Sept 2012 chemo

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited September 2012

    Timbek- Sorry to hear about the nausea.  You may want to call your onco and let him/her know that you are still nauseous.  Your meds can be adjusted.  You just have to let the onco know.  You may want to try eating some boiled rice with lots of water ( very soupy and the rice is really soft/mushy).  My onco asked me before I started chemo if I had morning sickness when I was pregnant.  I thought that was a weird question at first but she told me that it may be a predictor of whether or not i would be nauseous while on chemo.  I didn't have any morning sickness when pregnant and did not have any nausea while on chemo. For the constipation, try some of those Sunsweet Ones prunes ( individually packaged prunes really sweet and moist).  You can find them in a plastic canister at Target for $2.  I ate 1-2 of those after every meal to avoid the "C" train.  Hey, I know the idea of prunes may not sound appealing but these beat the alternative!!

    As for the absence of periods, welcome to chemopause.  I did have one period right after my first chemo which was when it was supposed to show up.  Since then, I haven't had any.  My ovaries sometimes tweek to let me know they are still there but nothing.  You may also start having hot flashes which are more noticeable at night. 

    Hope you feel better soon!!!

  • Cindi74
    Cindi74 Member Posts: 363
    edited September 2012

    Patricia, the cream,  Lidocaine 2.5 and Prilocaine 2.t is by prescription.  I noticed that the Dr. only wrote the prescription for one refill.  Now I know that she only prescribed it for the port, but I have cheated  and used it for the shots too.  I have read where you should put it on generously, but I have put it on thinly.  The nurse said I should go wider around the port too.  I put a bandaid over it after application.  The biggest problem is that you should apply it one hour before the use.  When you get to chemo, you may have to wait to be called and get through the blood pressure, temperature, stuff.  Once they had a "situation" in the chemo room  and didn't call me until 45 minutes after my appointment, but I was just getting a shot that day.  I don't know how long the effect is suposed to last.  As of Monday I will have had more blood draws then I was told as the beginning, so perhaps I won't have a pbm. getting more.

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited September 2012

    Cindy74 ....we are big babies here!!!! who saids they not....shut i put that cream 20 times make sure i dont miss a spot!!!!!lol

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited September 2012
    Cindy74- Don't use a bandaid to cover the EMLA cream after you put it on.  The gauze on the bandaid will absorb the EMLA cream.  You should cut a 4 X 4 inch square of plastic food wrap or Press N Seal wrap and put that over the EMLA cream.  I'm still on my first tube of EMLA cream and have applied it 8 times.  I know I can probably get 2 more applications out of that tube!!!  I refilled the prescription already and have a new tube waiting to be used!!!
  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited September 2012

    Cindy74b  yes some plastic would work i put it on before 30 minutes and i apply extra while im waiting!!!!

  • butterfly14
    butterfly14 Member Posts: 253
    edited September 2012

    Cindy74, I agree with you, that is what the port is for. I am a major needle chicken.

    I am doing the look, good, feel better on Oct 8th, any tips you all learn first, please share. 

    Getting ready to go out with my husband for dinner before port placement, nothing to eat drink after midnight, and nerves are starting to kick in.

    Have a great night.

     Carla 

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Cheerio I am right there with you, I woke up this morning and it became clear not another day with this mess of shedding hair. I made a appt. for this evening with Salon Steve..aka...DH ....I also am nervous but The ladies here have inspired me that everything will be okay.



    JoJo you look beautiful bald, and yes my nose is also drippy.



    Cindi thank you for all your hard work on updating the list even on your down days. That is wonderful that you have found some wigs you feel glamorous in, I haven't been as lucky. I think I will end up being a scarf lady . I went to the Look Good Feel Better and it was a pretty good time, and learned some great tips.



    It is a absolute gorgeous day here, I sat outside and had a beer, I felt like my old self for a while.



    Well it looks like there are lots of us either starting the first chemo this week or off to the second one. I am praying everyone has minimal SE ....



    Have a super week everyone!

  • Cherioo
    Cherioo Member Posts: 305
    edited September 2012

    Well ladies I now belong to the buzz head club . I will upload the pictures

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Is anybody else noticing that the eyes are sensitive and watering when outside.

