Alternative Treatment

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  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    oh grow up!!  I've had a very sore uncomfortable large place on my breast for almost 2 years.  I wake up very often in a lot of pain & awful sensations.  If it's not a form of inflamatory breast disease what then is it?

  • pupmom
    pupmom Member Posts: 5,068
    edited September 2012

    You're alive and well. If you had IBC you'd be in terrible shape. Congrats on your great health!

  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    sorry about snapping at you like that:  it's been a long & frustrating day.  according to what I've read what you say isn't always true.

    but I'd dlike to talk about dogs.  on the IBC fora one woman said the breast cancer dogs get is the same as that of humans.  we had 2 dogs who died of it:  a mother & son.  the mother had fabulous sergery but it had apparently already spread.  the son died after a second surgery, disn't wake u from the anaesthetic. (not the same surgeon).  I will miss them the rest of my life.  one must ask do we get it from our dogs.  I don't think so.  I think humans get it from pharmaeseudical estrogens & dogs from pharmaeseudical insectacides (AKA "pet meds.  flea & tick stuff.  the colars kill & the stuff you put on their shoulders goes right to the nervous system 

  • purple32
    purple32 Member Posts: 3,188
    edited September 2012

    Your end will come  8 yrs from now ????!

    You've had untreated IBC for 2 years and you have another 8 to go ?
    I think yorkie's right- Sounds like you're in pretty good shape- we all should be so lucky.

    You're on a breast cancer forum where ppl have serious problems.  What is your game, abigail ?
    It's not funny anymore.

  • graced
    graced Member Posts: 104
    edited September 2012

    Wayne Dyer posted something this week on his Facebook page that said:

    Think

    T-is it true?

    H-is it helpful?

    I-is it inspiring?

    N-is it necessary?

    K-is it kind?

    I thought that was a really sweet reminder.  Alternative is alternative, and we are all at different levels of alternative exploration.  It's like a buffet line (not that I do too many buffets as a vegan!).  If you see something you don't like, move onto the next thing.  We've been down this road before in this thread and I don't think it helps any of us that are reading and/or writing. Let's keep our energy positive so it will benefit us all. 

    Peace to all and to all a good night :-)

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2012

    Abigail,

    I have tried, always, to be gentle and compassionate with you and intend to continue doing so. You ask, "if it's not a form of inflammatory breast disease what then is it?" The answer is simple, no one knows what it is until formally diagnosed. BC is not a self diagnosed illness so I'm sure you can understand the frustration of those who read your posts. We have all been diagnosed . You may have nothing more serious than some bad abscesses.

    Caryn

  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    they're not abscesses, I was a heroin addict I know from that  diagnosis of these troubles are invasive & potentially make infections.  that doesn't seem sensible to me

    the worst thing about the internet is someone or a group attempting to get another to stop posting or resign from the forum for reasons of they don't _like" them.  this happened, though not to me son the astrology forum when I was first online.  over vegetarianism.  someone said so & so was arrogant with her chdoice & the arrogant one took offense (of course vegetarians who didn't grow up that way are indeed arrogant, it's very difficult to become done.  it's been my experience that the person goading the other is the one to be temporarily at least locked out.  it seems to me that the onternet is about information not personality.  isn't it called the sdinformation superhighway?

    as for everyone being very sick, I think a great number are in the ned stage or cured & not sick at all 

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2012

    Graced,

    I love what you posted and agree that we should move on. But I do think we need to understand and acknowledge the frustration some feel over the idea of self dx of bc. Yes, this is an alt thread but the idea of self dx is pretty disconcerting.

    Caryn

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2012

    Abigail,

    I don't know if anyone is trying to get you to resign but I do think you need to consider the other side of your coin. This is a breast cancer forum and regardless of where we are in the bc journey, we have all been diagnosed with bc. Surely you can understand why it would bother some to have someone without a dx saying she has bc. I will continue to try to understand your position but please try to understand the position of others. The reality is that until you are dx you may not have bc at all. As to what it might be? We don't know, that's why we go to doctors.

    Caryn

  • Momine
    Momine Member Posts: 7,859
    edited September 2012

    Caryn, I do see your point, but one can also choose to take it as a form of humor, even if inadvertent.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited September 2012

    Abigail, you say:

    as for everyone being very sick, I think a great number are in the ned stage or cured & not sick at all

    I wish you could understand how this statement appears. Many people who are "NED" are terminally ill sisters who must nonetheless continue with treatment for the rest of their lives. NED is remission.

    Also, there is no cure for BC.

    Finally, you are not the only one dealing with additional health problems or who has a history of health problems.

    And graced, I appreciate your efforts, but I don't think it is about alternative treatment either.

    It is about someone who appears to be self-diagnosing - and apparently diagnosing others and saying they are cured and appears to ignore the concerns of other posters.

    Abigail, I invite you to take a quiet look at the stage IV threads, where many are NED and read about how many can no longer work, have suffered permanent health complications from the cancer or the treatment and have only more treatment to look forward to. If they were to stop conventional treatment, they would likely be ill from pain, organ failure and perhaps quickly die. I do hope that not many people are reading this thread as they would be extremely offended by your "diagnosis" of them, which can only be attributed to lack of knowledge.

