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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited July 2012

    I believe that any type of long term disability is meant to bridge the gap (the required waiting period) until SSDI starts up.  Then it depends on your policy whether there is an offset. 

    Ann - you're not cheating at all.  This is exactly how it's supposed to work.

  • Mzmerz
    Mzmerz Member Posts: 1,054
    edited July 2012

    Ann, you can still get a benefit for your son while you are living.  The SSA lady told me to have that put under my husband's name so that when I passed, there would be no break in benefits, just a change from getting as a benefit from under me as SSDI to survivor benefits.  Otherwise your hubby would have to reapply.

    I will be getting SSDI and LTD, plus money for my kids.  It won't total what I was making before, but it will be better than nothing. 

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited August 2012

    Thanks.  This isn't a long term disability as such though.  Well , maybe it is but they don't call it that.  Legally, I don't know what it is.  It's a negotiated union benefit called a terminal illness disability leave benefit and I get my full pay for an entire year.  My doctor certified that I had an illness that would lead to death and so then I get a year of pay.  Oddly enough, if I don't die in the year and I feel better, I can go back to work (just not my particular job.)  I thought that was very odd!  If you have an illness that leads to death and quit because you can't work anymore, as I have, why would you ever be able to go back?  So strange.....  

    What my workplace has done is put me on sick leave in their system but it isn't real sick leave - this is a union benefit.  My understanding was that a benefit shouldn't count towards SSDI and I didn't worry about it, until I saw they put me on sick leave, so I'm wondering if they are still considering me an employee?  They have cancelled my email and everything else, so it's weird what is going on.

    Even though I am getting my pay, I still wanted the SSDI benefit so that I can pay off all my bills with it before I die,  and use my regular salary to live as we had.  I don't really think I'll be alive in a year so I wanted to get everything set.  When I die, my salary is gone, so I wanted to tide my family over as they adjust.

    I do want that benefit for my son.  I didn't know he could get it while I was alive.

    I hope the attorney responds, I would like to hear from him as it's confusing.  

    I guess I can call the SSA too, it's just extremely difficult to call a government agency. 

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2012

    Ann - your union benefit works pretty much the same as most corporations long term disabiity program, except yours is much better (good union benefit).  You should call SSA to ease your mind.  You might be able to call your union benefits administrator - he or she can answer the question.  You won't be the first person who's applying for SSDI while collecting the disability benefit.  And it should be easier to get through to them.

  • silentbell
    silentbell Member Posts: 266
    edited August 2012

    Cool, when we were talking to the rep about the last date she worked and how she was only left with vac time as her sick time (accrued) was gone, the rep said that only pay for time worked would come into play to determine her benefit.  Hopefully since you are not "working" for that money that's a negotiated benefit it may not count.  There are income limits that do factor in.  I don't know for sure if matters because you are not working or earning anything.  Good luck.

    Thanks to all.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited August 2012

    Ann, I think you might find the disability determination folks the better place to call if you have already started the process. They aren't as affected by first of the month phone jams.



    SSA checks are going out and they usually say avoid the first week of the month.



  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited August 2012

    I guess I'll try to call them on Monday.  I hate spending all day on hold and getting the runaround.  :(

    I thought there was an atty here who answered questions but he's long gone, yeah?

  • singletona80
    singletona80 Member Posts: 224
    edited August 2012

    I have a question (a lil background info.... ) I worked for 8 yrs 2002-2010 , made a decent salary so I have all the work credits needed. My first dx I was stage 2-3 went on STD for a year, went back to work for 4months , was terminated oct 2011, dx stage 4 nov 2011.... currently I'm receiving unemployment, soon I will apply for STD becuz I didn't use up all my money from the first time i was out on STD, and then apply for SSDI when STD runs out.



    My question is when do I need to apply for the SSDI? Do I apply for that at the same time I apply for STD?? Being that I'm Stage 4 Im going to apply for the compassionate allowance but from what I'm reading there is still a waiting period before u get ur first check , right??

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited August 2012

    Singleton, yes there is a waiting period, regardless of when you apply.  It starts from the day the SSA determines to be your date of disability.  Apply now, no reason to wait.  Your unemployment or STD payments are irrelevant to the determination date.

    Ann - the attorny who has been helping us out has a wife who is struggling with her BC.  He pops in periodically, as time allows.    There is no harm in calling your union benefits administrator and you may get a quicker answer.  You can still try to call the SSA, put your phone on speaker, and do other things while you wait for your turn.  Or go in person.  I had to help one of my direct reports get set up with LTD and SSDI, and I found our company's benefits administrator to be well-versed in this area.

