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  • purple32
    purple32 Member Posts: 3,188
    edited September 2012

    gentianviolet

    THX for the clarification. I would be concerned if everybody took the 5 lbs as a blanket staement. *Most* of what I've read says that beginners should start back as low as 1 lb and gradually build up ...with their DRS approval.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2012

    Mini and Momine, Danny Boy is 145# now and is not allowed to put any tension on leash but sometimes it happens.  When I was gardening, holding Danny Boy's leash, a horsefly "came after him" (my eyes are rolling) and he decided to outrun it.  Pulled my arm about out of joint and took my back and knee out of place.  Damn dog. Fortunately it was unaffected arm.  Brushing him and raking the carpet is hard on the LE arm, butI have to do it.  Yes, I rake the carpet w a leaf rake, easiest way to pick up his furballs when he scratches them loose.  He is 50# of black fur that is like down and he blows his coat.  

    Purple, you are right about the acupuncture needles.  She doesn't use them on my arm, there are secondary points.  But those I am not afraid of anyway.  It was the IVs and the blood tests.  I didn't know not to have in affected arm, no one told me.  Then learned about LE and relieved I am not a worse mess.

    Tonight I ordered 4 flower essences for the application to acupuncture points w/o needles.  I am doing it as my first level of deep healing emotionally and spiritually, along with a homeopathic following.  Will be interesting. 

    Sweetbean - the description of the node tests is great, hope they get it in the surgery room sooner than later, we need it. 

    LOVEEssa

  • Momine
    Momine Member Posts: 7,859
    edited September 2012

    Wow, that is one big dog, lol.

  • purple32
    purple32 Member Posts: 3,188
    edited September 2012
    "I didn't know not to have in affected arm, no one told me.  "


    JERKS!  They deserve  a lawsuit , Essa.  That is a permanent condition!
  • Momine
    Momine Member Posts: 7,859
    edited September 2012

    Purple, it is all too common, unfortunately. Doctors are often woefully uninformed where LE is concerned. I had to practically wrestle mine to get a referral to a therapist, and both my doctors keep asking, in the manner of little kids, "why are you still wearing that?" when they see my sleeve.

  • Mini1
    Mini1 Member Posts: 1,836
    edited September 2012

    And yet these are the people that we are asked to follow blindly and who look at us like we're rubes when we question them regarding something we've researched. My mom trusted her doctor to her grave-where he put her. It's only been a few months but my doc already knows I"m coming with lots of questions and will not take everything he says at face value.

  • pip57
    pip57 Member Posts: 12,401
    edited September 2012

    Essa, let us know how the aromatherapy on the acupuncture points works for you.

  • purple32
    purple32 Member Posts: 3,188
    edited September 2012

    "Doctors are often woefully uninformed where LE is concerned. I had to practically wrestle mine to get a referral to a therapist, and both my doctors keep asking, in the manner of little kids, "why are you still wearing that?" when they see my sleeve."

    =============

    IDIOTS!
    This is a permanent condition. Whatever happened to ' first, do no harm ? "  There should be lawsuits for not giving proper warnings and info.  All they'd have to do is give you a handout ...then it would be YOUR/OUR responsibility.  With NO info, I feel it is my DRS responsibility.  I trusted them.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2012

    It will be flower essences, they are liquid light, so to speak.  More elusive and powerful than homeopathics when dealing emotionally and spiritually.  I will let you know.  Last night placed order and not sorting through my other three homeopathic remedies to order to go w the carcinosimum from the UK. 

    I do use a few aromatic oils and medicinal oils but those are to balance hormones.  

    Yes, the big dog is one of my life inspirations. He makes me laugh so much.  Here is a picture... and he too is a rescue. A Newfoundland purebred who was on death row at a kill shelter, idiot owner, our gain and he is so wonderful.

    darn, I use a plugin called copyright pro on websites and cannot get the link location but Lacey's feature pic came up for that story where he is.  You can click her pic to that page and see him or at least his head there.  

    I am like Abigail, I am going to do what I love until my last breath, whenever it comes.  Listening to music, singing, writing, working, eating cherry tomatoes and almonds.  A good day.

