Sept 2012 chemo

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  • Cindi74
    Cindi74 Member Posts: 363
    edited September 2012

    Perhaps yesterday afternoon, 4th after first A/C chemo was the nadir.  I hope so. 

     After getting home from church, watched two videos and  napped, but felt worse and worse as evening progressed.  No pain or real nausea, but total weakness.  Tried bike and lasted 3 min and .5 miles.  It felt like that TV ad elephant was sitting on my chest.  Beginning of low back pain.  But not really pain.  Tried to drink water, and felt a bit nausea, so took 6 hr pill which I found in the past puts me to sleep.  Then I took Tylanol for beginning pain in lower back.  Husband called Dr. at 11 because I was so weak.  On Call Dr. sad "You will feel better tomorrow."  Went to sleep waking up at least twice for bathroom. 

     Woke up this morning and discovered that I lost four lbs since yesterday same time.  Husband pushing me to drink more.  Actually feel a little better.  Hubby (80) has gone to cook big breakfast.  I haven't felt that weak since I had the second baby  9.5 lbs without antisthesia and hemoraged.  Just so so weary. Breathing seemed difficult.  Is this normal?

    Waiiingforthenextstep, the anxiety before first chemo was much worse than the chemo.  The port is a god send.  Get anxiety meds.  They help a lot.

    There are 43 of us now.  I am 75.  Am I the oldest.  I think of us as on a Wagon Train to good health and longer life.  We are to help us all get through.  i propose a reunion on this board in five years.  Hugs and NO SE.

  • jojo2373
    jojo2373 Member Posts: 662
    edited September 2012

    Ohh Cindi so sorry you are feeling so worn out.  I am right there with you, this is my day 3 of AC#2 and definitely feel more tired this time around.  I am up and going though!  

    I see there are alot of scared and angry sisters here.  We have all gone thru each of the feelings you are going through.  Please try to see this as a journey that you WILL make it through.  It sure is crappy alot of the time and I grieve daily for the "old me".  I know I can never go back, but choose to go forward and live each day to the fullest.  We invite you here to join us on this journey past cancer! 

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Intern, Waitingfor and Butterfly, it's okay to be angry, mad, pissed off, and sad. As you go further into the treatment that will all settle a bit. Once you are on a treatment path it gives you a bit of the control back......I think we all have had the big meltdown..and Intern if you beat the crap out of a punching bag, you girl are ready for the fight!



    We are all stronger than we think, we are here now, and the only option we have is to fight, the alternative just doesn't cut it!



    Stay strong!

  • EvaNJ
    EvaNJ Member Posts: 9
    edited September 2012

    Hello ladies

    My name is Eva I'm 37 yo I was diagnosed with breast cancer on July 10 2012 sept 14 was my first AC treatment (3more to go) today is day 3 post AC and my energy is really low worst day however was Friday (the day of) around 4 hr after treatment I was shaking sweating and my nausea was unbearable fortunately pills help but nut to the point that it went away completely Saturday and sunday was much better besides being so weak my appetite is ...well I have no appetite water taste terrible but I still drink it hopefly this weaknes will pass and I will be able to do some things

    Hope all af joy ladies have a wonderful day

  • bearcub
    bearcub Member Posts: 485
    edited September 2012

    Cindi I hope you feel better soon, I have to wonder if it is the dense dose you and JoJo are getting along with the neulasta shot that is making you girls feel so awful. Take it easy and listen to your body. Enjoy the Florida warmth, up here the leaves are turning yellow and I will need a scarf and hat soon....we have already had the wood stove going!


    Eva I hope you feel better soon.



    I am 55. 3 grown kids, 8 grand kids...ages from twin girls that are 4 to the oldest grandson who is 16.



    Well Sept girls we are another week ahead of where we were last week, we are doing this!