    I am sorry that you cannot or will not see how your remarks affect other people, who have feelings too. You are not the only person here. Post away if you must - but don't be surprised if people react. This stage belongs to all of us, and we all count.

    As for what is wrong with your breast - I have no idea, but if it were IBC, you would likely be either dead or incapacitated by now. IBC is a very fast-growing cancer. If you really want to know what is going on --and I wonder if you do-- then get an x-ray of the area. There may be something that can be fixed.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2012

    Momine,

    Yes, I often wonder if someone is pulling our collective legs :)

    Caryn

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited September 2012

    Caryn, I have no doubts.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited September 2012

    I'm going to say it's a combination of things - and cancer isn't one of them.

  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    x raya cause cancer;  even 1.  I only respond to what I see here, ned I understood meant no evidence of diease, to me that means well.  if I;m mystaken I have now been corrected.

    already out most valuable, poster has decided not to continue to post here because of what she saw as bullying.  out naturopathic nurse, joy.  what important information might we be losing because she's no longer helping us here.

    abcesses suporate, IBC does as well, & this inflamation did a bit a year ago, joy helped so much then & the places eventually healed.  I would hope they won't again.  as for my being very sick or dead with what I expect these places on my body are, that apparently is old information.

    I will call it inflamed breast cyst.  though hyears ago I heard cancer called the purplish excressence, & that is certgainly accurate as far as I can see 

  • pupmom
    pupmom Member Posts: 5,068
    edited September 2012

    Blue, neither do I. 

  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    but I've only been responding to posts about my situation, that no longer interests me.  alternative treatments to our trouble does, continues to

  • kayfh
    kayfh Member Posts: 790
    edited September 2012

    Maybe this thread could be relabeled the Abigail Support Thread. That way people looking for information on alternative therapies for breast cancer could choose whether they want to be in a group hug for Abigail, or want some real information about what is considered alternative therapy. Sometimes alternative becomes experimental therapy and sometimes experimental becomes conventional. Sometimes.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2012

    Joy was a sweet woman but made a choice to stop posting. She started a course on nursing but did not finish. She is not a naturopathic nurse. NED is for most a temporary state. No evidence of disease, at this time.

    Caryn

  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    abby doesn't want group hugs or any kind actually, not does she want such stuff she;s been getting here

    joy is an expert in asian herbs.  none of the rest of us I think have studdied that (unfortunately) in fact I see noone here now who have studied any natural stuff that could help 

  • Momine
    Momine Member Posts: 7,859
    edited September 2012
  • pupmom
    pupmom Member Posts: 5,068
    edited September 2012

    abigail, you DO NOT have "our trouble." There is zero evidence that you have breast cancer, which is what the rest of us have. Let me spell this out: It is offensive in the extreme to have somebody pretending to have a disease that the rest of us are suffering from. I don't think anybody minds you posting stuff about alternative treatment, but please stop stating you have breast cancer, because you have never gotten that diagnosis. 

  • itsjustme10
    itsjustme10 Member Posts: 796
    edited September 2012

    Abigail, to be blunt, if you actually had untreated IBC for as long as you claim, you'd be dead by now.  Those survival stats you throw around are ONLY for those who have been diagnosed and treated.  You have been neither.  Therefore, they are meaningless to your situation.

    "Our trouble"???  Sorry, I doubt anyone here can relate to self-diagnosing a terminal illness.

    You've put yourself on an island...don't blame us...

  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    okay for a long time I've suggested inflamatory breast cyst.  that certainly is accurate diagnosed or not

  • kayfh
    kayfh Member Posts: 790
    edited September 2012

    Ok Abby. No group hugs for you, actually I don't like them either. But your attention seeking behaviour indicates that you either want something from the people who post here, or that you have something you want to give. Which is it?

  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    I only responded to posts attacking me about my situation.  I don't want attention either.  I want good alternatives for me & others who have breast problems

  • NattyOnFrostyLake
    NattyOnFrostyLake Member Posts: 377
    edited September 2012

    Hi Abigail,

    I'm sorry you have to put up with the sniping here. You are very kind and I appreciate your candor and your ongoing journey. If people come all the way over here to snipe it's more about their insecurities. It has nothing to do with you so I would continue to ignore them and live your life.

    As a fact check to my fellow posters: There are many documented cases of people who have ignored their breast cancers. My grandmother was one of them. Apparently the cancer was either slow-growing or no-growing. The doctors respected her choices not to have surgery and she died 15 years later of a stroke in a nursing home.

    Anyway, friends, let's practice kindness...peace to all who have behind the scene demons in their lives.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited September 2012

    Well since you have Parkinson's disease and a myriad of other ailments, do you post on any of those forums?

  • pupmom
    pupmom Member Posts: 5,068
    edited September 2012

    Natty, there's a big difference between your grandmother and abigail. Apparently your grandmother had a diagnosis of breast cancer. abigail does not, but pretends she has bc. Without a medical diagnosis, she has no way of knowing.

  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    om mani peme hum, natty.  I asked my biker odnce "why are you so mean?"  & he said:  I'm miserable & I want everyone else to be miserable too."  (because of the loss of his father in a fishing accident on a lake when he was five, he was in a state of grief from then on

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