  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited September 2012

    FYI:  I found out I was approved and I get a check the 2nd week of the month.

    That will really come in handy, I must say, even with my work benefit.  Which I'm counting down the days until it ends.

    Now I have to check and see if my son qualifies for anything, or if he doesn't get anything until i die. 

  • bevg49
    bevg49 Member Posts: 739
    edited September 2012

    congrats, coolbreeze and I also found out I got accepted about two weeks ago. It was a shock to me. I thought for sure, knowing how they operate especially with the economy as it is, I would be rejected and have to appeal. I applied in May online. I went to see their doctors the 1st week of August and got the acceptance letter the 3rd week of August... 2 days later I had the 12 month retro check. I must say I was pleasantly surprised in one way but it was scary to think the government thinks I'm sicker than I thought they would lol. Am I sicker than I thought?

  • crystalphm
    crystalphm Member Posts: 1,138
    edited September 2012

    Just a question to see if anyone has any thoughts on my situation. I have had a double mastectomy, lymph nodes removed, some LE. I also have been treated for a panic disorder for the past 20 years. Up until breast cancer, i did work 20 hours a week as a preschool teacher, and now I can't go back. I can't lift, I don't have the stamina, and i am still dealing with anxiety issues from getting hit twice, 18 months apart with breast cancer. (I did work as a teacher full time for about 10 years, then part time for 20 years) I am 57.

    The panic disorder makes it very hard for me to even try for disability, but yet i cannot support myself on my art. Do I file online? Does anyone thing I should try? Did anyone need a lawyer? My anxiety holds me back from even trying, and now the breast cancer has my nerves shot. The thought of lack of money is pretty upsetting.

    Thanks anyone who has advice. I don't even know how to begin this process. Will I need doctor's reports?

    Thanks.

  • Mzmerz
    Mzmerz Member Posts: 1,054
    edited September 2012

    Crystal - There is nothing to lose but not trying.  If I remember right, you can save the application as you go, so if you are having a hard time with it, you can do it in pieces.  You will need your doctor's names and contact info.  They will get the records from the dr if they need them.  If you really feel you can't handle it, you can try ALLSOP, I think is what it is called.  They can help you.  It's not free, but if it helps you, it may be worth it.

    Bev - you were approved for SSDI being Stage 1?  I am interested to know how that worked.

  • bevg49
    bevg49 Member Posts: 739
    edited September 2012

    Crystal, I filed online. It was a relatively easy process also, though a bit lengthy. You have to have the names of all your doctors, all the medications you're on and all the conditions you have plus all the jobs you've had with dates... The harder part comes after. They send you additional paperwork to fill out (nothing you don't know offhand) and then make an appt. for you to see their medical doctor and psychiatrist. I was surprised that from online application, to their mailed paperwork, to the 2 separate appts., 1 with an Md and one with a psych, it took from May to August to be accepted and done. I have panic attacks as well which is why I have been eligible since I stopped working 4 years ago and did nothing.... I was pleasantly surprised at how easy it was.

  • NMM
    NMM Member Posts: 138
    edited September 2012

    crystalphm

     Apply.  All they can say is no and then you appeal.  But you have some good factors in your favor like age of 57.  Make sure if you apply you list all your medical sources for any and all impairments you are treated for.

    Steven

  • NMM
    NMM Member Posts: 138
    edited September 2012
    singletona8...

    I tell everyone...Apply ASAP...SSA can take a long time so getting in line sooner is always better.

    Keep me updated. I hope you get approved but if not let me know as I see in your profile you are in CA.

    Steven

  • NMM
    NMM Member Posts: 138
    edited September 2012

    silentbell

    The waiting period always starts from date of disability..not from date of decision.  So you count 5 months from disability onset...if one is still within that 5 months no check yet...if outside then you get monthly check starting pretty quick and a back check.

    Steven

  • NMM
    NMM Member Posts: 138
    edited September 2012

    Sorry I have been re-miss about not responding quickly.  If I have missed a question let me know.

    Just got a PET scan back. Liver cells are necrotic in the center with only outside activity. No growth for 9 months now on Xeloda.

    Bad news is that the breast tumor is still growing and now there is a 6mm tiny spot on the left lung up high and a similar small spot on the spine at L1.

    Obviously liver is still the thing to worry about, but not comforting.

    So staying on Xeloda with the thought of maybe tamaxofin(sp?) in the future.

    Steven

  • crystalphm
    crystalphm Member Posts: 1,138
    edited September 2012

    Steven, Just a note to let you know you and your wife are in my prayers and I always appreciate hearing how she is doing.