  • rsdavid
    rsdavid Member Posts: 34
    edited September 2012

    Hi, Amy!  Thanks for starting this thread.  I start my chemo (TCx4) tomorrow.  Taking the steroids today, tomorrow, and Wednesday.  My lumpectomy was back in June, but I developed a post-surgery infection that set me back at least 9 weeks.  My infection was declared "clear" last Monday.  Saw MO on Wednesday, had my port implanted on Thursday and chemo starts tomorrow.  They will do my "chemo ovreview" while setting up my first drip!   My head is swimming.  I don't think the port will be healed enough to be useful, tomorrow, which I find discouraging and a little scary.  I have become quite frightened of all the needles.  (The needles prior to my lumpectomy just "did me in"!)  After chemo, I am traveling to a university hospital to have a second recision, to expand my clear margins, and radiation internal to the incision.  I am hoping to get it all done by Christmas - mostly because I have hit all my deductibles and want to start the New Year fresh - ha!

    I haven't yet read all the posts, but am thankful to have "travel buddies" down this road.  Thanks, again,

    Sherrie

    BTW, I am 58 and post-menopausal.  I just updated my signature line, but it may not show up with this posting...

  • Cindi74
    Cindi74 Member Posts: 363
    edited September 2012

    Well rsdavid and EvaNJ,  that brings our Sept. group to 45 in the EXCLUSIVE CLUB NOONE WANTS TO JOIN.  If you go back a page or two, you can see the list.  It's a caring, helpful booster group.  At 75, I may be the oldest.  The good news for me is that after a night when breathing seemed too hard, my hubby got up and cooked a big breakfast which I ate.  I am definitely not up to par, but I feel as if I will get through this.  I feel a little better.  Rsdavid, I am definitely with you on the needles.  I LOVE the port which got me through the first chemo.

    Is the "dense" dose every 2 weeks.  Well, I am every three weeks.  So glad the first time is over.  I am still taking the Claridin and haven't had real bone pain yet.  Never had real nausea, but had three pack of anti drugs for first three days and took the six hour drug that virtually puts me to sleep at least four evenings.  First A/C last Wed.  Light fatigue set in  Saturday afternoon.  Total fatigue (too tired to watch TV) set in Sunday afternoon and hopefully was the worst Sunday night.  What say sister experts?

  • kelleyb
    kelleyb Member Posts: 94
    edited September 2012

    Hi there - YES - anger, I am right there with you.  I'm 11 days post chemo treatment #1 and have struggled with a lot of anger...ok, make that rage at times.  I came home on day 8, still feeling physically terrible despite taking all the nausea meds, drinking fluids and even after 6 hours getting IV fluids, still felt horrible.  So, I walked into my home and starting breaking things.  Small, inexpensive things, but still...I broke several things by smashing them to pieces on the file floor.  I recovered after about ten minutes, but in that ten minutes a whole flood of anger about this diagnosis came out of me.  Anger at being "chosen" for this experience.  Anger at being "chosen" for stage 3c.  Anger for having an especially "aggressive" form.  Grrrrrr.  It felt good to get the anger out, to acknowledge that along with the absolutely terror and grief I've experienced in such a brief time since being diagnosed (less than 60 days), that I am indeed very, very angry about it. 

    I don't know anything to say except that I believe this is normal to be angry, that we are forced to deal with a terrible, scary threat to our very existence, become instant medical experts, and somehow also expected to put on a pink T-shirt and be cheerful.  To deal with the fact that our lives are not perfect, our families are not perfect, that we are going to have to suffer if we stand a chance of beating this thing.

    What I will say to you is I send you lots of love and light and hope that you are one of the strong ones who can take the treatment and come out on the other side with most of your life intact - or even better, if that is possible.  I surely do wish those things for me, though they seem so unlikely right now. 

    Kelley 

  • Cherioo
    Cherioo Member Posts: 305
    edited September 2012

    Jojo love your hair in that picture

  • jojo2373
    jojo2373 Member Posts: 662
    edited September 2012

    Thx Cherioo, its the prebuzz look

  • jojo2373
    jojo2373 Member Posts: 662
    edited September 2012

    Kelleyb, yes we are all angry. I had just graduated my youngest child from high school, achieved great success in my job, planned wonderful new things for my life and BAM- Cancer. Mine like yours extremely aggressive and already n my lymph nodes before i could even take a breath. Starting my treatment is what is healing me mentally and physically now. Take it a day at a time, thats all we can do for now. Hugs

  • movinonmom
    movinonmom Member Posts: 7
    edited September 2012

    Butterfly,

    Wow, opposite sides of the country and we both received the life changing news the same day.