  • CarolInMA
    CarolInMA Member Posts: 11
    edited September 2012

    Hi Butterfly,



    I've been combing this board for info to help my Mom who is going thru neoadjuvant chemo and soon may have an operation to remove a lump that is close to the chest wall. I found a post of yours, when doing a search, about how when operated on the doctor had to remove some of the muscle. There is talk of that with my Mom as well and I'm wondering if you could please tell me about that and how it affected your ability to use your arms and strength after that. My Mom is much older than you so I'm sure that comes into play but anything you can tell me about the removal of the lump near the chestwall would be great appreciated.



    Some ladies on another thread have been very helpful regarding the chemo aspect and we're nearing the end of that. The onc's goal was to try to shrink the lump from the chestwall to allow clear margins. She started with a chemo cocktail of CMF (chemo lite because of her age) and is now on the stronger CAF which is showing better shrinkage although the doctor has said it's like trying to remove wallpaper (the lump being wallpaper that is having a tricky time peeling back from the chest wall). She has two more CAF sessions to go. He plays it week to week and i'm wondering if they'll have to cut into muscle and how that will affect her.



    Any knowledge that can be shared will be greatly appreciated as it seems most info on the web is geared toward lumps that are in the tissue where clear margins are easier.



    Thank you.

    Carol

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited September 2012

    Butterfly.....its going too be a piece a cake you'll see i promise!!!!!!

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited September 2012

    Cheriooooo.....cherioooooooo......cherioooooo.....cherioooooooooo!!!!!!!!!!!!! welcome to monthly baldyyyy!!!!

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited September 2012

    Cheriooooo.....cherioooooooo......cherioooooo.....cherioooooooooo!!!!!!!!!!!!! welcome to monthly baldyyyy!!!!

  • butterfly14
    butterfly14 Member Posts: 253
    edited September 2012

    Carol, 

     The scar on the right side is larger than the left side where they did not take any muscle. Most of the muscle spasms were on the right side after mastectomy, but nothing that was intolerable.

    The range of motion is a little less on the right side, I can not put my arm over my head straight yet, or reach completely around my back. I believe that most of that is from the lymph node removal, and continue the range of motion exercises.

    The surgeon taking part of the chest muscle has saved me from needing radiation as well. I would make the same decision again for that reason. The radiation from my understanding can cause severe sunburn like symptoms, and the radiation Oncologist said that the surgeon taking the muscle was the only reason I would not need radiation.

    I don't know how old your mom is or her health in general, but feel free to send me a private message if you have any other questions.

    Carla 

  • CarolInMA
    CarolInMA Member Posts: 11
    edited September 2012

    Thank you so much for the quick reply. She is 79 years old and tolerating the chemo ok. The part that is difficult is not knowing what exactly is next. The doctor himself likely doesn't know until he sees better progress. He said he may send her to the radiation oncologist next before her third CAF but she may not even need the rads. They may go straight to operation after the fourth CAF. He said he won't do more than four tx of CAF three weeks apart.



    I was told last time I went with her to be patient. I guess with the c word we have to be patient and let the treatments do what they're designed for.



    Thanks again for the information. It sounds like cutting into muscle doesn't sound as debilitating as I had imagined when first hearing about it.



    I wish you the best as you start the chemo. It'll be fine. It is doable. My Mom blacktopped her driveway in between sessions if that tells you what it's like. You feel crappy for a couple days around day four to six after the tx. After that you build back up the strength.



    My recommendation for anyone going thru it is to google foods that increase white and red blood cells and eat 'em up. Carrots, spinach, kale, red meat, beans, kiwi, pomegranate juice, etc. Get tons of antioxidants in you. My Mom says I'm her nutritionist. LOL. I swear by this aspect of treatment for bc which is so often not discussed.



    Take care all,

    Carol

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited September 2012
    bearcub- You have another one of those wonderful chemo side effects--- watery eyes and light sensitivity.  I also had eye twitching along with the watery eyes after my 4th round of Cytoxan/Taxotere.  Your vision can also seem a little more blurrier than normal too.  My onco told me that mine would resolve itself after I was PFC and started to recover from the chemo  I haven't much eye twitching lately and the watery eyes seem better.
  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Thank you Melrose, my vision has been a bit blurrier, it's good to know this is temporary.

