Sept 2012 chemo
Comments
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Had a migrain develop yesterday after my second round of
A/C seems that is becoming the norm. No amount of tylenol helps so I ended up uping my dose of melatonin to 10mg from 5 and went to bed at 930 and slept like a log until 7am
I did start taking my nauesea meds asap even though I didn't feel nausea. I even had my hubby wake me to take the second one in th night. So far so good!
But I have not had the dreaded nuelasta shot which I will have my hubby inject as soon as ups gets it here. I started claritin on Tuesday, hoping it help. I will keep you posted!
Thinking since my hubby is home I'm gonna go back to bed.
Btw even though that nuelasta shot is a bitch my WBC were above normal. As I see it I would much rather feel like crap for a day than catch something that put me in the hosital and prevented me to continue treatment.
Hope all of you slept well last night! -
Had a migrain develop yesterday after my second round of
A/C seems that is becoming the norm. No amount of tylenol helps so I ended up uping my dose of melatonin to 10mg from 5 and went to bed at 930 and slept like a log until 7am
I did start taking my nauesea meds asap even though I didn't feel nausea. I even had my hubby wake me to take the second one in th night. So far so good!
But I have not had the dreaded nuelasta shot which I will have my hubby inject as soon as ups gets it here. I started claritin on Tuesday, hoping it help. I will keep you posted!
Thinking since my hubby is home I'm gonna go back to bed.
Btw even though that nuelasta shot is a bitch my WBC were above normal. As I see it I would much rather feel like crap for a day than catch something that put me in the hosital and prevented me to continue treatment.
Hope all of you slept well last night! -
Had a migrain develop yesterday after my second round of
A/C seems that is becoming the norm. No amount of tylenol helps so I ended up uping my dose of melatonin to 10mg from 5 and went to bed at 930 and slept like a log until 7am
I did start taking my nauesea meds asap even though I didn't feel nausea. I even had my hubby wake me to take the second one in th night. So far so good!
But I have not had the dreaded nuelasta shot which I will have my hubby inject as soon as ups gets it here. I started claritin on Tuesday, hoping it help. I will keep you posted!
Thinking since my hubby is home I'm gonna go back to bed.
Btw even though that nuelasta shot is a bitch my WBC were above normal. As I see it I would much rather feel like crap for a day than catch something that put me in the hosital and prevented me to continue treatment.
Hope all of you slept well last night! -
Had a migrain develop yesterday after my second round of
A/C seems that is becoming the norm. No amount of tylenol helps so I ended up uping my dose of melatonin to 10mg from 5 and went to bed at 930 and slept like a log until 7am
I did start taking my nauesea meds asap even though I didn't feel nausea. I even had my hubby wake me to take the second one in th night. So far so good!
But I have not had the dreaded nuelasta shot which I will have my hubby inject as soon as ups gets it here. I started claritin on Tuesday, hoping it help. I will keep you posted!
Thinking since my hubby is home I'm gonna go back to bed.
Btw even though that nuelasta shot is a bitch my WBC were above normal. As I see it I would much rather feel like crap for a day than catch something that put me in the hosital and prevented me to continue treatment.
Hope all of you slept well last night! -
Out of curiosity... wondering all the age ranges we have amoung us.
I am 34. -
Out of curiosity... wondering all the age ranges we have amoung us.
I am 34. -
Thanks Melrose for reposting - once again you are WONDERFUL!
My head is cold this morning!! LOL
Cindi - since you are our "scribe" will you add everyone's age to our list? I am 50.
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Good morning my sisters....well i had my first chemo yesterday the 19 and i must say i was pretty much ready like i have said....My chemo was suppost to start 2 weeks ago and it didnt do to my PET scan...so u know i was ready......Soon as a rrived to the Hospital i told them that i need it ELMA and gave a prescription got my hubby to get it at the 2nd floor Lord and behold i got it.....rub on it and whalaaaaaaa it worked....Nurse sat me at chair number one....inject into port an-nausea,steroids and herceptin....after she slowy inject 5f waited for a few and inject the the Red Devil fluid ...yeah that cancer was scare of me cause i immediatly got itchy and got hives....she gave me banadryl for 45 minutes which i passed out for 45 minutes and then we try some more red devil fluid....flush out my port and off i came home my mom had some hot dinner. Had a small headache, 3 hot flashes. some stomache but it was manageable ...after my 3 hours of chemo i been taking my 6 nausae pills so im good...i just have a small headache....I drank a gallon of water a day prior to chemo and drank 1 1/2 during chemo and now of 2 gallons i need this out of my system i need it to kill that bad cell but also out once they done with their job...ladys just wanna share with you that my husband is the most amazing man he has been always next to me no matter what....i met him online 11 years ago.........