    Butterfly and internutz1, I am right there with you, I am at the angry point, mine more directed towards my MO, who told me that no one can make the chemo decision for me (I get that, I want to know pros and cons, thats all I am asking,be direct. I have only a 7 week education in Cancer all internet based, he has 20+ years) if I decide I want to "bother" with chemo, Really Bother... 

  • movinonmom
    movinonmom Member Posts: 7
    edited September 2012

    The pre buzz look is really cute, I am certain you will look beautiful with a buzz as well:)

  • movinonmom
    movinonmom Member Posts: 7
    edited September 2012

    Kelley,

    BIG hugs Sister. 

  • DonnaD08
    DonnaD08 Member Posts: 128
    edited September 2012

    Jojo I love your new avi. You look adorable. Good luck with the shaving. I think it's better when it's over. Then we move on to the next hurdle. Xoxo

  • DonnaD08
    DonnaD08 Member Posts: 128
    edited September 2012

    Movinonmom Are you serious? How are you suppose to know what's best? Isn't that what you are paying him for. It's not like surgery where they should tell you what your options are and you choose. What a moron. I think I would be looking for a new MO.

  • DonnaD08
    DonnaD08 Member Posts: 128
    edited September 2012

    I had a great weekend. I love the end of week two. Just when you start to feel almost normal again before it starts all over again. Friday we had a small 10th anniversary party for my sister, then Saturday dinner at a friends house. Sunday it was mommy/daughter day. INOVA Breast Care Institutute invited all their patients to attend a special WNBA game in honor of breast cancer awareness month. We got free tickets, got to sit in a special section and got a free t-shirt to wear. My surgical oncologist was there. He was honored along with all of the wonderful doctors, nurses and breast care navigators at halftime. It was an amazing experience. I really wish we could upload pictures. So empowering to be with a group of survivors all in different stages of their journey.

  • Cindi74
    Cindi74 Member Posts: 363
    edited September 2012

    KellyB, I broke a plate once.  I noticed that it had a chip on iit before I smashed it to the floor.  I  understand anger.  For you, with job and young children, this isn't right or fair.  It isn't fair for anyone.  Cancer is the enemy

    ." The United States spends 58 percent of the total defense dollars paid out by the world's top 10 military powers, which combined for $1.19 trillion in military funding in 2011.


    6,280 total US Military Deaths Afghanistan  & Iraq. 

    3033 deaths from Muslim terrorism including 9/11 until today.

     I tried to get the figure for annual cancer deaths, but there are other factors.  We are all going to die of something.  Age must play into it.  This is the best I could do in a brief time.

    "The American Cancer Society estimates that 1,399,790 men and women (720,280 men and 679,510 women) will be diagnosed with and 564,830 men and women will die of cancer of all sites [meaning, of all cancer types] in 2006."

    We need to tell our representatives to spend more on research in preventing and treating cancer instead of defense.  Priorities are screwed up.  There is a good place to direct your anger.  More productive.  Also, to you sisters too young for medicare, no one in this rich country should be denied essential medical care because they don't have insurance.  All should have coverage.  I am an economist, and I tell you we CAN afford it.

    Hugs to all of you.  This site has kept me sane over the last two months. 

  • sherbab
    sherbab Member Posts: 106
    edited September 2012

    Welcome to all of the new ladies here!  It sounds like more and more people are discovering this site by the day.  Definitely a club no one wants to join but it is nice that we can all share and learn together.

     Movinonmom - I am sorry you are faced with making your own decision.  At our house we always said we hoped it would be more cut and dry and it was when we looked at the charts, my MO never really gave us a choice thankfully. 

    Jojo - your hair looks fantastic!  I love it!

    I got my pre-buzz about 8 days ago and had a small melt down this morning when I realized my hair is falling out like a blizzard.  It is not coming out in clumps but definitely coming out.  I was hoping to hold out for the buzz until Saturday but I am not sure that I am going to be able to do it. 