    I see the doctor on Tuesday and will be sure to mention it. I haven't had any eye twitching yet.

  • sherbab
    sherbab Member Posts: 106
    edited September 2012

    Melrose - thank you for all of your information!  It certainly comes in handy when trying to navigate all of this new territory.

     Cindi - thank you for keeping us up to date on the women of September!  Hopefully you are feeling better. 

     Jojo - love the new picture!  I have also started the nose run, oh what fun!

    Someone asked about reconstruction and what each of us did.  When I had my BMX I thought I was going to go with an immediate DIEP Flap reconstruction at the same time but after discussion with the PS we decided to stage things.  So, I ended up with the BMX and tissue expanders that I absolutely cannot stand!  I had 2 fills in my expanders only to start chemo and have been told they want to wait until after the chemo is done to go back to my fills so I don't see that starting again until the end of January.  I hope to have my reconstruction in early May but I am trying to go with the flow on scheduling since this is very much an area that I have no control over.  But I have never wished away more time in my life which I don't like to do. 

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited September 2012

    Hi ladies,

      I need some hope!  I had my chemo session on Tuesday - and felt fine until about day four.  Today I am still super sick- nauseous, headache, tired, stomach feels terrible.  Trying to eat little meals, but everything tastes awful.  Then I read that the second week is worse than the first!  Help.  Someone please tell me that I might start to feel better soon.  I am getting super depressed thinking about doing this five more times:-(   My daughter was  crying in the living room asking her daddy why mommy won't get out of bed.  This completely sucks.  I need some encouragement desperately.

    -mariposa

  • cgesq
    cgesq Member Posts: 319
    edited September 2012

    Mariposa,

    You will feel better soon.

    Sorry you are feeling badly, but it will be short lived. If the chemo is making you feel this sick, imagine what it is doing to those f*cking cancer cells!!!
    The second week isn't worse than the first! I too felt sick about day 4 after treatment, but it improves after that.

    Better days are ahead!

    Cheryl

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited September 2012

    Mariposa- HUGS to you because you just need them right now!!!  Tomorrow, please call your onco and let him/her know about your side effects especially the nausea.  Your meds may need to be adjusted for nausea.  Ask for some help with the other side effects ( stomach, headache).  You just have to let the onco know you are having problems.  Don't be afraid to call and ask for help; it's part of the onco's job to help you.  Yes, your taste buds may already be on vacation.  You've got to push through the taste and get some nutrition and fuel in your body.  After chemo, I ate what I call the "white meals"--- mashed potatoes, baked potatoes, rice, mac n cheese, baked fish, baked chicken, turkey.  Things that just don't have much taste but filling.  I can't tell you if the second week will be worse because I didn't have the same chemo regimen as you.  You may to read/post to the Taxotere,Carboplatin & Herceptin thread.  There are some veterans on that thread (SpecialK & Lago) who may be able to help you. 

    http://community.breastcancer.org/forum/69/topic/578284?page=488#idx_14633 

    I know you are having a rough time right now but hang in there!!!!  You will get through this hard part of your treatment.  Chemo is hard physically as well as emotionally and staying positive is not always easy.  Please be easy on yourself and keep moving forward.  You can do this.  All of us here are supporting you and holding your hand right now.  Sending you lots of HUGS and positive healing and calming prayers, thoughts and energy!!!!  Get some rest and call your onco tomorrow morning to get some help.  If you don't feel like you can wait until tomorrow to talk to the onco, call tonight. 

  • aic
    aic Member Posts: 417
    edited September 2012

    Starting my first chemo tomorrow and have been following everyone's posts.... scared and hoping for no major reactions ..wish me luck!

  • Cindi74
    Cindi74 Member Posts: 363
    edited September 2012

    Patricia and Damiana, I am 11 days after my first chemo, finally recovering
    from paralyzing fatigue. A prescription for you if you are at that stage.  Tell
    your hubby or significant other that you have achy bones and joints that a
    massage on your chemo drying skin with some creamy lotion would help. Then light
    a candle, put on appropriate music, turn out the lights and relax. So
    therapeutic.