    Mini - yes, we are asked to follow blindly.  I was for a short time when it came to surgery especially, not a good idea. 

    LOVEEssa

  • Mini1
    Mini1 Member Posts: 1,836
    edited September 2012

    I agree, Mad. We're basically in shock when we make some of our decisions. They make it seem like you have to do something right that very minute. Well if it took 5-7 years to get to this point, unless you're a stage 4, a few more weeks won't hurt anything. I wish now that I hadn't done the rads, but that is water under the bridge. I'm just trying to undo the damage done and trying not to incur more. Not much else we can do.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2012

    Wow, I am do lucky to have docs who are open, honest, well informed and welcome my questions. Sorry for so many who feel let down by their docs.

    Caryn

  • Mini1
    Mini1 Member Posts: 1,836
    edited September 2012

    Be very glad exbmxgrl. My doc is a nice man and took good care of my husband after he had cancer, but he is an assembly line doc and very traditional. I keep searching but without the resources to pay for out of area docs, my options are limited.

  • pip57
    pip57 Member Posts: 12,401
    edited September 2012

    My surgeon was very open and direct about the issues concerning the nodes.  I was asked to consider the pros and cons before deciding how to proceed.  The question I always ask is "what would you want your wife or daughter to do?"

  • Mini1
    Mini1 Member Posts: 1,836
    edited September 2012

    I ask that too, but that also depends on the doc and their background. Even their age. Statistics show that older doctors tend to ecommend mastectomies over lupectomies at any stage, even when the data doesn't support it. It's better safe than sorry mindset. Also, some do not keep up on current studies and treatments. It's a crapshoot for some of us; especially those of us in smaller areas. Thankfully, there are some nearby facilities that would be options if I need further surgery or treatment, but are not practical for regular follow up care since they are located 100+ miles away. We traveled to Indianapolis for my husband's CA treatment. His roomate was from California. We were estatic at having the country's leading docs for his CA only 4 hours away.

  • pip57
    pip57 Member Posts: 12,401
    edited September 2012

    My dh and I visited the Indianapolis area a couple of years ago.  We were astounded by the medical facilities in the area.  Definitely a good place to be if you need medical services.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited September 2012

    I believe I was made aware of the lymphedema risk by someone, but at the time it meant nothing compared to my urgency in having the nodes out. Mine were hugely inflamed with cancer and I could feel them, especially after the needle biopsy which I am convinced made things worse. I ended up having one of my cancer nodes with a diameter of 2.5 cms! I remember my onc reminding me of that when he was trying to convince me to have chemo. Minds work so differently. My thought, upon hearing about that node was "what a fantastic node - it really kept the cancer from going further." I am not usually prone to wishful thinking, so I wonder if somehow I knew what my body was doing. It may or may not have been magical thinking. Who is to say for sure.

    Luckily, I have no lympedema as of right now. The only precautions I take are to ensure that no blood is drawn or no blood pressue is taken from that arm.

  • purple32
    purple32 Member Posts: 3,188
    edited September 2012
    "The only precautions I take are to ensure that no blood is drawn or no blood pressue is taken from that arm."

    I certainly would never allow that !  There is also BREAST/ TRUNCAL  LE.    Mine came after 3 weeks.  Just be informed and be very careful ladies---thats all you  can do.
  • Momine
    Momine Member Posts: 7,859
    edited September 2012

    Athena, I had two palpable nodes, one of them quite big. After surgery it turned out that the really big one had no cancer, it was just inflamed. On the other hand, there was cancer in the smaller one and 6 others. Go figure!

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited September 2012

    It is weird, Momine. My BC presentation was entirely "by the book" as understood by the general culture - the easily palpable lump on the breast, easily detected by mammo, and my inflamed nodes were indeed cancerous. No surprises at surgery.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2012

    A friend told me that someone she knew refused to get chemotherapy for the second time and just resigned to the fact that got breast cancer. Until one day, a friend of hers recommended her to eat lots and lots of Guyabano/soursop and to boil the bark and the leaves of the tree and to take it as a tea. She was told it was a natural treatment for cancer. She seemed to feel better from doing that so she decided to see a doctor. And man, the cancer cells seemed to have deteriorated and the doctor did not know why. I heard this soursop is really a cancer fighter. I bet there is no harm in trying. It is all natural anyway. Speaking of natural, I'd been taking mangosteen and pomegranate supplements. I feel brand new and awesome! My friend referred me to this very good review site http://annwhite.tophealthproductsreview.com . I owe my friend a lot!