    A sincere thank you for all you do for us here!

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited September 2012

    Steven, thank you for helping everyone here, and I also offer special prayers for your wife.

  • vacationbound
    vacationbound Member Posts: 171
    edited September 2012

    I was just on the ssa website and I read that it was from start of decision

  • vacationbound
    vacationbound Member Posts: 171
    edited September 2012

    I was just on the ssa website and I read that it was from start of decision

  • vacationbound
    vacationbound Member Posts: 171
    edited September 2012

    I was just on the ssa website and I read that it was from start of decision

  • bevg49
    bevg49 Member Posts: 739
    edited September 2012

    i believe it's from date of application.

  • butterfly14
    butterfly14 Member Posts: 253
    edited September 2012

    Hi Steven, 

    I am stage IIB and also have lupus. The tumor was very close to my chest wall and surgeon had to taKe part of my chest muscle to get clear margins. Because of the lupus, I cannot do radiation treatments. I am starting chemo on Tuesday and was wondering if I should apply for disability and what my chances for being approved are.

    Thank you so much for your time, and I hope your wife and children are all well.

    Carla 

  • bevg49
    bevg49 Member Posts: 739
    edited September 2012

    Steven will definitely have the definititve answer but I would say, apply... What can it hurt? It is easy to do online then they send you to see their doc.... I didn't think I'd get approved just because of the economy but in 90 days, I was...

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited September 2012

    You may get approved without having to see "their" doctor.  It just depends on individual circumstances.  They did not send me to their doctor.  I was approved in less than two months.

  • bevg49
    bevg49 Member Posts: 739
    edited September 2012

    Interesting.... They made me have not one but TWO appts. with their docs... I guess because I was using other ailments besides BC in my application or maybe it varies state to state. Then again, my husband had acute liver cancer about 5 years ago. They allowed ME, not even him, to talk to them on the phone and answer questions as they filled out the papers.... That was it. He was automatically accepted. As an aside, he was a lucky one. He was given 1 to 2 years at that time and it's over 5 years and he's still in remission so one never knows, no matter what the statistics say.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2012

    I have dealt with osteoarthritis since my early 30s. I'm now almost 62. I applied for ss disability in 1990 and was denied. Their reason was, that I was a high school grad.

    In January 1993 I applied again. This time they sent me to their Dr who tried to get me denied, but 2 weeks after seeing her I was approved. Surprising thing is, SS said because of the severity of my diagnosis and their experience with it, they went back 1 year before I actually applied. Meaning that when I got my retro check it was for 18 months rather than for the 6 months since I had applied. I did not get attorney, because they didn't deny it.



    I have a 24 year old son who was diagnosed with Type I diabetes when he was 6 years old, taking 4 insulin shots a day. When he was 11 his growth flat lined. He didn't grow at all for 2 years, so on top of the shots he was already taking, he also took a growth hormone shot every night for 3 years. At age 17 they discovered he had enlarged liver. When he was 20 we received the worst news of all...an HIV diagnosis! This effects his kidneys and blood pressure. He also has frequent debilitating migraines, but with all of this he was turned down for SSI. So we got an attorney and appealed. He finally was approved, but for none of the physical issues. They approved him because of all the mental stress that these other things cause. Because he was approved before age 22 he draws Social Security Disabilty as an adult child of a disabled parent. He also gets SSI to suppliment his income.



    If you are applying for benefits...DON'T GIVE UP!!!!!!!



    Blessings

    Paula

  • Chickadee
    Chickadee Member Posts: 4,467
    edited October 2012

    Wanted to add to the experience of being on SSDI.  I decided to try the trial work period after 18 months of SSDI and finding myself feeling fairly normal.  I have kept my reserve status with FEMA and agreed to work in Baton Rouge after Hurricane Isaac came through.  I committed myself to 30 days knowing I would have scans and Drs appts soon after.  If you earn more than $720 in the month you have to notify them.  I earned substantially more and so I called.  That seemed easy enough and she told me they would send me a receipt, essentially acknowledging that I worked one of my 9 months trial.  I thought maybe that was it, but within 2 days I got a thick envelope from the local office that requests all sorts of details about how much money, accommodations, why I left, per diem, and requesting printouts of my pay record.  Ugh.  Oh well, the job ain't done until the paper work is.  I will comply completely.

    My Dr. appt. turned up some suspicious blood results that I will be having scans on Nov. 2.  If they confirm progression I will finally let my reserve status with FEMA go.  Reluctantly.  Future treatment options will only get more debilitating.  I noticed during my 30 days that side effects became more intense and I was getting more and more fatigued.  So no more work trials for me.

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