  • whenlifegivesyoulemons
    whenlifegivesyoulemons Member Posts: 184
    edited September 2012

    Anyone else having trouble seeing people for the first time after your diagnosis?  I'm finding that i feel so completely vulnerable and out of control during that first face to face interaction.  I can handle a note, an email, a text, but there's something about hearing someone say they're so sorry, tilt their head, sigh, wring their hands, look deeply into my eyes, attept a hug - all of that turns me into emotional oatmeal.  Apparently I don't do vulnerable very well, at all.  And I'm back to work this week and dreading, DREADING, all those very well intentioned people who will feel compelled to acknowledge what I'm going through. It's all so unreasonable, because it's natural for them to acknowledge all of this, I get that - but even so I just can't deal with that happening face to face.  And I know so very many people at work.  How will I survive the first week?  While hiding is extremely appealing, it's clearly not an option.  Suggestions anyone? 

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited September 2012

    For those having chemo this week, wishing you easy times in the Big Girl Chair aka BGC and minimal side effects.  I know the anxiety is high but you are not alone and never alone.  All of us are here to support you!!!

    For those recovering after recent chemos, minimal side effects for you!!!  If you are having side effects that are not subsiding, please call your oncos and get some help and advice.  Don't suffer and think you can ride it out.  As for being tired and fatigue, some of that is from the chemo because it is hard on your body.  Please keep trying to eat well, rest whenever you can and get some exercise or a walk in. 

    HUGS to all of you ladies on this thread!!!!  I know it isn't easy times for you right now but I am sending positive calming and healing prayers, thoughts and energy in hopes you will feel a little better. 

  • Amy4978
    Amy4978 Member Posts: 473
    edited September 2012

    Patricia don't ask for it just go to walmart and buy it. Melatonin is way cheaper than a man made sleep aid plus its all natural. Glad to hear you had lil SE's :-)

  • aic
    aic Member Posts: 417
    edited September 2012

    Thank you Melrosemelrose! So lucky to have you guys!

  • jojo2373
    jojo2373 Member Posts: 662
    edited September 2012

    Happy Monday to all!  Up early to go to the Look Good Feel Better program. 

    Is everyone getting a flu shot?  My MO said I should, just waiting for a day (when I feel great, ha) to go get it.

    On MSNBC website this morining, there is a report about new genetic information discovered about BC!

  • Kimber1963
    Kimber1963 Member Posts: 14
    edited September 2012

    I'm starting chemo tomorrow and I'm scared out of my head. What will it be like? How will it feel when I'm in the chair? How sick will I get? All kinds of crazy thoughts and fears rushing through my head.

    I've been doing really well holding it together and staying positive, but last night I had a total meltdown, just cried and cried until I felt empty.

    This weekend I shaved my head because I didn't want to watch my hair fall out. I sort of like the brush-cut I have now.

    I am just so scared I don't know what to do.

    Kimber

    DX 07/20/2012, IDC, 1CM, Stage I, Grade3, 0/6 nodes, ER-/PR-/Her2+, Surgery 08/03/2012 lumpectomy right, Sentinel node dissection, 08/17/2012 reexcision, Chemo 09/25, Adriamycin, Citoxan, Taxol, Herceptin 

  • EnglishRose75
    EnglishRose75 Member Posts: 147
    edited September 2012

    Hi everyone!

    Please do share your top tips from the Look Good Feel Better sessions.  I'm particularly interested in all things related to eyelashes and eyebrows.  I still have a few left but I'm told that the Taxotere, which I start for round #4 in a few weeks, will wipe any remaining stragglers out.  I know too that there's been some discussion here about nails and some people have said that they don't want to try icing their nails.  But is there anyone who has done this and does it work?  After three rounds of FEC, my nails are completely normal but I gather that the taxols do a number on them.

    I'm beginning to feel like plastic woman and am getting to that point where if a strong wind blows, everything's just going to come flying off!

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