     Here's to another week and the countdown to being done!!  Granted it is going to be a while for many of us here but I count every day down until I am finished mid-January!

     Hugs to all!

  • butterfly14
    butterfly14 Member Posts: 253
    edited September 2012

    Movingonmom, I know I still remember the total disbelief at the word cancer and my name in the same sentence. I couldn't to this day tell anyone with certainty what my doctor said after those words.

    I don't think there is ever a good time to get cancer, like JoJo, my middle child just graduated high school, oldest starting his senior year of college and youngest going into sophomore year. Work doing great, went back to school in January to up my degree and job bidding abilities and bam.....cancer and a crash course in medical terms.

    Bright side laugh, my husband and I decided we may be able to go on a cruise from the money that I will save on hair care products when this is over. Still nervous about losing the hair, DonnaD08, I wish I had your courage to just shave it, my husband said he would when the time comes.

    Anger and fear are such a part of this, i really hope that we all  have the strength to get to the other side, stronger.

    Carla 

  • SandeeAR
    SandeeAR Member Posts: 29
    edited September 2012

    Just got back from Bloodwork #2, after AC #1.   My WBC was 1.7.  They don't want it below 1.5.  Only symptom was being tired.  I got a Leukine shot.  I have to go back for the next two days for another Leukine shot.  Was told I would most likely get them with each chemo from the start now.

     Anyone had this shot before?

  • damiana9
    damiana9 Member Posts: 389
    edited September 2012

    Sherbab- so your hair started falling out already huh? :(    I think mine is very close to that.  My scalp hurts SO BAD today.  I have noticed when I run my hand through my hair that I can quite often come away with about 10 strands in my hand- so, not a ton but definately more than normal.  I am not ready for that part yet!!!

  • DonnaD08
    DonnaD08 Member Posts: 128
    edited September 2012

    Oh Carla. I don't know how courageous I was. I waited until it started to fall out, but then I was anxious to get it over with. I just felt like it was a dark cloud hanging over me. I was pleasantly surprised that I did not hate it. However it is slick bald now (washed all of the buzzed little hairs off one day just to get it over with) I'm not sure that I'm feeling it as much. Fortunately I have my girls (my wigs) and I love them.

  • Kstillie
    Kstillie Member Posts: 22
    edited September 2012

    Wow!! My legs are killing me. Feels like I ran a marathon. I'm assuming this is from the Neulasta shot I had on Saturday? Bring on the pain meds! Stay strong girls!!!

  • DonnaD08
    DonnaD08 Member Posts: 128
    edited September 2012

    @Kstillie Did you try regular Claritin? I take it everyday and so far no pain from Neulesta. Worth a shot.

  • twinsplus1
    twinsplus1 Member Posts: 43
    edited September 2012

    Hi all.  I've been lurking around the site for more than a few weeks now. First, when I was trying to find information on my reconstruction of choice (DIEP Flap) and now for the chemo info.

     I start Cytoxan & Taxotere this Thursday, September 20. I will have one day of chemo with three weeks off for a total of four chemo days. To the best of my knowledge I will be receiving both drugs at the same time; however, from what I can see here, it looks like most of you are receiving one drug and then the other.

    Can anyone tell me if I will feel lethargic/sick/nauseous/flu-like the entire four month period or will it mainly be immediately following the chemo days?

     I'm sorry I sound so uninformed. I am, usually a clear-minded, well-spoken 44-year-old woman. Unfortunately, breast cancer has managed to reduce me to a confused, babbling child!

    Thanks for being patient with me! LOL

     

