the meds aren't working they do have others but are more $$ so many times they don't tell you about them. Demand them!

  • Shannie
    Shannie Member Posts: 19
    edited September 2012

    Hi Ladies...sorry for the long delayed response.  Thank you for the warm welcome!  Just had my 3rd chemo treatment last week and I'm actually not doing bad.  I will see what tomorrow brings. 

    I will start my Tamoxifen in 3 weeks after chemo so I guess around end of October.  Any thoughts or side effects that someone can share with me?  My oncologist is now recommending me to go on Lupron too.

  • lago
    lago Member Posts: 17,186
    edited September 2012
    Shannie if your onc is putting you on Lupron I would ask your onc why tamoxifen rather than an aromatase inhibitor? Granted I don't know all your health issue so tamox may be less risky but I felt the SE of tamox sucked more than the AI.
  • hopefulhealing
    hopefulhealing Member Posts: 722
    edited September 2012

    Shannie I was on Tamoxifen for 2.5 years. Everyone is different but I definitely had very bad night sweats and hot flashes.  I had vaginal discharge. This cleared up right away when I was switched to AI's.  I had some joint pain.  Also some problems sleeping.  It kind of cycled in and out for some of it.  With sometimes being worse than others.  I know there are some that have very little problems with it though.  Good luck.  I had vaginal ultrasounds with my annual gyne exams due to the possible side effect of the uterine issues with Tamox.  Never any thickening of the uterine lining for me thank goodness. But that might be something to talk to your gyne about once you get started. 

  • joan888
    joan888 Member Posts: 810
    edited September 2012

    Shannie.... welcome. I think I missed your entrance, but glad that you found this wonderful group.  I am out in the NW burbs also.  I am not familiar with Lupron.  One of my favorite websites that I used when going through chemo was www.chemocare.com.  There is alot of great detail on all the various drugs, possible side effects and how to manage them, along with tons of other info.

    Lynn... I agree with Lago.  Side effects from chemo are definitely cumulative.  Fortunately, you learn more each time how to better prepare for them so that can help ease some of those symptoms.

    Lago.... my ONC said that he has had great success treating chemo neuropathy with Cymbalta.  I have alot of neuropathy in my legs and feet due to my darn back.  My spine surgeon said it could take up to 12 months to go away after my surgery yet.  I tossed the Gabapentin that he prescribed to help relieve it cause it was making me too sleepy.  Just trying to deal with it and hope it gets better.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited September 2012

    Shannie:  Welcome!

    Beata44:  I read your earlier posts:  Hope your husband apoligized for his behavior.  Glad you made him take you our for breakfast!

    Lynn:  Sorry you are not feeling well.  Like Lago says, chemo is cumulative.  Wish it wasn't...  Just remember, you are halfway through, though! 

  • LoriBach
    LoriBach Member Posts: 130
    edited September 2012

    I too am on TCH and my oncologist told me the only side effect that is cumulative is the fatigue.  I have treatment #3 tomorrow...we will see how this goes.

  • lago
    lago Member Posts: 17,186
    edited September 2012

    Thanks Joan but it's really not too bad. I rather deal with it right now than experience some SE from another medication. I'm still doing power walks and etc. Actually today it isn't too bad. I actually think it will get better once I'm off the ESD. 3 years and 5 months I'll be done.

    Actually my shoulder is more bothersome from that car accident last year all of a sudden. I'm not calling the doctor because I dont' want to go back to PT. I need a massage Tongue out

  • kjiberty
    kjiberty Member Posts: 1,385
    edited September 2012

    Lori:  Yes, I agree. The fatigue was the worst cumulative effect for me.  But then again, other than that, I had very few S/E's. I consider myself very, very fortunate.  (note;  I did lost my lashes twice so far, brows once, and of course, all my hair).

  • spunkyboobster
    spunkyboobster Member Posts: 738
    edited September 2012

    Karen-love your pic, you are absolutely beautiful.

    Beata-hope things have improved.  My husba nd acts like I had my tonsils out-surgery over? then everything is back to normal...he doesn't give the AI se's any consideration.

    Enjoying the cool nights (good sleeping temps) and warm days-aumtumnal splendor.

    Monday's almost over-here's to Tuesday!

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2012
    The most effective way to ensure the value of the future is to confront the
    present courageously and constructively. Rollo
    Way
  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited September 2012

    Awoke to peals of thunder ( what an alarm clock since I don't use one ) and it is pouring rain right now.  Will have a few more days of this.  Sure...I do wonder why we get all this lovely rain now -- spring rains after the drought 'double' sigh.

    Spunky  "Enjoying the cool nights (good sleeping temps) and warm days-autumnal splendor."  What a pretty up-lifting statement.....just made me soar through that pesky rain when I read it.  It is great to find some challenge in every day and be able to greet it in a fairly positive manner.

    I hope you all have a terrific Tuesday.

    Hugs, Jackie

  • camillegal
    camillegal Member Posts: 16,882
    edited September 2012

    Oj Jackie the sun is out here so far--but cool--Ladies I found this on FB and I thought it was so cool-well especially for our usual type of weather her.

  • Adey
    Adey Member Posts: 3,610
    edited September 2012
  • camillegal
    camillegal Member Posts: 16,882
    edited September 2012

    I love decorations for anything especially Christmas it makes me feel so warm and cozy to see people put lights and trees up and such a wonderful feeling in te air.  Even when it's cold. Even now we have Halloween lites up and a pumpkin light in the window and it's a nice calming effect.to me.

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