To everyone here we do not tolarate SE today so dont let them innnnn!!!!
Amy.....love the mo-hawk...but you will all wear it even with the boys...my hubby is next...lol
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Could someone please help with the awful taste in my mouth? I tried gum, Popsicles, gargle with salt, biotene, Altoids. These all work for a few minutes but I can't seem to ignore this metal type taste.
Does anyone know something that works? My first chemo was 9/11 and the metal taste just started. Does it go away or is it something I will have for the next 5 months during the reminder of the chemo treatments?
I love to cook and this has now ruined this part of my life too. I can't even taste food. I made noodle bowls yesterday and it tasted like aluminium. Coffee used to be my favorite thing about waking up and now I can't drink even a half a cup without getting sick to my stomach. Please help.
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Hi Amy, I'm 44, married with three sons.
Carla
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Terri - I get the metal taste too and I haven't found anything to make it go away other than time. I don't have it the second week after treatment, only the first week. I have found the foods/drinks that taste good to me, everything else is awful. Tart and salty things seem to work best. All my favorite things to drink have been replaced with Cranberry juice and Lemonaid. If you find a secret - pass it along!
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Good morning my sisters....well i had my first chemo yesterday the 19 and i must say i was pretty much ready like i have said....My chemo was suppost to start 2 weeks ago and it didnt do to my PET scan...so u know i was ready......Soon as a rrived to the Hospital i told them that i need it ELMA and gave a prescription got my hubby to get it at the 2nd floor Lord and behold i got it.....rub on it and whalaaaaaaa it worked....Nurse sat me at chair number one....inject into port an-nausea,steroids and herceptin....after she slowy inject 5f waited for a few and inject the the Red Devil fluid ...yeah that cancer was scare of me cause i immediatly got itchy and got hives....she gave me banadryl for 45 minutes which i passed out for 45 minutes and then we try some more red devil fluid....flush out my port and off i came home my mom had some hot dinner. Had a small headache, 3 hot flashes. some stomache but it was manageable ...after my 3 hours of chemo i been taking my 6 nausae pills so im good...i just have a small headache....I drank a gallon of water a day prior to chemo and drank 1 1/2 during chemo and now of 2 gallons i need this out of my system i need it to kill that bad cell but also out once they done with their job...ladys just wanna share with you that my husband is the most amazing man he has been always next to me no matter what....i met him online 11 years ago.........
To everyone here we do not tolarate SE today so dont let them innnnn!!!!
Amy.....love the mo-hawk...but you will all wear it even with the boys...my hubby is next...lol
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Good morning my sisters....well i had my first chemo yesterday the 19 and i must say i was pretty much ready like i have said....My chemo was suppost to start 2 weeks ago and it didnt do to my PET scan...so u know i was ready......Soon as a rrived to the Hospital i told them that i need it ELMA and gave a prescription got my hubby to get it at the 2nd floor Lord and behold i got it.....rub on it and whalaaaaaaa it worked....Nurse sat me at chair number one....inject into port an-nausea,steroids and herceptin....after she slowy inject 5f waited for a few and inject the the Red Devil fluid ...yeah that cancer was scare of me cause i immediatly got itchy and got hives....she gave me banadryl for 45 minutes which i passed out for 45 minutes and then we try some more red devil fluid....flush out my port and off i came home my mom had some hot dinner. Had a small headache, 3 hot flashes. some stomache but it was manageable ...after my 3 hours of chemo i been taking my 6 nausae pills so im good...i just have a small headache....I drank a gallon of water a day prior to chemo and drank 1 1/2 during chemo and now of 2 gallons i need this out of my system i need it to kill that bad cell but also out once they done with their job...ladys just wanna share with you that my husband is the most amazing man he has been always next to me no matter what....i met him online 11 years ago.........
To everyone here we do not tolarate SE today so dont let them innnnn!!!!