  • amylovesbubby
    amylovesbubby Member Posts: 53
    edited September 2012

    Hi all!  I am sorry I have not written in a while.  I went through some depression.......I was pretty low/weak for 6 days after 1st A/C treatment and was not sure I was going to be able to handle all of this!  I was so depressed that I wasn't able to be there for my son :(  I saw my MO and he was so very helpful.  He said that he would give me back total control when I was finished with treatment :)  I was upset that after so many years of trying to have a baby, we adopted (2 years ago today) my son.  Everything I had hoped for had come true then BAM......CANCER!!  Boy was I pissed.  I wanted to hit something but I didn't.  Top it off......NO insurance!!  I am better now, although I am sad that we decided to put him in Daycare.  It will give me the chance to rest in the am then nap with him and hopefully have enough strength to spend the rest of the afternoon with him.  I feel like cancer is making all my decisions and I don't like it!!  Like my MO said............this is temporary so I have the rest of my life to be there for my son!!!!!!That's what is getting me through this..................TEMPORARY!!!!!!!!!!  Other than depression and some body aches the SE's are tolerable and hoping they will be better next time with different meds like excedrine for headache.  No hair loss yet (14 days tomorrow)  I am every 21 days so might be soon :(  Ordered hat hair and eyebrows LOL  No look good feel better class here.....canceled tonight.  Any one with depression that wants to call me.......private message me :) 

    Let's KICK this in the ASS for screwing everything up!!!!!!!!!!!!!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited September 2012

    twinsplus1- I am 6 weeks PFC after 6 rounds of Cytoxan/Taxotere.  I'm not sure how much you already know about our chemo regimen.  As the recommendation of my onco to help prevent nail damage, I iced my nails (toes and fingers) and also polished them with clear nail polish.  She had recommended Sally Hansen Hard As Nails clear polish which I initially tried. I found that the polish chipped too easily so I switched to Essie All in One Base which I use along with Essie Mademoiselle (transluscent pink.)   Since I had an onco appt before every chemo, she inspected my nails then.  If ice your nails, you will do so only for the Taxotere infusion.  If you can and are planning to ice your nails, let me know.  I can either private message you what I did and/or give you the link to where I previously posted that info.

    As far as when you might feel the chemo, it is different fot everyone.  I had my chemo on Tuesdays, felt fine enough to run errands, etc on Wednesday & Thursday, felt a little tired/a little yuck on Friday and spent Saturday & Sunday taking it easy and resting.  I took Decadron (steroid) the day before chemo, the day of chemo and the day after chemo.  The Decadron kept me wired so I did not sleep at night very well Wednesday, Thursday and Friday evenings.  I slept well Tuesday evenings after chemo because of the Benedryl and Ativan(anti-anxiety med) I had in my IV.  For those nights I don't sleep well, I don't fret or get anxious about not sleeping.  I just know that I will sleep later but not then.  My taste buds usually went on vacation a few days after getting the chemo which lasted at least a week.  I just ate whatever I could and tried to ignore the fact that the food may look good but not taste the way it normally does.  Perhaps I was lucky that my side effects were minimal and usually recovered after the chemo treatment fairly quickly.  I felt fine the 2nd and 3rd weeks weeks after the chemo round.  I made sure that I ate healthy, rested when my body let me know I needed to rest and got out of the house almost everyday to get some exercise.

    If you need some more info, just private message or post again here!!!!  Ready to help you so you will be ready for Thursday!!!  HUGS...... you will be ready for Thursday!!!!!! 

  • Kstillie
    Kstillie Member Posts: 22
    edited September 2012

    Hi DonnaD08, yep I've taken one every morning so far but still in a lot of pain. Unfortunately it doesn't seem to be working for me. Or if it is working I'd really hate to feel the real pain....so I'll keep taking it just in case. Oh well, and so this journey ensues.

  • Amy4978
    Amy4978 Member Posts: 473
    edited September 2012

    I chopped may hair even shorter and feel the black cloud Donna has spoke of... Its def looming overhead and my hair is gonna be on its way out real soon!

    I have not yet gotten angry I have just been rolling with it and taking each day in stride. I can say that I am getting more depressed as wednesday approaches for my second round on dose dense A/C. When you feel good and have to go make yourself sick it is just backwards..

    Hope all of you ladies are hanging in there and doing what it takes to show cancer who the real boss is!

     I will be getting my ninja blender o0n wednesday so I will really be able to make some amazing smoothies that will pack a punch. 

    Hugs to all and I will touch base on wednesday to fill you all in on how I feel. I plan to start claritin tomorrow in preperation for the so lovely nuelasta shot on Thursday.. Fun Fun

    Off to bed with my melatonin in hand... Much love and support to all of you!

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