  • Momine
    Momine Member Posts: 7,859
    edited September 2012

    llaverjane, just because something is "natural" doesn't mean it is harmless. If it does anything at all, it has the potential to be harmful as well as beneficial. Apart from that, spam is not allowed on this site.

  • Mini1
    Mini1 Member Posts: 1,836
    edited September 2012

    My lump was found by mammogram and ultrasound. It was deep and in a position that neither my doctor or I could feel it. Because of its location, it would have had to have grown considerably larger for it to be felt in an exam or to have caused me discomfort. The timing of my mammo was very "lucky" for me. I was actually late in getting it. Had I gotten it when I should have, it likely wouldn't have shown and it would have been another year before I had my next one. I was almost 6 months late in getting it, but by then it was big enough to be noted by an alert radiologist who then ordered a diagnostic mammo and MRI to confirm.

  • graced
    graced Member Posts: 104
    edited September 2012

    Mini, I had the exact same scenario - lump too deep to be felt by me or BS.  I was also 6 mos late in getting mine and I think too that if I had been on time, it would not have shown until the following year.  Strange how things happen sometimes.

  • purple32
    purple32 Member Posts: 3,188
    edited September 2012

    Mine could not be felt by BS  MO RO or  GYN ...or me.  It did show on the mammo and when I askled to dsee my PREV yr mammo, I saw it there as well!  Talk about geing pissed off !

    I spoke to the radiologist and he said he was sorry---though he was quick to point out he was not the DR who read the prev ytr. The written report did say normal, but he too could see it .

    he just said :  " it was very small.  I guess he ( Last yrs dr)  didnt see it as significant."

    I sure bet he would have had it been his wife !

  • Mini1
    Mini1 Member Posts: 1,836
    edited September 2012

    My doc said at best if it showed (had I had it on time) at all it would have likely been noted as something to look at and compare to the fpllowing year's mammo, so small spots on mammos may be common. Especially with those with more fibrocystic breasts. Not that that will make you feel any better I know. I must admit that it never occurred to me to ask to see the previous year's mammo. Hmmm...

  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    tried twice to post, 3rd time testing

  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    gary talked about the importace of selenium, much not needed.  I have ruby glass glasses at the studio I drink juice out of

    a new industrial chemical, dcl, a man with lung cancer said after the usual treatments he tried this stuff for less than a month & felt the cancer disolve & his doctors said he was ned.  they said it was their therapy, he didn't think so.  says it doesn't work for all kinds of cancer.

    I spent saturday reading on the intenet, 7 true, what I have doesnt resemble what I saw in one dphoto, it didnt seem like the usual manifestation either.  one place said IBC sometimes manifests as a smaller not larger breast.  this is what alleted me.  the cyst had hardened & moved up & that volumn was gone & the breast smaller.  the inflamation is so far only on the cyst.

    the blackthorn oil is great.  got to sleep again right away last night after using it. 

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited September 2012

    A new industrial chemical? Alternative maybe, but hardly sounds natural. It would be pretty hard to prove what treatment worked given that he used it after conventional tx. To much heresay for me .

    Caryn

  • abigail48
    abigail48 Member Posts: 1,699
    edited September 2012

    & somewhere it said that the 6 to 9 months survival for IBC was outdated, & the 45 percent alive after 5 years as well, they said that 10 years was now not uncommon.  that would take me to the age long ago a phsycic astrologer I met via a real letters club, she bought 1 issue & answered 1 ad, mine & we've been in realmail contact ever since, she's now in her middle 80ies.  I didn't ask, but she volunteered that my end would come about 8 years from now.  she projected this for me many years ago, long before this trouble.

  • pupmom
    pupmom Member Posts: 5,068
    edited September 2012

    You're healthy abigail! Celebrate! You don't have ANY troubles, plus now you can sleep! YAY!

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