Amy.....love the mo-hawk...but you will all wear it even with the boys...my hubby is next...lol
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Mornng Patricia, Glad you got through the first. Sorry for the allergy pbm. Hopefully no side effects. Hang in there. We really find out the metal of our husbands going through this don't we
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Mornng Patricia, Glad you got through the first. Sorry for the allergy pbm. Hopefully no side effects. Hang in there. We really find out the metal of our husbands going through this don't we
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Mornng Patricia, Glad you got through the first. Sorry for the allergy pbm. Hopefully no side effects. Hang in there. We really find out the metal of our husbands going through this don't we
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I am 46.
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Melrose & 2012 sisters
Thank you so much for the info! I am going to be prepared for Tuesday that is for sure. Morning after port and not too bad. I only needed 3 Aleve liquid gels, spread out for the discomfort. Hope I can consume that much water! I am trying so hard to hang in...you know what is the hardest? the sadness, if I let my guard down.. I just wish I could see the light at the end of the tunnel.
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Melrose & 2012 sisters
Thank you so much for the info! I am going to be prepared for Tuesday that is for sure. Morning after port and not too bad. I only needed 3 Aleve liquid gels, spread out for the discomfort. Hope I can consume that much water! I am trying so hard to hang in...you know what is the hardest? the sadness, if I let my guard down.. I just wish I could see the light at the end of the tunnel.
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Hi all,
I'm 37, married, with two gorgeous daughters, ages 8 and 13.
Like Amy, I only get the metal mouth the first week, and on rounds one and two followed swiftly by oral thrush. Yuk. Then more-or-less functioning as normal on weeks two and three.
Patricia, glad your first session went well, despite the allergy problems.
Waitingforthenextstep, I understand what you mean with the sadness, and I try not to let myself go there too often. This being said, I do get tired of everyone constantly trying to make me feel positive and telling me that "it's going to be all right." I know that they're trying to be helpful, but sometimes I think it's OK to be sad, angry, whatever. I think that's completely healthy to feel that way.
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That metal taste in your mouths after chemo is just the pits. I don't recall having a metallic taste in my mouth all of the time but did not like the taste of water at some point. I started drinking filtered water with orange slices and plenty of ice. The citrus seemed to brighten the flavor of water. My taste buds went on vacation a few days after my chemo round where nothing tasted like it should. I can remember crying at dinner one night and telling my family that the food just didn't taste good and asked them if it really did taste good. I laughed afterwards because i realized how silly it was to cry like a little kid because the food didn't taste good and also realized it was the chemo that made me so emotional and weepy. My taste buds would return the week before my next chemo (thank goodness!!!(
If you have favorite foods/beverages, try to avoid to eating/drinking them while your taste buds are on vacation so that they can stay your favorite foods/beverages after you finish chemo!!! While you are having chemo, I know you will be foraging for something to eat that tastes good. I usually ate what I called the "white meals" the days right after chemo---- rice, baked potatoes, mashed potatoes, baked fish, baked chicken, mac n cheese, scrambled eggs. Just plain bland food. I may also have a different view on food than most; I eat for nutrition and fuel for my body and a means to help my body heal and stay well--- kind of medicinal. I don't view food as a source of comfort. I also used the Eating Well Through Cancer book by Holly Clegg and Gerald Miletello, MD which was given to me by the hospital cancer center. It helped me a lot to have a guide as to what to eat when, what to buy, etc.
As for the water consumption post chemo, please be careful about drinking too much water. One can get water intoxification which is not good. You may want to switch up your water intake with Gatorade, broth, juices, ginger ale, tea. etc. You can also get fluids in by eating watermelon, grapes, jello, popsicles, etc.
Happy Eating and Drinking!!!
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Waitingforthenextstep- Yes, the roller coaster of emotions is very present in chemoland. One moment you are fine and the next, you are not. It is one step at a time, one day at a time. I can understand your sadness and perhaps at times, the anger you may feel. There isn't anything easy about this journey but there will be a time when the good days will be there more often than the not so good days. I always tried to go with the flow of emotions and tried not to fight how I felt inside. When I was sad, I let those loved around me know that I was in sad. I would let the tears flow when they needed to flow because it is good for the mind and body to release the tears and emotions that go with the tears. I know the people who support you do what they can do to help you stay positive and to help themselves stay positive about your situation. Those loved ones and friends can only sit on the sidelines and witness what you are going through mentally and physically; they are somewhat helpless since they are left with positive words and acts of kindness to make your journey a little easier. Please be easy on yourself while on this journey. You don't have to be superwoman 24/7 here. You just need to be yourself and do the best you can do to help take care of yourself and heal. HUGS to you and everyone else who needs them!!!!
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Cindi that would be awesome if you could add ages I would like to see how many under 40 we have. It seems more and more young woman are getting hit with this!
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For those of you who mentioned that metallic taste this is what helped me: mints, candycanes, and ice tea. It was the only thing that tasted normal and cut through that bad metal taste. I also really liked Biotene mouthwash- I used it about 10 times a day! There were other things I could tolerate, and things I couldn't- but it lasted less than a week and I am completely back to normal now- so at least for me it was temporary.
Yesterday was day 14 for me and my hair was falling out in massive clumps. It was so gross! I got together with some friends and had my hairdresser friend use the clippers on it last night. I was surprised that I had no bald spots- stubble all over! I really thought with all the hair that was coming out I would have bald spots. I am also happy to report that I actually look pretty good with no hair! I am still to scared to go out of the house that way though. I have to go to a meeting today and will wear my wig and even that makes me quite nervous! My head got really cold last night- I slept with a hat on and that helped but I still felt very 'breezy'
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P.S. Chemo nurse told me yesterday to try pineapple for mouth problems, either fresh or put in in ice cube trays in the freezer. She said there is something in pineapple specifically that helps. I haven't tried this yet so can't vouch for whether it actually works.
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I am 55, 3 kids, two daughters 35,33, and a son 31...8 grand kids ranging fron twin 4 yr olds to 16.
I was told by the chemo nurse to try sugar free lemon drops?, I haven't had any metal taste so I haven't had to try this but I thought I would pass it on. I usually put a few drops of lemon juice in my water anyway as it is good for the cells. -
I am 55,
I was told by the chemo nurse to try sugar free lemon drops?, I haven't had any metal taste so I haven't had to try this but I thought I would pass it on. I usually put a few drops of lemon juice in my water anyway as it is good for the cells. -
Hi all,
I haven' t had the metal taste yet, and not looking forward to it. I am super sensitive to all smells right now. Everything smells bad.
I am 44 years old (my birthday is coming up) and I have two children - girl/5 and boy/2 (although they both have birthdays in the next week!)
Overall, just feeling a little like I have the flu. But nothing too horrible as of yet.
Hope everyone is feeling okay today
-mariposa
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Re: metalsulfur-mouth
During AC I found that the cup completely full of ice with just a bit of liquid on it and a few drops of lemon juice to be my preference, or tons of ice with some Reed's ginger-ale (very high ginger content) but the ginger is strong enough that it might "burn" a little, hence all the ice. I sipped icey liquid all.the.time. I'm finding slightly less need for it with Taxol though I'm on Day 2 after chemo (I had it Tuesday) and my mouth is AWFUL today. so super icey stuff today. I liked Ginger Chew candies too for those first several days after AC.
"try to avoid to eating/drinking them while your taste buds are on vacation so that they can stay your favorite foods/beverages after you finish chemo!!!" <- THIS. I completely ruined some of my favorite foods by eating them on my chemo days. I didn't have as big a problem with foods on the other days but generally that first week after AC is the worst. The 2nd (and 3rd in my case) weeks post were not quite as awful. I'm not sure on Taxol if this is going to be the same. My appetite wasn't diminished the first 2 treatments but I'm noticing the last couple of days I have to remind myself to eat. Luckily my stomach doesn't hurt like it did with AC but right now, it's lunchtime, I maybe should eat but there's nothing I want to eat and I don't sense hunger.
I also chew a fair amount of Spry cinnamon gum (it's xylitol based) unless I have mouth ulcers, then it burns too much.
and I have some Spry peppermints but I couldn't STAND those during AC. If I have mouth ulcers I do an oil mouthwash first thing when I get up in the morning. I use a good oil for it, right now I have sea buckthorn oil but an organic sunflower or sesame would be good too. I use about half a tablespoon and hold it in my mouth, move it around a little but not too vigorously, for about 20 minutes. Some people attribute all kinds of health benefits from this practice but all that is proven is it reduces plaque. It feels soothing to me on the ulcers and mine cleared up very quickly doing this a few mornings in a row. I didn't do the baking soda thing. I haven't had thrush yet.
and yes, scents are like SUPERSMELLS! now. ugh. especially one of my dog's nasty dog breath. barfo. I can burn a scented candle for a little while but then at a point even that can get too strong so I blow it out. -
hope everyone is doing great today. Just completed second round and so far so good . Amy, love the hair. I just turned 46 and have four children ages 12,11,9,7 .
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